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NEW with ITP
HI Im male 50. In general healthy and in good condition but was feeling weak after a bad respiratory infection earlier in February. After spontaneously bleeding s and big unexplained bruises on my arms I felt this was not normal. Test results was a chock where platelet level was zero and I was urgently
HI Im male 50. In general healthy and in good condition but was feeling weak after a bad respiratory infection earlier in February. After spontaneously bleeding s and big unexplained bruises on my arms I felt this was not normal. Test results was a chock where platelet level was zero and I was urgently
eagle2
in
ITP Support Association
11 years ago
Any advice on Hypogammaglobulinaemia?
I had a hospital consultation with my haematologist today and on the printout of my blood test I notice that I have Hypogammaglobulinaemia. My Haematologist never even mentioned it. We only spoke about my Immunoglobulins which are all low. Any advice here?
I had a hospital consultation with my haematologist today and on the printout of my blood test I notice that I have Hypogammaglobulinaemia. My Haematologist never even mentioned it. We only spoke about my Immunoglobulins which are all low. Any advice here?
Mikey47
in
CLL Support
11 years ago
What should you Igm levels be?
I have just got my blood results back, and my liver functions are stable however they say my IgM levels are raised's. What does this mean?
I have just got my blood results back, and my liver functions are stable however they say my IgM levels are raised's. What does this mean?
Fudger126
in
PBC Foundation
11 years ago
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Anticardiolipin ????
Hi I had results back from miscarriage test and it says equivocal anticardiolipin igm ??? Tried googling but confuses me can anyone help ?
Hi I had results back from miscarriage test and it says equivocal anticardiolipin igm ??? Tried googling but confuses me can anyone help ?
Cakemad
in
Hughes Syndrome APS Forum
11 years ago
Richter's in a Nut Shell
Specific risk factors for the development of Richter's transformation in a patient with CLL have yet to be identified; however, TP53 disruption, c-MYC abnormalities, unmutated
immunoglobulin
heavy chain (IGHV) < 2%, non-del13q cytogenetics, CD38 gene polymorphisms, stereotypy, and VH4-39 gene usage may
Specific risk factors for the development of Richter's transformation in a patient with CLL have yet to be identified; however, TP53 disruption, c-MYC abnormalities, unmutated
immunoglobulin
heavy chain (IGHV) < 2%, non-del13q cytogenetics, CD38 gene polymorphisms, stereotypy, and VH4-39 gene usage may
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
Does anyone know of anywhere in the U.S. that performs the indium screening test? My hemo says it's officially "not recommended here.
I had a splenctomy 8 months ago, with no positive results, and now they've discovered an accessory spleen, and want to yank that out too. I've been on various steroids, ivig, rituxan, danazol, and am now approaching the highest dose of nplate, with counts stil hovering at 10 and below, but am not anxious
I had a splenctomy 8 months ago, with no positive results, and now they've discovered an accessory spleen, and want to yank that out too. I've been on various steroids, ivig, rituxan, danazol, and am now approaching the highest dose of nplate, with counts stil hovering at 10 and below, but am not anxious
Catlee
in
ITP Support Association
11 years ago
Why would I suddenly test positive of Lupus Anticoagulant Antigen? Protein C& S are deficient, in past my IgA & IgM +. Now they are neg.
Bethanne
in
Hughes Syndrome APS Forum
11 years ago
Immunoglobulin G treatment
Hi everyone has anyone had this treatment ? if so what for ? and what did it entail (overnight stay, duration ? tolerability?) Thanks in advance :)
Hi everyone has anyone had this treatment ? if so what for ? and what did it entail (overnight stay, duration ? tolerability?) Thanks in advance :)
living-the-dream-ssc-ray
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
What is Igm? And what do the stages mean?
Mememememe
in
PBC Foundation
11 years ago
I am in the process of being diagnosed with PBC. Everything is positive except my IgM levels are normal. Can I still have PBC?
engasser
in
PBC Foundation
11 years ago
has anyone tried papaya leaf??
im here lying in a hospital bed with a count of 4 hooked up to ivig and after being put back on predisolone 75 mg yet again. i have been looking up alternative therapies. came across info on papaya leaf - i know i take alot on the internet with a pinch of salt but there seems to be alot of info on papaya
im here lying in a hospital bed with a count of 4 hooked up to ivig and after being put back on predisolone 75 mg yet again. i have been looking up alternative therapies. came across info on papaya leaf - i know i take alot on the internet with a pinch of salt but there seems to be alot of info on papaya
trinag
in
ITP Support Association
11 years ago
20 mo old diagnosed with ITP
My 20 month old son was diagnosed with ITP a few weeks ago. He had IVIG treatment and we were told this is a common disease and would resolve on its own. Here we are back in the hospital for another IVIG and dangerously low platelets. We are so confused and it's difficult to understand what went wrong
My 20 month old son was diagnosed with ITP a few weeks ago. He had IVIG treatment and we were told this is a common disease and would resolve on its own. Here we are back in the hospital for another IVIG and dangerously low platelets. We are so confused and it's difficult to understand what went wrong
Arwen
in
ITP Support Association
11 years ago
after a child splenectomy
my 10 year old son had a splenectomy on tuesday cause of chronic I.T.P his counts were 0 , he had 8 bottles of ivig on sunday and monday before his op which brought them up to 165,000, he was 5 and a half hours getting his op , he came round with a high temp his face purple , heart racing up ,his count
my 10 year old son had a splenectomy on tuesday cause of chronic I.T.P his counts were 0 , he had 8 bottles of ivig on sunday and monday before his op which brought them up to 165,000, he was 5 and a half hours getting his op , he came round with a high temp his face purple , heart racing up ,his count
blue2901
in
ITP Support Association
11 years ago
Help! Gyno said i should have 3 miscarriages to have aps!
Just posted yesterday a question about getting heparine/ clexane. I was just phoned by the hospital saying they didnt want to treat me as APS since i had a healthy child and after that 2 miscarriages so that wouldn't suffice, since the official diagnosis to receive the diagnosis is to have 3 miscarriages
Just posted yesterday a question about getting heparine/ clexane. I was just phoned by the hospital saying they didnt want to treat me as APS since i had a healthy child and after that 2 miscarriages so that wouldn't suffice, since the official diagnosis to receive the diagnosis is to have 3 miscarriages
Flyingdutchie
in
Hughes Syndrome APS Forum
11 years ago
Is there a connection between frequent UTI's and CA? Or, between IVIg and UTI's? Neta
neta
in
Ataxia UK
12 years ago
INR question
Hi everyone. Im in the US and my lab tests never exactly state the ratio.my DRVVT is 27 (range 37-50). Anticardiolipin IgM 14.5 (range0-11). IgG 22.3 (0-23).factor VIII 66.8(50-200).INR .96(.86-1.18) . How do i figure if the inr is ok? The hemotologist was more concerned over the aps than the vonwillebrands
Hi everyone. Im in the US and my lab tests never exactly state the ratio.my DRVVT is 27 (range 37-50). Anticardiolipin IgM 14.5 (range0-11). IgG 22.3 (0-23).factor VIII 66.8(50-200).INR .96(.86-1.18) . How do i figure if the inr is ok? The hemotologist was more concerned over the aps than the vonwillebrands
lovemyheart
in
Hughes Syndrome APS Forum
12 years ago
Lupus and CIDP
Going in for intravenous
immunoglobulin
infusion, n just wondered if anyone else was in the same boat?
Going in for intravenous
immunoglobulin
infusion, n just wondered if anyone else was in the same boat?
Hidden
in
LUPUS UK
12 years ago
Does any cll patient feel that stress adds to their general demise??
Three years ago my husband and I spent 10 days cleaning our daughter's house following a severe house fire, builders in to restore (that took a year), our son-in-law developed melanoma during the year re-build. We carried out an extensive house-clean, installed new furniture etc., for their return
Three years ago my husband and I spent 10 days cleaning our daughter's house following a severe house fire, builders in to restore (that took a year), our son-in-law developed melanoma during the year re-build. We carried out an extensive house-clean, installed new furniture etc., for their return
lartington
in
CLL Support
12 years ago
Talk about Lack of support
I've recently returned to work after being very poorly. I had to do a risk assessment with our HR officer before I came back and it was decided then that if I was struggling or could feel myself becoming ill I was to inform my manager and arrange to take annual leave to rest and pull it back. At the
I've recently returned to work after being very poorly. I had to do a risk assessment with our HR officer before I came back and it was decided then that if I was struggling or could feel myself becoming ill I was to inform my manager and arrange to take annual leave to rest and pull it back. At the
Hidden
in
LUPUS UK
12 years ago
What is immunoglobulin therapy?
Marisa
in
CLL Support
12 years ago
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