I'm finding writing about everything quite cathartic, especially now I've found somewhere with so many similar people!
I was just wondering, does anyone else get insane joint involvement? My joints are ridiculous - you know those old fashioned dolls that had elastic holding their limbs into the sockets? I'm like one of those when the elastic has decayed and my limbs wobble and pop out all over the place.
I was diagnosed with EDS hyper mobility/classic type before SLE by some musculoskeletal specialists, they wanted to operate on my shoulder that spends more time out of the socket than in, but after loads of scans they decided they actually had a bigger chance of making it worse, so left it be and abandoned me to fate! (Thanks musculoskeletal dudes!).. I was getting physio but it was cancelled never to be rearranged due to staff shortages...
I guess my elastic is decaying more and more - now even my ribs wobble and make my chest muscles go into horrendous spasms if I laugh too much - brings a new meaning to 'crying laughing'! And it makes me laugh even more because I look like an extra from Alien (with the alien emerging from my chest!)... And I can tell you, dislocating your elbow is probably the best way to make people puke at a party
My main problems with it at the moment are my wrists and ankles - they're so wobbly they just come apart - can anyone recommend any decent braces/supports? And does anyone know if you can get pretty coloured/patterned wrist braces? That nude colour is vile.