Still waiting to see if they will list me. So originally it was that the center would work with me, but after hearing that I have a mass on my adrenal gland and kidney, the brakes went on. So the surgeons are waiting to see my CT scan which I'm guessing is the same as an MRI because that's what I had. Keep me in your prayers, your good thoughts, whatever can give me some luck. I'm just hanging on and being hopeful. I am not sure what I'll do if they won't list me, but I know that I will keep on keepin on and see what I can do.
As a person with a spinal cord injury I have things that I deal with in addition to kidney failure. Last week my wheelchair tire popped and I've been riding in my chair that doesn't have air in its tires and I also don't have the feet rests for it. It's been frustrating, but I keep thinking about the good things. 1. I have another chair 2. I can still go to work 3. I can still drive. Those are all things I'm thankful for.
School is going ok. I'm trying to stay on top. It's been challenging. I've been trying to become a night owl, but I feel like I'm missing sleep as I stay up and not to mention I've been snacking on Tostitos and Vanilla wafers... okay I had a Klondike bar. I'm going to have to figure out some low cal snacks.
So to sum up my life right now. Listing, Wheelchair. School... oh shucks I forgot work and family.
Work has been fun. One of my students brought me flowers, then I turn around and one is complaining about a mistake I made, rightfully so. I had to tell myself sometimes you make mistakes. As hard as I try not to, it happens.
So the surgeon at the center suggested that I reach out to family. I decided to write them all an email about my situation. So already know but I never gave them center information. That's next should they list me.
Positive Vibes only!!
Written by
HipHopQueen
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You are AMAZING. Your good attitude is going to make all the difference. I am hoping that maybe the masses are cysts, which is pretty common and they will be able to do something with medication or even surgery.
About your chair... is there an organization that can support you in getting better one? I know our local ambulance corps have free ones you can borrow. Is there a neighborhood group you can reach out to such as Nextdoor and ask for some help or some financial help to get a new chair?
Keep working towards your goals. I bet you are a fabulous teacher. The kids are so lucky to have such a great role model. I taught high school for a few years. Wow, I do not think I could do it now.
Take care of yourself. The world is blessed to have you in it.
The transplant listing process is daunting for sure. I just recently went through it myself and although they made me active on the list there are some strings attached due to something they saw in my lung on the abdominal/pelvic ct. Keep hanging in there. Praying it is a benign situation and you will be listed soon.
My husband had a benign tumor on his adrenal gland that was making tons of hormone that made his body dump potassium, to the point where he was taking 10-12 huge pills of it per day. He had it removed and the potassium problem is caused went away. Of course, that was about 9 years ago, but the point is it may be the same kind of thing that you have. Wishing you best of luck and having this work out.
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I'm lucky my insurance is good. I think I just keep picking the wrong vehicles (chairs). I'll get it right!
