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I am getting there but…
Back here again… so helpful in the past, and need your help again! I have been slowly coming off pramipexole over 4 months, reducing tablets by a half every month. I am now on one and a half tablets. I have been taking gentle iron, 40 mg at night, with Vit c. My bloods tested in Dec when I started
Back here again… so helpful in the past, and need your help again! I have been slowly coming off pramipexole over 4 months, reducing tablets by a half every month. I am now on one and a half tablets. I have been taking gentle iron, 40 mg at night, with Vit c. My bloods tested in Dec when I started
Jukebox55
in
Restless Legs Syndrome
1 year ago
Test results advice
Hello, I wondered if you might be able to advise me on my recent test results from Thriva? Blood taken at 11.30 am fasting. I had taken Levo at 10 pm previous night. I'm taking Solgar sub lingua B12 which includes folate - do I need to stop this and change to just B complex to bring down B12? Is
Hello, I wondered if you might be able to advise me on my recent test results from Thriva? Blood taken at 11.30 am fasting. I had taken Levo at 10 pm previous night. I'm taking Solgar sub lingua B12 which includes folate - do I need to stop this and change to just B complex to bring down B12? Is
HotelHurricaine
in
Thyroid UK
1 year ago
low Ferritin
recently had blood tests at GP’s and would be grateful for comments from other hypothyroid patients. FBC TWCc 5.1 (4.0-11) Hb 132g/L (115-165) Platelet count 228 (150-400) RBC 4.18 (3.80-5.50) Haematocrit (0.37-0.47) MCV 94fL (80-100) MCH 31.7 pg (27.0-33.0) Red blood cell distribution width
recently had blood tests at GP’s and would be grateful for comments from other hypothyroid patients. FBC TWCc 5.1 (4.0-11) Hb 132g/L (115-165) Platelet count 228 (150-400) RBC 4.18 (3.80-5.50) Haematocrit (0.37-0.47) MCV 94fL (80-100) MCH 31.7 pg (27.0-33.0) Red blood cell distribution width
Beardies2
in
Thyroid UK
1 year ago
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Pregablin Life Changing
Hi I just wanted to give you all an update on my mums RLS. She was struggling to sleep and would walk around all night rolling on the floors banging her legs and this would leave her depressed agitated emotional and sometimes suicidal and she wouldnt want to get out of bed the next day. My mums RLS
Hi I just wanted to give you all an update on my mums RLS. She was struggling to sleep and would walk around all night rolling on the floors banging her legs and this would leave her depressed agitated emotional and sometimes suicidal and she wouldnt want to get out of bed the next day. My mums RLS
Ruzi
in
Restless Legs Syndrome
1 year ago
understanding my results
Please help with my results, my background is I have Graves’ disease, thyroid removed 7 months ago. I have had a blood transfusion 9 months ago, an iron transfusion for low Ferratin 4 months ago. I also have thyroid eye disease and a heart arrhythmia, had an ablation for the heart. My symptoms are
Please help with my results, my background is I have Graves’ disease, thyroid removed 7 months ago. I have had a blood transfusion 9 months ago, an iron transfusion for low Ferratin 4 months ago. I also have thyroid eye disease and a heart arrhythmia, had an ablation for the heart. My symptoms are
Mumms
in
Thyroid UK
1 year ago
Blood tests and supplement advice please if you have a minute.
Hello everyone, I posted this a little while back but no comments so trying again, I know everyone is busy but I find help here invaluable. I am hoping I could get some advice on recent results. In late October I changed from 100-125mcg dose due to aches and sluggishness. Prior to this I had received
Hello everyone, I posted this a little while back but no comments so trying again, I know everyone is busy but I find help here invaluable. I am hoping I could get some advice on recent results. In late October I changed from 100-125mcg dose due to aches and sluggishness. Prior to this I had received
MrsQ20
in
Thyroid UK
1 year ago
3 Arrows Heme dose & Raising T3 - how long might it take?!
Hello lovely people, I am trying to improve T4 / T3 conversion through lifestyle and supplements. I am on levo 125mg, take supplements of D3 & K2, B Complex, Magnesium and for the past 8 weeks before this test (stopped for 1 week beforehand) 3 Arrows Heme 2 tablets per day. For past 8-9 weeks I have
Hello lovely people, I am trying to improve T4 / T3 conversion through lifestyle and supplements. I am on levo 125mg, take supplements of D3 & K2, B Complex, Magnesium and for the past 8 weeks before this test (stopped for 1 week beforehand) 3 Arrows Heme 2 tablets per day. For past 8-9 weeks I have
HotelHurricaine
in
Thyroid UK
1 year ago
Query re. folic acid dosage and related issues
I’m still confused with regard to correct amounts of folic acid and B6 when injecting B12 EOD or ED, assuming it’s for life. Is there a danger of overdosing folic acid or B6 do we know? Also not entirely clear about taking iron if spare folic acid becomes ferritin and is stored as iron. Or if this
I’m still confused with regard to correct amounts of folic acid and B6 when injecting B12 EOD or ED, assuming it’s for life. Is there a danger of overdosing folic acid or B6 do we know? Also not entirely clear about taking iron if spare folic acid becomes ferritin and is stored as iron. Or if this
Yervaud
in
Pernicious Anaemia Society
1 year ago
A change for a Friday...girls on a walk...
Hi there. Walking is ongoing as I continue building back to full strength again. Hoping every one is managing to get some walks in too! Today, I went down to spend the day with Small runner in training, Mama and Alice the dog. Poor Dada was in his study working! Friday is a day when Small one arrives
Hi there. Walking is ongoing as I continue building back to full strength again. Hoping every one is managing to get some walks in too! Today, I went down to spend the day with Small runner in training, Mama and Alice the dog. Poor Dada was in his study working! Friday is a day when Small one arrives
Oldfloss
in
Active 10
1 year ago
Weening off Pramipexole to start Gabapentin
I've been taking Pramipexole for 18 years ( .75 mg daily ). for my RLS.My Dr. is starting me on Gabapentin to replace the Sifrol. I am now taking 75 mg. Gabapentin daily in addition to Sifrol. Two days ago I reduced Sifrol down to .50 mg. daily. I am very knowledgable about RLS having studied it for
I've been taking Pramipexole for 18 years ( .75 mg daily ). for my RLS.My Dr. is starting me on Gabapentin to replace the Sifrol. I am now taking 75 mg. Gabapentin daily in addition to Sifrol. Two days ago I reduced Sifrol down to .50 mg. daily. I am very knowledgable about RLS having studied it for
Katyparis
in
Restless Legs Syndrome
1 year ago
B12/Folate/Iron results help?
Please can someone help me interpret my latest blood tests results. NHS are taking no action but I feel so weak and exhausted, dizzy if I bend over or on standing, zero stamina. My bones ache. I don't take any supplements other than Zinc & Selenium. T4 50mg T3 55mg. Last blood test for thyroid NHS says
Please can someone help me interpret my latest blood tests results. NHS are taking no action but I feel so weak and exhausted, dizzy if I bend over or on standing, zero stamina. My bones ache. I don't take any supplements other than Zinc & Selenium. T4 50mg T3 55mg. Last blood test for thyroid NHS says
Lulu2red
in
Thyroid UK
1 year ago
what about liquid chlorophyll, papaya leaf juice, iron, B vitamins, vit D?
I'm at the start of this journey with my friend recently diagnosed and on steriods, Has anyone tried the above?
I'm at the start of this journey with my friend recently diagnosed and on steriods, Has anyone tried the above?
melodie
in
ITP Support Association
1 year ago
update on teenagers results, any other thoughts welcome
Hi update on dd 17. Thyroid results are better than they were last year, since she was able to go private and got dose upped from 100 to 125. Still really struggling with fatigue and nausea though, and will really struggle to go to college, as couldnt do full time school. This week's results. Through
Hi update on dd 17. Thyroid results are better than they were last year, since she was able to go private and got dose upped from 100 to 125. Still really struggling with fatigue and nausea though, and will really struggle to go to college, as couldnt do full time school. This week's results. Through
camomile9
in
Thyroid UK
1 year ago
b12=999 but low folate
I’ve just had bloods and my folate came back as low but my b12 was 999. My white blood count was also high along with neutrophils monocytes eoisenophils and lymphocytes. I have to get retested in two weeks but has anyone else experienced this? I’ve been put on 5mg daily of iron for 4 months but could
I’ve just had bloods and my folate came back as low but my b12 was 999. My white blood count was also high along with neutrophils monocytes eoisenophils and lymphocytes. I have to get retested in two weeks but has anyone else experienced this? I’ve been put on 5mg daily of iron for 4 months but could
Tiredguy94
in
Pernicious Anaemia Society
1 year ago
Support ,tears , questions. Low hemoglobin . Severe pain l4l5 s1. ( Facet injections failed ) . Severely anemic ,three months bed ridden
I can't think of a specific question and I'm getting anxiety just reaching out bc my dad is holding on to life so hard and his smile ha been gone . Last I wrote they believed my dad became bedridden bc of severe arthritis in l4l5 s1. He underwent a series of two facet joint injections as well as two
I can't think of a specific question and I'm getting anxiety just reaching out bc my dad is holding on to life so hard and his smile ha been gone . Last I wrote they believed my dad became bedridden bc of severe arthritis in l4l5 s1. He underwent a series of two facet joint injections as well as two
Daddyishealing
in
Fight Prostate Cancer
1 year ago
Folate Deficiency
Hi Everyone I've just joined, so glad I found this group, wish I'd found it years ago. Great to find a place where everyone can be so open. I have a question and would be so grateful if anyone has experienced this could give any insight, I have a folate deficiency at the moment and have been prescribed
Hi Everyone I've just joined, so glad I found this group, wish I'd found it years ago. Great to find a place where everyone can be so open. I have a question and would be so grateful if anyone has experienced this could give any insight, I have a folate deficiency at the moment and have been prescribed
Galaxy2
in
Gluten Free Guerrillas
1 year ago
Suspected fibromyalgia with severe endometriosis
Hi all, hope you’ve had a good day (sending extra love if not!) I’ve been suffering with terrible joint pains & stiffness, raised glands, along with chronic fatigue that isn’t helped even if I do manage to get a decent night’s sleep. Blood tests show slight anaemia & slightly low vitamin D, even though
Hi all, hope you’ve had a good day (sending extra love if not!) I’ve been suffering with terrible joint pains & stiffness, raised glands, along with chronic fatigue that isn’t helped even if I do manage to get a decent night’s sleep. Blood tests show slight anaemia & slightly low vitamin D, even though
Purple_Badgers
in
Endometriosis UK
1 year ago
Seeking more vitamin advice please
After all the great advice after my first post 6 months ago I am looking for confirmation of next steps regarding vitamins. 1) Vitamin D: prior to previous post, I was taking Vitabiotics D3 (1000 IU) daily. My Blue Horizon result last July was 69 nmol/L (adequate!). I started the BetterYou D+K2 spray
After all the great advice after my first post 6 months ago I am looking for confirmation of next steps regarding vitamins. 1) Vitamin D: prior to previous post, I was taking Vitabiotics D3 (1000 IU) daily. My Blue Horizon result last July was 69 nmol/L (adequate!). I started the BetterYou D+K2 spray
rambler123
in
Thyroid UK
1 year ago
Latest appointment update…..ET investigation
Further to my previous post from yesterday I just thought I’d update you all of the outcome from my Consultants telephone appointment today incase my info may be of use to others…. Due to ongoing high platelets (usually in 500’s) I am currently under investigation for ET. I have had numerous tests
Further to my previous post from yesterday I just thought I’d update you all of the outcome from my Consultants telephone appointment today incase my info may be of use to others…. Due to ongoing high platelets (usually in 500’s) I am currently under investigation for ET. I have had numerous tests
Purdy13
in
MPN Voice
1 year ago
Next steps?
I posted back in November seeking advice and wondered if anyone had advice on how to go forward. These are my test results (unmedicated): August 2022 - TSH 0.04 (0.35-5.5); free T4 15.7 (10.5-21.0) October 2022 - TSH 6.56 (0.35-5.5); free T4 12.2 (10.5-21.0); TPOAb >1300 (0-60) November 2022 - (via
I posted back in November seeking advice and wondered if anyone had advice on how to go forward. These are my test results (unmedicated): August 2022 - TSH 0.04 (0.35-5.5); free T4 15.7 (10.5-21.0) October 2022 - TSH 6.56 (0.35-5.5); free T4 12.2 (10.5-21.0); TPOAb >1300 (0-60) November 2022 - (via
sa67
in
Thyroid UK
1 year ago
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