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When to start treatment to ward off breast enlargement. Is it always necessary?
Gleason eight. Started orgovyx 1 month ago and imrt last week.
Gleason eight. Started orgovyx 1 month ago and imrt last week.
GeodesicDomeLife
in
Advanced Prostate Cancer
2 months ago
Scary PSA results
I was diagnosed in October 2023 with Gleason 4+5=9. Tissue came from TURP. PSA was 11.8. PSMA Pet was negative for METS. Started ADT on November 9. Did 28 sessions of IMRT from Feb 12, 2024, to Mar 21, 2024. Nadir was .8 on Mar 26 and then the last two have been 1.5 and 3.1. RO said 2.8 was the
I was diagnosed in October 2023 with Gleason 4+5=9. Tissue came from TURP. PSA was 11.8. PSMA Pet was negative for METS. Started ADT on November 9. Did 28 sessions of IMRT from Feb 12, 2024, to Mar 21, 2024. Nadir was .8 on Mar 26 and then the last two have been 1.5 and 3.1. RO said 2.8 was the
7OaksTom
in
Advanced Prostate Cancer
2 months ago
Are we on the right track?
Hi All, My husband, Pat (61) was diagnosed in late February with low grade metastatic PC. Gleason 9 grade 5. PSA 32. In a few small pelvic lymph nodes and a couple pelvic lesions. No other spread. PSMA pet scan detected this. We are working with a team and when we were told his diagnosis from his
Hi All, My husband, Pat (61) was diagnosed in late February with low grade metastatic PC. Gleason 9 grade 5. PSA 32. In a few small pelvic lymph nodes and a couple pelvic lesions. No other spread. PSMA pet scan detected this. We are working with a team and when we were told his diagnosis from his
Kathyford
in
Advanced Prostate Cancer
2 months ago
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Dad, 77, in ICU, double pneumonia, now issues with kidneys
Hi everyone, I joined today and read some of your amazing posts, and some miraculous stories Joined the ICU rollercoaster 16 days ago when my Dad got rushed in to
Intensive
Care
and intubated due to double pneumonia. Normally a health, active 77 year old.
Hi everyone, I joined today and read some of your amazing posts, and some miraculous stories Joined the ICU rollercoaster 16 days ago when my Dad got rushed in to
Intensive
Care
and intubated due to double pneumonia. Normally a health, active 77 year old.
Preciousfamily
in
ICUsteps
22 days ago
"8mm sclerotic focus noted T12 vertebrae within left superior acetabulum"
MO ordered CT Abdomen/pelvis after having a couple blood clots in urine, no blood, about 4 mths ago with several quick sharp pains in bladder area daily since about that time (may be from straining to empty bladder when urinate or kegels). CT no issues noted other than the 8mm sclerotic focus in T12
MO ordered CT Abdomen/pelvis after having a couple blood clots in urine, no blood, about 4 mths ago with several quick sharp pains in bladder area daily since about that time (may be from straining to empty bladder when urinate or kegels). CT no issues noted other than the 8mm sclerotic focus in T12
jjpeabody
in
Advanced Prostate Cancer
2 months ago
Patient diaries
How can any of this be right and especially in an
intensive
care
ward?
How can any of this be right and especially in an
intensive
care
ward?
YDHicu
in
ICUsteps
1 year ago
Hypogonadal - 4 months Orgovyxx- 1 year later- No recovery to baseline 286 only at 98- No libido- TRT?
Gleason 7 4-3..IMRT 20 txs finished 2/28 No after effects went fine except for 4 months adt (orgovyxx) ..still little recovery (T-98) 1 year after ending adt 5/23 recovery only to 98 in one year , baseline before adt 286 with everything working fine. Stopped 5/23 Orgovyxx Still Hypogonadal ( T-98) 1
Gleason 7 4-3..IMRT 20 txs finished 2/28 No after effects went fine except for 4 months adt (orgovyxx) ..still little recovery (T-98) 1 year after ending adt 5/23 recovery only to 98 in one year , baseline before adt 286 with everything working fine. Stopped 5/23 Orgovyxx Still Hypogonadal ( T-98) 1
JWS13
in
Advanced Prostate Cancer
2 months ago
Kardia monitor - if it says ‘Possible AFib is it always AFib?
I gave up alcahol on July 4 th after being in
intensive
care
in Majorca for AFib! So I feel furious that the AFib is still lurking so much more than it was, even though now it’s much more tolerable.
I gave up alcahol on July 4 th after being in
intensive
care
in Majorca for AFib! So I feel furious that the AFib is still lurking so much more than it was, even though now it’s much more tolerable.
Nodoubt2
in
Atrial Fibrillation Support
10 months ago
new diagnosis of AFib with RVR
I have just come out of
intensive
care
in hospital in Spain ( whilst on holiday) after having an awful AFib attack with heart rate of 158 which required meds to revert my heart to normal rhythm.
I have just come out of
intensive
care
in hospital in Spain ( whilst on holiday) after having an awful AFib attack with heart rate of 158 which required meds to revert my heart to normal rhythm.
Nodoubt2
in
British Heart Foundation
1 year ago
If PSA is Suppressed by Doublet ADT, Will Salvage IMRT Cause a PSA Rise?
Hello everyone, My husband is nearing completion of his extended pelvic salvage IMRT with boost to retrocaval lymph nodes. His radiation oncologist said it may take several months before the psa calms down, so he would like to see him in July. My question is that, since he is already undetectable due
Hello everyone, My husband is nearing completion of his extended pelvic salvage IMRT with boost to retrocaval lymph nodes. His radiation oncologist said it may take several months before the psa calms down, so he would like to see him in July. My question is that, since he is already undetectable due
103532
in
Advanced Prostate Cancer
3 months ago
What is Your Opinion on Docetaxel Added to Doublet Therapy for Early Oligorecurrent Metaststic M1a Prostate Cancer?
Hello, I have touched on this subject before, but it is something that is nagging at me and giving me some sleepless nights. My husband’s bio is updated for reference. At one year post prostatectomy with Stage 3b, he rose from 0.06 to 0.273 in three mos. At psa of 0.16 , a PSMA scan showed three sub
Hello, I have touched on this subject before, but it is something that is nagging at me and giving me some sleepless nights. My husband’s bio is updated for reference. At one year post prostatectomy with Stage 3b, he rose from 0.06 to 0.273 in three mos. At psa of 0.16 , a PSMA scan showed three sub
103532
in
Advanced Prostate Cancer
3 months ago
⭐️⭐️my COVID journey ⭐️⭐️
I needed to be transferred to the
intensive
care
unit and sedated due to dangerously low oxygen levels. The shock of the news overwhelmed me, and I struggled to convey the severity of my illness to my daughter. As I was wheeled into the ICU, fear consumed me.
I needed to be transferred to the
intensive
care
unit and sedated due to dangerously low oxygen levels. The shock of the news overwhelmed me, and I struggled to convey the severity of my illness to my daughter. As I was wheeled into the ICU, fear consumed me.
Ladysurvivor1
in
ICUsteps
6 months ago
Radiation 10+ years after initial imrt
Psma detected a small area of cancer in what is left of my prostate…..psa of 20 at that time. After 3 months of eligard ,abiraterone and prednisone dropped to 0.04. MO and local radiologic oncologist are recommending a consult at MSK for tx of this area by whatever means might be the most safe and
Psma detected a small area of cancer in what is left of my prostate…..psa of 20 at that time. After 3 months of eligard ,abiraterone and prednisone dropped to 0.04. MO and local radiologic oncologist are recommending a consult at MSK for tx of this area by whatever means might be the most safe and
Tommyj2
in
Advanced Prostate Cancer
3 months ago
Covid - Beware Getting Treatment
Finally at 1am a Doctor appeared and said we have the treatment but it can’t be issued from Urgent
Care
I wasn’t poorly enough and had to be admitted to
Intensive
Care
to get the treatment, told to come home and ring 119 at 9am. 119 aren’t in at a weekend and don’t deal with that anymore anyway.
Finally at 1am a Doctor appeared and said we have the treatment but it can’t be issued from Urgent
Care
I wasn’t poorly enough and had to be admitted to
Intensive
Care
to get the treatment, told to come home and ring 119 at 9am. 119 aren’t in at a weekend and don’t deal with that anymore anyway.
Investigator1
in
Vasculitis UK
10 months ago
⭐️covid survivors let’s keep on fighting, let’s help each other & spread awareness of the real impact & life changing difficulties we face
I needed to be transferred to the
intensive
care
unit and sedated due to dangerously low oxygen levels. The shock of the news overwhelmed me, and I struggled to convey the severity of my illness to my daughter. As I was wheeled into the ICU, fear consumed me.
I needed to be transferred to the
intensive
care
unit and sedated due to dangerously low oxygen levels. The shock of the news overwhelmed me, and I struggled to convey the severity of my illness to my daughter. As I was wheeled into the ICU, fear consumed me.
Ladysurvivor1
in
ICUsteps
6 months ago
QoLing on a Prayer - a year later & PSA update
https://youtu.be/oabJ6vvz0OI?si=0gy0804F3Yqkp30s It's been a year since the 14th of 28s IMRT and the PSA is https://youtu.be/J2VDEl18rgQ?si=396vEID1xVZAw8S2 and at 1.3 the last two tests 😁, the lowest in 5 years -Woo Hoo For anyone who missed the vid, here ya go: https://photos.app.goo.gl/NkXaWGSHiNYNmvM57
https://youtu.be/oabJ6vvz0OI?si=0gy0804F3Yqkp30s It's been a year since the 14th of 28s IMRT and the PSA is https://youtu.be/J2VDEl18rgQ?si=396vEID1xVZAw8S2 and at 1.3 the last two tests 😁, the lowest in 5 years -Woo Hoo For anyone who missed the vid, here ya go: https://photos.app.goo.gl/NkXaWGSHiNYNmvM57
dockam
in
Advanced Prostate Cancer
3 months ago
Eligard and loss of taste
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
7OaksTom
in
Advanced Prostate Cancer
3 months ago
Pluvicto works but at what cost
70 yo with Stage 4, multiple bone mets, on Orgovyx daily and Xgeva every 3 months. DaVinci in past. Previously on Firmagon, Xtandi worked for awhile, nothing with Xofigo and a few rounds of Jevtana didn’t help and caused problems, also had localized XRT - but had to have chemo to qualify for Pluvicto
70 yo with Stage 4, multiple bone mets, on Orgovyx daily and Xgeva every 3 months. DaVinci in past. Previously on Firmagon, Xtandi worked for awhile, nothing with Xofigo and a few rounds of Jevtana didn’t help and caused problems, also had localized XRT - but had to have chemo to qualify for Pluvicto
Beach18
in
Advanced Prostate Cancer
1 year ago
EBRT - Is it the right thing and what to expect?
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx), prednisone 5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84. Had PSMA PET Scan March 5, 2024
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx), prednisone 5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84. Had PSMA PET Scan March 5, 2024
JazzMan42
in
Advanced Prostate Cancer
4 months ago
Platelets Dropping
Is this “normal” or any advice? Undergoing radiation since March, have 22 sessions done, 6 to go. Started Casodex in December to prepare to start Eligard in January. Radiation started in March. My platelets have been dropping. MO said could be due to Lupron and/or radiation. IMRT targets Gleason 9
Is this “normal” or any advice? Undergoing radiation since March, have 22 sessions done, 6 to go. Started Casodex in December to prepare to start Eligard in January. Radiation started in March. My platelets have been dropping. MO said could be due to Lupron and/or radiation. IMRT targets Gleason 9
Hope49823
in
Advanced Prostate Cancer
4 months ago
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