Anoxic/hypoxic brain injury : Hi all, Posting for... - ICUsteps

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Anoxic/hypoxic brain injury

Bexsieh profile image
7 Replies

Hi all,

Posting for my partner, her mother went to hospital for cataract surgery (otherwise pretty healthy) she was getting it done under general anesthetic as she has anxiety. She had a 'difficult intubation' in which the tube caused a bleed which sent her into cardiac arrest, it took 10 mins to restart her heart. They don't know how long she was without oxygen (they bagged her immediately) but between the blood going into her lungs and getting the intubation in successfully they can't tell us.

She's been in an induced coma - will be a week tomorrow. She keeps having seizures when they try to reduce the sedation levels so haven't been able to do an EEG. Her pupils are reactive and she has coughed (without stimulation), she had a CT taken on day 4 which is showing as normal. The doctors won't say any of this is a positive sign. She goes for an MRI tomorrow.

They think she has severe brain damage due to the hypoxic/anoxic brain injury. It's been an emotional rollercoaster. I'm not sure what I'm looking for...I guess any advice on how to best support my partner or any examples of others with similar injuries and what their journey was like e.g. survival. Or anything at all that you think would be useful.

Thanks in advance ,

Bex

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Bexsieh
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Rhyl1 profile image
Rhyl1PartnerModeratorICUsteps

I’m so sorry to hear about your partner’s mother. I’m slightly confused that she hasn’t had an EEG as this sorts out what type of seizures she is having. Generally seizures after a cardiac arrest are not a good sign. But there are always exceptions to this. All you can do is support your partner in this and try to take as much pressure off their shoulders as you can. You are all in my thoughts.

Bexsieh profile image
Bexsieh in reply to Rhyl1

Thanks Rhyl, this is really helpful I should have said they tried to do an EEG but said she just went into seizure as soon as they reduced the sedation. They said all it showed was that she was seizuring- I got the impression they stopped quite quickly but I'll ask and see if they can tell what type. She's off for an MRI today, being transported to another hospital who has capability to do this for someone on a ventilator. X

Mammajojo profile image
Mammajojo

HiI'm so sorry that you and your partner are going through this. I ve recently been through a similar situation with my husband being on a ventilator and the hospital being unable to wake him as he became unmanageable once the sedation was lowered which resulted in him needing a tracheostomy with thankfully worked. I'm sorry I can offer any great advice only to say just being there for your partner, listening and hugging them when needed will mean so much more than you realise. I'm sending you both all my love at this difficult time x

Bexsieh profile image
Bexsieh in reply to Mammajojo

Thanks mamajojo! So glad the tracheostomy has worked and I hope he has continued to make good progress in his recovery. Do you mind me asking how your husband was unmanageable? Was it seizures or the disorientation of waking up?In addition to seizures my MIL has now got suspected myoclonic jerks. She's on another drug which so far has got these under control and they may try to do an EEG today again. MRI delayed until tomorrow.

Thanks for your kind words, it does mean a lot. Xx

Mammajojo profile image
Mammajojo in reply to Bexsieh

It was mainly the disorientation but also his body kept going into shock so his temperature would go dangerously high, his heart rate was also dangerously high as was his blood pressure and he repeatedly attempted to rip the ventilator out of his mouth (once he actually manages to fully rip it out and they had to immediately re ventilate). The doctors were worried he may if had some form of brain damage and kept saying the wanted to do an mri but kept putting it off/delaying it even when we pleaded with them to do one... there was alot of family - doctor arguments to be honest as they seemed to always put off doing certain tests/scans that they mentioned were needed. He's been back home for 7 days now but the hospital have given us no aftercare at all even with him having a tracheostomy wound in his neck that i am having to clean and dress myself.

It's all been abit of a nightmare.

We had to fight for alot of things to be done which put alot more unneeded stress into the situation.

It's alot for family's to try and cope with seeing a loved one in such a vulnerable state isn't it.

I really feel for you right now honestly.

Hopefully you will get more answers from the mri and then the next stage plan can get put into action.

Good luck hunni and as always I'm sending love x

Bexsieh profile image
Bexsieh in reply to Mammajojo

That sounds awful, so sorry you had to go through that! Feeling unsupported is the last thing you need when this is such a traumatic event without having to push and fight!

I hope your husband continues to recover and you get some support.

Thanks again for taking the time to help. Xx

Bexsieh profile image
Bexsieh

Just an update...her MRI has came back as normal. So that's a normal CT, blood test (markers for brain damage) and now MRI. The doctors are surprised and stumped! She still goes into seizure/myoclonic jerks when the sedation is decreased, so still no further forward in waking her up! Anyone had any experience of this? X

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