Finally, Total Hysterectomy, BOS, Excision Endometriosis & possible resection of bowel. Advice, Support or Guidance appreciated :)

[Endo_Jaded]

After an extremely long wait 20 years and a little bit, I’m hopefully going to have a little bit of relief. I’ve suffered since I was 8 years old, after an attack as a young girl I was told my fertility was in question and a now or never was implied at 15.

Since they discovered my large endometrioma in 2017 I’ve been waiting for urgent surgery.

I have stage 4 endometriosis, DE, fibroids, adhesions, frozen pelvis, anteverted- retroflexed uterus, with and enlarged left ovary, haemotsplanix of the Fallopian tube and a redundant colon that has the DE attached and cervical erosion…

I go in next week and hoping to keep one ovary for maintenance.

I’d like to hear your experience, recovery tips, whether you had a total, subtotal, radical?

Anything you can share?

#endometriosis

[eunha]

Finally!! I'm so happy for you! I hope you finally get some relief and all goes well ❤️

[Endo_Jaded in reply to eunha]

Thank you, this means so much 💛 🎗

[annieorrell]

Hi, sounds similar to me. I had my operation at the end of last year and had everything removed so straight into menopause. Surgery took nearly 7 hours and recovery was long and slow but I am really starting to see a massive improvement now. I still have some bowel and bladder issues but the pain is greatly reduced and my energy levels are much better. I have gained some menopause symptoms and I’m trying to keep my HRT to a low dose but it’s nothing like as bad as the frozen pelvis.I hope it goes well- just take time to recover x

[Endo_Jaded in reply to annieorrell]

Thank you, this is reassuring. I’m super worried, but at the same time it will be nice not to have to worry. I know we can still suffer or have concerns especially with endometriosis but like you said nothing like it is with a frozen pelvis.

Xx