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Hypomyelination and congenital cataract
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A YAG capsulotomy
Has anyone any experience of this? Did it help if so? A YAG capsulotomy is a special laser treatment used to improve the vision after cataract surgery. It is a simple, commonly performed procedure which is very safe. During your cataract operation, the natural ens inside the eye that had become cloudy
Has anyone any experience of this? Did it help if so? A YAG capsulotomy is a special laser treatment used to improve the vision after cataract surgery. It is a simple, commonly performed procedure which is very safe. During your cataract operation, the natural ens inside the eye that had become cloudy
Safehaven23
in
Glaucoma UK
10 days ago
Possible new treatments for PMR and GCA?
Thanks for the info on your blog. I’ve just rejoined as CANUKUS. I’ve had GCA and PMR for about 11 years now. All I’m taking that’s directly related to those maladies is Pred , down to 2.5 mg- occasionally 5mg daily and Paracetamol 1/2 gram when I get an occasional flare. GCA seriously affected my
Thanks for the info on your blog. I’ve just rejoined as CANUKUS. I’ve had GCA and PMR for about 11 years now. All I’m taking that’s directly related to those maladies is Pred , down to 2.5 mg- occasionally 5mg daily and Paracetamol 1/2 gram when I get an occasional flare. GCA seriously affected my
Canuk
in
PMRGCAuk
11 days ago
New treatment plan GCA
Hi! I met with my rheumy yesterday and now seven months into my treatment for GCA. Initially I was told that I would be on Actemra for one year with Prednisone and then Methotrexate. Yesterday, I was informed that there will be no Methotrexate and from month ten, I move to fortnightly Actemra injections
Hi! I met with my rheumy yesterday and now seven months into my treatment for GCA. Initially I was told that I would be on Actemra for one year with Prednisone and then Methotrexate. Yesterday, I was informed that there will be no Methotrexate and from month ten, I move to fortnightly Actemra injections
Bessyg
in
PMRGCAuk
5 months ago
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Confused…?
Have had two successful Trabs. and now have been advised that Cataracts are present and are beginning to cause a problem, but have been advised that cataract surgery may have negative effect on Trabs? Any experience of this situation out there?👍
Have had two successful Trabs. and now have been advised that Cataracts are present and are beginning to cause a problem, but have been advised that cataract surgery may have negative effect on Trabs? Any experience of this situation out there?👍
Hypnotoad_68
in
Glaucoma UK
1 month ago
Methotrexate or Prednisone which is more damaging?(also update on eyes)
Hi, it's me again. During an eye exam, I was told my optic nerve was narrow, and that I needed to be seen asap due to the risk of blindness with GCA. I got in to see a neuro ophthalmologist who told me that my optic nerve isn't narrow, it's just turned on an angle. Probably from my connective disease
Hi, it's me again. During an eye exam, I was told my optic nerve was narrow, and that I needed to be seen asap due to the risk of blindness with GCA. I got in to see a neuro ophthalmologist who told me that my optic nerve isn't narrow, it's just turned on an angle. Probably from my connective disease
potterylady
in
PMRGCAuk
5 months ago
Rate of Decrease in RBC Count
Recent diagnosis of MPN, all three counts elevated. RBC count was 1.2 million, but lowered by phlebotomy to 922,000. I have started on Hydroxyurea. Are there any resources that provide information on the rate I could expect my RBC count to go down? 100K/month, 50K/month, etc. Thanks! hsdale3
Recent diagnosis of MPN, all three counts elevated. RBC count was 1.2 million, but lowered by phlebotomy to 922,000. I have started on Hydroxyurea. Are there any resources that provide information on the rate I could expect my RBC count to go down? 100K/month, 50K/month, etc. Thanks! hsdale3
hsdale3
in
MPN Voice
5 months ago
Optic nerve narrowing
Hi everyone, I've had PMR & GCA for 16 months. Currently on 15mg prednisone. Stopped Actemra 2 months ago. My eyesight in my left eye has been changing rapidly over the past several months. It's gotten really blurry. I've never needed glasses for distance, but now it's hard to drive at night or see
Hi everyone, I've had PMR & GCA for 16 months. Currently on 15mg prednisone. Stopped Actemra 2 months ago. My eyesight in my left eye has been changing rapidly over the past several months. It's gotten really blurry. I've never needed glasses for distance, but now it's hard to drive at night or see
potterylady
in
PMRGCAuk
5 months ago
cataract Surgery
I needed eye surgery to remove cataracts from both eyes, my first eye surgery was in April 2022, I then had to wait for clear vision in eye after surgery before the cataract in my second eye was removed. After both eyes regained clear vision, you need to have an eye test, and possibly get new spectacles
I needed eye surgery to remove cataracts from both eyes, my first eye surgery was in April 2022, I then had to wait for clear vision in eye after surgery before the cataract in my second eye was removed. After both eyes regained clear vision, you need to have an eye test, and possibly get new spectacles
Veteran250
in
Anxiety and Depression Support
2 months ago
In hospital again
Sorry, I'm just letting you all know so I can get it off my chest. So after being in start September my pred went up to 20mg daily and life was great. Slowly it deteriorated, I cut the pred slightly getting down to 13 but this wasn't good so back up to 15. I started abatacept. A few days before I felt
Sorry, I'm just letting you all know so I can get it off my chest. So after being in start September my pred went up to 20mg daily and life was great. Slowly it deteriorated, I cut the pred slightly getting down to 13 but this wasn't good so back up to 15. I started abatacept. A few days before I felt
wilbertjellyfish
in
NRAS
5 months ago
pharyngeal pouch surgery
I had a pharyngeal pouch repair on Wednesday, they put 3 staples in my throat to close it, has anyone else had this done, and how long was it to feel ok again ?
I had a pharyngeal pouch repair on Wednesday, they put 3 staples in my throat to close it, has anyone else had this done, and how long was it to feel ok again ?
jools34
in
NRAS
5 months ago
Cataract surgery?
Has anyone had any cataract surgery while taking Pegasys? Is there a problem with eye surgery while taking Interferon? I'm about to be changed over to Pegasys from Hydrea, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
Has anyone had any cataract surgery while taking Pegasys? Is there a problem with eye surgery while taking Interferon? I'm about to be changed over to Pegasys from Hydrea, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
dogsandhorses
in
MPN Voice
3 months ago
Vision in the recovery weeks ( and long term) after a trabeculectomy.
I have had narrow angle glaucoma for over 10 years and despite years of drops and a laser iridotomy in both eyes my glaucoma is slowly progressing. My sight loss in my left eye is not too bad at all ( patchy small areas) but I do feel my central vision is not as good in my left eye ( no cataract or other
I have had narrow angle glaucoma for over 10 years and despite years of drops and a laser iridotomy in both eyes my glaucoma is slowly progressing. My sight loss in my left eye is not too bad at all ( patchy small areas) but I do feel my central vision is not as good in my left eye ( no cataract or other
Cyclingalong
in
Glaucoma UK
3 months ago
Stopping Ibrutinib
I am 81 year old male living in London I have been on Ibrutinib for almost 6 years since 2018 after two sessions of chemo, stopped due to goldbadder removal. I started with 480 mg then after two years down to 280 and another two years down to 140 mg. I have been asked to join STATIC trial, or rahter
I am 81 year old male living in London I have been on Ibrutinib for almost 6 years since 2018 after two sessions of chemo, stopped due to goldbadder removal. I started with 480 mg then after two years down to 280 and another two years down to 140 mg. I have been asked to join STATIC trial, or rahter
jkl700
in
CLL Support
3 months ago
Cataract surgery for eye pressure.
Hello everyone,well after 9 months of waiting I am finally getting cataract surgery on 13 Feb to lower my eye pressure.l would like to know by how much it can lower pressure and will I still need drops afterwards,l have very narrow angles.
Hello everyone,well after 9 months of waiting I am finally getting cataract surgery on 13 Feb to lower my eye pressure.l would like to know by how much it can lower pressure and will I still need drops afterwards,l have very narrow angles.
Lizzyanne567
in
Glaucoma UK
3 months ago
abatacept
hello, I’m about to start abatacept (Orencia) and would like to know if anyone here uses abatacept in a prefilled pen. My gp seems to think it only comes as an infusion or as a prefilled syringe but I’m sure I have seen it referred to on fb as a pen. Could anyone confirm so that I can ask my rheumatologist
hello, I’m about to start abatacept (Orencia) and would like to know if anyone here uses abatacept in a prefilled pen. My gp seems to think it only comes as an infusion or as a prefilled syringe but I’m sure I have seen it referred to on fb as a pen. Could anyone confirm so that I can ask my rheumatologist
Emye343
in
NRAS
6 months ago
GCA symptoms
I have been suffering with PMR for going on 2 yrs. now. Developed GCA after cataract surgery within 4 days. Finally recognized by great Rheumatologist. I'm being treated with 8mls. liquid prednisolone twice a day. So far so good. Dr. recommended slow taper 1mls per week. Will start tomorrow.
I have been suffering with PMR for going on 2 yrs. now. Developed GCA after cataract surgery within 4 days. Finally recognized by great Rheumatologist. I'm being treated with 8mls. liquid prednisolone twice a day. So far so good. Dr. recommended slow taper 1mls per week. Will start tomorrow.
pomeranion
in
PMRGCAuk
6 months ago
cataracts b.c. of long-term steroids
Does anyone know what the symptoms of cataracts developing are, after long-term use of inhaled steroids and/or prednisolone? I've heard cataracts are common symptoms, and I wonder how one knows one is developing them. I've been on Trimbow 172.5 for 6 months and on 2 mg prednisone for 2.5 years; prior
Does anyone know what the symptoms of cataracts developing are, after long-term use of inhaled steroids and/or prednisolone? I've heard cataracts are common symptoms, and I wonder how one knows one is developing them. I've been on Trimbow 172.5 for 6 months and on 2 mg prednisone for 2.5 years; prior
runcyclexcski
in
Asthma Community Forum
6 months ago
Lab Tests Indicate High Lipase
Has anyone taking prednisone and Actemra had a high lipase on their routine lab tests. I’m on 4 mg prednisone and bi-weekly injections of Actemra for GCA. I get lab tests every month, and the past several months Lipase is high (usually around 60-70). I’ve done a CT scan with the dye, and was told
Has anyone taking prednisone and Actemra had a high lipase on their routine lab tests. I’m on 4 mg prednisone and bi-weekly injections of Actemra for GCA. I get lab tests every month, and the past several months Lipase is high (usually around 60-70). I’ve done a CT scan with the dye, and was told
Pamk1949
in
PMRGCAuk
7 months ago
EYE HEALTH: RELATIONSHIP OF PMR, PRED & MTX TO GLAUCOMA, CATARACTS, & DRY EYE
Hello everyone. Vacillated on a title for this post. I'll bet I covered it all. I've been on my hard PMR journey for 4+ years. Currently on 4mg Pred daily & 20mg MTX weekly. PMR pain is under control. My eyes have wept for the past 2 yrs; at times, non stop. Eyedrops are the common advice from my Optometrist
Hello everyone. Vacillated on a title for this post. I'll bet I covered it all. I've been on my hard PMR journey for 4+ years. Currently on 4mg Pred daily & 20mg MTX weekly. PMR pain is under control. My eyes have wept for the past 2 yrs; at times, non stop. Eyedrops are the common advice from my Optometrist
DrRon
in
PMRGCAuk
5 months ago
Anyone opted for private Cataract surgery?
Hi, I have seronegative RA and am on Benepali. Have just had a routine eye test and been told I need cataract surgery. I thought I needed new glasses but it turns out it's cataracts! Anyway my optician has referred me on the NHS via my GP but I'm wondering about going private as I have no idea how long
Hi, I have seronegative RA and am on Benepali. Have just had a routine eye test and been told I need cataract surgery. I thought I needed new glasses but it turns out it's cataracts! Anyway my optician has referred me on the NHS via my GP but I'm wondering about going private as I have no idea how long
Chann
in
NRAS
5 months ago
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