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Kidney diseases in childhood
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CD20 Therapies (Ocrevus, Kesimpta, etc.) and potentially serious dental problems
This was an interesting post on the MS-blog. You have to get past the Dustin Hoffman in Marathon Man reference (which was a memorable scene!) to get down to the nitty gritty of why dental hygiene and regular checkups are so critical when when you're on certain MS therapies. https://multiple-sclerosis-research.org
This was an interesting post on the MS-blog. You have to get past the Dustin Hoffman in Marathon Man reference (which was a memorable scene!) to get down to the nitty gritty of why dental hygiene and regular checkups are so critical when when you're on certain MS therapies. https://multiple-sclerosis-research.org
CatsandCars
in
My MSAA Community
4 months ago
Difference in levels-stress?
I've been on leventhyroxine for years for underactive thyroid. Had yearly check muddle of Feb. TSH 2.09. Had full bloods for something else (WRS) and levels are 0.36 by middle if April. I'm wondering if stress can cause TSH to go up or down? Dr. Says this is in normal range for lab- but normal
I've been on leventhyroxine for years for underactive thyroid. Had yearly check muddle of Feb. TSH 2.09. Had full bloods for something else (WRS) and levels are 0.36 by middle if April. I'm wondering if stress can cause TSH to go up or down? Dr. Says this is in normal range for lab- but normal
Itsallaboutcheese
in
Thyroid UK
4 months ago
rheumatoid arthritis
Has anyone had an operation on elbow from rheumatoid arthritis? Did it help?
Has anyone had an operation on elbow from rheumatoid arthritis? Did it help?
65_women
in
NRAS
4 months ago
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The Queen is still gonna shine even in the rain
I think it is easy for me to be positive because I am not on dialysis. I think and hope a kidney donor is around the corner. I don't only hope for myself, but I wish more people would donate. I have to remember when I was healthy donating was not even on my radar and I remember one time one of my friends
I think it is easy for me to be positive because I am not on dialysis. I think and hope a kidney donor is around the corner. I don't only hope for myself, but I wish more people would donate. I have to remember when I was healthy donating was not even on my radar and I remember one time one of my friends
HipHopQueen
in
Kidney Dialysis
1 year ago
Thyroid or menopause - which to sort first?
I've just checked the app, and the last of my blood tests are back. I definitely have started perimenopause and as per my last post I have high TPOab, high TSH (7.5 with high ref being 4.26), and lowish T4 (14.2 of a 12—22 range). I have symptoms that overlap the two conditions, but also symptoms that
I've just checked the app, and the last of my blood tests are back. I definitely have started perimenopause and as per my last post I have high TPOab, high TSH (7.5 with high ref being 4.26), and lowish T4 (14.2 of a 12—22 range). I have symptoms that overlap the two conditions, but also symptoms that
Heappestre
in
Thyroid UK
4 months ago
PA and Sjogren’s
I posted a few days ago about dry mouth and eyes, but since then my early sjogrens bloodwork has come back positive. I am terrified! Is there anyone else who has AIG/PA and also sjogrens? I feel desperately in need of some hope and guidance…in particular I’m wondering if injections have helped with SS
I posted a few days ago about dry mouth and eyes, but since then my early sjogrens bloodwork has come back positive. I am terrified! Is there anyone else who has AIG/PA and also sjogrens? I feel desperately in need of some hope and guidance…in particular I’m wondering if injections have helped with SS
Lhood08
in
Pernicious Anaemia Society
4 months ago
Updated Lupus and the Skin booklet available now
We are proud to launch an updated version of our Lupus and the Skin information booklet. It is now available online and in hard copy from National Office. You can find more information about how the booklet was updated here: https://lupusuk.org.uk/updated-lupus-and-the-skin-booklet-available-now/ or
We are proud to launch an updated version of our Lupus and the Skin information booklet. It is now available online and in hard copy from National Office. You can find more information about how the booklet was updated here: https://lupusuk.org.uk/updated-lupus-and-the-skin-booklet-available-now/ or
Debbie_kinsey
Administrator
in
LUPUS UK
4 months ago
Intrinsic factor antibody
I'm posting on here as I been advised to. I've just been back to my GP because I had a blood test done the other week for intrinsic factor antibody. I had a result of 3.66 which I thought was positive but my GP just said it's negative ? I had the test done because my vitamins b12 is 211.
I'm posting on here as I been advised to. I've just been back to my GP because I had a blood test done the other week for intrinsic factor antibody. I had a result of 3.66 which I thought was positive but my GP just said it's negative ? I had the test done because my vitamins b12 is 211.
suzybear
in
Pernicious Anaemia Society
10 months ago
TIA in March
Hi, l recently had a mild TIA while in Cyprus where l live the treatment l received was excellent but the Neuroligist has prescribed Atvorstatin which l have found out shouldn’t be taken if you have an underactive Thyroid he dismissed this. Should l see my GP whilst l am in UK
Hi, l recently had a mild TIA while in Cyprus where l live the treatment l received was excellent but the Neuroligist has prescribed Atvorstatin which l have found out shouldn’t be taken if you have an underactive Thyroid he dismissed this. Should l see my GP whilst l am in UK
Tillybuds
in
Thyroid UK
4 months ago
Generic TCZ---is it available in the UK?
My friends, Without this forum, my GCA journey would have been entirely different. You have all been there to support me, educate me, and reinforce me when I thought I was sinking. It has always made me sad that TCZ is only available to GCA patients for one year, subject to review for an additional
My friends, Without this forum, my GCA journey would have been entirely different. You have all been there to support me, educate me, and reinforce me when I thought I was sinking. It has always made me sad that TCZ is only available to GCA patients for one year, subject to review for an additional
Grammy80
in
PMRGCAuk
4 months ago
Sipuleucel-T (Provenge®) Will it work for PC?
Will this immunotherapy vaccine treatment work for PC?
Will this immunotherapy vaccine treatment work for PC?
Stevegr
in
Advanced Prostate Cancer
4 months ago
Thyroid ultrasound
HiHad pain in side of neck and behind ears. Gp sent me for thyroid ultrasound as have underactive thyroid and hashimotos. Ultrasound was 2 minutes long and even the assistant tech said that was quick. Has anybody else had a thyroid scan that quick? Felt like he started scan then just stopped. Wierd
HiHad pain in side of neck and behind ears. Gp sent me for thyroid ultrasound as have underactive thyroid and hashimotos. Ultrasound was 2 minutes long and even the assistant tech said that was quick. Has anybody else had a thyroid scan that quick? Felt like he started scan then just stopped. Wierd
Jenni55
in
Thyroid UK
4 months ago
Notes for upcoming GP appointment
Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May, with a doctor I've not seen before and who is relatively new to the practice. I'm wanting to ask for a Rheumatology referral and have written the below out as a crib sheet for me to take in. I'd appreciate any thoughts
Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May, with a doctor I've not seen before and who is relatively new to the practice. I'm wanting to ask for a Rheumatology referral and have written the below out as a crib sheet for me to take in. I'd appreciate any thoughts
Wispymisty
in
LUPUS UK
4 months ago
Another cause of Pernicious Anaemia?
We know that certain gastric operations cause Pernicious Anaemia and therefore lifelong b12 injections are required . But what I’ve never seen mentioned is the possibility of radiotherapy cancer treatment in the region of the stomach that contains the parietal cells , causing Pernicious Anaemia . Surely
We know that certain gastric operations cause Pernicious Anaemia and therefore lifelong b12 injections are required . But what I’ve never seen mentioned is the possibility of radiotherapy cancer treatment in the region of the stomach that contains the parietal cells , causing Pernicious Anaemia . Surely
wedgewood
in
Pernicious Anaemia Society
4 months ago
Webinar - Navigating Arthritis: The Young Adult Perspective
Please join our next webinar Navigating Arthritis: The Young Adult Perspective, where we will discuss what it’s like to live with arthritis at a younger age. From navigating symptoms, looking after physical and emotional health, socialising and managing relationships, to taking control of medical appointments
Please join our next webinar Navigating Arthritis: The Young Adult Perspective, where we will discuss what it’s like to live with arthritis at a younger age. From navigating symptoms, looking after physical and emotional health, socialising and managing relationships, to taking control of medical appointments
arthritis_action
Partner
in
Arthritis Action
4 months ago
Johnny
just been diagnosed with lupus . I’m 55 and would like advice on how to control symptoms and what foods or supplements help
just been diagnosed with lupus . I’m 55 and would like advice on how to control symptoms and what foods or supplements help
Johnnyfay
in
LUPUS UK
4 months ago
Tuesday's Tips
[i]
Two of the common conditions associated with PBC are thyroid conditions and with those that cause anemia. This is because they both have shared genetic factors that affect our immune response.
[/i] [i]
An underactive thyroid is caused by an autoimmune response to the gland itself.
[
[i]
Two of the common conditions associated with PBC are thyroid conditions and with those that cause anemia. This is because they both have shared genetic factors that affect our immune response.
[/i] [i]
An underactive thyroid is caused by an autoimmune response to the gland itself.
[
DonnaBoll
Administrator
in
PBC Foundation
18 days ago
Novel Drug Made of Gold Nanocrystals Appears Safe in Multiple Sclerosis
Small study suggested benefits for MS patients with chronic optic neuropathy
https://www.medpagetoday.com/meetingcoverage/aan/109777?xid=nl_mpt_DHE_2024-04-22&eun=g588185d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=Daily%20Headlines%20Evening%202024-04-22&utm_term=NL_Daily_DHE_dual-gmail-definition
Small study suggested benefits for MS patients with chronic optic neuropathy
https://www.medpagetoday.com/meetingcoverage/aan/109777?xid=nl_mpt_DHE_2024-04-22&eun=g588185d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=Daily%20Headlines%20Evening%202024-04-22&utm_term=NL_Daily_DHE_dual-gmail-definition
BettysMom
in
My MSAA Community
4 months ago
Multiple Sclerosis Predicted by Autoantibody Signature
A specific autoantibody signature was seen in a subset of people with multiple sclerosis (MS) long before clinical symptoms appeared, blood samples showed.
https://www.medpagetoday.com/neurology/multiplesclerosis/109767?xid=nl_mpt_morningbreak2024-04-22&eun=g588185d0r&utm_source=Sailthru
A specific autoantibody signature was seen in a subset of people with multiple sclerosis (MS) long before clinical symptoms appeared, blood samples showed.
https://www.medpagetoday.com/neurology/multiplesclerosis/109767?xid=nl_mpt_morningbreak2024-04-22&eun=g588185d0r&utm_source=Sailthru
BettysMom
in
My MSAA Community
4 months ago
Survey about patient care
Do you live with vasculitis, lupus, scleroderma or Sjögren's syndrome and are a UK resident? Please participate in the survey : https://ipsos.uk/RAIRDAsurvey2024 The aim of the survey is to provide valuable insights into what is working well and areas of improvement in patients' care. The survey in
Do you live with vasculitis, lupus, scleroderma or Sjögren's syndrome and are a UK resident? Please participate in the survey : https://ipsos.uk/RAIRDAsurvey2024 The aim of the survey is to provide valuable insights into what is working well and areas of improvement in patients' care. The survey in
zoe69
Vasculitis UK
in
Vasculitis UK
4 months ago
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