Feeling a little disillusioned about TTFD and High Dose Thiamine (HDT):

[Gcf51]

My opinion: You can watch videos that say other B1’s are better; they are more powerful; they cross the BBB; etc. but you cannot find much (if any) info on long-term positive results [success stories]. Best to leave Benfothiamine, TTFD, Sulbutiamine, etc. alone and stay with what works for other people.

I have tried TTFD... I kept overdosing on yet another lower dose. Started at 50mg, gave it up at return of symptoms with 17.5mg (it took me 10 days to OD on 50mg [probably should have quit at 3 days] and 4 weeks on 17.5mg)...

My sweet spot is 1000mg B1-hcl oral.... [Feeling Great at 65 days and counting] 😀

Show me wrong; Please supply your success story… 😕

[Butterflygrandma]

Tell us your story with the B1 hcl...what dose you started with , how long it took to find the sweet spot and what brand etc

[Hmop in reply to Butterflygrandma]

Tell us please

[Gcf51]

Butterflygrandma Hmop I started my ordeal 15 months ago with TTFD. I am a little hard headed and have retried TTFD four times. healthunlocked.com/cure-par...

[chartist]

The only two I have seen work for many people on this forum and elsewhere are thiamine hcl and thiamine mononitrate and I think there were one or two who found benefit from benfotiamine. TTFD may have better bioavailability, but why is that even needed for PwP? The other two are less expensive and adequate for the task at hand.

Art

[Windermere1]

I guess us Parkies just want as much relief from as many symptoms as possible in the easiest possible way. Almost 2 years ago I found Daphne Bryans book and the b1 protocol. Did as much research as possible then started on the b1 sublingual Superior Source. Like magic it changed my Parkinson’s life within a month. And now I am spending most of my time enjoying life and sharing my experience with new Parkies who need support to find their own sweet spot and new life. No quick easy answer without research

[evenshoshan in reply to Windermere1]

Hello, what dosage did you begin at, and what is your current sweet spot ?

[NWAPWP in reply to Windermere1]

I’ve been taking 100mg sublingual for three months and seeing no improvement. In fact I’ve been experiencing severe vertigo for the past six weeks. I’m wondering if I should continue.

[NWAPWP in reply to Windermere1]

what do you all think of switching to thiamine hcl?

[Hmop in reply to Windermere1]

Could you help me please with the dosage of the Sublingual B1? Thanks

[Windermere1 in reply to Hmop]

I could give you some idea of dosage but you really need to read Daphne Bryans book from Amazon in several different languages if you need it and watch her utube videos and interviews and join the fb group Parkinson’s b1 therapy. Then read all the files on that group. If you attempt to start without research you are likely to fail. Because you Need magnesium and bcomplex to compliment the b1

[Hmop in reply to Windermere1]

Could you tell me please where can I find it?Amazon not available

Other does not ship to Bulgaria

[Windermere1 in reply to Hmop]

google the book and it shows eBay. Can you get ebay

Watch this on utube

[Hope-full1970 in reply to Windermere1]

Hi! I'm brand new to PD and starting with b1 therapy. I found your post very encouraging! I would love more than anything to stop the progression and if at all possible, treat it naturally. I am on my 2nd week of b1 with sublingual tablet 100mg. What is a sign of an overdose and how long should I give it at this dose?

I just got a bad cold this week so it's really hard to know how I'm really doing. Thanks for your help!!😊

[Gcf51 in reply to Hope-full1970]

I do not recommend TTFD.

I recommend  Dap1948 ’s book and her Facebook Group.

amazon.com/gp/product/B09TZ...

facebook.com/groups/parkins...

Latest start dose recommendations per file, "B1 PROTOCOL OUTLINE" on Facebook page.

Intramuscular: 2 x 50 mg per week;

Oral: 500 mg per day;

Sublingual: 100 mg x 3 times a week.

I currently take 1000mg B1-hcl oral

[Hope-full1970 in reply to Gcf51]

Thank you!!

[Windermere1]

I chose to take sublingual b1. Started on 100mg Mon Wed Fri. Too high overdosed. Rested for 2 weeks started again on 50mg MWF success came within a month. My success video is on utube. I now only take 50mg weekly.

[JeanieBeanie in reply to Windermere1]

My husband about to start for the 5th time. Overdosed with sublingual and we have quite a lot in. May try much smaller dose. Do you think it is essential to keep it under your tongue for 40 mins and do you think it necessary to start magnesium and b complex 2 weeks before?

[Windermere1 in reply to JeanieBeanie]

It has never been sugggested to hold for 40 minutes. Recommended time is 30 mins but why not start with 10 minutes for a week and if no negative symptom increase to 15 mins for another week. When I say week I mean MOn Wed Fri We are all different so you need to try what is right for you. BUT please be sure to monitor and record daily every tiny change negative or positive or you will never know what works and what doesn’t. Don’t give up.

[JeanieBeanie in reply to Windermere1]

What about the magnesium etc?

[Windermere1 in reply to JeanieBeanie]

You should start magnesium and bcomplex a month before you start b1 therapy. If you did not do this. Just continue b1 until you reach your sweet spot recording daily all changes or improvements. If you add in mag and bcomplex before you achieve sweet spot you will never know which one is causing the problem or improvement

[JeanieBeanie in reply to Windermere1]

Sergio Pieche on B1 Therapy says 2 weeks before on a post yesterday . Thats why I asked you.

[Gcf51 in reply to Windermere1]

I quit sublingual after a week because I did not like trying to hold in my mouth. Much more convenient to pop a few pills and be done for the day.

[Dabaa in reply to Gcf51]

What exact dose and of what form specifically do you pop and have you found success?

[Gcf51 in reply to Dabaa]

I take 2 ea Solgar 500mg B1 first thing in morning, I also have 100mg caps, but currently not taking any.

$16.06 Out of stock iherb.com/pr/solgar-vitamin...

$17.38 amazon.com/Solgar-Vitamin-T...

[Butterflygrandma in reply to Windermere1]

What is the YouTube channel name ?

[Hope-full1970 in reply to Windermere1]

I am just seeing this as it sounds like something I may have to try. So you cut your pill in 1/2?I see you then you only took 50mg MWF but now you only take 50 mg for the entire week?

[evenshoshan]

Many thanks ! Could you please post the link to your success video ?

[Windermere1 in reply to evenshoshan]

youtu.be/psf5PpXCRac(Not working as expected?)

[Kiryn]

Wondering it the sublingual tablets mentioned can now be purchased in the UK. I tried a while ago with no success.

[BriMeister]

any specific brand or do you think they all comparable. Also do you monitor blood levels?

[Fava-1]

I just eat plenty of pistachios, walnuts, cashew butter for natural thiamine and do very well

[Beanie57 in reply to Fava-1]

Could you give an idea of how many your take of each each day to achieve benefits.