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Would appreciate hearing from people going through similar?
Hi I had a total hysterectomy a year ago - including ovaries, the whole lot. For a while I felt fine, then gradually struggled to breath, raspy throat, lack of energy, breathless, it got worse and was admitted to hospital. When I came home I got estrogen patches, am now on 25 mg and felt much better
Hi I had a total hysterectomy a year ago - including ovaries, the whole lot. For a while I felt fine, then gradually struggled to breath, raspy throat, lack of energy, breathless, it got worse and was admitted to hospital. When I came home I got estrogen patches, am now on 25 mg and felt much better
amberbrown
in
Endometriosis UK
1 year ago
Fit test 200. Urgent CT colonoscopy being ordered. Bowel symptoms. Anyone had a ct colonoscopy....I'm scared.
Hi I'm age 47 female went into premature menopause at age 13yrs. Developed erosive lichen planus at age 30 which effects all my mucous membranes, 9 gynaecology operations had including a total hysterectomy & vaginectomy....ibs all my life but over the last 6months had severe bowel symtons.Fit test 200
Hi I'm age 47 female went into premature menopause at age 13yrs. Developed erosive lichen planus at age 30 which effects all my mucous membranes, 9 gynaecology operations had including a total hysterectomy & vaginectomy....ibs all my life but over the last 6months had severe bowel symtons.Fit test 200
Tinytash76
in
Colon Cancer Connected
1 year ago
urinary Frequency
Hi lovely ladies I was diagnosed with 2b ovarian Cancer in May 22 I consequently had a hysterectomy, salpingo-oophrectomy laprascopically. NED after my surgery followed by 6 cycles of Chemotherapy, which I completed in December. My post treatment scan was clear and my CA125 was 10. I’ve been doing
Hi lovely ladies I was diagnosed with 2b ovarian Cancer in May 22 I consequently had a hysterectomy, salpingo-oophrectomy laprascopically. NED after my surgery followed by 6 cycles of Chemotherapy, which I completed in December. My post treatment scan was clear and my CA125 was 10. I’ve been doing
Hota
in
My Ovacome
1 year ago
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Very scared
I had a hysterectomy and a couple of weeks later went back in with possible infection it says my small bowel has prolapsed into the pelvis already and I am very scared there is no solution everyone just tells me to shut up and recover from op faster because it's been three weeks.
I had a hysterectomy and a couple of weeks later went back in with possible infection it says my small bowel has prolapsed into the pelvis already and I am very scared there is no solution everyone just tells me to shut up and recover from op faster because it's been three weeks.
Hidden
in
Pelvic Pain Support Network
1 year ago
Recurrence in Peritoneum
Hi ladies! Just had an update on my 53 year old Mum. For context, she was diagnosed HGS stage 3c/4a in Jan 2022, had three rounds of chemo, optimal debulking surgery with full hysterectomy and removal of omentum, and then three more rounds of chemo. Declared NED in August 2022, and has been on Avastin
Hi ladies! Just had an update on my 53 year old Mum. For context, she was diagnosed HGS stage 3c/4a in Jan 2022, had three rounds of chemo, optimal debulking surgery with full hysterectomy and removal of omentum, and then three more rounds of chemo. Declared NED in August 2022, and has been on Avastin
georgialocksss
in
My Ovacome
1 year ago
Upset after consultation
Hi everyone. Sorry for long post but I think it helped me writing this out. I just had a consultation with rheumatologist which didn't go well. I had antibiotics back in Feb and came off the Baricitinib for a week and then was referred for colonoscopy/biopsies. I spoke to helpline and nurse said
Hi everyone. Sorry for long post but I think it helped me writing this out. I just had a consultation with rheumatologist which didn't go well. I had antibiotics back in Feb and came off the Baricitinib for a week and then was referred for colonoscopy/biopsies. I spoke to helpline and nurse said
Mozart150
in
NRAS
1 year ago
Advice please
Has anybody taken Dienogest (Zalkya) 2mg tablets for Endometriosis? I've recently been given these but a week of taking them I feel awful with low mood, tiredness and headaches. I've previously had Prostap but didn't like all the side effects. I'm waiting for a 3rd laparoscopy before they will do a
Has anybody taken Dienogest (Zalkya) 2mg tablets for Endometriosis? I've recently been given these but a week of taking them I feel awful with low mood, tiredness and headaches. I've previously had Prostap but didn't like all the side effects. I'm waiting for a 3rd laparoscopy before they will do a
Atlanta2005
in
Endometriosis UK
1 year ago
DIM\Tumeric
Just started T3 about 2 weeks ago (already feeling much better). My question is do I need to wait a specific time between these medications? Taking the DIM along with Estadiol/Testosterone/Progesterone/DHEA troches due to full hysterectomy in 2007. Thank you!
Just started T3 about 2 weeks ago (already feeling much better). My question is do I need to wait a specific time between these medications? Taking the DIM along with Estadiol/Testosterone/Progesterone/DHEA troches due to full hysterectomy in 2007. Thank you!
milkgoat
in
Thyroid UK
1 year ago
Zoladex experience
Hey all, I’m on the waiting list for a hysterectomy as I have adenomyosis, fibroids and polycystic ovaries. Not sure if I have endo too. I was put on the list in January and the wait was 5 months. I was put on Zoladex which was meant to stop my pain and heavy bleeding as I’m anaemic now too and
Hey all, I’m on the waiting list for a hysterectomy as I have adenomyosis, fibroids and polycystic ovaries. Not sure if I have endo too. I was put on the list in January and the wait was 5 months. I was put on Zoladex which was meant to stop my pain and heavy bleeding as I’m anaemic now too and
Mamamarmite18
in
Adenomyosis Advice Association
1 year ago
Hysterectomy after long term zoladex?
Hi there, I’ve been on zoladex for coming up 6 years now and it’s the best thing I’ve ever done for my endo. I have little to no symptoms but the one thing I can’t stand is being attached to my drs every 4 weeks. Can get tricky with work and holidays. I want to opt for a hysterectomy and just wondered
Hi there, I’ve been on zoladex for coming up 6 years now and it’s the best thing I’ve ever done for my endo. I have little to no symptoms but the one thing I can’t stand is being attached to my drs every 4 weeks. Can get tricky with work and holidays. I want to opt for a hysterectomy and just wondered
Keke123
in
Endometriosis UK
1 year ago
Constipation and fibroids
I've been a member here for a while with initially diagnosed slow transit constipation of which my gastro said I will have for life and will need to manage it with medication and diet, they refused to do any tests to see why I had the constipation. Back in 2020 I had a ct scan which showed a very backed
I've been a member here for a while with initially diagnosed slow transit constipation of which my gastro said I will have for life and will need to manage it with medication and diet, they refused to do any tests to see why I had the constipation. Back in 2020 I had a ct scan which showed a very backed
Orchid99
in
IBS Network
1 year ago
Hysterectomy in 20’s
Hi all, I wondering who has had any successful experiences in getting a hysterectomy in their 20s. I have had many ultrasounds previously but after going private my ultrasound with gynaecologist showed a lot of serious issues and he said there and then I have endo (which shocked me). I was due to
Hi all, I wondering who has had any successful experiences in getting a hysterectomy in their 20s. I have had many ultrasounds previously but after going private my ultrasound with gynaecologist showed a lot of serious issues and he said there and then I have endo (which shocked me). I was due to
Cats1311
in
Endometriosis UK
1 year ago
Small bowel prolapse after hysterectomy
I was recovering well until Wednesday night when my pain was so bad in my chest I was taken in an ambulance to hospital. They ran every scan possible but no one could find any cause for the pain and I was kept in overnight. At the moment still in pain and very scared going the drs on Tuesday but feel
I was recovering well until Wednesday night when my pain was so bad in my chest I was taken in an ambulance to hospital. They ran every scan possible but no one could find any cause for the pain and I was kept in overnight. At the moment still in pain and very scared going the drs on Tuesday but feel
Hidden
in
Endometriosis UK
1 year ago
blood test for cll
I was recently diagnosed with CLL and was told I have had it for 2 years. This, 6 months after I was told I had the precursor.....anyway, my oncologist has written orders for blood tests every 4 weeks though I only see him every 6 monhts. Is this normal? to have such frequent blood tests? I am in the
I was recently diagnosed with CLL and was told I have had it for 2 years. This, 6 months after I was told I had the precursor.....anyway, my oncologist has written orders for blood tests every 4 weeks though I only see him every 6 monhts. Is this normal? to have such frequent blood tests? I am in the
DianeSH
in
CLL Support
1 year ago
Help needed....
I'm so confused. I have to have incision site hernia surgery on a hysterectomy scar. My surgeon wants me to lose weight before I do. In Feb. I started Keto. I was scared straight about the hernia surgery. In one month I lost 18 lbs. THEN, my doctor scared me straight again. Although she was glad about
I'm so confused. I have to have incision site hernia surgery on a hysterectomy scar. My surgeon wants me to lose weight before I do. In Feb. I started Keto. I was scared straight about the hernia surgery. In one month I lost 18 lbs. THEN, my doctor scared me straight again. Although she was glad about
Ktltel
in
Weight Loss Support
1 year ago
Vault granulomatous Polyp
Hi everyone Thank you in advance for reading my post. As with most of us my journey has been very difficult. Following a Bilateral Salpingo Oophorectomy last March, which my then consultant (not a endometriosis specialist but I was still very naive about Endo) advised would “cure” my endometriosis
Hi everyone Thank you in advance for reading my post. As with most of us my journey has been very difficult. Following a Bilateral Salpingo Oophorectomy last March, which my then consultant (not a endometriosis specialist but I was still very naive about Endo) advised would “cure” my endometriosis
Sandygirl6697
in
Endometriosis UK
1 year ago
Mucinous Ovarian Tumour
Hi. I recently had a total hysterectomy following a scan showing an ovarian cyst. The report showed stage 1a mucinous ovarian tumour on my left ovary. I had subsequently had blood tests - CA125, CA19-9, liver, kidneys and full blood count, all of which were normal. I now have conflicting advice from
Hi. I recently had a total hysterectomy following a scan showing an ovarian cyst. The report showed stage 1a mucinous ovarian tumour on my left ovary. I had subsequently had blood tests - CA125, CA19-9, liver, kidneys and full blood count, all of which were normal. I now have conflicting advice from
Nanyuki
in
My Ovacome
1 year ago
HELP desperately needed….. 🤒
I haven’t posted in quite a few years. A little about me 51 yo self inject very 6-8 weeks, no Dx PA, Holo tc test 19*😳(this is the active test for anyone who might be new to all of this, the PA veterans Are a mine of information) Serum b12 -279 These tests were way back in 2013. 😱 I battled with
I haven’t posted in quite a few years. A little about me 51 yo self inject very 6-8 weeks, no Dx PA, Holo tc test 19*😳(this is the active test for anyone who might be new to all of this, the PA veterans Are a mine of information) Serum b12 -279 These tests were way back in 2013. 😱 I battled with
Joanne1971
in
Pernicious Anaemia Society
1 year ago
Going NHS/ Private consult after hysterectomy..advice needed
Hi all, In a nutshell...At age 36 I went in for surgey to remove a pesky fibroid that was bothering me for a some time. As there were complications during the surgery they had to go and remove my uterus to stop the bleeding, so it turned out into a hysterectomy. (tubes are also out, but still have
Hi all, In a nutshell...At age 36 I went in for surgey to remove a pesky fibroid that was bothering me for a some time. As there were complications during the surgery they had to go and remove my uterus to stop the bleeding, so it turned out into a hysterectomy. (tubes are also out, but still have
Nel0987
in
Endometriosis UK
1 year ago
6 weeks post excision surgery and still can’t walk far.
Hi, I’m 42 years old and I had a laparoscopy with four incisions 6 weeks ago. The surgeon said endo was severe and excised it from all of my reproductive organs and from my bladder, pelvic ligaments and an artery. They also removed endo cysts from both ovaries. Apparently everything was stuck together
Hi, I’m 42 years old and I had a laparoscopy with four incisions 6 weeks ago. The surgeon said endo was severe and excised it from all of my reproductive organs and from my bladder, pelvic ligaments and an artery. They also removed endo cysts from both ovaries. Apparently everything was stuck together
Frangipani8
in
Endometriosis UK
1 year ago
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