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Help! Gyno said i should have 3 miscarriages to have aps!
Just posted yesterday a question about getting heparine/ clexane. I was just phoned by the hospital saying they didnt want to treat me as APS since i had a healthy child and after that 2 miscarriages so that wouldn't suffice, since the official diagnosis to receive the diagnosis is to have 3 miscarriages
Just posted yesterday a question about getting heparine/ clexane. I was just phoned by the hospital saying they didnt want to treat me as APS since i had a healthy child and after that 2 miscarriages so that wouldn't suffice, since the official diagnosis to receive the diagnosis is to have 3 miscarriages
Flyingdutchie
in
Hughes Syndrome APS Forum
11 years ago
Is there a connection between frequent UTI's and CA? Or, between IVIg and UTI's? Neta
neta
in
Ataxia UK
11 years ago
INR question
Hi everyone. Im in the US and my lab tests never exactly state the ratio.my DRVVT is 27 (range 37-50). Anticardiolipin IgM 14.5 (range0-11). IgG 22.3 (0-23).factor VIII 66.8(50-200).INR .96(.86-1.18) . How do i figure if the inr is ok? The hemotologist was more concerned over the aps than the vonwillebrands
Hi everyone. Im in the US and my lab tests never exactly state the ratio.my DRVVT is 27 (range 37-50). Anticardiolipin IgM 14.5 (range0-11). IgG 22.3 (0-23).factor VIII 66.8(50-200).INR .96(.86-1.18) . How do i figure if the inr is ok? The hemotologist was more concerned over the aps than the vonwillebrands
lovemyheart
in
Hughes Syndrome APS Forum
11 years ago
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Lupus and CIDP
Going in for intravenous
immunoglobulin
infusion, n just wondered if anyone else was in the same boat?
Going in for intravenous
immunoglobulin
infusion, n just wondered if anyone else was in the same boat?
Hidden
in
LUPUS UK
11 years ago
Does any cll patient feel that stress adds to their general demise??
Three years ago my husband and I spent 10 days cleaning our daughter's house following a severe house fire, builders in to restore (that took a year), our son-in-law developed melanoma during the year re-build. We carried out an extensive house-clean, installed new furniture etc., for their return
Three years ago my husband and I spent 10 days cleaning our daughter's house following a severe house fire, builders in to restore (that took a year), our son-in-law developed melanoma during the year re-build. We carried out an extensive house-clean, installed new furniture etc., for their return
lartington
in
CLL Support
11 years ago
Talk about Lack of support
I've recently returned to work after being very poorly. I had to do a risk assessment with our HR officer before I came back and it was decided then that if I was struggling or could feel myself becoming ill I was to inform my manager and arrange to take annual leave to rest and pull it back. At the
I've recently returned to work after being very poorly. I had to do a risk assessment with our HR officer before I came back and it was decided then that if I was struggling or could feel myself becoming ill I was to inform my manager and arrange to take annual leave to rest and pull it back. At the
Hidden
in
LUPUS UK
11 years ago
What is immunoglobulin therapy?
Marisa
in
CLL Support
11 years ago
Hate this!Hard to make plans!! Neta
I was diagnosed with cerebeller ataxia induced by auto-immune issues something in 2010-- this afterignoring the swaying which first appeared in aound 2005-6. The auto-immune issues were suggested by an allergist in NYC, USA, to whom I told about my lengthy, frequent outbreaks of hives. In the summer
I was diagnosed with cerebeller ataxia induced by auto-immune issues something in 2010-- this afterignoring the swaying which first appeared in aound 2005-6. The auto-immune issues were suggested by an allergist in NYC, USA, to whom I told about my lengthy, frequent outbreaks of hives. In the summer
neta
in
Ataxia UK
11 years ago
Success at last - blood tests positive - confirmation and relief!!!
Hi all - not too sure if you'll remember my posts regarding the struggles ive had with my sight/strokes/struggles to get recognised despite 5 tests of positive anticardiolipin antibodies previously - but I went to St Thomas' at last and i have showed positive, My IGM levels have consistently showed as
Hi all - not too sure if you'll remember my posts regarding the struggles ive had with my sight/strokes/struggles to get recognised despite 5 tests of positive anticardiolipin antibodies previously - but I went to St Thomas' at last and i have showed positive, My IGM levels have consistently showed as
emmaj
in
Hughes Syndrome APS Forum
11 years ago
Has anyone been treated with IVIg infusions for suspected autoimmune induced CA?
neta
in
Ataxia UK
11 years ago
Does anyone else have IVIG monthly infusions?
I have been having IVIG infusions for about 2 yrs now and don't know I notice a difference. I wasn't sure if you do feel different or if you just get less serious infections. Felicity
I have been having IVIG infusions for about 2 yrs now and don't know I notice a difference. I wasn't sure if you do feel different or if you just get less serious infections. Felicity
Steamboat
in
Behçet's UK
11 years ago
romiplostin nplates
hi i have had cronic itp and have held a average platlet count of below 30 for 12 years had spleen removed in 2002 to no effect have tried azathaprine steroids ciclosporin and
immunoglobulin
all with little or no effect after a drop down to 3 and a hospital admission being given a platlets transfusion
hi i have had cronic itp and have held a average platlet count of below 30 for 12 years had spleen removed in 2002 to no effect have tried azathaprine steroids ciclosporin and
immunoglobulin
all with little or no effect after a drop down to 3 and a hospital admission being given a platlets transfusion
catt1
in
ITP Support Association
12 years ago
IGM
My IGM was positive and everything else negative. What does this mean please help
My IGM was positive and everything else negative. What does this mean please help
Hollylewis
in
Hughes Syndrome APS Forum
11 years ago
Professor Graham Hughes' October blog
October was a busy month. The national arthritis charity 'Arthritis Research UK' held a patients' meeting on lupus at the Royal College of Physicians - a very welcome 'first' for this important charity. Two of my colleagues from the London Lupus Centre, Dr Chris Edwards, Professor Munther Khamashta
October was a busy month. The national arthritis charity 'Arthritis Research UK' held a patients' meeting on lupus at the Royal College of Physicians - a very welcome 'first' for this important charity. Two of my colleagues from the London Lupus Centre, Dr Chris Edwards, Professor Munther Khamashta
Hidden
in
Hughes Syndrome APS Forum
11 years ago
Can anyone understand these results!
I've posted previously about possible PBC, turns out my auto immune heamolytic anemia is back and hospital are re-testing regarding PBC, in the meantime I have full results from previous tests. I tested positive for AMA/ Anti-mitochondria IgG 160 Anti-mitrochondria igM 320 Mitochondrial Antibody
I've posted previously about possible PBC, turns out my auto immune heamolytic anemia is back and hospital are re-testing regarding PBC, in the meantime I have full results from previous tests. I tested positive for AMA/ Anti-mitochondria IgG 160 Anti-mitrochondria igM 320 Mitochondrial Antibody
KathryH34
in
PBC Foundation
11 years ago
Finally been to st Thomas', and feel safer and in the right hands!!
Hi all, i finally got my referral to St Thomas' - lovely man and worth his 'wait' in gold!!!! He asked most of my symptoms before I even told him,and had the all knowing look on his face and sympathised with how it interferes and takes over your life instead of the usual look of horror and recoiling
Hi all, i finally got my referral to St Thomas' - lovely man and worth his 'wait' in gold!!!! He asked most of my symptoms before I even told him,and had the all knowing look on his face and sympathised with how it interferes and takes over your life instead of the usual look of horror and recoiling
emmaj
in
Hughes Syndrome APS Forum
12 years ago
Where do they go?
During a recent hospitalization for a complicated endocrine crisis, my WBC would jump from 80,000 one day to 117,000 the next, down to 78,000 the next and back up to 110,000. I understand the body sends out lymphocytes in time of stress. Question....do the cells migrate back to bone marrow, spleen
During a recent hospitalization for a complicated endocrine crisis, my WBC would jump from 80,000 one day to 117,000 the next, down to 78,000 the next and back up to 110,000. I understand the body sends out lymphocytes in time of stress. Question....do the cells migrate back to bone marrow, spleen
Kjohnsonmay
in
CLL Support
12 years ago
Allergies, Intolerances and Autoimmune Diseases
IgE is an
immunoglobulin
. An
immunoglobulin
is "any of a class of proteins present in the serum and cells of the immune system, that function as antibodies". There are five subclasses of immunoglobulins, explained here far better than I could.
IgE is an
immunoglobulin
. An
immunoglobulin
is "any of a class of proteins present in the serum and cells of the immune system, that function as antibodies". There are five subclasses of immunoglobulins, explained here far better than I could.
Hidden
FABED
in
FABED
12 years ago
Really confused...how to find a good doctor? Blood test results?
Hi, I'll try to keep this short but I'm really confused and don't know where to turn. I'm 23 and have recently moved back to England after 10 years living in the US. From age 9 I have had/been aware of poor circulation, knee pain, loose/hypermobile joints and migraine-like headaches. My loose joints
Hi, I'll try to keep this short but I'm really confused and don't know where to turn. I'm 23 and have recently moved back to England after 10 years living in the US. From age 9 I have had/been aware of poor circulation, knee pain, loose/hypermobile joints and migraine-like headaches. My loose joints
morphandme
in
LUPUS UK
12 years ago
Has anyone seen Professor Farida Fortune at the behcets centre of excellence? Or know one in Kent/Sussex?
Hello has anyone been there, would love to know people's experience with the hospital/doctor Professor Farida Fortune at the behcets centre of excellence? I was meant to be seeing someone with a special interest in BD at my local hospital but I've actually been stuck in hospital since the summer in
Hello has anyone been there, would love to know people's experience with the hospital/doctor Professor Farida Fortune at the behcets centre of excellence? I was meant to be seeing someone with a special interest in BD at my local hospital but I've actually been stuck in hospital since the summer in
vikkilouise
in
Behçet's UK
12 years ago
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