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Anyone else with Ehlers Danlos Syndrome (EDS) or hyper mobility syndrome? (To go with their Lupus that is!)
I'm finding writing about everything quite cathartic, especially now I've found somewhere with so many similar people! I was just wondering, does anyone else get insane joint involvement? My joints are ridiculous - you know those old fashioned dolls that had elastic holding their limbs into the sockets
I'm finding writing about everything quite cathartic, especially now I've found somewhere with so many similar people! I was just wondering, does anyone else get insane joint involvement? My joints are ridiculous - you know those old fashioned dolls that had elastic holding their limbs into the sockets
Blueberry
in
LUPUS UK
12 years ago
Can something this easy actually aid us????
I found this whilst I was looking at another website that I use: ScienceDaily (Jan. 13, 2010) — For those who do not drink, researchers have found that six essential oils -from thyme, clove, rose, eucalyptus, fennel and bergamot -- can suppress the inflammatory COX-2 enzyme, in a manner similar to resveratrol
I found this whilst I was looking at another website that I use: ScienceDaily (Jan. 13, 2010) — For those who do not drink, researchers have found that six essential oils -from thyme, clove, rose, eucalyptus, fennel and bergamot -- can suppress the inflammatory COX-2 enzyme, in a manner similar to resveratrol
Sue15197
in
Fibromyalgia Action UK
12 years ago
Things getting out of hand.com
the above should be a web site! It's how I feel at the moment. I was back with my ortho surgeonon Monday, and shocked to learn I will be in this boot cast mostly for another 3 months, and I thought he would be sending me back to work. What a surprise. I can cycle, but not walk too much, muffin tops
the above should be a web site! It's how I feel at the moment. I was back with my ortho surgeonon Monday, and shocked to learn I will be in this boot cast mostly for another 3 months, and I thought he would be sending me back to work. What a surprise. I can cycle, but not walk too much, muffin tops
Gina_K
in
NRAS
12 years ago
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I saw my consultant 2 weeks ago and asked about a finger joint replacement and was informed that it is usually done for people with osteoarthritis but because I have RA it would not be so straight forward as my RA was active and this is what was causing the problems using my hands and the awful pain
I saw my consultant 2 weeks ago and asked about a finger joint replacement and was informed that it is usually done for people with osteoarthritis but because I have RA it would not be so straight forward as my RA was active and this is what was causing the problems using my hands and the awful pain
ann57
in
NRAS
13 years ago
My Living Rheum :)
The necessary has been done (wrist replacement, thumb
joint
removal and
fusion
, metatarsal head removal, lens replacement, knee repairs, to name a few!) … the rest will wait for now!
The necessary has been done (wrist replacement, thumb
joint
removal and
fusion
, metatarsal head removal, lens replacement, knee repairs, to name a few!) … the rest will wait for now!
Hidden
in
NRAS
13 years ago
Anyone had a spinal fusion operation?
I have to have a spinal fusion op of the lumbar region. I'm looking for any info on how to cope when coming out of hospital - showering, laying in bed, how active are you. Anything would be appreciated.
I have to have a spinal fusion op of the lumbar region. I'm looking for any info on how to cope when coming out of hospital - showering, laying in bed, how active are you. Anything would be appreciated.
joan_w
in
NRAS
13 years ago
Does anyone else also have Joint Hypermobility Syndrome?
Hi, I was diagnosed with Raynaud's about 4 years ago & with Hypermobility around 3 years ago. Having reviewed the Hypermobility web forum quite a lot of them also suffer from Raynaud's either as Primary or Secondary and even some Scleroderma. I was just wondering if there was a known corrolartion between
Hi, I was diagnosed with Raynaud's about 4 years ago & with Hypermobility around 3 years ago. Having reviewed the Hypermobility web forum quite a lot of them also suffer from Raynaud's either as Primary or Secondary and even some Scleroderma. I was just wondering if there was a known corrolartion between
GreenJadeDragon
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
does any one have problems with hypermobility and SLE? im very mobile, and get a lot of pain from my joints been too flexible.
Hidden
in
LUPUS UK
13 years ago
Results of Rituxan,
This is not really a question but a word of encouragement, I have WG and have recently had my third course of Rituxan, and for the first time in 4yrs am feeling alittle more human again. for the first time since being diagnosed I can think straighter not so painful and alot of my symptoms are feeling
This is not really a question but a word of encouragement, I have WG and have recently had my third course of Rituxan, and for the first time in 4yrs am feeling alittle more human again. for the first time since being diagnosed I can think straighter not so painful and alot of my symptoms are feeling
Theresak
in
Vasculitis UK
13 years ago
Its going to be a long winter!
Hello, After being confirmed by MRI that I need a triple fusion of ankle, arthrodesis. I have been trying to wriggle out of getting it done. Asked surgeon if I did'nt go ahead what would consequences be? His answer today was in a nutshell it will get worse and lead to disablement. I thought he
Hello, After being confirmed by MRI that I need a triple fusion of ankle, arthrodesis. I have been trying to wriggle out of getting it done. Asked surgeon if I did'nt go ahead what would consequences be? His answer today was in a nutshell it will get worse and lead to disablement. I thought he
Gina_K
in
NRAS
13 years ago
Anyone had spinal fusion?
I am going to have a spinal fusion operation (only a couple of vertebrae) and I would love to hear from anyone who has had this op. As I live on my own I am wondering how I will manage. How mobile will I be? How long before I am able to get out and about? Is there a time limit on not
I am going to have a spinal fusion operation (only a couple of vertebrae) and I would love to hear from anyone who has had this op. As I live on my own I am wondering how I will manage. How mobile will I be? How long before I am able to get out and about? Is there a time limit on not
joan_w
in
NRAS
12 years ago
Have you had a joint replacement. Does the RA pain in that particular joint go away?
eduk8
in
NRAS
12 years ago
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