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Ibandronic acid
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9 years and counting with PMR!
Feeling frustrated having been 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. Initially I was able to reduce preds down to 5 mg daily with 25mgs methotrexate weekly but I am ow struggling again
Feeling frustrated having been 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. Initially I was able to reduce preds down to 5 mg daily with 25mgs methotrexate weekly but I am ow struggling again
MC60
in
PMRGCAuk
1 year ago
Will Alendronic Acid affect my RLS?
I have Osteopenia and have been advised to start taking Alendronic Acid to prevent me developing Osteoporosis but am worried it might make my RLS worse. I take Requip and seem to have it under control.
I have Osteopenia and have been advised to start taking Alendronic Acid to prevent me developing Osteoporosis but am worried it might make my RLS worse. I take Requip and seem to have it under control.
Brenda48
in
Restless Legs Syndrome
1 year ago
ursodeoxycholic acid
hi everyone, Hope your all well. I’ve had pbc for about a year now. I take 500mg of ursodeoxycholic acid twice per day. I suffer from waves of nausea at different times throughout the day. Today I spoke to Gastroenterologist on the phone and he told me to take the medication 1000mg at bedtime. Does
hi everyone, Hope your all well. I’ve had pbc for about a year now. I take 500mg of ursodeoxycholic acid twice per day. I suffer from waves of nausea at different times throughout the day. Today I spoke to Gastroenterologist on the phone and he told me to take the medication 1000mg at bedtime. Does
Sunliver
in
PBC Foundation
1 year ago
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Creaky Joints!
Hello Everyone. Having had trouble going down to 4mg Pred previously, I'm nearing the end of a 6 month taper from 5mg to 4mg. Over the last couple of months I have had a really stiff neck and shoulder pain on one side. I can't decide if this is symptoms coming back, or osteoarthritis, because I definitely
Hello Everyone. Having had trouble going down to 4mg Pred previously, I'm nearing the end of a 6 month taper from 5mg to 4mg. Over the last couple of months I have had a really stiff neck and shoulder pain on one side. I can't decide if this is symptoms coming back, or osteoarthritis, because I definitely
AshPen9
in
PMRGCAuk
1 year ago
Closer to checkmate to Parkinson's (1): what Dr. Phillipson says.
This year 2023 marks the 10th anniversary of the publication of a writing by Dr. Phillipson and an interview about its content. Oliver T. Phillipson is a Harvard scientist. A sage who accumulates decades of experience in the study of aging, mitochondria and Parkinson's disease. And he has a dream that
This year 2023 marks the 10th anniversary of the publication of a writing by Dr. Phillipson and an interview about its content. Oliver T. Phillipson is a Harvard scientist. A sage who accumulates decades of experience in the study of aging, mitochondria and Parkinson's disease. And he has a dream that
parkinsonshereandnow
in
Cure Parkinson's
1 year ago
Dexa scan
I thought I would share my experience. I have just been for the above, having questioned the need for me to be taking Alendronic acid. I was told by my GP that I “might as well” take it when started on Steroids. I hated the ritual of having to get up earlier on the day I had to take it and then when
I thought I would share my experience. I have just been for the above, having questioned the need for me to be taking Alendronic acid. I was told by my GP that I “might as well” take it when started on Steroids. I hated the ritual of having to get up earlier on the day I had to take it and then when
MrsPractical
in
PMRGCAuk
1 year ago
amino acids not recognised as essential in humans such as taurine play a role in fibromyalgia,
In this study, researchers measured the level of 20 amino acids (critical components of proteins). They found that overall levels of amino acids were lower in fibromyalgia and that seven amino acids were especially low, including taurine, alanine, tyrosine, valine, methionine, phenylalanine, and threonine.The
In this study, researchers measured the level of 20 amino acids (critical components of proteins). They found that overall levels of amino acids were lower in fibromyalgia and that seven amino acids were especially low, including taurine, alanine, tyrosine, valine, methionine, phenylalanine, and threonine.The
LawrenceT
in
Fibromyalgia Action UK
1 year ago
Alternative and adjunct medications for RLS
Here's an interesting article on some of the less common medications for RLS. It may be of interest to members who have exhausted all other medication options. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9983500/ Keywords: clonidine, dipyridamole, perampanel, amantadine, ketamine, carbamazepine,
Here's an interesting article on some of the less common medications for RLS. It may be of interest to members who have exhausted all other medication options. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9983500/ Keywords: clonidine, dipyridamole, perampanel, amantadine, ketamine, carbamazepine,
Hidden
in
Restless Legs Syndrome
1 year ago
Severe Osteoporosis - Understanding the scan report and treatment
As a WF, age 60 - the last several years have seen some big health scares / diagnoses: FYI: After a torn shoulder rotator cuff injury in Oct 2022 and PT making the pain worse, my orthopedic Dr finally suggested an MRI. Results did not have good news. He then suggested a surgical repair with "bone
As a WF, age 60 - the last several years have seen some big health scares / diagnoses: FYI: After a torn shoulder rotator cuff injury in Oct 2022 and PT making the pain worse, my orthopedic Dr finally suggested an MRI. Results did not have good news. He then suggested a surgical repair with "bone
RAD23
in
Bone Health and Osteoporosis UK
1 year ago
Questions about taking Alendronate (Fosomax) and hydroxyeurea
I have Et with Jak 2. I was diagnosed last year when my platelets were around 600. After having a physical and a bone scan my gp just recommended taking alendronate for osteopenia. I walk 3 miles a day and work out. I have concerns about doing this especially with taking hydroxy. I have a friend whose
I have Et with Jak 2. I was diagnosed last year when my platelets were around 600. After having a physical and a bone scan my gp just recommended taking alendronate for osteopenia. I walk 3 miles a day and work out. I have concerns about doing this especially with taking hydroxy. I have a friend whose
Skater69
in
MPN Voice
1 year ago
Hyaluronic acid excess
Hello Given the serious and worrying range of symptoms that are discussed here, I hope it's not annoying to ask about a minor one. I'm wondering if anyone else has a problem with excess hyaluronic acid and if so what facial moisturising creams are appropriate? A post I saw here some months ago helped
Hello Given the serious and worrying range of symptoms that are discussed here, I hope it's not annoying to ask about a minor one. I'm wondering if anyone else has a problem with excess hyaluronic acid and if so what facial moisturising creams are appropriate? A post I saw here some months ago helped
StPetes
in
Thyroid UK
1 year ago
Has anyone else had a problem with loose teeth?
I went to the dentist yesterday who said 4of my teeth are becoming loose, probably due to Alendronic acid and Carbamazepine ( for trigeminal neuralgia ) He said my dental hygiene was excellent. The only available treatment on the NHS is a denture! I am being referred to a periodontal specialist but
I went to the dentist yesterday who said 4of my teeth are becoming loose, probably due to Alendronic acid and Carbamazepine ( for trigeminal neuralgia ) He said my dental hygiene was excellent. The only available treatment on the NHS is a denture! I am being referred to a periodontal specialist but
Gardening2811
in
PMRGCAuk
1 year ago
RLS amino acids
Hi, I don't have RLS since taking Amino Acids. If I leave them off 2 nights running it comes back as bad as before. I don't know if they do me any harm but it's better than the torture every night. I take Glutamine, Ornithine and Lyseine. If anyone tries this please let me know how it goes. I have
Hi, I don't have RLS since taking Amino Acids. If I leave them off 2 nights running it comes back as bad as before. I don't know if they do me any harm but it's better than the torture every night. I take Glutamine, Ornithine and Lyseine. If anyone tries this please let me know how it goes. I have
1jeremiah1
in
Restless Legs Syndrome
1 year ago
Hello & Should I do private tests?
Hi! First post here after reading through the forum for a week or so. I'd like to start by saying a big THANK YOU to all the knowledgeable folks who have posted on here, especially the Administrators who are incredibly helpful. I've very recently been diagnosed with autoimmune thyroid disease and have
Hi! First post here after reading through the forum for a week or so. I'd like to start by saying a big THANK YOU to all the knowledgeable folks who have posted on here, especially the Administrators who are incredibly helpful. I've very recently been diagnosed with autoimmune thyroid disease and have
ERIC107
in
Thyroid UK
1 year ago
zoledronic acid infusion next month
I have received the date for my zoledronic and infusion 23rd April together with a blood form to do a few days prior, I thought I might have had another dexa scan, because the one I had was the 24th October does it matter, any other help please.
I have received the date for my zoledronic and infusion 23rd April together with a blood form to do a few days prior, I thought I might have had another dexa scan, because the one I had was the 24th October does it matter, any other help please.
Radars
in
Advanced Prostate Cancer
1 year ago
Magnesium salts and RLS: malate, glycinate or citrate
Just following up on a recent post recommending magnesium malate for RLS, quoting recommendations made by Californian company Pure Biogenics in promoting their RLS supplement Seratame. Looking into this, experiments on rats suggested that malate may be the most bio-available form of magnesium; there
Just following up on a recent post recommending magnesium malate for RLS, quoting recommendations made by Californian company Pure Biogenics in promoting their RLS supplement Seratame. Looking into this, experiments on rats suggested that malate may be the most bio-available form of magnesium; there
ChrisColumbus
in
Restless Legs Syndrome
1 year ago
Medication Storage Ideas?
Hi. There's lots of ideas from other countries that create neat medication storage for mostly bottles but in Britain it's not the way most meds are prescribed to most adults. I'd love to hear your solutions to storing lots of meds in varying (including month to month - mine are a mix of fortnightly
Hi. There's lots of ideas from other countries that create neat medication storage for mostly bottles but in Britain it's not the way most meds are prescribed to most adults. I'd love to hear your solutions to storing lots of meds in varying (including month to month - mine are a mix of fortnightly
Paradigm
in
Asthma Community Forum
1 year ago
What pain relief do you use?
Following on from my thread, I just wondered what pain relief you use? Naproxen, paracetamol, Mefenamic acid have done nothing for me. I'm currently on co-codamol 30/500 which is working but is saying my constipation to be worse than it is already. Does anyone use Amitriptyline? Thinking it might help
Following on from my thread, I just wondered what pain relief you use? Naproxen, paracetamol, Mefenamic acid have done nothing for me. I'm currently on co-codamol 30/500 which is working but is saying my constipation to be worse than it is already. Does anyone use Amitriptyline? Thinking it might help
Mindfullness4791
in
Endometriosis UK
1 year ago
Thrombocytopenia.
I have a T score if - 2.6 and f.neck -2. In July I picked up and tryed to carry a old hostess trolley and I fractured my L1. A wedge fracture.I feel I am being bullied into having an alendronic Acid infusion which I know will make my platelets drop even more than they are at the moment which I have
I have a T score if - 2.6 and f.neck -2. In July I picked up and tryed to carry a old hostess trolley and I fractured my L1. A wedge fracture.I feel I am being bullied into having an alendronic Acid infusion which I know will make my platelets drop even more than they are at the moment which I have
Thatchcottage
in
Bone Health and Osteoporosis UK
1 year ago
Dr Ala S Al-Hussaini
I was diagnosed end of 2020. I have been on 7mg pred since beginning of 2022, my pains have increased over the past six months, and an attempt to taper further was a disaster. Having dropped right down the priority list at the Royal Surrey County Hospital, and not having had a consultation for over a
I was diagnosed end of 2020. I have been on 7mg pred since beginning of 2022, my pains have increased over the past six months, and an attempt to taper further was a disaster. Having dropped right down the priority list at the Royal Surrey County Hospital, and not having had a consultation for over a
Angel_doll
in
PMRGCAuk
1 year ago
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