Search
Search
About
Log in
Join
Experiences with
Joint fusion
Posts
Communities
666 public posts
Filter results
Feeling a little disillusioned about TTFD and High Dose Thiamine (HDT):
My opinion: You can watch videos that say other B1’s are better; they are more powerful; they cross the BBB; etc. but you cannot find much (if any) info on long-term positive results [success stories]. Best to leave Benfothiamine, TTFD, Sulbutiamine, etc. alone and stay with what works for other people
My opinion: You can watch videos that say other B1’s are better; they are more powerful; they cross the BBB; etc. but you cannot find much (if any) info on long-term positive results [success stories]. Best to leave Benfothiamine, TTFD, Sulbutiamine, etc. alone and stay with what works for other people
Gcf51
in
Cure Parkinson's
1 year ago
v non-invasive treatment may offer significant relief to and restore gait function in patients with neurological disorders
To this end, the clinical researchers from Japan recruited twenty-three patients with PD or Parkinson’s syndrome. All study participants were randomly assigned to receive either the active treatment or a “sham” treatment that mimics the active treatment but does not offer any therapeutic benefit.
To this end, the clinical researchers from Japan recruited twenty-three patients with PD or Parkinson’s syndrome. All study participants were randomly assigned to receive either the active treatment or a “sham” treatment that mimics the active treatment but does not offer any therapeutic benefit.
Farooqji
in
Cure Parkinson's
1 year ago
Advice
I am 65, recently diagnosed, no C/L medication so far. I just read this, An anticholinergic medication may be recommended to reduce symptoms of bothersome tremor in people with Parkinson disease under age 70 who do not have significant akinesia or difficulty walking. There are several anticholinergic
I am 65, recently diagnosed, no C/L medication so far. I just read this, An anticholinergic medication may be recommended to reduce symptoms of bothersome tremor in people with Parkinson disease under age 70 who do not have significant akinesia or difficulty walking. There are several anticholinergic
Patitou
in
Cure Parkinson's
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
remission then Rituxan again
I have had RA for 23 years. I actually went into remission 3 1/2 years ago and stopped Rituxan and methotrexate during that time. Then I get my second Covid and the Ra returned. I am back on Rituxan but it doesn’t seem to be slowing the Rituxan. Since I have not had the drugs in my body how long
I have had RA for 23 years. I actually went into remission 3 1/2 years ago and stopped Rituxan and methotrexate during that time. Then I get my second Covid and the Ra returned. I am back on Rituxan but it doesn’t seem to be slowing the Rituxan. Since I have not had the drugs in my body how long
Marycullen
in
NRAS
1 year ago
Upset after consultation
Hi everyone. Sorry for long post but I think it helped me writing this out. I just had a consultation with rheumatologist which didn't go well. I had antibiotics back in Feb and came off the Baricitinib for a week and then was referred for colonoscopy/biopsies. I spoke to helpline and nurse said
Hi everyone. Sorry for long post but I think it helped me writing this out. I just had a consultation with rheumatologist which didn't go well. I had antibiotics back in Feb and came off the Baricitinib for a week and then was referred for colonoscopy/biopsies. I spoke to helpline and nurse said
Mozart150
in
NRAS
1 year ago
The Double Vision Issue with GCA
Hi all, I'm a GCA patient, having been diagnosed in AUG 2022. I started on 60 MG PRED, and after 9 months have titrated down to 12.5MG. I am under the care of a GP, ophthalmologist, and rheumatologist. PRIOR to being diagnosed with GCA, somewhere around MARCH 2022, I started noticing I had double
Hi all, I'm a GCA patient, having been diagnosed in AUG 2022. I started on 60 MG PRED, and after 9 months have titrated down to 12.5MG. I am under the care of a GP, ophthalmologist, and rheumatologist. PRIOR to being diagnosed with GCA, somewhere around MARCH 2022, I started noticing I had double
montebello
in
PMRGCAuk
1 year ago
Methylene Blue
Has anyone used or considered Methylene Blue in very low dosages for their Parkinson's? Franciso Gonzalez-Lima of the University of Texas, Austin is an expert on its advantages for treating neurological diseases. Mercola did an interview with him on the subject. Mercola does not promote synthetic drugs
Has anyone used or considered Methylene Blue in very low dosages for their Parkinson's? Franciso Gonzalez-Lima of the University of Texas, Austin is an expert on its advantages for treating neurological diseases. Mercola did an interview with him on the subject. Mercola does not promote synthetic drugs
Trailing
in
Cure Parkinson's
1 year ago
frustrated with restriction of naproxen
After an unsuccessful spinal fusion surgery in 2001(and 2 more since) I’ve been taking naproxen for about 15 years and get that together with a long list of other pain meds every 3 months,I’ve now been told I can only have 2 month supply of naproxen at a time which is messing up my repeat meds routine
After an unsuccessful spinal fusion surgery in 2001(and 2 more since) I’ve been taking naproxen for about 15 years and get that together with a long list of other pain meds every 3 months,I’ve now been told I can only have 2 month supply of naproxen at a time which is messing up my repeat meds routine
Paiger1
in
NRAS
1 year ago
Diagnosis of Sigmoid volvulus 3 weeks ago and an emergency operation via colon righted it temporarily.
I am recovering slowly from the shock of the above diagnosis. The surgeon said he will have to do a major abdominal operation (which he is reluctant to do whilst I am on Prednisolone, I was on 6 mg 3 weeks ago but now on 5mg) as healing and infection could be post operative problems. So I saw my Rheumatologist
I am recovering slowly from the shock of the above diagnosis. The surgeon said he will have to do a major abdominal operation (which he is reluctant to do whilst I am on Prednisolone, I was on 6 mg 3 weeks ago but now on 5mg) as healing and infection could be post operative problems. So I saw my Rheumatologist
Helag
in
PMRGCAuk
1 year ago
Microbiome in PD, RBD and 1st degree relatives
As much as I'd like to believe that one "bad" bacteria (desulfovibrio) is responsible for Parkinson's, I suspect the situation is more complicated than that, as this recently released study suggests; https://www.nature.com/articles/s41467-023-38248-4 Certainly the evidence is accumulating though, that
As much as I'd like to believe that one "bad" bacteria (desulfovibrio) is responsible for Parkinson's, I suspect the situation is more complicated than that, as this recently released study suggests; https://www.nature.com/articles/s41467-023-38248-4 Certainly the evidence is accumulating though, that
Rufous2
in
Cure Parkinson's
1 year ago
Spinal Stenosis
Hi folks, I’ve been posting on this platform for years, looking for answers and sharing my own experiences. I’ve had severe T for over 30 years. There have been incidences that have caused my T to increase. It’s either a bump to the head or the after affects of looking up, like when I’m painting a
Hi folks, I’ve been posting on this platform for years, looking for answers and sharing my own experiences. I’ve had severe T for over 30 years. There have been incidences that have caused my T to increase. It’s either a bump to the head or the after affects of looking up, like when I’m painting a
Wringing1212
in
Tinnitus UK
1 year ago
Very newly diagnosed PBC still undergoing testing
Hello all! I'm a 59 year old female living in the Florida Panhandle Haven't had any serious issues of note, arthritis and joint replacements aside. I began with an overall itch in Sept of 2021 and didn't worry too much until about a week later, when I was sleep deprived and torn up from scratching,
Hello all! I'm a 59 year old female living in the Florida Panhandle Haven't had any serious issues of note, arthritis and joint replacements aside. I began with an overall itch in Sept of 2021 and didn't worry too much until about a week later, when I was sleep deprived and torn up from scratching,
Hidden
in
PBCers Organization
1 year ago
Hypermobility/HEDS recommendation?
Hi there. Thanks for taking the time to read my post. I posted on the EDS forum but it’s not very active and no response yet. I have recently been diagnosed with PoTs and have fibromyalgia and erythromelalgia. I’m in the watch and wait category I believe for auto immune inc lupus but at my recent autonomics
Hi there. Thanks for taking the time to read my post. I posted on the EDS forum but it’s not very active and no response yet. I have recently been diagnosed with PoTs and have fibromyalgia and erythromelalgia. I’m in the watch and wait category I believe for auto immune inc lupus but at my recent autonomics
Winter_night
in
LUPUS UK
1 year ago
Recommendations for an EDS specialist in London?
Hi there. Thanks for taking the time to read my post. I have recently been diagnosed with PoTs and I also have fibromyalgia and erythromelalgia. At my recent autonomics appointment my hyperflexible joints were mentioned and I was asked if I'd been assessed for hypermobile EDS. I would like to find someone
Hi there. Thanks for taking the time to read my post. I have recently been diagnosed with PoTs and I also have fibromyalgia and erythromelalgia. At my recent autonomics appointment my hyperflexible joints were mentioned and I was asked if I'd been assessed for hypermobile EDS. I would like to find someone
Winter_night
in
Ehlers-Danlos Support UK
1 year ago
Facet Joint Arthritis - I need Help!
I had an L4/5 lumbar fusion in 2016 and in the last 2 years I have developed arthritis in the facet
joint
above the
fusion
. Pain levels are high and my back is in constant spasm. Medical interventions have included cortisoid injections, denervation and botox injections to reduce pain.
I had an L4/5 lumbar fusion in 2016 and in the last 2 years I have developed arthritis in the facet
joint
above the
fusion
. Pain levels are high and my back is in constant spasm. Medical interventions have included cortisoid injections, denervation and botox injections to reduce pain.
Abdn2502
in
Pain Concern
1 year ago
Upper back pain
Hi. I was seeing a PT for lower lumbar issues and she suggested I get a neck xray after noticing I had symptoms she attributed to cervical issues. The xray showed disc degeneration and bone spurs at c5/c6. My symptoms are little shock burn like feelings in my upper back and tingling prickly pain in my
Hi. I was seeing a PT for lower lumbar issues and she suggested I get a neck xray after noticing I had symptoms she attributed to cervical issues. The xray showed disc degeneration and bone spurs at c5/c6. My symptoms are little shock burn like feelings in my upper back and tingling prickly pain in my
Jeaniem130
in
Pain Concern
2 years ago
Anybody Know Anything About "Nicotinamide Adenine Dinucleotide" (NAD+) Supplement?
Somebody told me they were taking NAD+. I was surprised you could even by NAD+. I thought everybody took NAD precursors (NA, NR) but I see Amazon sells NAD+ https://www.amazon.com/Liposomal-Supplement-Absorption-Nicotinamide-Alternative/dp/B09V6X1PWM?source=ps-sl-shoppingads-lpcontext&ref_=fplfs&smid
Somebody told me they were taking NAD+. I was surprised you could even by NAD+. I thought everybody took NAD precursors (NA, NR) but I see Amazon sells NAD+ https://www.amazon.com/Liposomal-Supplement-Absorption-Nicotinamide-Alternative/dp/B09V6X1PWM?source=ps-sl-shoppingads-lpcontext&ref_=fplfs&smid
Bolt_Upright
in
Cure Parkinson's
1 year ago
Trihexyphenidyl medication for PD
Hello, my husband with tremor dominant PD has been prescribed Trihexyphenidly (aka Artane, Trihexane and Tritane) by his neurologists to try and reduce his tremors. He is currently on Madopar and its not really helping. Does anyone have any experience with this drug? Many thanks.
Hello, my husband with tremor dominant PD has been prescribed Trihexyphenidly (aka Artane, Trihexane and Tritane) by his neurologists to try and reduce his tremors. He is currently on Madopar and its not really helping. Does anyone have any experience with this drug? Many thanks.
lingfield222
in
Cure Parkinson's
2 years ago
5 steps to individually-optimized thyroid therapy
Another fine paper by Tania S. Smith, President, Thyroid Patients Canada. [i]
5 steps to individually-optimized thyroid therapy
[/i] https://thyroidpatients.ca/2023/01/04/thyroid-patients-wish-list-health-care/
Another fine paper by Tania S. Smith, President, Thyroid Patients Canada. [i]
5 steps to individually-optimized thyroid therapy
[/i] https://thyroidpatients.ca/2023/01/04/thyroid-patients-wish-list-health-care/
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Wake up dormant dopaminergic neurons to reverse Parkinson’s disease
Educational video. https://www.youtube.com/watch?v=pRaQosvet6k&list=PLvLrNHqT09_7LZb11wQmRChbbjhI-lyO7&index=17&t=20s Forms of MAO-B Inhibitors Selegiline (L-deprenyl, Eldepryl) Available Doses: 5mg. ... Selegiline HCL Orally Disintegrating (Zelapar) Available Doses: 1.25 mg, 2.5 mg. ... Rasagiline
Educational video. https://www.youtube.com/watch?v=pRaQosvet6k&list=PLvLrNHqT09_7LZb11wQmRChbbjhI-lyO7&index=17&t=20s Forms of MAO-B Inhibitors Selegiline (L-deprenyl, Eldepryl) Available Doses: 5mg. ... Selegiline HCL Orally Disintegrating (Zelapar) Available Doses: 1.25 mg, 2.5 mg. ... Rasagiline
delboy381
in
Cure Parkinson's
2 years ago
1
...
3
4
5
...
34
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
88 results
Pain Concern
77 results
NRAS
74 results
View top 10 communities
Sort by
Most Relevant
Newest