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Juvenile idiopathic arthritis
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Thought for the day
Should we think about campaigning to get Rheumatoid included in The NHS list of long term conditions.?
Should we think about campaigning to get Rheumatoid included in The NHS list of long term conditions.?
vonniesims
in
NRAS
4 years ago
Newly diagnosed
Hi had white fingers for years but recently been worse and turning black only affecting one side, I also have hand arthritis, fingers are getting worse have no energy and find it difficult to walk as I’m in so much pain, went to drs and said it was Raynaud’s phenomenon and put other symptoms down to
Hi had white fingers for years but recently been worse and turning black only affecting one side, I also have hand arthritis, fingers are getting worse have no energy and find it difficult to walk as I’m in so much pain, went to drs and said it was Raynaud’s phenomenon and put other symptoms down to
Sixtiesmod
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Help!!
After diagnosed for R.A. 4 years ago, having infusions of Actemera, then Orincia, and taking all the usual oral meds, Methatrexate, plaquinal, prednisone, I’m getting worse. Loss of weight, and unsteadiness . Now, I’m being told I have Rheumatoid Vasculitis. What’s the test for this and treatment?
After diagnosed for R.A. 4 years ago, having infusions of Actemera, then Orincia, and taking all the usual oral meds, Methatrexate, plaquinal, prednisone, I’m getting worse. Loss of weight, and unsteadiness . Now, I’m being told I have Rheumatoid Vasculitis. What’s the test for this and treatment?
Jollytime
in
NRAS
4 years ago
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NRAS Webinar on 'Being Newly Diagnosed with RA'
Hi everyone! Really pleased to let you know that we have our first Webinar of 2020 booked in. Its taking place on
Tuesday 10th March, 7pm-8:15pm
(UK time) and the subject is “
Being Diagnosed with Rheumatoid Arthritis
” by Dr James Galloway. Here is a short synopsis on what information
Hi everyone! Really pleased to let you know that we have our first Webinar of 2020 booked in. Its taking place on
Tuesday 10th March, 7pm-8:15pm
(UK time) and the subject is “
Being Diagnosed with Rheumatoid Arthritis
” by Dr James Galloway. Here is a short synopsis on what information
emmab-NRAS
NRAS
in
NRAS
4 years ago
Breathing struggle
Just started app again after diagnosis of spinal arthritis. But I struggle with breathing. I witnessed my dad die struggling to breathe so it brings it all back to me when I'm short of breath. I panic and have to really talk to myself!! Does anyone else understand this?
Just started app again after diagnosis of spinal arthritis. But I struggle with breathing. I witnessed my dad die struggling to breathe so it brings it all back to me when I'm short of breath. I panic and have to really talk to myself!! Does anyone else understand this?
Hidden
in
Couch to 5K
4 years ago
Knee replacement surgery
Have finally gotten down to 2mg prednisone but need knee replacement. What are the odds I will flare?
Have finally gotten down to 2mg prednisone but need knee replacement. What are the odds I will flare?
CEAGLE
in
PMRGCAuk
4 years ago
Tapering
Trying to taper - went from 5 to 4.5 using DSNS method. Was fair with new shoulder discomfort. Tried to go to 4 and couldn't move without pain and so stiff. Went back to 5 and felt better. Been 2.5 years since diagnosis. Guess I'll stay at 5. See rheumy next month and she wants me off or on methotrexate
Trying to taper - went from 5 to 4.5 using DSNS method. Was fair with new shoulder discomfort. Tried to go to 4 and couldn't move without pain and so stiff. Went back to 5 and felt better. Been 2.5 years since diagnosis. Guess I'll stay at 5. See rheumy next month and she wants me off or on methotrexate
barbthy
in
PMRGCAuk
4 years ago
Week 1 done 😁
Week 1 done, so proud of myself but my knee is really hurting me as I have arthritis 😩. Can anyone recommend some running trainers please
Week 1 done, so proud of myself but my knee is really hurting me as I have arthritis 😩. Can anyone recommend some running trainers please
Lion06
in
Couch to 5K
4 years ago
I miss dancing!
Anyone have osteoarthritis along with there fibromyalgia and if so which medication works for you?
Anyone have osteoarthritis along with there fibromyalgia and if so which medication works for you?
22amethyst
in
Fibromyalgia Action UK
4 years ago
Tofacitinib
Hi everyone does anyone take tofacitinib and have high blood pressure and high cholesterol due to taking these tablets thx xx
Hi everyone does anyone take tofacitinib and have high blood pressure and high cholesterol due to taking these tablets thx xx
Beth72
in
NRAS
4 years ago
Costochondris anyone ?
My sister Diane ( 51 yrs ) has this - had to look it up myself - inflammation of the cartilage in the rib cage , can range from mild to severe , caused by virus / bacteria / bad cough / cold , as it’s inflammation wonder if anyone has or had this with rheumatoid arthritis ?
My sister Diane ( 51 yrs ) has this - had to look it up myself - inflammation of the cartilage in the rib cage , can range from mild to severe , caused by virus / bacteria / bad cough / cold , as it’s inflammation wonder if anyone has or had this with rheumatoid arthritis ?
weymouth321
in
NRAS
4 years ago
RA & Chest Pains "Costochondritis"
Hi everyone, hope you all had a reasonable holiday season to say the least. I have asked this question before I think about chest pains or heart problems while taking methotrexate. I have read a report about RA effecting the bone structure around the chest area. It states "Costochondritis tends to be
Hi everyone, hope you all had a reasonable holiday season to say the least. I have asked this question before I think about chest pains or heart problems while taking methotrexate. I have read a report about RA effecting the bone structure around the chest area. It states "Costochondritis tends to be
Frankiefocus
in
NRAS
4 years ago
Influenza/Tamiflu question
How often during a "flu season" can one take Tamiflu; will it work a second time if one has to repeat it again three weeks later? Grandson, at University, has asthma bad, got off plane 3 weeks ago, 2 days later flu symptoms surfaced, tested...it was Influenza-B, took Tamiflu, recovered quickly. He
How often during a "flu season" can one take Tamiflu; will it work a second time if one has to repeat it again three weeks later? Grandson, at University, has asthma bad, got off plane 3 weeks ago, 2 days later flu symptoms surfaced, tested...it was Influenza-B, took Tamiflu, recovered quickly. He
jmsutt73
in
Lung Conditions Community Forum
4 years ago
New year
Hi folks Quick catch up to see how every one is Hope you all had a good Christmas and a great start to the new year Can I ask what people use for arthritis I was told not to use ibrofen
Hi folks Quick catch up to see how every one is Hope you all had a good Christmas and a great start to the new year Can I ask what people use for arthritis I was told not to use ibrofen
Vonnieruth
in
AF Association
4 years ago
Tapentadol
Has anyone been prescribed tapentadol, for pain relief I have degenerative discs, and nerve impingement in lower back, waiting on injection,
Has anyone been prescribed tapentadol, for pain relief I have degenerative discs, and nerve impingement in lower back, waiting on injection,
Maggiedoos1
in
Arthritis Action
4 years ago
Running with psoriatic arthritis
My Mum Suffers really bad with psoriatic arthritis and after 1 run on Monday she is still really hurting. Does anyone on here have this and if so can you advise on any coping strategies? She had a strap on her knee and managed to run 40seconds each time before her knee became painful. I don’t want this
My Mum Suffers really bad with psoriatic arthritis and after 1 run on Monday she is still really hurting. Does anyone on here have this and if so can you advise on any coping strategies? She had a strap on her knee and managed to run 40seconds each time before her knee became painful. I don’t want this
MrsHobbs3108
in
Couch to 5K
4 years ago
Dry eyes
Hello, I have active rheumatoid arthritis for 8 years and I get a problem with dry eyes which feels like having sand in my eyes which has been particularly bad the past few days. Does anyone know if this is a side effect of the rheumatoid arthritis and if so what can be done about it. I take the following
Hello, I have active rheumatoid arthritis for 8 years and I get a problem with dry eyes which feels like having sand in my eyes which has been particularly bad the past few days. Does anyone know if this is a side effect of the rheumatoid arthritis and if so what can be done about it. I take the following
ma73jon
in
NRAS
4 years ago
Urea and Electrolytes
Serum Sodium range 133 - 146 Can I have some help please? In the last 5months my reading has been <133. What can I do to try to get it within the range?
Serum Sodium range 133 - 146 Can I have some help please? In the last 5months my reading has been <133. What can I do to try to get it within the range?
prunus
in
PMRGCAuk
4 years ago
Eyes
Just to let everyone know, If your eyes are bothering you get them checked!! I’ve just been diagnosed with blepharitis, brought on by rheumatoid arthritis ☹️ It definitely keeps giving!!
Just to let everyone know, If your eyes are bothering you get them checked!! I’ve just been diagnosed with blepharitis, brought on by rheumatoid arthritis ☹️ It definitely keeps giving!!
Pinkplum
in
NRAS
4 years ago
Tiredness ! Advice
I work full time shift work and have recently been feeling exhausted I take methotrexate on Saturday and today my whole shift has passed in a cloud of exhaustion Is this tiredness due to the methotrexate or arthritis Thank you!
I work full time shift work and have recently been feeling exhausted I take methotrexate on Saturday and today my whole shift has passed in a cloud of exhaustion Is this tiredness due to the methotrexate or arthritis Thank you!
cpr02
in
NRAS
4 years ago
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