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Desperate for some advice
Hi, im hoping someine can relate.I was diagnosed with Endometriosis about 11 years ago and have had my left tube and ovary removed on my 3rd laparoscopy. I've got an appointment this week to hopefully get a date for a hysterectomy. Over the past 4 weeks, I've had chronic diarrhoea, heavy bloating across
Hi, im hoping someine can relate.I was diagnosed with Endometriosis about 11 years ago and have had my left tube and ovary removed on my 3rd laparoscopy. I've got an appointment this week to hopefully get a date for a hysterectomy. Over the past 4 weeks, I've had chronic diarrhoea, heavy bloating across
Marvel-
in
Endometriosis UK
4 months ago
Stage 4 OC — Deposits on liver
Hi ladies! Could do with a bit of advice, as am spiralling a bit. For context, my Mum (54) was diagnosed with HGS stage 3c/4a OC in Jan 2022. BRACA gene negative. Immediately started three rounds of chemo, then had optimal debunking surgery and full hysterectomy, and continued with three more rounds
Hi ladies! Could do with a bit of advice, as am spiralling a bit. For context, my Mum (54) was diagnosed with HGS stage 3c/4a OC in Jan 2022. BRACA gene negative. Immediately started three rounds of chemo, then had optimal debunking surgery and full hysterectomy, and continued with three more rounds
georgialocksss
in
My Ovacome
4 months ago
Does a hysterectomy make a difference?
Has anyone found long term benefits from having a hysterectomy to treat endometriosis? Han x
Has anyone found long term benefits from having a hysterectomy to treat endometriosis? Han x
Han93
in
Endometriosis UK
4 months ago
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Advice request - going in circles with doctors
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Bookworm321123
in
Endometriosis UK
4 months ago
Surgery for fallopian tubes removal
Hi Has anyone had fallopian tubes removed but ovaries and uterus left intact? I've been advised to have this surgery through keyhole , ct scan shows abscesses in tubes. Although six months ago another scN showed abscess near uterus and one doctor mentioned hysterectomy. The doctor I saw this morning
Hi Has anyone had fallopian tubes removed but ovaries and uterus left intact? I've been advised to have this surgery through keyhole , ct scan shows abscesses in tubes. Although six months ago another scN showed abscess near uterus and one doctor mentioned hysterectomy. The doctor I saw this morning
Hannah818
in
Pelvic Pain Support Network
4 months ago
Multiple conditions leading to burnout
Hi everyone, Any constructive advice welcome. To give context, I have PCOS, endo, degenerative discs, lymphocytic colitis and my gynae now thinks I have adenomyosis too. I also suffer with frequent migraines. My consultant has recently advised I am likely to need a hysterectomy and has discussed injections
Hi everyone, Any constructive advice welcome. To give context, I have PCOS, endo, degenerative discs, lymphocytic colitis and my gynae now thinks I have adenomyosis too. I also suffer with frequent migraines. My consultant has recently advised I am likely to need a hysterectomy and has discussed injections
Devils_Advocate
in
Endometriosis UK
4 months ago
Bowel preparation before surgery
Hi everyone! 💛 Just been on pre op assessment and nurse said I don’t need to do bowel preparation at home. I will have hysterectomy with bowel resection and Endo excision. Has anyone had bowel preparation at hospital just before the operation? I am quite concerned what is going on 🤷♀️
Hi everyone! 💛 Just been on pre op assessment and nurse said I don’t need to do bowel preparation at home. I will have hysterectomy with bowel resection and Endo excision. Has anyone had bowel preparation at hospital just before the operation? I am quite concerned what is going on 🤷♀️
Endolemon
in
Endometriosis UK
5 months ago
still unsure about hysterectomy, been waiting over 1 year for op date, and taken a year to see consultant for a discussion
Was diagnosed with deep filtrating endometriosis and adenomyosis in 2019 following an MRI, and I am now awaiting a laporoscopy (been waiting over a year) and want to be under anaesthetic for that experience. Having a mirena coil was a positive thing for me, as stopped alot of the pain and heaviness of
Was diagnosed with deep filtrating endometriosis and adenomyosis in 2019 following an MRI, and I am now awaiting a laporoscopy (been waiting over a year) and want to be under anaesthetic for that experience. Having a mirena coil was a positive thing for me, as stopped alot of the pain and heaviness of
coletteholt
in
Endometriosis UK
5 months ago
Advice on egg freezing and hysterectomy for severely heavy bleeding
Hi everyone, I'm doing a little bit of research so I can take a huge stack of notes to my next gynaecology appointment, and wondered if anyone was able to share their experiences. I'm looking at potentially freezing some of my eggs, as I have endometriomas. I'm still undecided as to whether I want children
Hi everyone, I'm doing a little bit of research so I can take a huge stack of notes to my next gynaecology appointment, and wondered if anyone was able to share their experiences. I'm looking at potentially freezing some of my eggs, as I have endometriomas. I'm still undecided as to whether I want children
GrouchoSparx
in
Endometriosis UK
5 months ago
Anyone been diagnosed with adenomyosis after menopause
I'm 55, post menopausal and just been diagnosed with adenomyosis, also with fibroids and gartner duct cyst, wondering if hysterectomy is the way to go
I'm 55, post menopausal and just been diagnosed with adenomyosis, also with fibroids and gartner duct cyst, wondering if hysterectomy is the way to go
Mel5523
in
Menopause and Perimenopause Support
5 months ago
endometriosis on uterine artery.
I had my second surgery yesterday. Surgeon removed a lot of endo but was unable to remove it from my uterine artery due to the risk of hysterectomy and we would like to have another baby at some point before I go down this route. I was just wondering if anyone else has this? Were you able to conceive
I had my second surgery yesterday. Surgeon removed a lot of endo but was unable to remove it from my uterine artery due to the risk of hysterectomy and we would like to have another baby at some point before I go down this route. I was just wondering if anyone else has this? Were you able to conceive
Emmaja_ne
in
Endometriosis UK
5 months ago
A bit shell shocked by Hysterectomy recommendation
I was originally diagnosed with Endo in 2007 after a diagnostic laparoscopy. In 2015 my symptoms started to rear up again but I kept putting off going to see someone. Last year the heavy bleeding and pain got so bad I went private to see someone and had a further laparoscopy in December 2023. During
I was originally diagnosed with Endo in 2007 after a diagnostic laparoscopy. In 2015 my symptoms started to rear up again but I kept putting off going to see someone. Last year the heavy bleeding and pain got so bad I went private to see someone and had a further laparoscopy in December 2023. During
Charlamine2023
in
Endometriosis UK
2 days ago
End Of My Rope
Hi ladies ; i am coming to the end of my hope rope and just have no idea what to do here. i was diagnosed with Endo in 2022, spread to my colon, bowel, large and small intestine. Had a partial hysterectomy where they remove my left tube and ovary because it was so overcome by adhesions that it was
Hi ladies ; i am coming to the end of my hope rope and just have no idea what to do here. i was diagnosed with Endo in 2022, spread to my colon, bowel, large and small intestine. Had a partial hysterectomy where they remove my left tube and ovary because it was so overcome by adhesions that it was
malsmarie
in
The Endometriosis Foundation
10 days ago
End of my rope
Hi ladies ; i am coming to the end of my hope rope and just have no idea what to do here. i was diagnosed with Endo in 2022, spread to my colon, bowel, large and small intestine. Had a partial hysterectomy where they remove my left tube and ovary because it was so overcome by adhesions that it was causing
Hi ladies ; i am coming to the end of my hope rope and just have no idea what to do here. i was diagnosed with Endo in 2022, spread to my colon, bowel, large and small intestine. Had a partial hysterectomy where they remove my left tube and ovary because it was so overcome by adhesions that it was causing
malsmarie
in
Endometriosis UK
12 days ago
Right Sided pelvic pain
Hi I am new here and wanted to tell my story with the hope that I can get a better understanding as to what is happening with me, as I am really confused and my mental health is really suffering because of this.I had a hysterectomy (full laproscopic) in May 2013 for heavy periods and pelvic pain. The
Hi I am new here and wanted to tell my story with the hope that I can get a better understanding as to what is happening with me, as I am really confused and my mental health is really suffering because of this.I had a hysterectomy (full laproscopic) in May 2013 for heavy periods and pelvic pain. The
della333AB
in
Pelvic Pain Support Network
5 months ago
hysterectomy
hi all I’ve just had an appointment with my consultant and looking for some advice..I’m 42 with severe endo and he’s advised a total hysterectomy with hrt.. but he’s advised me the wait will be another yr 😞 AGAIN! Anyway because of the wait he has suggested I start the process early by having an injection
hi all I’ve just had an appointment with my consultant and looking for some advice..I’m 42 with severe endo and he’s advised a total hysterectomy with hrt.. but he’s advised me the wait will be another yr 😞 AGAIN! Anyway because of the wait he has suggested I start the process early by having an injection
Peetzo
in
Endometriosis UK
23 days ago
Mother Diagnosed with Stage 4 OC, recurrence, now liver traces
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only
akhilsalwan
in
My Ovacome
5 months ago
Mother Diagnosed with Stage 4 OC - Recurrence, now Liver traces
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only to
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only to
akhilsalwan
in
OvaCare
5 months ago
High Testosterone Level
Has Anyone experienced high testosterone level along with hypothyroidism or have any ideas why I should have it. I haven't posted for a long time for various reasons and being very unwell. However reached the end of my tether with our GP practice and everything else. Getting nowhere and no life I
Has Anyone experienced high testosterone level along with hypothyroidism or have any ideas why I should have it. I haven't posted for a long time for various reasons and being very unwell. However reached the end of my tether with our GP practice and everything else. Getting nowhere and no life I
Sallybones
in
Thyroid UK
5 months ago
Alexa
hi just seen this add on to my usual h/u log in. Well as above my name is Alexa and my journey began in 2020 when l had an unexpected bleed at the age of 74. My first surgeon didn’t take me seriously when l told him l had a post meno haemorrhage which to be blunt kept me on the loo for almost half
hi just seen this add on to my usual h/u log in. Well as above my name is Alexa and my journey began in 2020 when l had an unexpected bleed at the age of 74. My first surgeon didn’t take me seriously when l told him l had a post meno haemorrhage which to be blunt kept me on the loo for almost half
AlexaMac
in
Gynae Cancer Support
5 months ago
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