Morning all, I am having some recent success with a Vitamin B1. I have suffered with RLS most of my life although it has been worse over the past 5 years and I was prescribed Ropinerole that worked and then within 10 months did not do as intended and my RLS was worse again. I have been taken Gabapentin for about 4 years and was quite happy at 900 mg although suffered quite a lot with brain fog, fatigue during the day and a lack of interest in things that I should have been interested in. I had reduced to 600mg for a year or so that seemed to still control RLD in my legs but not in my arms and more frequently did not appear to be provide any real improvement. I have continued to try lots of other things with limited success that usually didn't provide any definite improvement. I still take a multivitamin, a vitamin d and a magnesium tablet on a morning as well as 64mg of iron on an evening before bed. I did also sometimes use a magnesium spray but have not needed to for a good month or so. Over the past few months I have been taking 300mg of vitamin b1 as I had seen an article that mentioned an elderly women who was cured of her RLS using a 600mg b1 (I think). I decided to use only 300 mg as this was already 27,000% Reference Intake on the packaging (although from my basic knowledge b1 is quite safe regardless). Within about 5 days I was getting to sleep better and my RLS appears to have largely gone. I have continued with the b1 and reduced my Gabapentin to one 300mg tablet (I plan to reduce this further and come off Gabapentin completely, I don't believe that it is helping anymore as mentioned). I will keep track of things and provide updates when I am off Gabapentin, hopefully still RLS free.
I didn't intend to message just yet, but last night thought it might be a lift of an option to other people struggling or in despair, I was certainly getting to a point of acceptance and despair but I am positive and now more hopeful.
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amdrew_m
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Take your magnesium tablet at night as that is when it will help most but not within 3 hours of gabapentin. Also take yourmagnesium 2 hours apart from your iron.
Thanks DicCarlson, I'm actually taking less of the B1 every other night at the moment, so 300mg one night and 200mg the next, see if I still have the improvements after a week.
I found the article I mentioned in my original post.
The reference intake is what's essential, not what's optimium. There are som side effects linked to an overdose, some of them serious, and as many processed foods are supplemented with B1 some people may get an overdose.
Hi Eryl, thank you for your message. From my research, I didn't find B1 to be a particular risk to me and I was at a point on my RLS journey that I was lost and looking to strong opioids as my next step. I am not a medical professional or even particularly knowledgeable about RLS, there are some internet articles that mention B1 and RLS as well as peripheral neuropathy although I won't try to explain how B1 reduces RLS; it does appear to be working for me at the moment. Many thanks
My mehod of minimising systemic inflammation caused by certain foods does make medical sense and allow me to completeley eliminate my RLS without meds.
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any successful stories switching from opioid to pregabalin? 
Success with iron infusion (sort of)
Success with CBD
A success story and a massive thankyou!
Vitamin D deficiency and Anti-epileptics - Pregabalin, Gabapentin etc
