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update on pramipexole withdrawal.
well started on Gabapentin at 300 mg for a few days and had slight dizziness both couple hours after taking it and for about an hour in the morning. Nithing like the brain fog and dizziness I have had theough a traumatic brain injury so handled it fine. Added every few days another 100mg. Have been taking
well started on Gabapentin at 300 mg for a few days and had slight dizziness both couple hours after taking it and for about an hour in the morning. Nithing like the brain fog and dizziness I have had theough a traumatic brain injury so handled it fine. Added every few days another 100mg. Have been taking
Kejimkujik
in
Restless Legs Syndrome
3 months ago
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range?
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Suffering_sunny
in
Pernicious Anaemia Society
3 months ago
Latest Results for Advice
I thought I would have seen and felt a slight difference starting or Armour. What would be you advice regarding my results? I am under private endo and was started 7 weeks ago on 1/2 grains of Armour only, I was previously on 50 Levo. I had bloods drawn 2 days running one private by BH at 9am and the
I thought I would have seen and felt a slight difference starting or Armour. What would be you advice regarding my results? I am under private endo and was started 7 weeks ago on 1/2 grains of Armour only, I was previously on 50 Levo. I had bloods drawn 2 days running one private by BH at 9am and the
Albaangel
in
Thyroid UK
3 months ago
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PV Iron deficiency and Endurance
I am 65, diagnosed with PV November 2023 (had pulmonary embolus). I am on Hydrea and all blood counts are now normal. My usual activity has included a lot of bicycling, often long hilly rides (50 miles or more) and multiple days in a row. I asked MD if there was anything that might make me feel more
I am 65, diagnosed with PV November 2023 (had pulmonary embolus). I am on Hydrea and all blood counts are now normal. My usual activity has included a lot of bicycling, often long hilly rides (50 miles or more) and multiple days in a row. I asked MD if there was anything that might make me feel more
FourSeasonLover
in
MPN Voice
3 months ago
Goats milk kefir
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Chickens44
in
Pernicious Anaemia Society
3 months ago
Looking for some guidance please
Hello I have been following the group for a number of months and have learned a lot about my condition, so thankyou to everyone here. I am now reaching out for guidance and help as I have been struggling a lot over the last couple of year or so. As background/history, I am a 65 year male and live
Hello I have been following the group for a number of months and have learned a lot about my condition, so thankyou to everyone here. I am now reaching out for guidance and help as I have been struggling a lot over the last couple of year or so. As background/history, I am a 65 year male and live
Bikerguy1
in
Restless Legs Syndrome
3 months ago
Which iron supplement to take?
My ferritin level is at 65 but understand getting above 100 could be beneficial. Is ferrous sulphate the way to go and if so how much would I need to take? TIA
My ferritin level is at 65 but understand getting above 100 could be beneficial. Is ferrous sulphate the way to go and if so how much would I need to take? TIA
Alifromthegalley
in
Restless Legs Syndrome
3 months ago
Do Drs get a bonus for prescribing certain drugs ?
Does anybody know if Gps get a hand out for prescribing statins ? There has been a lot of controversy in regard to this topic. Late yesterday afternoon I had a call from my surgery. It was a Dr I had never heard of or had I spoken to her before. She was suggesting I were put on statins! I asked for
Does anybody know if Gps get a hand out for prescribing statins ? There has been a lot of controversy in regard to this topic. Late yesterday afternoon I had a call from my surgery. It was a Dr I had never heard of or had I spoken to her before. She was suggesting I were put on statins! I asked for
Jillymo
in
Pernicious Anaemia Society
3 months ago
Hypothyroidism & Test Result help Plz
I’ve been having various problems over the years since 2019 ! I was diagnosed with Hypothyroidism back in 1995 & im now 54 & female. I have seen a private endocrinologist before & am thinking again of recontacting again because of how unwell I am. Had my Thyroid panel done on 25/03/2024 first thing
I’ve been having various problems over the years since 2019 ! I was diagnosed with Hypothyroidism back in 1995 & im now 54 & female. I have seen a private endocrinologist before & am thinking again of recontacting again because of how unwell I am. Had my Thyroid panel done on 25/03/2024 first thing
Toto88
in
Thyroid UK
3 months ago
Help pls! Feeling very ill !
Hi all, my previous post about liquid thyrox was failed at the first try, split doses..it hit me even harder..so scared had to stop right away!! This test was on 16 Jan 24 was on 5 days 100mg + 2 days 75mg TSH too low 0.07.. as Im losing too much weight (~10 kg) after foods poison then seen nutritionist
Hi all, my previous post about liquid thyrox was failed at the first try, split doses..it hit me even harder..so scared had to stop right away!! This test was on 16 Jan 24 was on 5 days 100mg + 2 days 75mg TSH too low 0.07.. as Im losing too much weight (~10 kg) after foods poison then seen nutritionist
Snqanq
in
Thyroid UK
3 months ago
Advice on latest results please
I’ve had a bumpy ride over the past 4 years, some of it self-induced by being impatient. When I started testing my thyroid everything was low inc tsh and cortisol, in retrospect I suppose my body was just trying to survive on drippings. I was never sure I had a thyroid problem as my tsh was always
I’ve had a bumpy ride over the past 4 years, some of it self-induced by being impatient. When I started testing my thyroid everything was low inc tsh and cortisol, in retrospect I suppose my body was just trying to survive on drippings. I was never sure I had a thyroid problem as my tsh was always
Jamima
in
Thyroid UK
3 months ago
I’m Coco & today Joolsg suggested I post re upcoming NHS Iron Infusion
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Barnclown
in
Restless Legs Syndrome
3 months ago
vitamins
Morning everyone This is a big ask but is there someone that can tell me if this multivitamin is safe to take? It has iron in it and was always told to be careful with iron bit about me Women over 60 No thyroid for over 15 years On 20 T3 and 100 / 125 levothoroxine alternitive days Take marshmalllow
Morning everyone This is a big ask but is there someone that can tell me if this multivitamin is safe to take? It has iron in it and was always told to be careful with iron bit about me Women over 60 No thyroid for over 15 years On 20 T3 and 100 / 125 levothoroxine alternitive days Take marshmalllow
Nellups
in
Thyroid UK
3 months ago
Latest results - 6 weeks pregnant
Hello friends 😊 Following my last tests (a bit over 2 months ago), I added vitamin b12 drops 3 days a week, have cut down my B complex to 1 capsule, and I taking a separate Folate supplement as this was getting quite high, and it was pointed out to me that it is a "Goldilocks vitamin" when trying to
Hello friends 😊 Following my last tests (a bit over 2 months ago), I added vitamin b12 drops 3 days a week, have cut down my B complex to 1 capsule, and I taking a separate Folate supplement as this was getting quite high, and it was pointed out to me that it is a "Goldilocks vitamin" when trying to
Molly161018
in
Thyroid UK
3 months ago
consultant needed
I have been seeing Professor Matthew Walker for RLS. I am taking 600mg of gabapentin at 3pm and a further 600mg at 7pm. I also frequently take a further 300mg at midnight. I was on 6 x .088mg of Pramipexole which I have gradually come off of completely since September 2023. I took my last 1/2 of.088mg
I have been seeing Professor Matthew Walker for RLS. I am taking 600mg of gabapentin at 3pm and a further 600mg at 7pm. I also frequently take a further 300mg at midnight. I was on 6 x .088mg of Pramipexole which I have gradually come off of completely since September 2023. I took my last 1/2 of.088mg
purple-flowers
in
Restless Legs Syndrome
3 months ago
Taking supplements but gaining weight fast
Hi folks, Just wondering if this is normal common. I have been on supplements now for about 5 weeks. I'm feeling a million times better more energised normal but I have an insatiable hunger. Especially for chocolate. Its really only in the past. I have put up half stone in those weeks. I am taking,
Hi folks, Just wondering if this is normal common. I have been on supplements now for about 5 weeks. I'm feeling a million times better more energised normal but I have an insatiable hunger. Especially for chocolate. Its really only in the past. I have put up half stone in those weeks. I am taking,
madeline05
in
Thyroid UK
3 months ago
Updated Numbers Based on Recent Appointment
Hi, I'm about 10 months in to starting Besremi and just had a phlebotomy. RBC had gotten to 47 after only 2 months from my prior phlebotomy, which I wasn't happy about. I keep hoping that will stabilize soon, although it took me a while to ramp up to my current Besremi dose. But I did have some questions
Hi, I'm about 10 months in to starting Besremi and just had a phlebotomy. RBC had gotten to 47 after only 2 months from my prior phlebotomy, which I wasn't happy about. I keep hoping that will stabilize soon, although it took me a while to ramp up to my current Besremi dose. But I did have some questions
Luthorville
in
MPN Voice
3 months ago
Lactoferrin
Anyone know about taking lactoferrin for better iron absorption? I didn't see mention of this when people writing about taking iron and I have been reading that it really helps with absorption. Also wondering if it would help since I am taking a PPI for GERD and I know that decreases the absorption
Anyone know about taking lactoferrin for better iron absorption? I didn't see mention of this when people writing about taking iron and I have been reading that it really helps with absorption. Also wondering if it would help since I am taking a PPI for GERD and I know that decreases the absorption
glorious-granny
in
Restless Legs Syndrome
3 months ago
TSH dropping, but FT4 stuck
I started levothyroxine on 10th August on 25mcg, then went up to 50mcg in September, then 75mcg Nov and I'm now alternating 75/100mcg every day. My TSH has dropped considerably, however my FT4 has got stuck at the very bottom end of normal and doesn't seem to be rising despite me increasing the dose
I started levothyroxine on 10th August on 25mcg, then went up to 50mcg in September, then 75mcg Nov and I'm now alternating 75/100mcg every day. My TSH has dropped considerably, however my FT4 has got stuck at the very bottom end of normal and doesn't seem to be rising despite me increasing the dose
TheSnufkin
in
Thyroid UK
3 months ago
new member advice on gp appts
hi all, my daughter has what I think is endo. Although not formally diagnosed.symptoms include very heavy periods and large clots, extreme pain during period that she has to take days off work, feeling sick all the time, bleeding between periods. She’s anemic and on iron tablets. Has had scan and waiting
hi all, my daughter has what I think is endo. Although not formally diagnosed.symptoms include very heavy periods and large clots, extreme pain during period that she has to take days off work, feeling sick all the time, bleeding between periods. She’s anemic and on iron tablets. Has had scan and waiting
Magsag
in
Endometriosis UK
3 months ago
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