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CHC Funding - Upcoming assessment hits and tips please
Hi all I have managed ti finally get an assessment booked for my dad for CHC funding. I know from reading your posts that this is going to be a super challenge so I am keen to get advice, tips and how I can best be prepared for the assessment. I am UK based and the assessment is going to take place
Hi all I have managed ti finally get an assessment booked for my dad for CHC funding. I know from reading your posts that this is going to be a super challenge so I am keen to get advice, tips and how I can best be prepared for the assessment. I am UK based and the assessment is going to take place
Khalissi
in
PSP Association
1 year ago
Should I insist on Whole Pelvic Radiation Therapy (WPRT)?
Given my condition (see profile), should I ask for Whole Pelvic Radiation Therapy (WPRT)? Multiple doctors have said I don't need WPRT due to my low Decipher score, although it would give me better peace of mind. However, I am concerned about the additional side effects. Here are my questions, and I
Given my condition (see profile), should I ask for Whole Pelvic Radiation Therapy (WPRT)? Multiple doctors have said I don't need WPRT due to my low Decipher score, although it would give me better peace of mind. However, I am concerned about the additional side effects. Here are my questions, and I
Infamous9597
in
Advanced Prostate Cancer
4 days ago
Erectile dysfunction meds and side effects
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
My husband is getting brachytherapy in September and then IG IMRT in October. He is currently on Orgovyx for month two and will be adding zytega next month. Good news is that his PSA has gone to 2 and Testosterone to 9 after a month on Firmagon so meds seem to be doing what are supposed to. Drs have
SherryKahn
in
Advanced Prostate Cancer
7 days ago
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Help deciding on treatment
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
Discovered this forum a month ago and have found it to be a wealth of information, with very educated/informed members. Hoping that you can spread some of your wisdom and help my finalize my decision with treatment. I've posted more details in my profile as well as write ups from MSKCC on my Biopsy
MrGreenJeans
in
Prostate Cancer Network
7 days ago
Pelvic floor exercise video removed.
I had a RP 5 years ago with recurrence - then had 72Gy of IMRT. After the RP with pelvic floor exercises, I had incontinence under control - just wearing 1 shield per day. But then after radiation I completely lost control. I go thru periods of intensely training and I still have hope. My problem is
I had a RP 5 years ago with recurrence - then had 72Gy of IMRT. After the RP with pelvic floor exercises, I had incontinence under control - just wearing 1 shield per day. But then after radiation I completely lost control. I go thru periods of intensely training and I still have hope. My problem is
lynntg044
in
Prostate Cancer And Gay Men
10 days ago
A technical question on Radiation
A technical question: The radiation oncologist tells me that I received 19.5 Gy via Cyberknife over 3 days, a high biologic dose, and 42Gy via conventional (IMRT) radiation over 21 days. He says these are not linearly additive ( ie., not just for a total of 61.5Gy) but that the effective biologic
A technical question: The radiation oncologist tells me that I received 19.5 Gy via Cyberknife over 3 days, a high biologic dose, and 42Gy via conventional (IMRT) radiation over 21 days. He says these are not linearly additive ( ie., not just for a total of 61.5Gy) but that the effective biologic
Sushupthi
in
Advanced Prostate Cancer
10 days ago
Unusual case
Short summary. 79 years old. Surgery 12 years ago on G4+3. Recurrence 3 years later. IMRT and second recurrence 3 years later. No ADT. PSADT 1.5 years and now it's 2.3. Two PSMA scans. First showed nothing. Second showed ill defined area in prostate bed that might be positive. Never had ADT.
Short summary. 79 years old. Surgery 12 years ago on G4+3. Recurrence 3 years later. IMRT and second recurrence 3 years later. No ADT. PSADT 1.5 years and now it's 2.3. Two PSMA scans. First showed nothing. Second showed ill defined area in prostate bed that might be positive. Never had ADT.
npac
in
Advanced Prostate Cancer
13 days ago
Update on Treatment
In June 2023, a routine PSA test value turned out to be 4.6, did an MRI; Diagnosed with Prostate Cancer, Gleason Score 7 (3+4), biopsy said one core. (Details in my profile). Opted for Active Surveillance. But in Oct 2023, PSA level went to 6.1 and in Jan 2024 PSA went to 9.2 In March 2024, did another
In June 2023, a routine PSA test value turned out to be 4.6, did an MRI; Diagnosed with Prostate Cancer, Gleason Score 7 (3+4), biopsy said one core. (Details in my profile). Opted for Active Surveillance. But in Oct 2023, PSA level went to 6.1 and in Jan 2024 PSA went to 9.2 In March 2024, did another
Sushupthi
in
Advanced Prostate Cancer
15 days ago
ADT questions
I received 3 month Eligard shot April 11, pre 28 IMRT, completed May 31. Second 3 month scheduled On July 16. I have some daytime urgency after radiation and pee 3-5 times per night. On 2 tamsulosin. I have had no other symptoms, no hot flashes and no fatigue since radiation. This morning I woke with
I received 3 month Eligard shot April 11, pre 28 IMRT, completed May 31. Second 3 month scheduled On July 16. I have some daytime urgency after radiation and pee 3-5 times per night. On 2 tamsulosin. I have had no other symptoms, no hot flashes and no fatigue since radiation. This morning I woke with
SherpaT
in
Prostate Cancer Network
18 days ago
Gleason 9 prostate cancer
Hello - my husband has aggressive gleason 9 prostate cancer. He had a prostatectomy in August 2015 but his psa remained high, suggesting it had already left the prostate. He then had IMRT to his pelvic area and was started on Zoladex adt (3monthly injections). He became castrate resistant so abiraterone
Hello - my husband has aggressive gleason 9 prostate cancer. He had a prostatectomy in August 2015 but his psa remained high, suggesting it had already left the prostate. He then had IMRT to his pelvic area and was started on Zoladex adt (3monthly injections). He became castrate resistant so abiraterone
69HumptyDumpty
in
Prostate Cancer Network
26 days ago
PROSTOX Tests
Is Conventionally Fractionated Radiotherapy (CFRT) mentioned on https://mirakind.org/prostox-testing/ the same as Intensity-Modulated Radiation Therapy (IMRT)? Specifically, does the CFRT test indicate if I am at high or low risk for IMRT? If the result of SBRT test indicates high risk, can I opt for
Is Conventionally Fractionated Radiotherapy (CFRT) mentioned on https://mirakind.org/prostox-testing/ the same as Intensity-Modulated Radiation Therapy (IMRT)? Specifically, does the CFRT test indicate if I am at high or low risk for IMRT? If the result of SBRT test indicates high risk, can I opt for
Infamous9597
in
Advanced Prostate Cancer
28 days ago
MRI report shows enhancing bone lesion is noted involving the left sphenoid bone.
That’s from an MRI taken six weeks after 10 sessions of IMRT were completed for a surgically inoperable metastasis in my skull. Apparently this means the contrast agent shows increased blood flow or activity in the tumor. Does that sound normal to still have increased blood flow or activity six weeks
That’s from an MRI taken six weeks after 10 sessions of IMRT were completed for a surgically inoperable metastasis in my skull. Apparently this means the contrast agent shows increased blood flow or activity in the tumor. Does that sound normal to still have increased blood flow or activity six weeks
Gl448
in
Advanced Prostate Cancer
29 days ago
Lupron SEs - legs
Appreciate this forum and all whom post. I’m amidst 2-year course of Lupron and experiencing persistent leg pain, worst in both Achilles tendons and calves. Recent salvage IMRT, too. Thoughts on managing such SEs appreciated. Cheers.
Appreciate this forum and all whom post. I’m amidst 2-year course of Lupron and experiencing persistent leg pain, worst in both Achilles tendons and calves. Recent salvage IMRT, too. Thoughts on managing such SEs appreciated. Cheers.
NickKnick
in
Advanced Prostate Cancer
1 month ago
Estrogen for Bone Health in PCa patient.
I am under treatment for Prostrate Cancer since mid 2019. Gleason 9-10 when detected with 250 PSA. Pet CT showed all contained in prostrate but with one ECE and seminal vesicles involvement. No spread visible to lymph nodes or anywhere in the body. Treatment was conventional ADT using Firmagon for 4
I am under treatment for Prostrate Cancer since mid 2019. Gleason 9-10 when detected with 250 PSA. Pet CT showed all contained in prostrate but with one ECE and seminal vesicles involvement. No spread visible to lymph nodes or anywhere in the body. Treatment was conventional ADT using Firmagon for 4
binati
in
Advanced Prostate Cancer
1 month ago
Brachytherapy boost HDR vs LDR +/- ADT
A bit of my background: 50 years old, Gleason score of 4+3, a PSA of 11, decipher is low, and possible extracapsular extension. 1) I know what LDR and HDR do, but what are the differences in terms of their long-term side effects? 2) Should I include ADT for a better outcome and what percentage improvement
A bit of my background: 50 years old, Gleason score of 4+3, a PSA of 11, decipher is low, and possible extracapsular extension. 1) I know what LDR and HDR do, but what are the differences in terms of their long-term side effects? 2) Should I include ADT for a better outcome and what percentage improvement
Infamous9597
in
Advanced Prostate Cancer
1 month ago
Please advice
My latest PSA on 6/11/24 was 1.06 up from 0.65 on 4/2/24. I have a meeting with my MO on 4/26 to discuss the next step. I was taking Opdivo immunotherapy from 2/2023 to 2/2024 for bladder cancer. so far my bladder cancer is in check so now I can focus on my PCA. Should I get a PSMA pet? is it time to
My latest PSA on 6/11/24 was 1.06 up from 0.65 on 4/2/24. I have a meeting with my MO on 4/26 to discuss the next step. I was taking Opdivo immunotherapy from 2/2023 to 2/2024 for bladder cancer. so far my bladder cancer is in check so now I can focus on my PCA. Should I get a PSMA pet? is it time to
old64horn
in
Advanced Prostate Cancer
1 month ago
Cyberknife+IMRT combination treatment for High Risk PCa, that has spread to the seminal vesicle.
Has anyone done a cyberknife-imrt combination radiation treatment for prostate cancer? My PCa has spread to the Seminal Vesicle. So, instead of a planned 5 session cyberknife treatment to the prostate only ( when the PCa was thought to be confined to the prostate), my doc is putting me on 3 cyberknife
Has anyone done a cyberknife-imrt combination radiation treatment for prostate cancer? My PCa has spread to the Seminal Vesicle. So, instead of a planned 5 session cyberknife treatment to the prostate only ( when the PCa was thought to be confined to the prostate), my doc is putting me on 3 cyberknife
Sushupthi
in
Advanced Prostate Cancer
1 month ago
One Year After Diagnosis
Hi all, Was diagnosed in June 2023 with prostate cancer grade 3, gleason 4+3=7, pirads 5, (T2bn0m0) confined to right mid and right apex . No indication of metastasis in both MRI and Pet Scan. Completed IMRT (37 fractions, 70-78gy, with SIB boost to 85-90gy targeting prostate, seminal vesicles and
Hi all, Was diagnosed in June 2023 with prostate cancer grade 3, gleason 4+3=7, pirads 5, (T2bn0m0) confined to right mid and right apex . No indication of metastasis in both MRI and Pet Scan. Completed IMRT (37 fractions, 70-78gy, with SIB boost to 85-90gy targeting prostate, seminal vesicles and
805guy
in
Prostate Cancer And Gay Men
1 month ago
Latest appt with new doctor
When I saw my onc two weeks ago, she had great news for me! I am stable, on Xeloda since cancer cells changed from E+ to TN. But she thought I should see a gastroenterologist as there appears to be some thickening in the lini ng of my stomach. i didn't like or trust the gastro dr who was part of my
When I saw my onc two weeks ago, she had great news for me! I am stable, on Xeloda since cancer cells changed from E+ to TN. But she thought I should see a gastroenterologist as there appears to be some thickening in the lini ng of my stomach. i didn't like or trust the gastro dr who was part of my
PJBinMI
in
SHARE Metastatic Breast Cancer
1 year ago
Question for Oncologist
Tall_Allen, if you are around, I would especially appreciate your thoughts…….my husband, Dave is still on Lupron/Zytiga/Pred for M1a pc. only in a few abdominal nodes per PSMA scan. He just completed IMRT and was undetectable two weeks ago. Have you ever heard that the progression of soft tissue mets
Tall_Allen, if you are around, I would especially appreciate your thoughts…….my husband, Dave is still on Lupron/Zytiga/Pred for M1a pc. only in a few abdominal nodes per PSMA scan. He just completed IMRT and was undetectable two weeks ago. Have you ever heard that the progression of soft tissue mets
103532
in
Advanced Prostate Cancer
2 months ago
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