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Frustrated, stressed and finally starting Ruxolinitib sometime soon.
I have low platelets, lymphocytes and on
immunosuppressants
for my Sarcoidosis. Is there a way that I can persuade either hospital to take me. Cambridge is only 23 miles from me so would be easier. Any advice would be great.
I have low platelets, lymphocytes and on
immunosuppressants
for my Sarcoidosis. Is there a way that I can persuade either hospital to take me. Cambridge is only 23 miles from me so would be easier. Any advice would be great.
artydutch
in
MPN Voice
3 months ago
Shingrix vaccine for immunosuppressed people aged 50+
20mg per week (oral and subcutaneous), azathioprine >3.0mg/kg/day; 6-mercaptopurine >1.5mg/kg/day, mycophenolate >1g/day) in the previous 3 months ●
certain combination therapies at individual doses lower than stated above, including those on ≥7.5mg prednisolone per day in combination with other
20mg per week (oral and subcutaneous), azathioprine >3.0mg/kg/day; 6-mercaptopurine >1.5mg/kg/day, mycophenolate >1g/day) in the previous 3 months ●
certain combination therapies at individual doses lower than stated above, including those on ≥7.5mg prednisolone per day in combination with other
Sharitone
in
PMRGCAuk
6 months ago
What do you take with Bela?
Hi - If you take Belatacept/Nulojix, do you take any other
immunosuppressants
with it? If so, can you please share what other
immunosuppressants
you take with Bela and the doses?
Hi - If you take Belatacept/Nulojix, do you take any other
immunosuppressants
with it? If so, can you please share what other
immunosuppressants
you take with Bela and the doses?
Denise-80
in
Kidney Transplant
1 year ago
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CAR T-cell therapy drives long-term remission in 8 SLE patients
Treatment often entails the use of
immunosuppressants
that keep the immune system in check, but not everyone responds to these medications. In 2022, Schett’s team treated five people with SLE with a CAR T-cell therapy after other medications had failed to ease their lupus symptoms.
Treatment often entails the use of
immunosuppressants
that keep the immune system in check, but not everyone responds to these medications. In 2022, Schett’s team treated five people with SLE with a CAR T-cell therapy after other medications had failed to ease their lupus symptoms.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 months ago
Spring COVID Booster
Well, here we are again. I have just received an email from NHS regarding the spring booster for Covid which says that according to my medical records I may be immunosuppressed and if so am invited for a booster. My question is that at the dose of 3mg of Prednisolone that I’m now taking would I still
Well, here we are again. I have just received an email from NHS regarding the spring booster for Covid which says that according to my medical records I may be immunosuppressed and if so am invited for a booster. My question is that at the dose of 3mg of Prednisolone that I’m now taking would I still
Bayleaf1
in
PMRGCAuk
8 days ago
Aspen Neuroscience Trial - Autologous Neuronal Cell Replacement
Hi Everyone, I just wanted to post this link regarding an exciting trial running in my stomping grounds. It is a trial being run by Aspen Neuroscience of Autologous Neuronal Cell Replacement Therapy for Parkinson's Disease. They dosed their first patient in Tucson, AZ today (April 17, 2024).
Hi Everyone, I just wanted to post this link regarding an exciting trial running in my stomping grounds. It is a trial being run by Aspen Neuroscience of Autologous Neuronal Cell Replacement Therapy for Parkinson's Disease. They dosed their first patient in Tucson, AZ today (April 17, 2024).
Canddy
in
Cure Parkinson's
8 days ago
Just had news of DCIS diagnosis.
Hi, I have just returned home from the breast clinic where I have had a diagnosis of DCIS, following a recent biopsy. I also have sero-positive RA (rheumatoid arthritis) and take lots of meds for that. I have to have an op to remove the 10mm calcifications on 8th May and will have to manage/stop my
Hi, I have just returned home from the breast clinic where I have had a diagnosis of DCIS, following a recent biopsy. I also have sero-positive RA (rheumatoid arthritis) and take lots of meds for that. I have to have an op to remove the 10mm calcifications on 8th May and will have to manage/stop my
Moomin8
in
SHARE Breast Cancer Support
17 days ago
Advice needed
Hi everyone - after a bit of advice from the collective brain :) We are incredibly lucky enough to have a little boy from our 6th transfer in 2021, and had 5 frozen embryos at the clinic should we decide to try for a sibling. We've now done 2 FETs with exactly the same protocol (steroids / intralipids
Hi everyone - after a bit of advice from the collective brain :) We are incredibly lucky enough to have a little boy from our 6th transfer in 2021, and had 5 frozen embryos at the clinic should we decide to try for a sibling. We've now done 2 FETs with exactly the same protocol (steroids / intralipids
Millbanks
in
Fertility Network UK
1 month ago
My Ckd journey
Hi my name is Dineshwaran.i was diagnosed with kidney failure in year 2003 when I was 19.was on dialysis for two years and did transplant on 2005. Donated by my cousin.it was a perfect match until 2017 where my sugar level was very high. Was on all type of medication and insulin but didn't came down
Hi my name is Dineshwaran.i was diagnosed with kidney failure in year 2003 when I was 19.was on dialysis for two years and did transplant on 2005. Donated by my cousin.it was a perfect match until 2017 where my sugar level was very high. Was on all type of medication and insulin but didn't came down
Dineshwaran
in
Kidney Dialysis
2 months ago
Remission
I want to thank members of this forum for your insight and support over the past 2 1/2 years I have been dealing with GCA and everything that goes along with this disease. I have been off prednisone since last July, and Actemra since last October. I have not had any further GCA symptoms. I had an
I want to thank members of this forum for your insight and support over the past 2 1/2 years I have been dealing with GCA and everything that goes along with this disease. I have been off prednisone since last July, and Actemra since last October. I have not had any further GCA symptoms. I had an
Preacherball
in
PMRGCAuk
2 months ago
Ranolazine (used for angina) could potentially be repurposed for PCa. Only mouse studies so far.
“Treatment of cancer patients with lipid metabolic inhibitors like ranolazine could potentially re-activate the immune cells to restore and enhance cellular-mediated antitumor immunity and tumor regression.” Targeting Fat Oxidation in Mouse Prostate Cancer Decreases Tumor Growth and Stimulates Anti-Cancer
“Treatment of cancer patients with lipid metabolic inhibitors like ranolazine could potentially re-activate the immune cells to restore and enhance cellular-mediated antitumor immunity and tumor regression.” Targeting Fat Oxidation in Mouse Prostate Cancer Decreases Tumor Growth and Stimulates Anti-Cancer
Graham49
in
Advanced Prostate Cancer
2 months ago
Rituximab timing of Covid2 vaccination
For the first study, Xavier Mariette (Hôpital Bicêtre, Paris, France) and colleagues evaluated data from 24 rituximab-treated patients with immune-mediated inflammatory diseases (IMIDs), 35 patients on other
immunosuppressants
for IMIDs, and 26 age- and sex-matched healthy controls who received two doses
For the first study, Xavier Mariette (Hôpital Bicêtre, Paris, France) and colleagues evaluated data from 24 rituximab-treated patients with immune-mediated inflammatory diseases (IMIDs), 35 patients on other
immunosuppressants
for IMIDs, and 26 age- and sex-matched healthy controls who received two doses
AgedCrone
in
NRAS
1 year ago
Prednisone for treatment of AIG
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
Rexz
in
Pernicious Anaemia Society
2 months ago
Advice
Hello, I have sub clinical hypothyroidism with positive tpo antibodies taken a long time ago . I did get in touch a while ago about starting on thyroxine and my dr was happy for me to start on a low dose as I also have many symptoms but not weight gain I must add .I also am on a immunosuppressant for
Hello, I have sub clinical hypothyroidism with positive tpo antibodies taken a long time ago . I did get in touch a while ago about starting on thyroxine and my dr was happy for me to start on a low dose as I also have many symptoms but not weight gain I must add .I also am on a immunosuppressant for
4youreyesonly
in
Thyroid UK
3 months ago
CCR6 & CCL20 are the key drivers in prostate tumor microenvironment.
This is a very good Feb 2023 article but it’s best to scroll down to get out of the weeds to the crux of the biscuit. The crux of this biscuit is a well known inflammatory cytokine CCL20 and it’s receptor CCR6. https://www.nature.com/articles/s41467-023-36325-2
Dissecting the immune suppressive
This is a very good Feb 2023 article but it’s best to scroll down to get out of the weeds to the crux of the biscuit. The crux of this biscuit is a well known inflammatory cytokine CCL20 and it’s receptor CCR6. https://www.nature.com/articles/s41467-023-36325-2
Dissecting the immune suppressive
KocoPr
in
Fight Prostate Cancer
3 months ago
Immune suppression caused by Urso
Hi all, I only recently learned that Urso has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon! Urso suppresses the production of immunoglobulins IgA, IgG and IgM (although IgM is generally chronically raised
Hi all, I only recently learned that Urso has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon! Urso suppresses the production of immunoglobulins IgA, IgG and IgM (although IgM is generally chronically raised
Skypony
in
PBC Foundation
3 months ago
immunosuppressed, covid positive - anyone have an experience with antivirals?
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with scleroderma & myositis with lung involvement (ILD) on Mycophenolate for treatment. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with scleroderma & myositis with lung involvement (ILD) on Mycophenolate for treatment. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it
ruablue
in
Myositis UK
3 months ago
First Overseas Holiday post liver transplant
I am about to go on my first overseas holiday since having a liver transplant 12 months ago, I will be staying with family who have 2 dogs. Grateful for advice from anyone who has been in a similar position of being immunosuppressed and being around dogs. Also thoughts on swimming pool use. Many
I am about to go on my first overseas holiday since having a liver transplant 12 months ago, I will be staying with family who have 2 dogs. Grateful for advice from anyone who has been in a similar position of being immunosuppressed and being around dogs. Also thoughts on swimming pool use. Many
TripleCrown
in
British Liver Trust
4 months ago
happened to see this article In a news feed regarding B and T cells, Covid and antibodies…
I have wondered why if we don’t make antibodies by getting vaccinated, then why bother. This article gives me some hope that we are protected more than I thought. Hope that this article is credible. Just wanted to post it for our information. Subject may have been touched on before in HealthUnlocked
I have wondered why if we don’t make antibodies by getting vaccinated, then why bother. This article gives me some hope that we are protected more than I thought. Hope that this article is credible. Just wanted to post it for our information. Subject may have been touched on before in HealthUnlocked
Curling123
in
CLL Support
4 months ago
cutaneous lupus
She is under rheumatology and dermatology and after two years still not found medication /
immunosuppressants
that works and shes seen several different consultants. Does anyone else suffer with skin lesions on chest, legs, head , the sores on her head are so sore she can’t brush her hair.
She is under rheumatology and dermatology and after two years still not found medication /
immunosuppressants
that works and shes seen several different consultants. Does anyone else suffer with skin lesions on chest, legs, head , the sores on her head are so sore she can’t brush her hair.
Nellons
in
LUPUS UK
1 year ago
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