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Joint hypermobility syndrome
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PBC and Joint Hypermobility Syndrome
Hi, I have
joint
hypermobility
syndrome
and possible PBC. I was just wondering if anyone else has the same two health issues. It would be nice to speak to someone is going through the same things as me.
Hi, I have
joint
hypermobility
syndrome
and possible PBC. I was just wondering if anyone else has the same two health issues. It would be nice to speak to someone is going through the same things as me.
MSJT
in
PBC Foundation
3 months ago
Raynauds and Hypermobility
Hello, I've been diagnosed with primary Raynauds which is getting worse. I've had blood tests to rule out other conditions, but they've all been negative. Should I be pushing for a nailfold capillorthingy (technical term...)? I've also got colitis, irritable bladder, some joint hypermobility so I'm
Hello, I've been diagnosed with primary Raynauds which is getting worse. I've had blood tests to rule out other conditions, but they've all been negative. Should I be pushing for a nailfold capillorthingy (technical term...)? I've also got colitis, irritable bladder, some joint hypermobility so I'm
Boudica78
in
Scleroderma & Raynaud's UK (SRUK)
6 days ago
newly diagnosed
Hi all, I was diagnosed around two days ago with fibromyalgia and hypermobility syndrome (eds), although I’ve been struggling for a while now, I’m struggling to take in the diagnosis, I was just wondering if anyone had any advice to give or suggestions on what to do next. Thanks in advance :) x
Hi all, I was diagnosed around two days ago with fibromyalgia and hypermobility syndrome (eds), although I’ve been struggling for a while now, I’m struggling to take in the diagnosis, I was just wondering if anyone had any advice to give or suggestions on what to do next. Thanks in advance :) x
Pink_piglet
in
Fibromyalgia Action UK
1 month ago
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Could my son have Ehlers-Danlos? Who to ask about diagnosis?
Hi everyone, I've joined the group today as I'm not sure if my son has hypermobile EDS and I'm not sure where to turn and what to do next. He has lots of niggly health issues which I'm starting to think might be EDS (or I could be adding 2+2=5). Since he was about 6 months old he has suffered horrendously
Hi everyone, I've joined the group today as I'm not sure if my son has hypermobile EDS and I'm not sure where to turn and what to do next. He has lots of niggly health issues which I'm starting to think might be EDS (or I could be adding 2+2=5). Since he was about 6 months old he has suffered horrendously
CN4321
in
Ehlers-Danlos Support UK
8 months ago
Hypermobility/HEDS recommendation?
Hi there. Thanks for taking the time to read my post. I posted on the EDS forum but it’s not very active and no response yet. I have recently been diagnosed with PoTs and have fibromyalgia and erythromelalgia. I’m in the watch and wait category I believe for auto immune inc lupus but at my recent autonomics
Hi there. Thanks for taking the time to read my post. I posted on the EDS forum but it’s not very active and no response yet. I have recently been diagnosed with PoTs and have fibromyalgia and erythromelalgia. I’m in the watch and wait category I believe for auto immune inc lupus but at my recent autonomics
Winter_night
in
LUPUS UK
1 year ago
shift work
Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked night shifts, I’m now being told I must work 12 hour days (7-7.30)as well even though occupational health advise nights only, stiffness and pain in the mornings make it impossible to be anywhere for 7am in the morning, nevermind
Hi all, so glad I found this group.Diagnosed 10 years ago and have always worked night shifts, I’m now being told I must work 12 hour days (7-7.30)as well even though occupational health advise nights only, stiffness and pain in the mornings make it impossible to be anywhere for 7am in the morning, nevermind
Nitenurse63
in
NRAS
13 days ago
Facet joints
Hi,I recently went to see a consultant. I have a.10 year history of l5/s1 disc protrusion. Pain has changed the last few years and has been more in the facet joints. I have had 2 lots of facet injections over the last 2 years however had a bad flare up about 5 months ago which I am still recovering
Hi,I recently went to see a consultant. I have a.10 year history of l5/s1 disc protrusion. Pain has changed the last few years and has been more in the facet joints. I have had 2 lots of facet injections over the last 2 years however had a bad flare up about 5 months ago which I am still recovering
AMS_1
in
Pain Concern
17 days ago
Ceasing Apixaban
I am due for knee joint replacement surgery. Can anyone relate their experience with stopping and starting Apixaban before and after the operation. I also take Ramipril, will I need to stop this for a while?. Thanks
I am due for knee joint replacement surgery. Can anyone relate their experience with stopping and starting Apixaban before and after the operation. I also take Ramipril, will I need to stop this for a while?. Thanks
johnkeithdowning
in
AF Association
21 days ago
Recommendations for an EDS specialist in London?
Hi there. Thanks for taking the time to read my post. I have recently been diagnosed with PoTs and I also have fibromyalgia and erythromelalgia. At my recent autonomics appointment my hyperflexible joints were mentioned and I was asked if I'd been assessed for hypermobile EDS. I would like to find someone
Hi there. Thanks for taking the time to read my post. I have recently been diagnosed with PoTs and I also have fibromyalgia and erythromelalgia. At my recent autonomics appointment my hyperflexible joints were mentioned and I was asked if I'd been assessed for hypermobile EDS. I would like to find someone
Winter_night
in
Ehlers-Danlos Support UK
1 year ago
Happy New Year
Not much to post here but felt motivated to greet this helpful community into 2024, my fourth year living with PMR or at the very least the dregs and after effects. Indeed I often feel as though I have a hangover! I have been pretty much signed off by my rheumatologist on a permanent 4mg of pred as he
Not much to post here but felt motivated to greet this helpful community into 2024, my fourth year living with PMR or at the very least the dregs and after effects. Indeed I often feel as though I have a hangover! I have been pretty much signed off by my rheumatologist on a permanent 4mg of pred as he
marionofnorwich
in
PMRGCAuk
3 months ago
Over 50
I have been struggling withy weight for years. I started putting on weight when I started depression medication. Now I'm over 50 still battling obesity. Growing up I was very active,but that has decreased due arthritis and joint replacements. I'm starting a new year looking for support from others.
I have been struggling withy weight for years. I started putting on weight when I started depression medication. Now I'm over 50 still battling obesity. Growing up I was very active,but that has decreased due arthritis and joint replacements. I'm starting a new year looking for support from others.
Jerry02
2023 December
in
Weight Loss Support
3 months ago
Sacroiliac joint fusion
After many painful years I'm on the NHS list for sacroiliac joint fusion. Of course there is a 12 month waiting list. Has any one had this operation done privately? Struggling to find a private consultant in Yorkshire.
After many painful years I'm on the NHS list for sacroiliac joint fusion. Of course there is a 12 month waiting list. Has any one had this operation done privately? Struggling to find a private consultant in Yorkshire.
eeeee
in
Pelvic Pain Support Network
3 months ago
Wrist Ulna Head Joint Replacement
Has anyone had their wrist ulna head joint replaced due to RA and if so, how are you doing now?
Has anyone had their wrist ulna head joint replaced due to RA and if so, how are you doing now?
ellilu58
in
NRAS
4 months ago
hip replacement advice
Has anyone had joint replacement after being diagnosed with MBC? If so, do you have any advice? I was diagnosed with MBC to the bones and liver July 2020. After radiation and several lines of drug treatment, I was diagnosed with severe osteoarthritis in my right hip a year ago. I had existing painful
Has anyone had joint replacement after being diagnosed with MBC? If so, do you have any advice? I was diagnosed with MBC to the bones and liver July 2020. After radiation and several lines of drug treatment, I was diagnosed with severe osteoarthritis in my right hip a year ago. I had existing painful
ClarenceO
in
SHARE Metastatic Breast Cancer
4 months ago
SI joint fusion
Can anyone share what a typical recovery would entail?
Can anyone share what a typical recovery would entail?
Jeaniem130
in
Arthritis Action
6 months ago
Informing DVLA
Hi all. You've been super helpful before so wonder if you can help with another question. One for the UK based folk. Question about informing the DVLA of a TBI. Has anyone navigated this process please? I know I need to inform them and have looked at their form. I'm not currently well enough to drive
Hi all. You've been super helpful before so wonder if you can help with another question. One for the UK based folk. Question about informing the DVLA of a TBI. Has anyone navigated this process please? I know I need to inform them and have looked at their form. I'm not currently well enough to drive
Ideogram
in
Headway
14 hours ago
Clonidine - success with RLS anyone?
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Evening team I have a query. As some of you may remember I was prescribed Buprenorphine two years ago by a neurologist for my restless limbs. I have a feeling I may have asked this question before, maybe not in one of my posts, (can't remember!) Does anyone out there take Clonidine for RLS? if
Heatherandgorse
in
Restless Legs Syndrome
2 days ago
Efficacy of Trihexyphenidyl on Apraxia of Eyelid Opening in Parkinsonism: A Case Report
Apraxia of eyelid opening (AEO) is occasionally seen in Parkinson’s disease (PD) or related diseases. However, many clinicians have trouble with the management of AEO by Parkinsonism. The following link mentions a case of apraxia of eyelids opening in PD patient which was successfully treated with the
Apraxia of eyelid opening (AEO) is occasionally seen in Parkinson’s disease (PD) or related diseases. However, many clinicians have trouble with the management of AEO by Parkinsonism. The following link mentions a case of apraxia of eyelids opening in PD patient which was successfully treated with the
Farooqji
in
Cure Parkinson's
4 days ago
first scan anxiety! Please say something positive
i have my first scan today (13wks 1 day), i am very anxious.. i keep thinking ridiculous things like they are going to say there is no baby etc. and am horrified thinking about birth defects and chromosomal abnormalities.. any help/advice?
i have my first scan today (13wks 1 day), i am very anxious.. i keep thinking ridiculous things like they are going to say there is no baby etc. and am horrified thinking about birth defects and chromosomal abnormalities.. any help/advice?
QueenKoala
in
Pregnancy and Parenting Support
13 days ago
I did PGT-A testing, could my unborn baby have down's syndrome?
I am currently 18 weeks 5 days pregnant following a successful IVF cycle. I undertook PGT-A testing as I am 41 years old. I got a call today from my midwife advising that my blood test has come back with a higher chance result for down's syndrome. I thought that as PGT-A testing was done and showed
I am currently 18 weeks 5 days pregnant following a successful IVF cycle. I undertook PGT-A testing as I am 41 years old. I got a call today from my midwife advising that my blood test has come back with a higher chance result for down's syndrome. I thought that as PGT-A testing was done and showed
Systema23
in
Pregnancy and Parenting Support
15 days ago
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