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Feeling really annoyed and frustrated today after my gynaecologist appointment. I have been on prostap for 3 months, hasn’t help with the pain and caused hot flashes, weakened bladder and painful joints with swelling on my feet. I was told today nothing else can be done as if that didn’t work for pain
Feeling really annoyed and frustrated today after my gynaecologist appointment. I have been on prostap for 3 months, hasn’t help with the pain and caused hot flashes, weakened bladder and painful joints with swelling on my feet. I was told today nothing else can be done as if that didn’t work for pain
pcalu
in
Endometriosis UK
2 years ago
10 weeks post hysterectomy
Hi, I hope everyone is ok ❤️ I had a complete hysterectomy 10 weeks ago due to severe endometriosis, ovarian cysts, adenomyosis and other things. I had been feeling so much better, no pain, mental health in a good place and when I saw my consultant last week he was pleased with my recovery and signed
Hi, I hope everyone is ok ❤️ I had a complete hysterectomy 10 weeks ago due to severe endometriosis, ovarian cysts, adenomyosis and other things. I had been feeling so much better, no pain, mental health in a good place and when I saw my consultant last week he was pleased with my recovery and signed
P9LON
in
Endometriosis UK
2 years ago
IBS/Fibro
Hi. Can anyone help. Diagnosed Fibro 13 years ago but had problems for over 30 years. Always had bowel problems, ie. constipated and abdominal pain with periods, but had hysterectomy for endometriosis in 1989 and thought it was the end of my problems. how wrong I was, it was merely the start. I
Hi. Can anyone help. Diagnosed Fibro 13 years ago but had problems for over 30 years. Always had bowel problems, ie. constipated and abdominal pain with periods, but had hysterectomy for endometriosis in 1989 and thought it was the end of my problems. how wrong I was, it was merely the start. I
ShelWhitt
in
Fibromyalgia Action UK
2 years ago
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Bowel problems
Hi everyone Just wanted to know if endometriosis and adenomyosis causes anyone else bowel issues. I either have extreme diarrhoea or am constipated at least once or twice a week now. And now also hip and back pain! Is that also part of it. I’ve been formally diagnosed with both for about 15 years
Hi everyone Just wanted to know if endometriosis and adenomyosis causes anyone else bowel issues. I either have extreme diarrhoea or am constipated at least once or twice a week now. And now also hip and back pain! Is that also part of it. I’ve been formally diagnosed with both for about 15 years
Greenlady48
in
Endometriosis UK
2 years ago
treatment
Hello ladies. has anyone with low grade stage 1c2 been offered any further treatment other than the total hysterectomy and debulking surgery. ?? thankyou.
Hello ladies. has anyone with low grade stage 1c2 been offered any further treatment other than the total hysterectomy and debulking surgery. ?? thankyou.
meaty
in
My Ovacome
2 years ago
Bleeding after Hysterectomy
Has anyone else experienced bleeding 3 weeks post op after total Hysterectomy? It started the day after the op as heavy as a normal period but hasn't stopped. I've been to the hospital and they have said it's probably a haematoma draining and they have given me antibiotics even though my bloods show
Has anyone else experienced bleeding 3 weeks post op after total Hysterectomy? It started the day after the op as heavy as a normal period but hasn't stopped. I've been to the hospital and they have said it's probably a haematoma draining and they have given me antibiotics even though my bloods show
Lucob2
in
Endometriosis UK
2 years ago
Prostap, bleeding and pain
Hi everyone. Hope you’re all ok. Just after a bit of advise. I have been on prostap since October following excision in July, my specialist said I could be on it for 2 years then he would look at a possible hysterectomy. I struggled at first with low mood but patches have helped. In March I went to A
Hi everyone. Hope you’re all ok. Just after a bit of advise. I have been on prostap since October following excision in July, my specialist said I could be on it for 2 years then he would look at a possible hysterectomy. I struggled at first with low mood but patches have helped. In March I went to A
Blue1921
in
Endometriosis UK
2 years ago
Constipation post hysterectomy
Hi, I just need some advice I had a
vaginal
hysterectomy
and laparoscopic removal of ovaries tubes cervix etc on Friday afternoon. The surgery went well however I am in a lot of pain from the gas and I have no been able to have any bowel movements yet.
Hi, I just need some advice I had a
vaginal
hysterectomy
and laparoscopic removal of ovaries tubes cervix etc on Friday afternoon. The surgery went well however I am in a lot of pain from the gas and I have no been able to have any bowel movements yet.
MyStar86
in
Endometriosis UK
2 years ago
Ive just had a total hysterectomy and The removal of both my ovaries, I’m quite scared and confused a bout th reset of my health now.
Having a huge cysts on both ovaries 1 was 20cm and the other around 8 cm it was decided it was best to get rid of both my ovaries too as this was the 3rd time i had surgery for endometriosis. My consultant has said i shroud wait a month before i go on HRT, due to blood clotting just after surgery. I
Having a huge cysts on both ovaries 1 was 20cm and the other around 8 cm it was decided it was best to get rid of both my ovaries too as this was the 3rd time i had surgery for endometriosis. My consultant has said i shroud wait a month before i go on HRT, due to blood clotting just after surgery. I
JoAmber22
in
The Endometriosis Foundation
2 years ago
Time between pre op and hysterectomy
So, I've to get my pre op on Tuesday, just wandering how long to wait after for total hysterectomy op?
So, I've to get my pre op on Tuesday, just wandering how long to wait after for total hysterectomy op?
Swimmer75
in
Endometriosis UK
2 years ago
Light brown pigmentation under jawline only, hypothyroidism issue or something else?
I have had this light brown pigmentation under just my jawline that I developed after having a thyroidectomy in 2016. I had a hysterectomy 17 years earlier and did not have this light brown pigmentation could this be from the thyroidectomy? Any ideas on how to get rid of it? I tried those skin lightening
I have had this light brown pigmentation under just my jawline that I developed after having a thyroidectomy in 2016. I had a hysterectomy 17 years earlier and did not have this light brown pigmentation could this be from the thyroidectomy? Any ideas on how to get rid of it? I tried those skin lightening
Batty1
in
Thyroid UK
2 years ago
Question on treatment options (long)
Recently diagnosed with age related osteoporosis, vitamin d deficiency and hyper parathyroidism. I am 67, breast cancer survivor (diagnosed 2014 with stage 1 and did not need chemo or radiation but did take a pill for 5 years and had a double mastectomy) and in 2021 was diagnosed with endometrial stromal
Recently diagnosed with age related osteoporosis, vitamin d deficiency and hyper parathyroidism. I am 67, breast cancer survivor (diagnosed 2014 with stage 1 and did not need chemo or radiation but did take a pill for 5 years and had a double mastectomy) and in 2021 was diagnosed with endometrial stromal
2Katz4
in
Osteoarthritis Action
2 years ago
Has anyone had HRT implants? Would love to know your experience and where you’ve had them done please
Hi ladies, I’m wanting to have Oestrogen and Testosterone implants as I don’t absorb transdermal HRT. It’s my only option left as I have dreadful menopause symptoms since my hysterectomy. As far as I know they’re not available on the NHS so I’m wondering if anyone can recommend a private clinic/hospital
Hi ladies, I’m wanting to have Oestrogen and Testosterone implants as I don’t absorb transdermal HRT. It’s my only option left as I have dreadful menopause symptoms since my hysterectomy. As far as I know they’re not available on the NHS so I’m wondering if anyone can recommend a private clinic/hospital
Nikkky
in
Endometriosis UK
2 years ago
Hysterectomy.. ovaries out or not
I spoke to my consultant yesterday who said he will do a hysterectomy, Im 39 don't want kids as have my niece and nephews living with me so family is complete...he has given me a decision to make about keeping my ovaries or no..I've been on zoladex 3 months past 2 months have been pain free, I have 3
I spoke to my consultant yesterday who said he will do a hysterectomy, Im 39 don't want kids as have my niece and nephews living with me so family is complete...he has given me a decision to make about keeping my ovaries or no..I've been on zoladex 3 months past 2 months have been pain free, I have 3
Auntyhay
in
Endometriosis UK
2 years ago
Need some reassuring
Just confused and wanted to know if anyone else felt like this early on, had scans that showed 3 ovarian tumours so had a scan with dye that came back showing the cancer in my lymph and womb stage 3 so had biopsies taken in my womb and cervix last Friday and had guided biopsy of my lymph today but the
Just confused and wanted to know if anyone else felt like this early on, had scans that showed 3 ovarian tumours so had a scan with dye that came back showing the cancer in my lymph and womb stage 3 so had biopsies taken in my womb and cervix last Friday and had guided biopsy of my lymph today but the
Newbery3
in
My Ovacome
2 years ago
Endometriosis diagnosed, awaiting hysterectomy
Hi, I was diagnosed with Endometriosis 4 weeks ago and have been told that I will need a hysterectomy. I have now been referred for an MRI scan and Kidney scan before I will have a face to face appointment with the Gynaecologist. Has anyone else had this and how long did this take? I am suffering more
Hi, I was diagnosed with Endometriosis 4 weeks ago and have been told that I will need a hysterectomy. I have now been referred for an MRI scan and Kidney scan before I will have a face to face appointment with the Gynaecologist. Has anyone else had this and how long did this take? I am suffering more
SS44AS
in
Endometriosis UK
2 years ago
Decapeptyl and evorel hrt
Hi, I’m on Decapeptyl for large fibroids- went for 4 months on the injections with add back tibolone, during which time heavy bleeding never ceased. I stopped tibolone and went a few months without hrt with no adverse effects and no bleeding. Was advised to start evorel patch and progesterone pill,
Hi, I’m on Decapeptyl for large fibroids- went for 4 months on the injections with add back tibolone, during which time heavy bleeding never ceased. I stopped tibolone and went a few months without hrt with no adverse effects and no bleeding. Was advised to start evorel patch and progesterone pill,
Jlg-
in
Endometriosis UK
2 years ago
Finally, Total Hysterectomy, BOS, Excision Endometriosis & possible resection of bowel. Advice, Support or Guidance appreciated :)
After an extremely long wait 20 years and a little bit, I’m hopefully going to have a little bit of relief. I’ve suffered since I was 8 years old, after an attack as a young girl I was told my fertility was in question and a now or never was implied at 15. Since they discovered my large endometrioma
After an extremely long wait 20 years and a little bit, I’m hopefully going to have a little bit of relief. I’ve suffered since I was 8 years old, after an attack as a young girl I was told my fertility was in question and a now or never was implied at 15. Since they discovered my large endometrioma
Endo_Jaded
in
Endometriosis UK
2 years ago
Is it possible to have full debulking op privately but still use nhs for chemotherapy? I'm looking into different options.
Private total hysterectomy
Private total hysterectomy
Newbery3
in
My Ovacome
2 years ago
Induced chemical menopause
Hi ladies, my consultant is offering me to be put into a chemical induced menopause, via injections to shut down my ovaries for 6 months to see how I feel, then perhaps the possibility of a total hysterectomy including removal of the ovaries. Has anyone else experienced this? I'm very anxious to have
Hi ladies, my consultant is offering me to be put into a chemical induced menopause, via injections to shut down my ovaries for 6 months to see how I feel, then perhaps the possibility of a total hysterectomy including removal of the ovaries. Has anyone else experienced this? I'm very anxious to have
Gemma3835
in
Endometriosis UK
2 years ago
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