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Immunosuppressants
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Exercise and peak HR
If a cardiologist has said there is nothing wrong with my heart, bar hypertension and some plaque in arteries is it ok to jog and have a HR of 162? I love jogging but HR goes high when I do it. I can row and cycle and HR goes to 130 max but I don't get the buzz. Cardiologist suggested there may be autonomic
If a cardiologist has said there is nothing wrong with my heart, bar hypertension and some plaque in arteries is it ok to jog and have a HR of 162? I love jogging but HR goes high when I do it. I can row and cycle and HR goes to 130 max but I don't get the buzz. Cardiologist suggested there may be autonomic
Caitlyn6
in
British Heart Foundation
5 years ago
With a CLL diagnosis, knowing more about your immune system could save your life!
When we are diagnosed with CLL/SLL or the precursor MBL, we need to appreciate that we are immune compromised to some degree. Our immunity also worsens the longer we live with our diagnosis and also with CLL treatment, so infections can significant impact our life expectancy. (Growing older doesn't
When we are diagnosed with CLL/SLL or the precursor MBL, we need to appreciate that we are immune compromised to some degree. Our immunity also worsens the longer we live with our diagnosis and also with CLL treatment, so infections can significant impact our life expectancy. (Growing older doesn't
AussieNeil
Partner
in
CLL Support
5 years ago
An analogy to help explain our condition to children and normals!
I wrote this as a reply to a post where someone was asking why we are always tired. I thought it may help others so have posted here for all to see: Why are we so fatigued? I think it is because with APS being an autoimmune condition this is happening in the body as I understand it (my analogy) When
I wrote this as a reply to a post where someone was asking why we are always tired. I thought it may help others so have posted here for all to see: Why are we so fatigued? I think it is because with APS being an autoimmune condition this is happening in the body as I understand it (my analogy) When
WendyWoo50
in
Hughes Syndrome APS Forum
5 years ago
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Meds & the sun
I'm already aware to avoid the sun, especially since being on
immunosuppressants
after my transplant (6 years), and I've already had a few precancerous lesions removed. My question is does anyone else react badly to the heat?
I'm already aware to avoid the sun, especially since being on
immunosuppressants
after my transplant (6 years), and I've already had a few precancerous lesions removed. My question is does anyone else react badly to the heat?
Chattycat
in
Kidney Transplant
5 years ago
Cancer worries post and pre transplant
I had liver transplants back in 1995 and have been on
immunosuppressants
ever since (mychophenolate). I’ve been back on the transplant list now for 15 months due to having cirrhosis.
I had liver transplants back in 1995 and have been on
immunosuppressants
ever since (mychophenolate). I’ve been back on the transplant list now for 15 months due to having cirrhosis.
Smyally
in
British Liver Trust
5 years ago
A phase II trial of eltrombopag for patients with CLL and thrombocytopenia
Nov 2018 Eltrombopag is an oral thrombopoietin (TPO)‐receptor agonist that induces proliferation and differentiation of megakaryocytes. Eltrombopag is approved for the treatment of chronic immune thrombocytopenia purpura (ITP) after insufficient response to standard therapy. Approximately 5% of patients
Nov 2018 Eltrombopag is an oral thrombopoietin (TPO)‐receptor agonist that induces proliferation and differentiation of megakaryocytes. Eltrombopag is approved for the treatment of chronic immune thrombocytopenia purpura (ITP) after insufficient response to standard therapy. Approximately 5% of patients
Jm954
Administrator
in
CLL Support
5 years ago
A cause for concern?
So I had immunosuppressant treatment in September 2018. In February I had a lung function test which showed dclo low at 69.5%. Had a CT scan which showed 'no pulmonary lung consolidation..no fibrosis..no bronchiectasis. Slightly increased translucency of the lung parenchyma perhaps related to chronic
So I had immunosuppressant treatment in September 2018. In February I had a lung function test which showed dclo low at 69.5%. Had a CT scan which showed 'no pulmonary lung consolidation..no fibrosis..no bronchiectasis. Slightly increased translucency of the lung parenchyma perhaps related to chronic
Caitlyn6
in
Lung Conditions Community Forum
5 years ago
Confused! 😕
Hi Everyone, I'm new on here and wanted to ask if anyone else has experienced my situation. Over 6 years ago I became very unwell almost overnight. I turned yellow, got myself to A&E where I subsequently spent almost 6mnths in Hospital. Diagnosed with AIH, it hit suddenly and almost destroyed my liver
Hi Everyone, I'm new on here and wanted to ask if anyone else has experienced my situation. Over 6 years ago I became very unwell almost overnight. I turned yellow, got myself to A&E where I subsequently spent almost 6mnths in Hospital. Diagnosed with AIH, it hit suddenly and almost destroyed my liver
Hail1967
in
British Liver Trust
5 years ago
Joint pain/motor function loss & mercaptopurine
Since starting these
immunosuppressants
I’ve had to use a cane and noticed a kind of systemic floating pain in my limbs. In the mornings my fingers can be swollen, some of my face and by the evening one of my ankles.
Since starting these
immunosuppressants
I’ve had to use a cane and noticed a kind of systemic floating pain in my limbs. In the mornings my fingers can be swollen, some of my face and by the evening one of my ankles.
Gracey888
in
Crohn's and Colitis Support
5 years ago
How long until this awful moon face goes away??
I don’t have lupus, but other autoimmune disorders. But this is the most active site and I know that many of you have been on the same medications as me. I’ve been on prednisone now for three years. My neurologist finally agreed to add an immunosuppressant (Imuran) and gave me the green light to come
I don’t have lupus, but other autoimmune disorders. But this is the most active site and I know that many of you have been on the same medications as me. I’ve been on prednisone now for three years. My neurologist finally agreed to add an immunosuppressant (Imuran) and gave me the green light to come
Goldyukr
in
LUPUS UK
5 years ago
How long until this awful moon face goes away?
I’ve been on prednisone now for three years. My neurologist finally agreed to add an immunosuppressant (Imuran) and gave me the green light to come off of prednisone. Of course, I’ve had to go really slow since I’ve been on it so long. My question is - I’ve been at 10 mg and below (just came down to
I’ve been on prednisone now for three years. My neurologist finally agreed to add an immunosuppressant (Imuran) and gave me the green light to come off of prednisone. Of course, I’ve had to go really slow since I’ve been on it so long. My question is - I’ve been at 10 mg and below (just came down to
Goldyukr
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Lupus, Vasculitis and Blocked Blood Vessels
In serious vasculitis related to autoimmune diseases such as lupus, aggressive therapy with prednisone and other
immunosuppressants
is essential.
In serious vasculitis related to autoimmune diseases such as lupus, aggressive therapy with prednisone and other
immunosuppressants
is essential.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Liver disease with low lymphocytes?
I had this in January and as I am also on
immunosuppressants
for chronic eczema I had to reduce the dosage in case the
immunosuppressants
were causing it although I’ve been on them for years and never had any side effects.
I had this in January and as I am also on
immunosuppressants
for chronic eczema I had to reduce the dosage in case the
immunosuppressants
were causing it although I’ve been on them for years and never had any side effects.
SianJane01
in
British Liver Trust
5 years ago
Treatment options
Hi everyone, I have an appointment on 6th June at the CTD clinic and I'm certain the subject of further treatment will be brought up as this was briefly addressed at my last consultation. I was given an intra muscular steroid injection and told that if this was helpful, Azathioprine would be considered
Hi everyone, I have an appointment on 6th June at the CTD clinic and I'm certain the subject of further treatment will be brought up as this was briefly addressed at my last consultation. I was given an intra muscular steroid injection and told that if this was helpful, Azathioprine would be considered
Happy43
in
LUPUS UK
5 years ago
Question re Shingles vaccination
There have been a couple of posts recently about Shingles. I am over 70 and would therefore normally be advised to have the vaccine, however I know that it is not normally recommended for those on immunosuppresssants. There is an article on the Vasculitis website about this, provided by Prof.Morgan and
There have been a couple of posts recently about Shingles. I am over 70 and would therefore normally be advised to have the vaccine, however I know that it is not normally recommended for those on immunosuppresssants. There is an article on the Vasculitis website about this, provided by Prof.Morgan and
nanaC
in
Vasculitis UK
5 years ago
Shingles mark 2
I’ve got shingles again - last time was in 2010, following chickenpox before in 1998, all when immunosuppressed after my cerebral vasculitis diagnosis in 1997. Anyway this time I’m doing vastly better, and I wonder if it might be because I started anti virals within just a couple of hours of first noticing
I’ve got shingles again - last time was in 2010, following chickenpox before in 1998, all when immunosuppressed after my cerebral vasculitis diagnosis in 1997. Anyway this time I’m doing vastly better, and I wonder if it might be because I started anti virals within just a couple of hours of first noticing
vivdunstan
Volunteer
in
Vasculitis UK
5 years ago
Reason for reduced lung function?
For past few months I noticed I wasn't able to exercise as much as usual. So I had a lung function test in February which showed dclo 69%. I am 49 year old fit non smoking lady. I had a CT scan two weeks ago which showed no scarring on lung or cause for reduced dclo. So respiratory consultant said to
For past few months I noticed I wasn't able to exercise as much as usual. So I had a lung function test in February which showed dclo 69%. I am 49 year old fit non smoking lady. I had a CT scan two weeks ago which showed no scarring on lung or cause for reduced dclo. So respiratory consultant said to
Caitlyn6
in
Lung Conditions Community Forum
5 years ago
Topic Tags
We can add topic tags to posts - but, so far there are only a few topics available. SimoneHU has asked me what topic tags we need? This should be a comprehensive list of the benefits of (intermittent) Fasting, and the conditions it can or might cure or prevent. So, for a start, I suggest: Cancer auto-immune
We can add topic tags to posts - but, so far there are only a few topics available. SimoneHU has asked me what topic tags we need? This should be a comprehensive list of the benefits of (intermittent) Fasting, and the conditions it can or might cure or prevent. So, for a start, I suggest: Cancer auto-immune
S11m
Volunteer 70lb IF20
in
Fasting and Furious
5 years ago
Fun? No, no, no
My poor houndrel has an autoimmune condition affecting his eyes. They are better than they were, but it looks to the vet like he’ll be on immunosuppressant cream and moisturising drops for the rest of his life. Pay your pet insurance chaps: £500 and I’ve already covered the excess. Fortunately he’s otherwise
My poor houndrel has an autoimmune condition affecting his eyes. They are better than they were, but it looks to the vet like he’ll be on immunosuppressant cream and moisturising drops for the rest of his life. Pay your pet insurance chaps: £500 and I’ve already covered the excess. Fortunately he’s otherwise
Lupiknits
in
LUPUS UK
5 years ago
Breast Implants possibly the cause of my Connective Tissue Disease!
I told her how my Rheumatologist said I was likely to be on
immunosuppressants
for the rest of my life, but that I was reading that some people, after explant, were actually getting better. And so I knew I needed to have them removed to give myself a chance.
I told her how my Rheumatologist said I was likely to be on
immunosuppressants
for the rest of my life, but that I was reading that some people, after explant, were actually getting better. And so I knew I needed to have them removed to give myself a chance.
panda2
in
LUPUS UK
5 years ago
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