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Gene SRSF2
I'm new here, but have private messaged Hunter who is an inspiration and interesting fact finder. I have MF progressed from PV last year but my recent visit to consultant showed a further 2 mutants. I'm Jak2 positive with SRSF2+1DH2. He has made a referral for Stem Cell Transplant. Is there anyone out
I'm new here, but have private messaged Hunter who is an inspiration and interesting fact finder. I have MF progressed from PV last year but my recent visit to consultant showed a further 2 mutants. I'm Jak2 positive with SRSF2+1DH2. He has made a referral for Stem Cell Transplant. Is there anyone out
ktaylor5563
in
MPN Voice
4 years ago
New member trying to get their head round things !
I’ve just found out I’m on the lung transplant list. Feeling a little overwhelmed by it all and would love to find out more from others in similar circumstances any coping mechanisms.
I’ve just found out I’m on the lung transplant list. Feeling a little overwhelmed by it all and would love to find out more from others in similar circumstances any coping mechanisms.
Lucky2050
in
National Foundation for Transplants
4 years ago
Lung Transplant
Lung Transplant. Good Afternoon everyone. I have currently been on the lung transplant list over 2 1/2 year and I attend Wythenshawe Hospital on a regular basis for updating bloods scans and x-rays. I am constantly told to keep as fit as I can which is difficult at times as I need a double lung transplant
Lung Transplant. Good Afternoon everyone. I have currently been on the lung transplant list over 2 1/2 year and I attend Wythenshawe Hospital on a regular basis for updating bloods scans and x-rays. I am constantly told to keep as fit as I can which is difficult at times as I need a double lung transplant
Joseph260268
in
Lung Conditions Community Forum
4 years ago
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Tocilizumab patients and the COVID Vaccine
My Rheumatologist has let me know that it is fine for me to have the COVID Vaccine and to continue having my Tocilizumab injections. I am also on 10 mgs of Prednisalone. I have Giant Cell Arteritis/Large Vessel Vasculitis.
My Rheumatologist has let me know that it is fine for me to have the COVID Vaccine and to continue having my Tocilizumab injections. I am also on 10 mgs of Prednisalone. I have Giant Cell Arteritis/Large Vessel Vasculitis.
SheffieldJane
in
PMRGCAuk
4 years ago
Back ache post liver transplant
I had a liver transplant 8 weeks ago. I am feeling so much better post transplant but am suffering with a really bad back ache. Has anyone suffered similar and if so, can you recommend any specific treatment please?
I had a liver transplant 8 weeks ago. I am feeling so much better post transplant but am suffering with a really bad back ache. Has anyone suffered similar and if so, can you recommend any specific treatment please?
Samanthadrewett
in
British Liver Trust
4 years ago
best country in Europe for liver transplant procedure
Hi , may I ask what is the best country in Europe for liver transplant procedure , in terms of the success rate of the procedure , numbers and quality , and period of waiting list and other different issue and challenges . In particular comparison between Sweden /UK/Germany /Switzerland
Hi , may I ask what is the best country in Europe for liver transplant procedure , in terms of the success rate of the procedure , numbers and quality , and period of waiting list and other different issue and challenges . In particular comparison between Sweden /UK/Germany /Switzerland
Marwan76
in
British Liver Trust
4 years ago
Would love some advice
Hi. Firstly, I just want to say how grateful I am to have found this forum. It is invaluable and has answered some of my questions before I have even asked them - ie. blurry eyes etc. I would love some advice though if you can still put up with me. My consultant reduced my 40mg dose of prednisolone
Hi. Firstly, I just want to say how grateful I am to have found this forum. It is invaluable and has answered some of my questions before I have even asked them - ie. blurry eyes etc. I would love some advice though if you can still put up with me. My consultant reduced my 40mg dose of prednisolone
Sophiestree
in
PMRGCAuk
4 years ago
Review CT and MRI online
Hi, I'm from Ukraine, My sister's daughter is 11 months old, the infant has liver issues, her diagnose requires liver transplantation. I'm looking for all possible ways to confirm this diagnosis prior to the surgery. Could you point me to online consultation services or clinics that give such consultations
Hi, I'm from Ukraine, My sister's daughter is 11 months old, the infant has liver issues, her diagnose requires liver transplantation. I'm looking for all possible ways to confirm this diagnosis prior to the surgery. Could you point me to online consultation services or clinics that give such consultations
farinhate
in
British Liver Trust
4 years ago
Post Transplant care at Kings
Are there any liver transplant patients under the care of Kings here? We're getting concerned about the lack of contact my brother has had over the last 6 months with the consultants and blood tests being carried out. He has no appointments scheduled or blood tests booked, despite these being every 6
Are there any liver transplant patients under the care of Kings here? We're getting concerned about the lack of contact my brother has had over the last 6 months with the consultants and blood tests being carried out. He has no appointments scheduled or blood tests booked, despite these being every 6
Edbergius
in
British Liver Trust
4 years ago
weird test results
my first test came back positive for gastric parietal cell antibodies using the Elisa test. Second test tests 5 years later for parietal cell antibody titers, comes back negative. Ok is this something that comes and goes?
my first test came back positive for gastric parietal cell antibodies using the Elisa test. Second test tests 5 years later for parietal cell antibody titers, comes back negative. Ok is this something that comes and goes?
BumbleBeeBumble
in
Pernicious Anaemia Society
4 years ago
LIVER TRANSPLANT FOR SEVERE ITCHING
HELLO 👋 My University of MI doctor is referring me to see drs at transplant department next month to discuss liver transplant. He stated that my liver is good no chirosis and no scarring. My issue is psoriasis that I have from liver duct bile damage due to PBC. NOTHING tried worked for me including
HELLO 👋 My University of MI doctor is referring me to see drs at transplant department next month to discuss liver transplant. He stated that my liver is good no chirosis and no scarring. My issue is psoriasis that I have from liver duct bile damage due to PBC. NOTHING tried worked for me including
genj65
in
PBC Foundation
4 years ago
Another unique mystery about the liver.
Every now and again I like to post some interesting facts about this most wonderous organ. Those of you who have completed the two online liver courses, "Liver Disease: Looking after Your Liver" and "Liver Transplant: the Ins and Outs" will know of Dr Patricia Laylor. Back in 2017 Dr Laylor and I
Every now and again I like to post some interesting facts about this most wonderous organ. Those of you who have completed the two online liver courses, "Liver Disease: Looking after Your Liver" and "Liver Transplant: the Ins and Outs" will know of Dr Patricia Laylor. Back in 2017 Dr Laylor and I
Richard-Allen
in
British Liver Trust
4 years ago
New and first post might not be related.. please excuse me.
i had severe weight loss, and lot of symptoms in 2018, i went to specialist and got infections tests and all came back good.. but my CD8 cells are very less in the immunity test. after few months with continued symptoms i researched and found my symptoms are related to b12 deficiency and got tested and
i had severe weight loss, and lot of symptoms in 2018, i went to specialist and got infections tests and all came back good.. but my CD8 cells are very less in the immunity test. after few months with continued symptoms i researched and found my symptoms are related to b12 deficiency and got tested and
b12pas
in
Pernicious Anaemia Society
4 years ago
Coronavirus and liver transplant
I was wondering if anyone has had coronavirus after liver transplant and how everything went
I was wondering if anyone has had coronavirus after liver transplant and how everything went
Livingdoner
in
Liver4Life
4 years ago
Reversal
Hi Dogbot here I am on the liver transplant list but also the doctors are talking about a reversal for my stoma bag , now I think I will ask them to wait for my reversal because I have heard that it’s not an easy recovery and I don’t want to put off my Trasplant. Is there anyone that has had a reasonable
Hi Dogbot here I am on the liver transplant list but also the doctors are talking about a reversal for my stoma bag , now I think I will ask them to wait for my reversal because I have heard that it’s not an easy recovery and I don’t want to put off my Trasplant. Is there anyone that has had a reasonable
Dogbot
in
Living with a Stoma
4 years ago
Monoclonal antibodies from Cuba and India.
ITOLIZUMAB a monoclonal antibody developed by CIM in Cuba and BIOCOM in India is for support of geriatric patients and has now been authorized for clinical trials in the U.S. and some other nations. We can never know where new solutions are developed. The development of the A1c test for blood glucose
ITOLIZUMAB a monoclonal antibody developed by CIM in Cuba and BIOCOM in India is for support of geriatric patients and has now been authorized for clinical trials in the U.S. and some other nations. We can never know where new solutions are developed. The development of the A1c test for blood glucose
janvog
in
CLL Support
4 years ago
Liver transplant
Hi! I have had PBC since Dec. 2017 I was diagnose with stage 4. I have been on Ursodiol. But Now for some reason it has stop working my levels doubled and so he tested again three weeks later and they climbed up again. So the doctor said it is time to do the paper work for a transplant. My question
Hi! I have had PBC since Dec. 2017 I was diagnose with stage 4. I have been on Ursodiol. But Now for some reason it has stop working my levels doubled and so he tested again three weeks later and they climbed up again. So the doctor said it is time to do the paper work for a transplant. My question
Kulaloke
in
PBC Foundation
4 years ago
High risk other Came out positive and kidney transplant soo worried need advice plz
Soo worried came out with high risk hpv and have a kidney transplant all advice and help would appreciated Thank u and God bless
Soo worried came out with high risk hpv and have a kidney transplant all advice and help would appreciated Thank u and God bless
jennifer24
in
Early CKD Support
4 years ago
Trying to get pregnant
Hi. I had a kidney transplant many years ago. My wife and I are trying to get pregnant and tests show that I have low sperm count and motility. Has anybody experienced difficulty getting pregnant due to this and if so, any recommendations?
Hi. I had a kidney transplant many years ago. My wife and I are trying to get pregnant and tests show that I have low sperm count and motility. Has anybody experienced difficulty getting pregnant due to this and if so, any recommendations?
foreverthankfull26
in
Kidney Transplant
4 years ago
Advice
Hi, I’m new here. Acute heart failure July 2018, many med changes without success, CRT-D fitted Nov 2018. Further med changes since then including changing from Ramipril to Entresto. Still no improvement. Now consultant is discussing heart transplant and I’m scared. Any support or advice very much appreciated
Hi, I’m new here. Acute heart failure July 2018, many med changes without success, CRT-D fitted Nov 2018. Further med changes since then including changing from Ramipril to Entresto. Still no improvement. Now consultant is discussing heart transplant and I’m scared. Any support or advice very much appreciated
neilpreston
in
British Heart Foundation
4 years ago
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