Sara_Raj2 months ago

Hi,I take myfortic with Bela.

Cheers !

AENEASavc2 months ago

I take tacrolimus .5 in am and .25 in pm.

Transplant20182 months ago

5 mg prednisone once a day and 540 mg myfortic twice a day.

Denise-80 in reply to Transplant20182 months ago

thank you! Have you experienced elevated cholesterol issues or elevated liver enzymes with with regimen?

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K2strong2 months ago

I am 4 years post-transplant and switched to Bela 1.5 years ago. I additionally take 5 mg Prednisone once a day and 360 mg Myfortic twice a day. Bela replaced my Tacrolimus meds.

Denise-80 in reply to K2strong2 months ago

thank you! I was on myfortic (same dose as you) and envarsus prior to being switched to Bela, 5 mg pred, and 2-3 mg/sirolimus. Have you experienced any elevated cholesterol or elevated liver enzymes on your current regimen?

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K2strong in reply to Denise-802 months ago

No, I have not.

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LisaSnow in reply to Denise-8015 days ago

Cholesterol rise is generally associated with sirolimus.

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Transplant20182 months ago

No problem with cholesterol, but I suspect that's because I'm vegan and my lipids have always been great. I do have one liver enzyme that has been slightly elevated, even prior to my transplant, but nothing has changed.

Denise-802 months ago

thank you!

Oceansideup2 months ago

I have been on Bela infusion and 1 mg Sirolimus (Rapamune) 2 tabs daily, sometimes increased depending on lab results. Labs have been pretty stable from the start 20 months ago. Tired a couple days after infusion but otherwise nothing notable. Hope it works out well for you.

Denise-802 months ago

thank you Oceansideup

LisaSnow15 days ago

I read a few papers that generally found Bela to be a excellent performer in place of tacrolimus. The initiation usually led to a significant decrease in creatinine. I am glad to hear all of the users here are remaining stable even after a year.

Denise-80 in reply to LisaSnow15 days ago

Thanks! Yes, the Bela has been great. The evaluated cholesterol induced by the sirolimus has been an issue. The prescribed pravastatin resulted in muscle soreness so doc stopped it. Just started Zetia and Step One Foods. Hopefully this will work.

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