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Vasculitis Awarenes Month
May is vasculitis awareness month. Microscopic Polyangiitis (MPA) is inflammation of the small and sometimes medium sized blood vessels. It usually affects the renal function and/or lungs. Get a glimpse of Gemma's journey with MPA vasculitis. If you would like to donate to Vasculitis UK, please
May is vasculitis awareness month. Microscopic Polyangiitis (MPA) is inflammation of the small and sometimes medium sized blood vessels. It usually affects the renal function and/or lungs. Get a glimpse of Gemma's journey with MPA vasculitis. If you would like to donate to Vasculitis UK, please
zoe69
Vasculitis UK
in
Vasculitis UK
2 months ago
Laryngitis and lupus
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
pattypatchwork
in
LUPUS UK
4 months ago
New diagnosis
Hi there, I got I'll from glandular fever in my late teens and have been given different diagnosis over the years and now I have been told I have rheumatoid arthritis. I'm hopefully going to start sulfasalazine and just wondered has this been successful for people? I've been so fatigued for so long,
Hi there, I got I'll from glandular fever in my late teens and have been given different diagnosis over the years and now I have been told I have rheumatoid arthritis. I'm hopefully going to start sulfasalazine and just wondered has this been successful for people? I've been so fatigued for so long,
DogsMakeLifeGood
in
NRAS
4 months ago
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TSH 37 - taking Levothyroxine 200mg
hi I was hoping to get some help / advice I have suffered with underactive thyroid for around 4/5 years Started on 75mg Levothyroxine had regular repeat tests over the years and doctor has just increased my Levothyroxine dose each time as my TSH has not reduced my latest result was a TSH of 37
hi I was hoping to get some help / advice I have suffered with underactive thyroid for around 4/5 years Started on 75mg Levothyroxine had regular repeat tests over the years and doctor has just increased my Levothyroxine dose each time as my TSH has not reduced my latest result was a TSH of 37
Jadewhitcombe
in
Thyroid UK
4 months ago
Belimumab treatment
Hi I have lurked on this site for years but now after reoccurring pericarditis my treatment for lupus will change. I need advice and have questions I've been in Plaqunail and methotrexate for years and tapering off prendsisone at the moment. The pericarditis comes back when I taper off the steriod
Hi I have lurked on this site for years but now after reoccurring pericarditis my treatment for lupus will change. I need advice and have questions I've been in Plaqunail and methotrexate for years and tapering off prendsisone at the moment. The pericarditis comes back when I taper off the steriod
Spacecadet73
in
LUPUS UK
4 months ago
Interesting article about curing autoimmune diseases
You don't get to view very many free articles, but the Epoch Times had this to say about potentially curing autoimmune diseases. https://www.theepochtimes.com/health/can-autoimmune-disease-be-cured-scientists-say-we-may-be-close-5579207
You don't get to view very many free articles, but the Epoch Times had this to say about potentially curing autoimmune diseases. https://www.theepochtimes.com/health/can-autoimmune-disease-be-cured-scientists-say-we-may-be-close-5579207
CatsandCars
in
My MSAA Community
4 months ago
REMINDER - This Saturday 2nd March - St Georges Hospital from 9.30am - Medical lecture and Q+A with Dr Kaul!
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture on Saturday 2nd March, from 9.30am. Our agenda for the morning as follows: 09.30 Arrival + refreshments
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture on Saturday 2nd March, from 9.30am. Our agenda for the morning as follows: 09.30 Arrival + refreshments
michaellasmith
Administrator
in
LUPUS UK
4 months ago
Focus group with Kuma Health - 8th March 10.30am until 12pm!
We at Kuma Health are passionate about improving the lives of people with lupus. We're designing new tools and resources to make lupus care easier and more effective, and we need your voice! Join our focus group to share your experiences and help us: • Understand the challenges you face daily • Get
We at Kuma Health are passionate about improving the lives of people with lupus. We're designing new tools and resources to make lupus care easier and more effective, and we need your voice! Join our focus group to share your experiences and help us: • Understand the challenges you face daily • Get
michaellasmith
Administrator
in
LUPUS UK
4 months ago
Have the new guide-lines on B12 deficiency/ Pernicious Anaemia been published yet?
They have been so delayed. .
They have been so delayed. .
wedgewood
in
Pernicious Anaemia Society
4 months ago
Half moons on fingers
Hey guys, I have an underactive thyroid and know the importance of getting vitamin levela checked Is it true that lack of or small half moons can be a sign of deficiencies? Just took a photo or my fingers, what do people think? If zoomed in, can just about see half moon on some
Hey guys, I have an underactive thyroid and know the importance of getting vitamin levela checked Is it true that lack of or small half moons can be a sign of deficiencies? Just took a photo or my fingers, what do people think? If zoomed in, can just about see half moon on some
yewotc23
in
Thyroid UK
4 months ago
Advice needed on thyroxine management
I am hoping someone can advise me about my thyroxine dose. Here's a little background: In September 2023, I was underweight and having trouble gaining weight and suffering from anxiety. I had been on 75mcg of levothyroxine daily for an underactive thyroid. I had recently developed pins and needles
I am hoping someone can advise me about my thyroxine dose. Here's a little background: In September 2023, I was underweight and having trouble gaining weight and suffering from anxiety. I had been on 75mcg of levothyroxine daily for an underactive thyroid. I had recently developed pins and needles
SarrahMay
in
Thyroid UK
4 months ago
Prednisone for treatment of AIG
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
Rexz
in
Pernicious Anaemia Society
4 months ago
always ANA positive with lupus?
hi all, I was diagnosed privately in 2019 with SLE and Sjogrens , but my current GP is querying this, its an ongoing issue and a long story. She has said that if my ANA comes back neg then I don't have lupus or sjorgrens, despite all mys symptoms and being on ongoing treatment for it? My questions
hi all, I was diagnosed privately in 2019 with SLE and Sjogrens , but my current GP is querying this, its an ongoing issue and a long story. She has said that if my ANA comes back neg then I don't have lupus or sjorgrens, despite all mys symptoms and being on ongoing treatment for it? My questions
Foodman500
in
LUPUS UK
11 months ago
Lupus flare
Hi has anyone experience a lupus flare which was tiggered by a suspected infection? Ended up in hospital but they couldnt detect where the infection / virus was dispite full blood tests, urine tests as well as blood and urine culuture tests. Pretty scary.Thanks
Hi has anyone experience a lupus flare which was tiggered by a suspected infection? Ended up in hospital but they couldnt detect where the infection / virus was dispite full blood tests, urine tests as well as blood and urine culuture tests. Pretty scary.Thanks
Flows
in
LUPUS UK
4 months ago
sulfasalazine side effects
Hi. I am on sulfasalazine for mixed connective tissue disease (similar to rheumatoid arthritis and lupus), which I started taking again after many years of my disease being in remission. I was initially on sulfasalazine 10 years ago and it is a horrid medication. Was, and am again, terribly dizzy
Hi. I am on sulfasalazine for mixed connective tissue disease (similar to rheumatoid arthritis and lupus), which I started taking again after many years of my disease being in remission. I was initially on sulfasalazine 10 years ago and it is a horrid medication. Was, and am again, terribly dizzy
girldoc
in
NRAS
4 months ago
New here 🤗
Hi everyone, I’m looking for any information about bloods and Thyroid please. I was diagnosed in 2017 with chronic pain, chronic fatigue and osteoarthritis. I have tried all pain medications the NHS has, and nothing touches the pain. I have had horrendous pain in my feet, left one for over a year,
Hi everyone, I’m looking for any information about bloods and Thyroid please. I was diagnosed in 2017 with chronic pain, chronic fatigue and osteoarthritis. I have tried all pain medications the NHS has, and nothing touches the pain. I have had horrendous pain in my feet, left one for over a year,
Pammygtf
in
Thyroid UK
4 months ago
updated journey
I’m getting so frustrated with this underactive thyroid. My only symptom before I was diagnosed again was unexplained weight gain. I had put on half a stone but hadn’t changed any habits. After starting on levothyroxine I put on another 2 stone. This may have been made worse due to all my joints seizing
I’m getting so frustrated with this underactive thyroid. My only symptom before I was diagnosed again was unexplained weight gain. I had put on half a stone but hadn’t changed any habits. After starting on levothyroxine I put on another 2 stone. This may have been made worse due to all my joints seizing
ScriptMaz
in
Thyroid UK
4 months ago
worried
hi I was diagnosed with nafld in November and told to lose weight I was about 2 stone overweight I have now hit healthy weight but my liver is showing still problems in the bloods so I have now been referred for autoimmune screening and mri scan also my urine is very dark have anyone gone through this
hi I was diagnosed with nafld in November and told to lose weight I was about 2 stone overweight I have now hit healthy weight but my liver is showing still problems in the bloods so I have now been referred for autoimmune screening and mri scan also my urine is very dark have anyone gone through this
Candycru
in
British Liver Trust
4 months ago
Posterior subcapsular cataracts surgery
I am 2 years post kidney transplant due to PKD. I went to a routine eye exam yesterday and after a retinal scan was told I need to have cataract surgery, sooner rather than later, as this type of cataract progresses quickly. Anyone have this issue? Any pre/post eye surgery precautions related to
I am 2 years post kidney transplant due to PKD. I went to a routine eye exam yesterday and after a retinal scan was told I need to have cataract surgery, sooner rather than later, as this type of cataract progresses quickly. Anyone have this issue? Any pre/post eye surgery precautions related to
Oceansideup
in
Kidney Transplant
9 months ago
UTI/AF
Since having a kidney transplant I am bothered with UTI's which quickly clears up after taking antibiotics. I also have a PAF episode more or less within a day or two of this. Has anyone else noticed having AF when also having an infection? My potassium and magnesium levels are lower than normal when
Since having a kidney transplant I am bothered with UTI's which quickly clears up after taking antibiotics. I also have a PAF episode more or less within a day or two of this. Has anyone else noticed having AF when also having an infection? My potassium and magnesium levels are lower than normal when
Mismarswe
in
AF Association
9 months ago
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