Parathyroid : I am booked in for a... - Hughes Syndrome A...

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Parathyroid

Raschen profile image
5 Replies

I am booked in for a Parathyroidectomy and I just wondered whether my APS, as an autoimmune disease, could have had something to do with parathyroid condition? Thank you.

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Raschen profile image
Raschen
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MaryF profile image
MaryFAdministrator

Hi, the relationship is the fact that they are autoimmune diseases, pubmed.ncbi.nlm.nih.gov/169... MaryF

Vailea profile image
Vailea

Hi Raschen I had a Parathyroidectomy 10 years ago which was before I was diagnosed with APS (Although I think I did have it then ) . Looking back and hearing from others it seems there is a link but I can’t categorically say what . My Parathyroid Operation was done in Tampa by Dr Jim Norman it took 13 mins under sedation and when I came around the difference in how I felt was like night and day . I hope you get on ok . Look up the Parathyroid Centre and Dr Jim Norman . It’s very educational and informative.

Raschen profile image
Raschen in reply toVailea

Thank you very much for your message and very pleased you had an excellent experience and outcome in the US.

I have seen Dr Norman’s centre in Tampa online, but expect it thousands?

I have not been told whether I’m having an open or targeted op to remove the one adenoma seen on scans. I’m worried about complications, especially damage to the vocal nerve.

Vailea profile image
Vailea in reply toRaschen

I was lucky my op was covered by Insurance I was only in hospital about 5 hours and then allowed back to hotel and ate as normal that evening . I flew home the next day. No damage to vocal cords and have a tiny one inch scar . I had to take the oral calcium regime but honestly it was so worth it .

Raschen profile image
Raschen in reply toVailea

Thank you for sharing your experience. If I had health insurance I would definitely do the same. Hoping to find an excellent surgeon in the UK!

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