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Iron dextran
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Anagrelide in UK and in the USAš±
My long suffering wife has been taking Anagrelide and a little hydroxycarbamide for five years now. During these five years she has endured numerous upper GI bleeds, and endoscopies, which have never found the source of the bleeds. More recently, and only since her Anagrelide has been reduced from 21
My long suffering wife has been taking Anagrelide and a little hydroxycarbamide for five years now. During these five years she has endured numerous upper GI bleeds, and endoscopies, which have never found the source of the bleeds. More recently, and only since her Anagrelide has been reduced from 21
jointpain
in
MPN Voice
9 months ago
Copper deficiency anemia
I've had RLS for over 5 decades; cannot sleep without opiod meds, which do work. Have tried megadose of IV iron--no benefit at all. Have been borderline anemia for decades also, despite taking iron supplements much of that time. Recently the anemia got worse, and with the iron connection to RLS, I thought
I've had RLS for over 5 decades; cannot sleep without opiod meds, which do work. Have tried megadose of IV iron--no benefit at all. Have been borderline anemia for decades also, despite taking iron supplements much of that time. Recently the anemia got worse, and with the iron connection to RLS, I thought
TimeEnd
in
Restless Legs Syndrome
9 months ago
8 months on pred - Update from recent bloods
I saw the nice lady GP today about my recent blood results from 5 Sept 2023: CRP less than 5 mg/l ERS 14 mm/h Rheumatoid factor less than 10 iu/ml Anti-nuclear factor negative (less than 1/100) Iron, B12, folate and Vit D levels OK. T4 and TSH normal Hb a1c 39 mmol/mol - so 9 months pred hasn't
I saw the nice lady GP today about my recent blood results from 5 Sept 2023: CRP less than 5 mg/l ERS 14 mm/h Rheumatoid factor less than 10 iu/ml Anti-nuclear factor negative (less than 1/100) Iron, B12, folate and Vit D levels OK. T4 and TSH normal Hb a1c 39 mmol/mol - so 9 months pred hasn't
Gimme
in
PMRGCAuk
9 months ago
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thyroid / vitamin results
hello , Havenāt posted here for a while . I am on 2 grains of NDT and having hypothyroidism/ Hashimotos. Recently I have done thyroid test and vitamins . Could anyone give any suggestions ? My naturopath nutritionist told me to not skip my thyroid med before test as it would should show exact numbers
hello , Havenāt posted here for a while . I am on 2 grains of NDT and having hypothyroidism/ Hashimotos. Recently I have done thyroid test and vitamins . Could anyone give any suggestions ? My naturopath nutritionist told me to not skip my thyroid med before test as it would should show exact numbers
Ari3
in
Thyroid UK
9 months ago
teeth clenching
Iām titrating NDT Armour over the last year but Iāve got a hypo symptom thatās bothering me, nighttime teeth clenching. I have no knowledge Iām doing this. I take amitriptyline and once I get to sleep midnight to 1am, Iām out for the count. I think the dentist told me September 2023 that I was clenching
Iām titrating NDT Armour over the last year but Iāve got a hypo symptom thatās bothering me, nighttime teeth clenching. I have no knowledge Iām doing this. I take amitriptyline and once I get to sleep midnight to 1am, Iām out for the count. I think the dentist told me September 2023 that I was clenching
Insomania
in
Thyroid UK
17 days ago
why docs donāt want to prescribe opioids for RLSā¦.š
With all the recent total panic by docs on not prescribing opioids, I thought I would just attach Andy Berkowskiās excellent piece on why we are often being refused opioids now and almost certainly in the future at least for sometime. You may well have read this article before Kakally Andy Berkowski
With all the recent total panic by docs on not prescribing opioids, I thought I would just attach Andy Berkowskiās excellent piece on why we are often being refused opioids now and almost certainly in the future at least for sometime. You may well have read this article before Kakally Andy Berkowski
Kakally
in
Restless Legs Syndrome
9 months ago
Tigger is bouncing around Winnie the Pooh, because he is happy his RLS is better
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasnāt 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasnāt 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
HipHop1972
in
Restless Legs Syndrome
20 days ago
TMS/TBS, Buprenorphine tip
I have just completed TMS/TBS(theta burst stimulation) treatments(36 TMS+10 TMS/TBS) It has been a game changer for the post Dopamine agonist depression, that was quite severe and unresponsive to meds. I currently have no depression symptoms. What I have found is that the RLS symptoms are decreased
I have just completed TMS/TBS(theta burst stimulation) treatments(36 TMS+10 TMS/TBS) It has been a game changer for the post Dopamine agonist depression, that was quite severe and unresponsive to meds. I currently have no depression symptoms. What I have found is that the RLS symptoms are decreased
teakabeagle
in
Restless Legs Syndrome
21 days ago
iron lab results 10 weeks post iron infusion
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialistās urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
I have had four iron infusions in the last 2 years. 10 weeks ago I received Injectafer 1000 mg with so-so results. I had seen a hematologist at my neurologist/Sleep specialistās urging out of his concern for my out of whack lab numbers. The hematologist was not concerned. I gave my sleep, specialist
SleeplessinNC
in
Restless Legs Syndrome
5 months ago
Advice on my array of recommended supplements (per endocrinologistās recommendations)
Hello I have been seeing a private endocrinologist - I have employee health insurance - as I have been experiencing some fluctuations in my T4/3 and TSH over the past 3 years or so. I posted about this in June. I have Hashimotos and my TSH has veered between 0.07 and 16.9 but my T4/3 have generally
Hello I have been seeing a private endocrinologist - I have employee health insurance - as I have been experiencing some fluctuations in my T4/3 and TSH over the past 3 years or so. I posted about this in June. I have Hashimotos and my TSH has veered between 0.07 and 16.9 but my T4/3 have generally
Hidden
in
Thyroid UK
9 months ago
thyroid and iron panel results
hi All, I would love to hear some comments about my results please. I have been recently diagnosed with Gravesā disease. 27 December (went to the A&E with heart palpitations), no ranges provided, I have just googled what nhs ranges are. I was put on propranolol 60mg. T4 - 19.2 (12-22) T3 - 9.8
hi All, I would love to hear some comments about my results please. I have been recently diagnosed with Gravesā disease. 27 December (went to the A&E with heart palpitations), no ranges provided, I have just googled what nhs ranges are. I was put on propranolol 60mg. T4 - 19.2 (12-22) T3 - 9.8
Kari55
in
Thyroid UK
5 months ago
Continued success with Vitamin B1
Morning all, I am having some recent success with a Vitamin B1. I have suffered with RLS most of my life although it has been worse over the past 5 years and I was prescribed Ropinerole that worked and then within 10 months did not do as intended and my RLS was worse again. I have been taken Gabapentin
Morning all, I am having some recent success with a Vitamin B1. I have suffered with RLS most of my life although it has been worse over the past 5 years and I was prescribed Ropinerole that worked and then within 10 months did not do as intended and my RLS was worse again. I have been taken Gabapentin
amdrew_m
in
Restless Legs Syndrome
9 months ago
Help interpreting iron panel
Hello I am hypothyroid, about 5 years & take just under 100mg levothyroxine daily. I have a high T4 & low T3 and see a private endo who has offered to prescribe T3. I'm generally feeling ok but do struggle with puffy & very sore eyes, dry skin & high cholesterol. I am thinking of trialling the T3.
Hello I am hypothyroid, about 5 years & take just under 100mg levothyroxine daily. I have a high T4 & low T3 and see a private endo who has offered to prescribe T3. I'm generally feeling ok but do struggle with puffy & very sore eyes, dry skin & high cholesterol. I am thinking of trialling the T3.
Will_blue
in
Thyroid UK
5 months ago
Help with latest test results please!
hi everyone Please could I have some advice on my latest results? I had some from the GP which prompted me to get full panels done privately, which are as follows: FT3 5.8 - 3.1 to 6.8 FT4 15.9 - 12 to 22 T4 114 - 59 to 154 TSH 2.88 - 0.27 to 4.2 TPOās 131 - 0 to 34 Iām currently on 50mcg of
hi everyone Please could I have some advice on my latest results? I had some from the GP which prompted me to get full panels done privately, which are as follows: FT3 5.8 - 3.1 to 6.8 FT4 15.9 - 12 to 22 T4 114 - 59 to 154 TSH 2.88 - 0.27 to 4.2 TPOās 131 - 0 to 34 Iām currently on 50mcg of
Smartypants1
in
Thyroid UK
5 months ago
My visit to the Neurologist in the UK
I was incorrectly referred to the epilepsy clinic but the consultant saw me anyway and took my history. She said she would also chat to the āmovement specialistā for their in put. She did a physical examination and noted my reflexes were ābriskā. She said that the dopamine agonists had been effective
I was incorrectly referred to the epilepsy clinic but the consultant saw me anyway and took my history. She said she would also chat to the āmovement specialistā for their in put. She did a physical examination and noted my reflexes were ābriskā. She said that the dopamine agonists had been effective
Louless9
in
Restless Legs Syndrome
5 months ago
Iron levels
Had an awesome break through with a locum GP who checked my iron levels, found them to be low and gave me Ferrous Sulphate. Itās worked wonders. Yay! However, three months in and my normal GP has asked me to go for another blood test to check my iron levels now and wonāt give me further ferrous sulphate
Had an awesome break through with a locum GP who checked my iron levels, found them to be low and gave me Ferrous Sulphate. Itās worked wonders. Yay! However, three months in and my normal GP has asked me to go for another blood test to check my iron levels now and wonāt give me further ferrous sulphate
DrPaulHT
in
Restless Legs Syndrome
7 months ago
A pattern forming š§
So I had to stop the codeine as awful headaches every time I took it , the last two nights Iāve hardly had any rls,maybe the iron working ?? I checked my diary and itās the exact same date last month that I had 7 days almost free of it ,then it came back really bad again , itās got to be hormonal for
So I had to stop the codeine as awful headaches every time I took it , the last two nights Iāve hardly had any rls,maybe the iron working ?? I checked my diary and itās the exact same date last month that I had 7 days almost free of it ,then it came back really bad again , itās got to be hormonal for
Ronniebongo
in
Restless Legs Syndrome
9 months ago
Do I need to up my Iron supplement?
Hi All I posted these results the other day; SlowDragon kindly offered information and resources. However, I am uncertain whether I need to up my iron supplement. Can anyone help please? I did look on the site that SlowDragon gave but still unsure? Also, since posting last time, I have now added
Hi All I posted these results the other day; SlowDragon kindly offered information and resources. However, I am uncertain whether I need to up my iron supplement. Can anyone help please? I did look on the site that SlowDragon gave but still unsure? Also, since posting last time, I have now added
Lavender-Blue
in
Thyroid UK
9 months ago
Views on my test results
New to this forum, so glad to have found it, I was beginning to despair with my GP who explains nothing to me. Shocked to learn how badly thyroid conditions are treated in UK. Began losing my eyebrows 2 years ago and my diverticulitis began flaring up after years of being stable. Various ultrasound
New to this forum, so glad to have found it, I was beginning to despair with my GP who explains nothing to me. Shocked to learn how badly thyroid conditions are treated in UK. Began losing my eyebrows 2 years ago and my diverticulitis began flaring up after years of being stable. Various ultrasound
Norash
in
Thyroid UK
9 months ago
supplementary question ! Ubiquinol
sorry meant to also ask has anyone found taking Ubiquinol helps T4/T3 conversion? Thank you!
sorry meant to also ask has anyone found taking Ubiquinol helps T4/T3 conversion? Thank you!
Indigourchin
in
Thyroid UK
1 month ago
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