Continued success with Vitamin B1

[amdrew_m]

Morning all, I am having some recent success with a Vitamin B1. I have suffered with RLS most of my life although it has been worse over the past 5 years and I was prescribed Ropinerole that worked and then within 10 months did not do as intended and my RLS was worse again. I have been taken Gabapentin for about 4 years and was quite happy at 900 mg although suffered quite a lot with brain fog, fatigue during the day and a lack of interest in things that I should have been interested in. I had reduced to 600mg for a year or so that seemed to still control RLD in my legs but not in my arms and more frequently did not appear to be provide any real improvement. I have continued to try lots of other things with limited success that usually didn't provide any definite improvement. I still take a multivitamin, a vitamin d and a magnesium tablet on a morning as well as 64mg of iron on an evening before bed. I did also sometimes use a magnesium spray but have not needed to for a good month or so. Over the past few months I have been taking 300mg of vitamin b1 as I had seen an article that mentioned an elderly women who was cured of her RLS using a 600mg b1 (I think). I decided to use only 300 mg as this was already 27,000% Reference Intake on the packaging (although from my basic knowledge b1 is quite safe regardless). Within about 5 days I was getting to sleep better and my RLS appears to have largely gone. I have continued with the b1 and reduced my Gabapentin to one 300mg tablet (I plan to reduce this further and come off Gabapentin completely, I don't believe that it is helping anymore as mentioned). I will keep track of things and provide updates when I am off Gabapentin, hopefully still RLS free.

I didn't intend to message just yet, but last night thought it might be a lift of an option to other people struggling or in despair, I was certainly getting to a point of acceptance and despair but I am positive and now more hopeful.

[Madlegs1]

That's great news.Hopefully it continues and you will experience a normal life here on out!👍👍

[amdrew_m in reply to Madlegs1]

Thank you 🤞🤞🤞

[Hidden]

Good to hear of your continued success. I tried B1 for another health condition but unfortunately, as with the other B vitamins, it causes insomnia.

[amdrew_m in reply to Hidden]

Sorry to hear that Amrob, I don't appear to be affected with insomnia as yet but will keep this in mind.

[SueJohnson]

Take your magnesium tablet at night as that is when it will help most but not within 3 hours of gabapentin. Also take yourmagnesium 2 hours apart from your iron.

What is your ferritin number?

[amdrew_m in reply to SueJohnson]

Thank you Sue, I was aware of the magnesium connection with gabapentin but not iron. I will adjust accordingly

[amdrew_m in reply to amdrew_m]

Ferritin is 199 ug/l. It was closer to 120 a few years back before taking the iron supplements. Many thanks

[Jumpey]

Great news.Keep us posted.

[DicCarlson]

Well - that's a new one on me - but hey, LOTS of B1 information, videos, articles, etc here...

living-whole.org/2022/01/19...

[amdrew_m in reply to DicCarlson]

Thanks DicCarlson, I'm actually taking less of the B1 every other night at the moment, so 300mg one night and 200mg the next, see if I still have the improvements after a week.

I found the article I mentioned in my original post.

drrichardhmann.com/case-rep...

I don't use Nuremedy Benfotiamine, just regular B1 tablets

[Eryl]

The reference intake is what's essential, not what's optimium. There are som side effects linked to an overdose, some of them serious, and as many processed foods are supplemented with B1 some people may get an overdose.

Can you explain how vitamin B1 reduces RLS?

[amdrew_m in reply to Eryl]

Hi Eryl, thank you for your message. From my research, I didn't find B1 to be a particular risk to me and I was at a point on my RLS journey that I was lost and looking to strong opioids as my next step. I am not a medical professional or even particularly knowledgeable about RLS, there are some internet articles that mention B1 and RLS as well as peripheral neuropathy although I won't try to explain how B1 reduces RLS; it does appear to be working for me at the moment. Many thanks

[Eryl in reply to amdrew_m]

My mehod of minimising systemic inflammation caused by certain foods does make medical sense and allow me to completeley eliminate my RLS without meds.

[amdrew_m in reply to Eryl]

Great, good to know there are lots of options that can help with RLS

[Hidden]

This might help to explain why B1 works so well. ncbi.nlm.nih.gov/pmc/articl...

[amdrew_m in reply to Hidden]

Thank you SalemLake, I hadn't seen this before but it does suggest links with how it might help with RLS