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Hate this!Hard to make plans!! Neta
I was diagnosed with cerebeller ataxia induced by auto-immune issues something in 2010-- this afterignoring the swaying which first appeared in aound 2005-6. The auto-immune issues were suggested by an allergist in NYC, USA, to whom I told about my lengthy, frequent outbreaks of hives. In the summer
I was diagnosed with cerebeller ataxia induced by auto-immune issues something in 2010-- this afterignoring the swaying which first appeared in aound 2005-6. The auto-immune issues were suggested by an allergist in NYC, USA, to whom I told about my lengthy, frequent outbreaks of hives. In the summer
neta
in
Ataxia UK
12 years ago
Success at last - blood tests positive - confirmation and relief!!!
Hi all - not too sure if you'll remember my posts regarding the struggles ive had with my sight/strokes/struggles to get recognised despite 5 tests of positive anticardiolipin antibodies previously - but I went to St Thomas' at last and i have showed positive, My IGM levels have consistently showed as
Hi all - not too sure if you'll remember my posts regarding the struggles ive had with my sight/strokes/struggles to get recognised despite 5 tests of positive anticardiolipin antibodies previously - but I went to St Thomas' at last and i have showed positive, My IGM levels have consistently showed as
emmaj
in
Hughes Syndrome APS Forum
12 years ago
Has anyone been treated with IVIg infusions for suspected autoimmune induced CA?
neta
in
Ataxia UK
12 years ago
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Does anyone else have IVIG monthly infusions?
I have been having IVIG infusions for about 2 yrs now and don't know I notice a difference. I wasn't sure if you do feel different or if you just get less serious infections. Felicity
I have been having IVIG infusions for about 2 yrs now and don't know I notice a difference. I wasn't sure if you do feel different or if you just get less serious infections. Felicity
Steamboat
in
Behçet's UK
12 years ago
IGM
My IGM was positive and everything else negative. What does this mean please help
My IGM was positive and everything else negative. What does this mean please help
Hollylewis
in
Hughes Syndrome APS Forum
12 years ago
romiplostin nplates
hi i have had cronic itp and have held a average platlet count of below 30 for 12 years had spleen removed in 2002 to no effect have tried azathaprine steroids ciclosporin and
immunoglobulin
all with little or no effect after a drop down to 3 and a hospital admission being given a platlets transfusion
hi i have had cronic itp and have held a average platlet count of below 30 for 12 years had spleen removed in 2002 to no effect have tried azathaprine steroids ciclosporin and
immunoglobulin
all with little or no effect after a drop down to 3 and a hospital admission being given a platlets transfusion
catt1
in
ITP Support Association
12 years ago
Professor Graham Hughes' October blog
October was a busy month. The national arthritis charity 'Arthritis Research UK' held a patients' meeting on lupus at the Royal College of Physicians - a very welcome 'first' for this important charity. Two of my colleagues from the London Lupus Centre, Dr Chris Edwards, Professor Munther Khamashta
October was a busy month. The national arthritis charity 'Arthritis Research UK' held a patients' meeting on lupus at the Royal College of Physicians - a very welcome 'first' for this important charity. Two of my colleagues from the London Lupus Centre, Dr Chris Edwards, Professor Munther Khamashta
Hidden
in
Hughes Syndrome APS Forum
12 years ago
Can anyone understand these results!
I've posted previously about possible PBC, turns out my auto immune heamolytic anemia is back and hospital are re-testing regarding PBC, in the meantime I have full results from previous tests. I tested positive for AMA/ Anti-mitochondria IgG 160 Anti-mitrochondria igM 320 Mitochondrial Antibody
I've posted previously about possible PBC, turns out my auto immune heamolytic anemia is back and hospital are re-testing regarding PBC, in the meantime I have full results from previous tests. I tested positive for AMA/ Anti-mitochondria IgG 160 Anti-mitrochondria igM 320 Mitochondrial Antibody
KathryH34
in
PBC Foundation
12 years ago
Finally been to st Thomas', and feel safer and in the right hands!!
Hi all, i finally got my referral to St Thomas' - lovely man and worth his 'wait' in gold!!!! He asked most of my symptoms before I even told him,and had the all knowing look on his face and sympathised with how it interferes and takes over your life instead of the usual look of horror and recoiling
Hi all, i finally got my referral to St Thomas' - lovely man and worth his 'wait' in gold!!!! He asked most of my symptoms before I even told him,and had the all knowing look on his face and sympathised with how it interferes and takes over your life instead of the usual look of horror and recoiling
emmaj
in
Hughes Syndrome APS Forum
12 years ago
Where do they go?
During a recent hospitalization for a complicated endocrine crisis, my WBC would jump from 80,000 one day to 117,000 the next, down to 78,000 the next and back up to 110,000. I understand the body sends out lymphocytes in time of stress. Question....do the cells migrate back to bone marrow, spleen
During a recent hospitalization for a complicated endocrine crisis, my WBC would jump from 80,000 one day to 117,000 the next, down to 78,000 the next and back up to 110,000. I understand the body sends out lymphocytes in time of stress. Question....do the cells migrate back to bone marrow, spleen
Kjohnsonmay
in
CLL Support
12 years ago
Allergies, Intolerances and Autoimmune Diseases
IgE is an
immunoglobulin
. An
immunoglobulin
is "any of a class of proteins present in the serum and cells of the immune system, that function as antibodies". There are five subclasses of immunoglobulins, explained here far better than I could.
IgE is an
immunoglobulin
. An
immunoglobulin
is "any of a class of proteins present in the serum and cells of the immune system, that function as antibodies". There are five subclasses of immunoglobulins, explained here far better than I could.
Hidden
FABED
in
FABED
12 years ago
Really confused...how to find a good doctor? Blood test results?
Hi, I'll try to keep this short but I'm really confused and don't know where to turn. I'm 23 and have recently moved back to England after 10 years living in the US. From age 9 I have had/been aware of poor circulation, knee pain, loose/hypermobile joints and migraine-like headaches. My loose joints
Hi, I'll try to keep this short but I'm really confused and don't know where to turn. I'm 23 and have recently moved back to England after 10 years living in the US. From age 9 I have had/been aware of poor circulation, knee pain, loose/hypermobile joints and migraine-like headaches. My loose joints
morphandme
in
LUPUS UK
12 years ago
Has anyone seen Professor Farida Fortune at the behcets centre of excellence? Or know one in Kent/Sussex?
Hello has anyone been there, would love to know people's experience with the hospital/doctor Professor Farida Fortune at the behcets centre of excellence? I was meant to be seeing someone with a special interest in BD at my local hospital but I've actually been stuck in hospital since the summer in
Hello has anyone been there, would love to know people's experience with the hospital/doctor Professor Farida Fortune at the behcets centre of excellence? I was meant to be seeing someone with a special interest in BD at my local hospital but I've actually been stuck in hospital since the summer in
vikkilouise
in
Behçet's UK
12 years ago
Bleeding after Intravenous Immunoglobulin
My daughter of 4 was given the intravenous
immunoglobulin
after being admitted to hospital following a couple of nosebleeds.
My daughter of 4 was given the intravenous
immunoglobulin
after being admitted to hospital following a couple of nosebleeds.
kelb1975
in
ITP Support Association
12 years ago
Has anyone had a splenectomy and does it work? I have IVIG every 4 weeks to keep my count up I also have ME (chronic fatigue syndrome).
sgreenhalgh
in
ITP Support Association
12 years ago
3 year old child with newly diagnosed ITP advice please
After being in and out of children's ward on Monday and Tuesday, he was seen by a consultant on Wednesday who admitted him immediately and he underwent IV
immunoglobulin
.
After being in and out of children's ward on Monday and Tuesday, he was seen by a consultant on Wednesday who admitted him immediately and he underwent IV
immunoglobulin
.
TheKidsMummy
in
ITP Support Association
12 years ago
IVIG and Plasmapheresis
Is there anyone that does IVIG or Plasmapheresis for treatment on a regular basis? if so why are you?
Is there anyone that does IVIG or Plasmapheresis for treatment on a regular basis? if so why are you?
Skyllark
in
Hughes Syndrome APS Forum
12 years ago
Raynauds....The begginiing stage of oh so much more to come!
Hi everyone- I have been a member for sometime, but have just hung back and read everyone's post rather than posting on my own. I decided it's time to get serious about this. I have MCTD which includes Lupus, Scleroderma, Raynauds, Dermatomyositis and five more of these wonderful titles that just basically
Hi everyone- I have been a member for sometime, but have just hung back and read everyone's post rather than posting on my own. I decided it's time to get serious about this. I have MCTD which includes Lupus, Scleroderma, Raynauds, Dermatomyositis and five more of these wonderful titles that just basically
Toniraquel
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
Saw hematologist, eek!, am not sure......
She told me not to worry about my antiphospholipid IgM count of 118 (here in States 20 or below is normal). I have been and am concerned. She kind of brushed me off, but is doing in depth tests and wants me back in 2 months. She agrees I can't take any meds (warfarin or heparin) because I am also
She told me not to worry about my antiphospholipid IgM count of 118 (here in States 20 or below is normal). I have been and am concerned. She kind of brushed me off, but is doing in depth tests and wants me back in 2 months. She agrees I can't take any meds (warfarin or heparin) because I am also
Leigha
in
Hughes Syndrome APS Forum
12 years ago
Rituximab,Toxilizumab,and the Scleroderma Conference in Texas!
Over the years I have been on Azathioprine,Methotrexate, Mycophenelate Mofetil, Cyclophosphomide,
immunoglobulin
,and most recently Rituximab! I'm not sure I'm not just poisoning myself to death!
Over the years I have been on Azathioprine,Methotrexate, Mycophenelate Mofetil, Cyclophosphomide,
immunoglobulin
,and most recently Rituximab! I'm not sure I'm not just poisoning myself to death!
Alexandra-M
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
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