Kidney transplant: Hi Everyone, I just... - Kidney Disease

Kidney Disease

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Kidney transplant

Lee75glom profile image
5 Replies

Hi Everyone,

I just joined. My kidneys are at 10-12 EGFR and I am striving to find a living donor. I have some resources to do so, but I am wondering what others have done to search for a living donor. I also wonder what others in this situation have done for transportation to a major transplant center, specifically Perelman Center for Advance Medicine at the Hospital of the University of Pennsylvania. I have trouble finding people to help with that. Thank you.

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Lee75glom
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Kbressler profile image
KbresslerNKF Peer MentorNKF Ambassador

Kidneysolutions.org

Bunkin profile image
Bunkin

Hi, i had a friend who did a fb campaign with my story and she hired a photographer to take pictures of me at home so people could have a picture of my life. I got several donor volunteers and my cousin really wanted to do it and we were a match. That was 2 years 8 months ago. My GFR was 2

allene7 profile image
allene7 in reply toBunkin

I'm so happy you got your kidney and all is well. I'm waiting no dialysis yet gfr is 12 hoping to get a kidney prior to dialysis. Almost had one a couple months ago, but things just didn't work out so it didn't happen. That's all we can do is wait. I'm so hoping they get busy on the bioartificial kidney I think it's very promising if they can get funding.

Bunkin profile image
Bunkin in reply toallene7

Same thing happened to me. Had someone lined up and they ghosted me after testing . But about 3 months later my cousin contacted me that she wanted to be my donor. It was Gods plan!

Blackknight1989 profile image
Blackknight1989

Here is a link from NKF on living donation called “How to Make the Ask.” It outlines all the steps necessary to seek a living donor for transplantation. NKF and sites like it have good info on how to run a campaign to find a living donor. My best to you on you journey to a living transplant!

kidney.org/transplantation/...

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