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Vimpat is working for severe RLS and PLMD
I’ve had almost complete resolution of my RLS on Vimpat (lacosamide) now at 150 mg at 10 am and 10 pm. This is a remarkable turnaround in my symptoms. I started on 50 twice a day and the effect started to wane with a tolerable amount of breakthrough RLS. I increased to 100 twice a day after several weeks
I’ve had almost complete resolution of my RLS on Vimpat (lacosamide) now at 150 mg at 10 am and 10 pm. This is a remarkable turnaround in my symptoms. I started on 50 twice a day and the effect started to wane with a tolerable amount of breakthrough RLS. I increased to 100 twice a day after several weeks
SleeplessinNC
in
Restless Legs Syndrome
2 months ago
Iron deficiency
I was on iron tablets after blood tests the doctor said stop taking the pain tablets as they may be causing the problem but it wasn't it was my small intestine dying because I had the coeliac disease and ive not had a iron problem since being diagnosed coeliac. so if you've got a iron problem their
I was on iron tablets after blood tests the doctor said stop taking the pain tablets as they may be causing the problem but it wasn't it was my small intestine dying because I had the coeliac disease and ive not had a iron problem since being diagnosed coeliac. so if you've got a iron problem their
Bantamdyno
in
Restless Legs Syndrome
2 months ago
Would be grateful for your thoughts on my blood results before endo apt please, still feeling exhausted and weak. Thank you
Hello, I’ve had an underactive thyroid for 8 years after having my first child, looks like Hashimotos. Currently taking 100mcg levothyroxine and 15mcg liothyronine (10mcg on waking and 5 around 3pm). Also on HRT patches as am mid 40s and perimenopausal. I’m gluten free, have had SIBO in the past.
Hello, I’ve had an underactive thyroid for 8 years after having my first child, looks like Hashimotos. Currently taking 100mcg levothyroxine and 15mcg liothyronine (10mcg on waking and 5 around 3pm). Also on HRT patches as am mid 40s and perimenopausal. I’m gluten free, have had SIBO in the past.
Hopetoheal22
in
Thyroid UK
2 months ago
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Iron Levels
this group is so helpful. Thank you to everyone, especially those experts. I’m currently weaning off pram with higher doses of gab. My PA in neurology is helpful with raising the gab as needed. However, I had my iron tests done with a 350 ferritin result and a 12% TSAT. So if I understand this
this group is so helpful. Thank you to everyone, especially those experts. I’m currently weaning off pram with higher doses of gab. My PA in neurology is helpful with raising the gab as needed. However, I had my iron tests done with a 350 ferritin result and a 12% TSAT. So if I understand this
CarolynE13
in
Restless Legs Syndrome
2 months ago
Thank you
Hello all you good people out there. I want to say a big thank you to everyone who replied to my recent post. I have found the advice you have given me very helpful. Of course l have had RLS so long now l know most of the things you should do or shouldn’t do. I did wonder recently what my iron level
Hello all you good people out there. I want to say a big thank you to everyone who replied to my recent post. I have found the advice you have given me very helpful. Of course l have had RLS so long now l know most of the things you should do or shouldn’t do. I did wonder recently what my iron level
bedith6
in
Restless Legs Syndrome
2 months ago
Iron Infusion Update
I had my 2 hour Iron infusion on Wednesday and Im not sure what I should be feeling because I don’t feel much different than before the fusion …. The Only bonus I have noticed is I can now brush my hair without stopping every 2 mins.
I had my 2 hour Iron infusion on Wednesday and Im not sure what I should be feeling because I don’t feel much different than before the fusion …. The Only bonus I have noticed is I can now brush my hair without stopping every 2 mins.
Batty1
in
Thyroid UK
2 months ago
This week has been rough! Introducing...
My MS Adventure Buddy has a name now! Introducing Finley Ashowen! Or Fin for short. Pictured above at my iron infusion last week. I did better with the iron infusion than with my first one, which is to say I didn't look 'like death pulled through a keyhole' - not my description 🤣🤣😅 That is not
My MS Adventure Buddy has a name now! Introducing Finley Ashowen! Or Fin for short. Pictured above at my iron infusion last week. I did better with the iron infusion than with my first one, which is to say I didn't look 'like death pulled through a keyhole' - not my description 🤣🤣😅 That is not
MSFlea
in
My MSAA Community
2 months ago
good morning, question on iron supplement when I start injection
well for now I'm on liquid b12 methyl 720 per day and next week my injections come in the mail ans I know Im needing Iron supplements but I'm not sure how much to take. Im not sure on how much injection I will be on yet.
well for now I'm on liquid b12 methyl 720 per day and next week my injections come in the mail ans I know Im needing Iron supplements but I'm not sure how much to take. Im not sure on how much injection I will be on yet.
JesusMercy60
in
Pernicious Anaemia Society
2 months ago
Neutropenia /pregabalin
Hello...I've just had my 3rd iron panel results , showing ,neutropenia..this is new and wasn't present in my last results in march.It's a side effect of pregabalin from what I can find (the pharmacist was useless). Ferritin down to 79 from 179 in November after iron infusion. Legs are chaotic . I'm.at
Hello...I've just had my 3rd iron panel results , showing ,neutropenia..this is new and wasn't present in my last results in march.It's a side effect of pregabalin from what I can find (the pharmacist was useless). Ferritin down to 79 from 179 in November after iron infusion. Legs are chaotic . I'm.at
Baz33
in
Restless Legs Syndrome
3 months ago
Success with GP - for now
Just had an appointment with my GP and after lots of persuasion and me quoting NICE guidelines at him, he's agreed to reinstate my previous daily 100mcg Levo. 🥳This does come with the condition of reassessing in 6-8 weeks after bloods done. (I'll cross that bridge when I get there) I got the usual
Just had an appointment with my GP and after lots of persuasion and me quoting NICE guidelines at him, he's agreed to reinstate my previous daily 100mcg Levo. 🥳This does come with the condition of reassessing in 6-8 weeks after bloods done. (I'll cross that bridge when I get there) I got the usual
Jingley
in
Thyroid UK
3 months ago
Heavy bleeding Mirena
Hello I have the mirena IUD coil for about 3 years now. My bleeding used to be lighter but still there and constant. But over the last couple of money with academic stress and financial pressure. I've been bleeding so heavily with blood clots the size of my palm. I bleed like 3 weeks a month and I spend
Hello I have the mirena IUD coil for about 3 years now. My bleeding used to be lighter but still there and constant. But over the last couple of money with academic stress and financial pressure. I've been bleeding so heavily with blood clots the size of my palm. I bleed like 3 weeks a month and I spend
Littlebug77
in
Endometriosis UK
3 months ago
Full iron panel results
I've persuaded my doctor to do a blood test to determine my iron levels but I need help knowing what my levels should be. I've tried searching the site but no luck. Could someone help please?
I've persuaded my doctor to do a blood test to determine my iron levels but I need help knowing what my levels should be. I've tried searching the site but no luck. Could someone help please?
gobojo
in
Restless Legs Syndrome
3 months ago
Vitamin timings
Morning from not at all sunny Wales. I don’t know why I struggle with a vitamin routine and I wonder if I’m alone on this? Is it okay to take all of these at the same time after breakfast: Vit D/K, B12, Folate, and DHEA? If I take them then they aren’t near any thyroid medication but wanted
Morning from not at all sunny Wales. I don’t know why I struggle with a vitamin routine and I wonder if I’m alone on this? Is it okay to take all of these at the same time after breakfast: Vit D/K, B12, Folate, and DHEA? If I take them then they aren’t near any thyroid medication but wanted
Joant24
in
Thyroid UK
3 months ago
ferratin blood level
Hi, I’ve got a ferritin level of 40.5 (30 - 169) To me this is low isn’t it? Also I have been taking spatone iron sachets for 6 months so would you say I’d need a higher iron supplement? If so could anymore please advise on a decent one ?
Hi, I’ve got a ferritin level of 40.5 (30 - 169) To me this is low isn’t it? Also I have been taking spatone iron sachets for 6 months so would you say I’d need a higher iron supplement? If so could anymore please advise on a decent one ?
Lilymayjean
in
Thyroid UK
3 months ago
Recent visit with my RLS Neurologist
Hello RLS community, I had a recent session with my neurologist who is part of the Oregon Health Science University here in Portland. This is my go to doctor for conditions related to RLS. In my most recent visit with him he said he wanted to confirm some thoughts he had about my condition and ordered
Hello RLS community, I had a recent session with my neurologist who is part of the Oregon Health Science University here in Portland. This is my go to doctor for conditions related to RLS. In my most recent visit with him he said he wanted to confirm some thoughts he had about my condition and ordered
jinolke
in
Restless Legs Syndrome
3 months ago
Any suggestions for Pregabalin side effects?
I have weaned myself off ropinirole. It was the perfect drug for me before augmentation set in. Slept all night and had no after-effects the next day. I am now on 75 mg pregablin which I take 2 to 3 hours before bedtime. I fall asleep easily but wake up after two hours with RLS, strong enough urges to
I have weaned myself off ropinirole. It was the perfect drug for me before augmentation set in. Slept all night and had no after-effects the next day. I am now on 75 mg pregablin which I take 2 to 3 hours before bedtime. I fall asleep easily but wake up after two hours with RLS, strong enough urges to
Brufax
in
Restless Legs Syndrome
3 months ago
Massive hairloss & anxiety -blood results help
Hi, over the past 6 weeks my hair has been falling out in clumps and I feel very anxious. Is there anything in my blood that could explain? I feel overmedicated. Sweaty hands, very frequent bowel movement Tsh 1.7 (0.27-4.2) ft4 17.6 (12-22) ft3 4.59 (3.10-6.8) iron 112 (40-150) ferritine 50
Hi, over the past 6 weeks my hair has been falling out in clumps and I feel very anxious. Is there anything in my blood that could explain? I feel overmedicated. Sweaty hands, very frequent bowel movement Tsh 1.7 (0.27-4.2) ft4 17.6 (12-22) ft3 4.59 (3.10-6.8) iron 112 (40-150) ferritine 50
Sofie007
in
Thyroid UK
3 months ago
Fluttering and shaking
Hello my well informed PA society, I am recently experiencing fluttering in my body along with shaking. I have pernicious anemia and hypothyroid, gastritis. Recently I stopped taking my iron pills because they were making me so extremely hungry and gaining weight. I've tried several brands to see
Hello my well informed PA society, I am recently experiencing fluttering in my body along with shaking. I have pernicious anemia and hypothyroid, gastritis. Recently I stopped taking my iron pills because they were making me so extremely hungry and gaining weight. I've tried several brands to see
25092
in
Pernicious Anaemia Society
3 months ago
Risk of reversing out for A'levels
Hi everyone. I'm in a conundrum. My youngest daughter, 17, has low B12 (181ng/L, so not low enough for our GP to take any notice), inherited from me (141ng/L and now self-injecting) and her grandmother (hospitalised on intravenous B12 for several months in the '50s). She has quite low folate at 5.5.
Hi everyone. I'm in a conundrum. My youngest daughter, 17, has low B12 (181ng/L, so not low enough for our GP to take any notice), inherited from me (141ng/L and now self-injecting) and her grandmother (hospitalised on intravenous B12 for several months in the '50s). She has quite low folate at 5.5.
Cotswolds23
in
Pernicious Anaemia Society
3 months ago
Constipation help
Hello lovely people, I suffered from pretty bad bowel movement before but now that I have been prescribed strong iron it is much worse. I knew this would happen as my stomach doesn't tolerate iron very well so my GP also prescribed me Laxido. I have been taking two sachets a day and whilst I'm not completely
Hello lovely people, I suffered from pretty bad bowel movement before but now that I have been prescribed strong iron it is much worse. I knew this would happen as my stomach doesn't tolerate iron very well so my GP also prescribed me Laxido. I have been taking two sachets a day and whilst I'm not completely
flohal
in
Thyroid UK
3 months ago
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