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It's a mystery...
My husband is 2.5 years post kidney transplant. He has done well up until recently when he began having chronic diarrhea. This went on for 6 days before he was hospitalized due to severe dehydration. After every test under the sun and 6 days of IV fluids, his kidney function levels climbed back up to
My husband is 2.5 years post kidney transplant. He has done well up until recently when he began having chronic diarrhea. This went on for 6 days before he was hospitalized due to severe dehydration. After every test under the sun and 6 days of IV fluids, his kidney function levels climbed back up to
Advocate4life
in
Kidney Transplant
6 days ago
Low Blood Pressure solutions
I am currently on dialysis after my 15 year kidney transplant diminished in function. My BP has been low…below 100 systolic, ….likely due to taking Propafenone & Metatoporal for my AFib. Dialysis also contributes to my low BP. Low consistently is hard on kidney health. Does any one out there have
I am currently on dialysis after my 15 year kidney transplant diminished in function. My BP has been low…below 100 systolic, ….likely due to taking Propafenone & Metatoporal for my AFib. Dialysis also contributes to my low BP. Low consistently is hard on kidney health. Does any one out there have
Tashikat
in
Kidney Transplant
7 days ago
First International Trip after Kidney Transplant
Heyactually I'm planning to travel to Dubai, my first trip outside India, but I'm uncertain about the food options. I'm worried about eating outside and wondering if I'll find suitable food. This concern is making me reconsider my travel plans. Pls guide what to do...
Heyactually I'm planning to travel to Dubai, my first trip outside India, but I'm uncertain about the food options. I'm worried about eating outside and wondering if I'll find suitable food. This concern is making me reconsider my travel plans. Pls guide what to do...
neet24
in
National Foundation for Transplants
8 days ago
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First International Trip after Kidney Transplant
Heyactually I'm planning to travel to Dubai, my first trip outside India, but I'm uncertain about the food options. I'm worried about eating outside and wondering if I'll find suitable food. This concern is making me reconsider my travel plans. Pls guide what to do...
Heyactually I'm planning to travel to Dubai, my first trip outside India, but I'm uncertain about the food options. I'm worried about eating outside and wondering if I'll find suitable food. This concern is making me reconsider my travel plans. Pls guide what to do...
neet24
in
Kidney Transplant Patient Support
8 days ago
Cogan's syndrome
Hello! Does anyone here have Cogan's syndrome? I was diagnosed last year. My symptoms started straight after my second COVID vaccine and worsened after my 3rd. I'm on Mycophenolate but think I'm becoming less tolerant to it. I feel sedated weak and nauseous. Has anyone else had this?
Hello! Does anyone here have Cogan's syndrome? I was diagnosed last year. My symptoms started straight after my second COVID vaccine and worsened after my 3rd. I'm on Mycophenolate but think I'm becoming less tolerant to it. I feel sedated weak and nauseous. Has anyone else had this?
Popple18
in
Vasculitis UK
9 days ago
Kidney Cysts?
I’m so pleased I went to Guys for referral. Not only did they spot low iron, which despite having three monthly bloods my local Haematology dept failed to spot, also Guys asked for an ultra sound on my Abdomen. The results came back today indicating that I had a cyst on my Kidney, and that it was not
I’m so pleased I went to Guys for referral. Not only did they spot low iron, which despite having three monthly bloods my local Haematology dept failed to spot, also Guys asked for an ultra sound on my Abdomen. The results came back today indicating that I had a cyst on my Kidney, and that it was not
Plavers
in
MPN Voice
12 days ago
Haemodialysis and insomnia
Morning EveryoneLooking for a bit of advice and just to have a little rant ☹️... Since i started Haemodialysis approx 30 months ago, I have issues with getting a good sleep. Most dialysis patients I talk to, seem to sleep a lot. However I just can't sleep. I am tired but as soon as I go to bed, im awake
Morning EveryoneLooking for a bit of advice and just to have a little rant ☹️... Since i started Haemodialysis approx 30 months ago, I have issues with getting a good sleep. Most dialysis patients I talk to, seem to sleep a lot. However I just can't sleep. I am tired but as soon as I go to bed, im awake
Ziggydoodah
in
Kidney Dialysis
13 days ago
Older Patients and Gains from Dialysis
Hello, I am the sister and legal guardian of my 60 year old brother who has stage 5 CKD and has completed part 1 of 2 AVF-creation surgeries. We are preparing for dialysis, however, I was made aware of newly released (8/20/2024) study: https://www.acpjournals.org/doi/10.7326/M23-3028 that
Hello, I am the sister and legal guardian of my 60 year old brother who has stage 5 CKD and has completed part 1 of 2 AVF-creation surgeries. We are preparing for dialysis, however, I was made aware of newly released (8/20/2024) study: https://www.acpjournals.org/doi/10.7326/M23-3028 that
kdonlevy11
in
Kidney Dialysis
15 days ago
📚14-08-2024 Surprising mechanism of lupus kidney damage identified
I am wondering if lupus/UCTD patients are tested in their follow-up appointments about all these recent discoveries🤔 🧾 Key cells behind severe kidney damage in lupus identified • A research team led by Charité – Universitätsmedizin Berlin has identified a small population of immune cells called innate
I am wondering if lupus/UCTD patients are tested in their follow-up appointments about all these recent discoveries🤔 🧾 Key cells behind severe kidney damage in lupus identified • A research team led by Charité – Universitätsmedizin Berlin has identified a small population of immune cells called innate
Naladog
in
LUPUS UK
18 days ago
Flomax long-term?
I've been on Flomax (tamsulosin) since my positive biopsy in June 2022. In that time, I've had 2 years of ADT and 44 sessions of proton radiation, and am now done with treatments and all other drugs for the time being. It was initially prescribed at 2x/day, which was helpful during and after radiation
I've been on Flomax (tamsulosin) since my positive biopsy in June 2022. In that time, I've had 2 years of ADT and 44 sessions of proton radiation, and am now done with treatments and all other drugs for the time being. It was initially prescribed at 2x/day, which was helpful during and after radiation
Atdabeach
in
Advanced Prostate Cancer
20 days ago
Tramadol/tramacet
Hi. I've gotten of pexola and circadin(melatonin, which made my rls worst)with many sleepless nights.Thereafter I had surgery and was prescribed tramadol for pain. I noticed my rls was so much better while I was on this. So I've started taking one tramadol or tramacet at 7pm Just afraid of going through
Hi. I've gotten of pexola and circadin(melatonin, which made my rls worst)with many sleepless nights.Thereafter I had surgery and was prescribed tramadol for pain. I noticed my rls was so much better while I was on this. So I've started taking one tramadol or tramacet at 7pm Just afraid of going through
AzraCG
in
Restless Legs Syndrome
20 days ago
To radiate or not to radiate?
My metastatic prostate diagnosis was established three years ago by biopsy (Gleason 9) and PMSA that showed "innumerable osseous lesions" throughout my skeleton. I was started on ADT and initially responded well. However, my PSA has now risen to 0.7. So my oncologist ordered a repeat PET/PMSA that
My metastatic prostate diagnosis was established three years ago by biopsy (Gleason 9) and PMSA that showed "innumerable osseous lesions" throughout my skeleton. I was started on ADT and initially responded well. However, my PSA has now risen to 0.7. So my oncologist ordered a repeat PET/PMSA that
Sandiego2
in
Advanced Prostate Cancer
20 days ago
Post Transplant Infection
My wife received kidney from my daughter on 7/9 and both are feeling fine. However on 8/9 my wife had 100 F temp, feeling unwell and was rushed to Tampa General transplant facility. Released after 6 days and feeling very good again. Tacrolimus anti rejection drug reduced from 6 to 3 per day. 8/22 blood
My wife received kidney from my daughter on 7/9 and both are feeling fine. However on 8/9 my wife had 100 F temp, feeling unwell and was rushed to Tampa General transplant facility. Released after 6 days and feeling very good again. Tacrolimus anti rejection drug reduced from 6 to 3 per day. 8/22 blood
alperk
in
Kidney Transplant
24 days ago
Tumor Lysis Syndrome
Anyone have this happen after a treatment? I am well aware of all the symptoms and events but was wondering if anyone experienced this while getting treatments. My potassium level had gone from 5.4 to 7.0 after treatment a week beforehand and was told by the Oncologist to get to the ER ASAP. ER tested
Anyone have this happen after a treatment? I am well aware of all the symptoms and events but was wondering if anyone experienced this while getting treatments. My potassium level had gone from 5.4 to 7.0 after treatment a week beforehand and was told by the Oncologist to get to the ER ASAP. ER tested
PARKER3237
in
Advanced Prostate Cancer
25 days ago
Medicine
I have had my kidney transplant for 21 years now. Went to the Transplant Center last week and they took me off one of my transplant medicines has anyone else had been able to quit lmuran.
I have had my kidney transplant for 21 years now. Went to the Transplant Center last week and they took me off one of my transplant medicines has anyone else had been able to quit lmuran.
Sally03
in
Kidney Transplant
26 days ago
Low pulse
Hi Back on dialysis after nearly 30 years with transplant. Having problems with heart rate dropping. 35 pulse is regular at the mo. Cardiologist is talking about a pacemaker. Has anyone else had same problem and what did you do? thank you
Hi Back on dialysis after nearly 30 years with transplant. Having problems with heart rate dropping. 35 pulse is regular at the mo. Cardiologist is talking about a pacemaker. Has anyone else had same problem and what did you do? thank you
DoylerOz
in
Kidney Dialysis
27 days ago
Drinking a beer?
Simple question..... has anyone had beer since their transplant? I'm 16 months post kidney transplant. A neighbor next door came in from out of state with one of my favorite beers (not sold in our state). He wants to bring one over and enjoy one with me. I have not had one since transplant so just
Simple question..... has anyone had beer since their transplant? I'm 16 months post kidney transplant. A neighbor next door came in from out of state with one of my favorite beers (not sold in our state). He wants to bring one over and enjoy one with me. I have not had one since transplant so just
Tankjsl
in
Kidney Transplant
28 days ago
Does the acute kidney injury mislead the PSA number?
I am doing clinical trials - ARX517. I think i have its side effect that include protein in urine, pulse in urine and also creatine level is up clinical trials update here : https://healthunlocked.com/advanced-prostate-cancer/posts/150713089/nct04662580-all-about-arx517-as-monotherapy Question is
I am doing clinical trials - ARX517. I think i have its side effect that include protein in urine, pulse in urine and also creatine level is up clinical trials update here : https://healthunlocked.com/advanced-prostate-cancer/posts/150713089/nct04662580-all-about-arx517-as-monotherapy Question is
God_Loves_Me
in
Advanced Prostate Cancer
28 days ago
C25K Wk3🏃♀️WOW oh WOW
Curiosity usually kills the cat right ???? Well not this kitty 👌👌👌 Ohhhhhhhh my bloody goddddddddd This is absolutely Mental and I’m still astounded, last week I struggled the 90sec run now today I managed 3 min runs plus 90sec ones with ease ….. HOW ?? Well seems there’s a few things that
Curiosity usually kills the cat right ???? Well not this kitty 👌👌👌 Ohhhhhhhh my bloody goddddddddd This is absolutely Mental and I’m still astounded, last week I struggled the 90sec run now today I managed 3 min runs plus 90sec ones with ease ….. HOW ?? Well seems there’s a few things that
HAPPYPLODDER18
in
Couch to 5K
28 days ago
covid with ADT
Completed my Prostate radiation treatments on July 11. I am on ADT (Orgovyx, Abiraterone, prednisone), and Flomax. The ADT will coninue for at least 2 years. Last week, tested positive for Covid; put on Paxlovid- was advised to stop Flomax while on Paxlovid. Continuing with the other meds. Was told,
Completed my Prostate radiation treatments on July 11. I am on ADT (Orgovyx, Abiraterone, prednisone), and Flomax. The ADT will coninue for at least 2 years. Last week, tested positive for Covid; put on Paxlovid- was advised to stop Flomax while on Paxlovid. Continuing with the other meds. Was told,
Sushupthi
in
Advanced Prostate Cancer
30 days ago
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