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Hysterectomy seems inevitable
My consultant diagnosed me with endometriosis adenomyosis and ashermans syndrome. He wants me to have the zoladex Implant for 6 months then hysterectomy planned afterwards. Feeling defeated and it’s quite major surgery at 32. Don’t know what I’m asking just maybe reassurance.
My consultant diagnosed me with endometriosis adenomyosis and ashermans syndrome. He wants me to have the zoladex Implant for 6 months then hysterectomy planned afterwards. Feeling defeated and it’s quite major surgery at 32. Don’t know what I’m asking just maybe reassurance.
sazley87
in
Pelvic Pain Support Network
5 years ago
scared
scared to death have a 9.5 mass on ovary .abdominal hysterectomy, scared it might spread .doc thinks it granulosa tumor,am I going to die? will there be a treatment for me
scared to death have a 9.5 mass on ovary .abdominal hysterectomy, scared it might spread .doc thinks it granulosa tumor,am I going to die? will there be a treatment for me
stephanielovesgod
in
SHARE Ovarian Cancer Support
5 years ago
Further treatment
Hi ladies I had a total hysterectomy and appendix removal surgery on the 31st October, after my right ovary was previously removed in August for mucinous borderline stage 1a. I was wondering if I still needed monitoring, bloods or any checkups. Or is that is now? Has a anyone similar who could please
Hi ladies I had a total hysterectomy and appendix removal surgery on the 31st October, after my right ovary was previously removed in August for mucinous borderline stage 1a. I was wondering if I still needed monitoring, bloods or any checkups. Or is that is now? Has a anyone similar who could please
Emm77
in
My Ovacome
5 years ago
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Wish I had been given HRT straight after my surgery .
Hi i had Total hysterectomy and BSO on the 6th June 2019 .Like many of the ladies on here I thought I would wait and see how I felt before deciding on HRT or not .I am 53 years old.The first few months were ok ,plenty of rest and no stress I was feeling I was on the mend.Then pressure to return to work
Hi i had Total hysterectomy and BSO on the 6th June 2019 .Like many of the ladies on here I thought I would wait and see how I felt before deciding on HRT or not .I am 53 years old.The first few months were ok ,plenty of rest and no stress I was feeling I was on the mend.Then pressure to return to work
riceandpeas567
in
Healthy Happy Woman
5 years ago
Endo - does it run in the family?
Hiya everyone, a big thank you to everyone who responded to my first post I was overwhelmed with the support. After speaking to my Nan over the weekend I found out that both of my aunties and their mum (my Nan) had to have hysterectomies in their 30s for very bad periods. Endo was confirmed with one
Hiya everyone, a big thank you to everyone who responded to my first post I was overwhelmed with the support. After speaking to my Nan over the weekend I found out that both of my aunties and their mum (my Nan) had to have hysterectomies in their 30s for very bad periods. Endo was confirmed with one
Dartmouth93
in
Endometriosis UK
5 years ago
Has anyone had endometriosis come back with in a year of having a full hysterectomy and how did you deal with it?
I had a full hysterectomy Feb 2019 due to endometriosis and adhesions. I am also a type 1 diabetic but getting the same symptoms as pre op and currently on oramorph and oxynorm which whilst on this I don't feel my hypos. Which I am struggling to deal with daily life and worried endometriosis has come
I had a full hysterectomy Feb 2019 due to endometriosis and adhesions. I am also a type 1 diabetic but getting the same symptoms as pre op and currently on oramorph and oxynorm which whilst on this I don't feel my hypos. Which I am struggling to deal with daily life and worried endometriosis has come
Hugocat
in
Endometriosis UK
5 years ago
Bleeding after hysterectomy.
Did anyone have a post hysterectomy Bleeding? I had a total hysterectomy with both ovaries out. Just finished two weeks. Didn't have bleeding in two weeks, but yesterday had some bleeding. Had used a thin sanitary pad. The endo nurse says it's normal to bleed 6 to 8 weeks. Pls share if anyone bled after
Did anyone have a post hysterectomy Bleeding? I had a total hysterectomy with both ovaries out. Just finished two weeks. Didn't have bleeding in two weeks, but yesterday had some bleeding. Had used a thin sanitary pad. The endo nurse says it's normal to bleed 6 to 8 weeks. Pls share if anyone bled after
Goll
in
Endometriosis UK
5 years ago
Post hysterectomy
Hi Ladies, I had my total hysterectomy and appendix removed on Thursday afternoon. I am home now recovering. When they removed the catheter Friday morning I was able to pee, but by Friday tea time I was in such pain and bloated. Not able to pee anymore. So they have send me home with a catheter and I
Hi Ladies, I had my total hysterectomy and appendix removed on Thursday afternoon. I am home now recovering. When they removed the catheter Friday morning I was able to pee, but by Friday tea time I was in such pain and bloated. Not able to pee anymore. So they have send me home with a catheter and I
Emm77
in
OvaCare
5 years ago
Large fibroid releif
I have bleeding everyday for 6 weeks now sometimes very heavy with big clots I take northisterone 3 times a day that doesn’t seem to be working do you know if a less major surgery than a hysterectomy that will hel I have a very large fibroid and some small ones I’m 56 and near menopause but nothing happening
I have bleeding everyday for 6 weeks now sometimes very heavy with big clots I take northisterone 3 times a day that doesn’t seem to be working do you know if a less major surgery than a hysterectomy that will hel I have a very large fibroid and some small ones I’m 56 and near menopause but nothing happening
Janeyjane20
in
Endometriosis UK
5 years ago
Suffering with endometerosis
Hi, I have suffered for the last 13 years after having 2 endometriosis operations and I have ended up having a full hysterectomy key hole which 6 weeks into recovery I feel the best in years and the HRT gel is working fantastically, I am 49 so the option was easy for me but I wish I had had the operation
Hi, I have suffered for the last 13 years after having 2 endometriosis operations and I have ended up having a full hysterectomy key hole which 6 weeks into recovery I feel the best in years and the HRT gel is working fantastically, I am 49 so the option was easy for me but I wish I had had the operation
Experiences
in
Endometriosis UK
5 years ago
New beginnings
Hello everyone been fairly busy having appointments at hospital. So at last I have a date for my hysterectomy on the 21st November. Sticking to my diet as I started my weight lose journey at 119.07 which I think was around 265lb. I am now down to 95.3 which is around 209.6lb so onwards with my life changes
Hello everyone been fairly busy having appointments at hospital. So at last I have a date for my hysterectomy on the 21st November. Sticking to my diet as I started my weight lose journey at 119.07 which I think was around 265lb. I am now down to 95.3 which is around 209.6lb so onwards with my life changes
Saraangel1
in
Weight Loss Support
5 years ago
Hysterectomy
Hui have hospital appointment Thursday and I’m going 2 ask for as hysterectomy . I was wondering how menu off you did it halp?
Hui have hospital appointment Thursday and I’m going 2 ask for as hysterectomy . I was wondering how menu off you did it halp?
Gay333
in
Endometriosis UK
5 years ago
Private hysterectomy cost?
Hi Google is not proving helpful, I have requested info from BMI but I’m being impatient ☺️ Does anyone know how much a hysterectomy costs if going private? 🤔 Thanks
Hi Google is not proving helpful, I have requested info from BMI but I’m being impatient ☺️ Does anyone know how much a hysterectomy costs if going private? 🤔 Thanks
Bluepeg
in
Pelvic Pain Support Network
5 years ago
Pain management options while waiting to be seen...
Hi I have had adenomyosis confirmed and Fibroids (one of which is 7cm) summer 2019. I’m mid 40s, two children (adopted). Please bear with me, I waffle 😁 I am in constant pain most days. Gradually getting worse since Jan 2019. Periods have been horrific for many a decade from a pain point of view and
Hi I have had adenomyosis confirmed and Fibroids (one of which is 7cm) summer 2019. I’m mid 40s, two children (adopted). Please bear with me, I waffle 😁 I am in constant pain most days. Gradually getting worse since Jan 2019. Periods have been horrific for many a decade from a pain point of view and
Bluepeg
in
Pelvic Pain Support Network
5 years ago
Increased Ca125 and ascities
Hello all. I'm still scared my Ca125 has risen and after a recent short hospital stay due to salmonella, diarrhoea and vomiting, a scan showed the ascities has returned. After a total hysterectomy and debulking surgery last year, I didn't think ascities could come back. This means the tumours must have
Hello all. I'm still scared my Ca125 has risen and after a recent short hospital stay due to salmonella, diarrhoea and vomiting, a scan showed the ascities has returned. After a total hysterectomy and debulking surgery last year, I didn't think ascities could come back. This means the tumours must have
TudorPurr68
in
My Ovacome
5 years ago
Placenta accrete so upset
Feeling an absolute mess 😞 Mri results confirmed placenta accrete today. Actually worse than we anticipated, went from baby shower excitement to now being told likely il need hysterectomy, arterial balloons to prevent “catastrophic bleeding” as the consultant said wish she had watered it down and possibly
Feeling an absolute mess 😞 Mri results confirmed placenta accrete today. Actually worse than we anticipated, went from baby shower excitement to now being told likely il need hysterectomy, arterial balloons to prevent “catastrophic bleeding” as the consultant said wish she had watered it down and possibly
ICSIBaby86
in
Pregnancy and Parenting Support
5 years ago
Nine Months after a Full Hysterectomy with BSO - August -to date non-stop Headache
My healing was a journey of it's on. Once I hit the sixth month I saw enormous change in my healing. Then immediately the headaches and dizziness and vertigo took over. From Ob-gyn to Physician to Neurologist to ENT to... From medication to medication to..... It's weighing me down. Slowing my exercising
My healing was a journey of it's on. Once I hit the sixth month I saw enormous change in my healing. Then immediately the headaches and dizziness and vertigo took over. From Ob-gyn to Physician to Neurologist to ENT to... From medication to medication to..... It's weighing me down. Slowing my exercising
Lunje
in
Healthy Happy Woman
5 years ago
Why can’t I be given steroids for suspected autoimmune disease such as lupus, Sjögrens or scleroderma when they work
Hi am seeing my rheumatologist next month in a desperate last ditch attempt to get answers from him. My ENA is always positive and I have tried steroids from my GP in the past for chest infections and have felt so well within days yet am not being given them at all by my rheumatologist long term for
Hi am seeing my rheumatologist next month in a desperate last ditch attempt to get answers from him. My ENA is always positive and I have tried steroids from my GP in the past for chest infections and have felt so well within days yet am not being given them at all by my rheumatologist long term for
Hidden
in
LUPUS UK
5 years ago
Operation Done for Now 😃
Hi All Thanks for all your well wishes had my operation; feeling sore but out on the other side and on the road to recovery. Managed to separate my organs and bowel slightly but wasn’t to invasive in completely separating my bowel otherwise I would have had to have had a permanent bag which wouldn’t
Hi All Thanks for all your well wishes had my operation; feeling sore but out on the other side and on the road to recovery. Managed to separate my organs and bowel slightly but wasn’t to invasive in completely separating my bowel otherwise I would have had to have had a permanent bag which wouldn’t
Marie3811
in
Endometriosis UK
5 years ago
I’m new here. Pain relief tips for severe endo & chocolate cyst please?
Hi all I’m new here & really sad & frustrated to read how so many women are suffering unnecessarily with misdiagnosis & long waits for treatments. The pain I have experienced is just horrendous & I feel for everyone who suffers such chronic pain I’ll try & summarise my story. I’m 47 , have 2 children
Hi all I’m new here & really sad & frustrated to read how so many women are suffering unnecessarily with misdiagnosis & long waits for treatments. The pain I have experienced is just horrendous & I feel for everyone who suffers such chronic pain I’ll try & summarise my story. I’m 47 , have 2 children
Hencharl99
in
Endometriosis UK
5 years ago
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