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Fragile X Syndrome. In shock
And to top it all.......my twin sister has now also been tested as infertile and the consultants are concerned that there may be a genetic problem called Fragile X Syndrome. We are being genetically screened and if we are carriers it’s just game over for us. I really could just cry.
And to top it all.......my twin sister has now also been tested as infertile and the consultants are concerned that there may be a genetic problem called Fragile X Syndrome. We are being genetically screened and if we are carriers it’s just game over for us. I really could just cry.
BarneyandPatsy
in
Fertility Network UK
4 years ago
Anyone not following LCHF
Is it just me? It is clear that not everyone on this site is following the same diet; there are maintainers and there are dieters following different guidelines to maintain or lose weight. Yet, I am left with the feeling that if I do not support and adhere to a LCHF diet, then I am …. I am not quite
Is it just me? It is clear that not everyone on this site is following the same diet; there are maintainers and there are dieters following different guidelines to maintain or lose weight. Yet, I am left with the feeling that if I do not support and adhere to a LCHF diet, then I am …. I am not quite
Itsmesally
2020 August
in
Weight Loss Support
4 years ago
Rucaparib, info and experiences please
I've had 4 doses of carboplatin - this knocked down my CA125 from 1190 to 90 after the third, don't know if its gone down again since my last infusion 10 days ago yet. The cancer was active in lymph nodes in the mesentery, pelvis and peritoneum; I had a CT scan after the third infusion which showed
I've had 4 doses of carboplatin - this knocked down my CA125 from 1190 to 90 after the third, don't know if its gone down again since my last infusion 10 days ago yet. The cancer was active in lymph nodes in the mesentery, pelvis and peritoneum; I had a CT scan after the third infusion which showed
bamboo89
in
My Ovacome
4 years ago
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Testing and Pregnenolone
Hi All Some 9 months ago I did the 4 stage saliva cortisol test and started taking pregnenolone after a problem was found. If I now check up on how the pregnenolone is doing do I have to stop taking it before doing the saliva test and if so for how long? Should I also be testing progesterone/ oestrogen
Hi All Some 9 months ago I did the 4 stage saliva cortisol test and started taking pregnenolone after a problem was found. If I now check up on how the pregnenolone is doing do I have to stop taking it before doing the saliva test and if so for how long? Should I also be testing progesterone/ oestrogen
AKatieD
in
Thyroid UK
4 years ago
I'm a newbie. Diagnosed very recently and would love to hear from anyone with Myopic Macular Degeneration.
This is my first message. I just want to say 'hi' and introduce myself. I'm a newbie - had my first injection today - and was diagnosed with MMD last month after experiencing wavy lines in May this year. I have been told that there is a lacquer crack in my left eye. I'm grateful for this blog
This is my first message. I just want to say 'hi' and introduce myself. I'm a newbie - had my first injection today - and was diagnosed with MMD last month after experiencing wavy lines in May this year. I have been told that there is a lacquer crack in my left eye. I'm grateful for this blog
Bluegreensea
in
Macular Society
4 years ago
Hi
Hello hope everyone is as well as they can be Just wondering.... I have to have a surgery procedure next week and the specialist wants me to stop taking Plaquenil and the Methotrexate for 7 days before the procedure. Anyone else have to do anything like this? 🙂
Hello hope everyone is as well as they can be Just wondering.... I have to have a surgery procedure next week and the specialist wants me to stop taking Plaquenil and the Methotrexate for 7 days before the procedure. Anyone else have to do anything like this? 🙂
Hidden
in
NRAS
4 years ago
Occupational health
A word of warning. This is false information but it's what I was told. I'm sharing this incase anyone has a covid risk assessment for work. I'm sure there are many software packages out there, which may give more accurate wording. I had a phone assessment. No big deal, my line manager had already supported
A word of warning. This is false information but it's what I was told. I'm sharing this incase anyone has a covid risk assessment for work. I'm sure there are many software packages out there, which may give more accurate wording. I had a phone assessment. No big deal, my line manager had already supported
EleanorPV
in
MPN Voice
4 years ago
vision drops after injection
Does anyone know why vision drops after injection? Both my eyes got injected yesterday. Left eye vision is okay but right eye vision drops significantly. Should I contact the doctor? To be precise, I am sure my vision is dropped, not blurred. Btw, what I have is myopia related wet macular degeneration
Does anyone know why vision drops after injection? Both my eyes got injected yesterday. Left eye vision is okay but right eye vision drops significantly. Should I contact the doctor? To be precise, I am sure my vision is dropped, not blurred. Btw, what I have is myopia related wet macular degeneration
myopic-related-md
in
Macular Society
4 years ago
Bowel blockage
Hello ladies, I'm so scared right now, my mum is having a reoccurance after 6 years in remission, she has been quite unwell since March, this last month her ca125 shot up to 600, she has been hardly able to eat, she has constant bowel problems which have finally reached to her being admitted to hospital
Hello ladies, I'm so scared right now, my mum is having a reoccurance after 6 years in remission, she has been quite unwell since March, this last month her ca125 shot up to 600, she has been hardly able to eat, she has constant bowel problems which have finally reached to her being admitted to hospital
Holdingontohope
in
My Ovacome
4 years ago
Intro
Hey everyone my name is Lee, I run a lupus awareness page on Instagram and Facebook under Lupus1on1. I also host a monthly support group (currently via Zoom) to support other warriors. I was diagnosed with SLE in 2015 and Sjogren's syndrome in 2016. Please feel free to check out my pages and message
Hey everyone my name is Lee, I run a lupus awareness page on Instagram and Facebook under Lupus1on1. I also host a monthly support group (currently via Zoom) to support other warriors. I was diagnosed with SLE in 2015 and Sjogren's syndrome in 2016. Please feel free to check out my pages and message
Lupus1on1
in
LUPUS UK
4 years ago
Had surgery on June 22nd and I have stage 4 OC that doc described as aggressive
I asked doc if this a situation for palliative care and she responded that she wants to cure me. She said the OC has not invaded my bladder, but it was growing on the outside and she scraped the cancer cells off. She also examined the length of my colon and scraped off the cancer cells on the outside
I asked doc if this a situation for palliative care and she responded that she wants to cure me. She said the OC has not invaded my bladder, but it was growing on the outside and she scraped the cancer cells off. She also examined the length of my colon and scraped off the cancer cells on the outside
Sashay2020
in
My Ovacome
4 years ago
W6R3... then injury!
Got within 60 seconds of completing the full 25 minutes, (boring, rather than exhausting) and I pulled a muscle in my calf!! Think I was trying to run faster downhill at the end; a) Jo Whiley told me to sprint if I can b) I’d run up 2 steep hills and wanted to make time up on my PB. Then the muscle
Got within 60 seconds of completing the full 25 minutes, (boring, rather than exhausting) and I pulled a muscle in my calf!! Think I was trying to run faster downhill at the end; a) Jo Whiley told me to sprint if I can b) I’d run up 2 steep hills and wanted to make time up on my PB. Then the muscle
Mitchm77
in
Couch to 5K
4 years ago
Intralipid infusion
Hi hi Those of you have gone through intralipid infusion in FET. How many infusion did you go through? When was your first one (before FET or same day) and did you take prednisolone with it? Hope you have a nice day.
Hi hi Those of you have gone through intralipid infusion in FET. How many infusion did you go through? When was your first one (before FET or same day) and did you take prednisolone with it? Hope you have a nice day.
JanuaRuna
in
Fertility Network UK
4 years ago
Has anyone switched injection medicine? My first post to you all.
I have a bleeding retina and have been getting Eylea injections for one year, 2 rounds of laser surgery and my vision keeps deteriorated. I feel sick for 1 to 2 days after each injection. I have asked to switch to Lucentis which is not as strong. Has anyone had any luck in switching medicine?
I have a bleeding retina and have been getting Eylea injections for one year, 2 rounds of laser surgery and my vision keeps deteriorated. I feel sick for 1 to 2 days after each injection. I have asked to switch to Lucentis which is not as strong. Has anyone had any luck in switching medicine?
Thisisapain
in
Macular Society
4 years ago
End of life
Hey guys it seems as my posts here will be short and sweet as my patient has been seen by his palliative care dr and been prescribed end of life medication. It fills me with sadness to know that there is nothing else left to do, I am so glad I have met my new friend and that for the past 7 months we
Hey guys it seems as my posts here will be short and sweet as my patient has been seen by his palliative care dr and been prescribed end of life medication. It fills me with sadness to know that there is nothing else left to do, I am so glad I have met my new friend and that for the past 7 months we
RhiMallorca
in
Multiple System Atrophy Trust
4 years ago
Pulmonary Fibrosis, irreversible and terminal,
I was diagnosed 12 March 2020, when lung function hadn't improved after recent bacterial infection. My lungs were already, very scarred, so this infection was the tipping point. Question is, as it is a unpleasant way to die, and already discussed with my GP, palliative care, it will get more painful
I was diagnosed 12 March 2020, when lung function hadn't improved after recent bacterial infection. My lungs were already, very scarred, so this infection was the tipping point. Question is, as it is a unpleasant way to die, and already discussed with my GP, palliative care, it will get more painful
I8tories
in
Lung Conditions Community Forum
4 years ago
Why liver patients have such a hard time
I wanted to write this last night but I fell asleep. Nothing unusual there then!!!! In the last 2-3 years I have ‘visited’ one Consultant or another about some of my symptoms. The most valuable lesson I have learned, from so doing, is that the Liver Medical fraternity themselves are unable to fully
I wanted to write this last night but I fell asleep. Nothing unusual there then!!!! In the last 2-3 years I have ‘visited’ one Consultant or another about some of my symptoms. The most valuable lesson I have learned, from so doing, is that the Liver Medical fraternity themselves are unable to fully
Splodge60
in
Living with Fatty Liver and NASH
4 years ago
Dry tongue back pain
Just me again. 😩 I keep waking up with dry mouth in the middle of the night. My tongue is red irritated and slightly swollen. I’m worried this is a sign of something terrible and I can’t get back to sleep. Also my mid to lower back is hurting so much. I feel like I’m an old woman at age 37!
Just me again. 😩 I keep waking up with dry mouth in the middle of the night. My tongue is red irritated and slightly swollen. I’m worried this is a sign of something terrible and I can’t get back to sleep. Also my mid to lower back is hurting so much. I feel like I’m an old woman at age 37!
JBCADR
in
Pernicious Anaemia Society
4 years ago
Shorty864 - Anne has lost her last battles
Dear ladies, I am so sorry to have to let you know that Anne, my Ovacome friend from Cornwall, has passed away this Sunday, 21 of June, at her lovely home. After waging many battles, including coming on the train to London with her husband last year for a second opinion from the Royal Marsden, as well
Dear ladies, I am so sorry to have to let you know that Anne, my Ovacome friend from Cornwall, has passed away this Sunday, 21 of June, at her lovely home. After waging many battles, including coming on the train to London with her husband last year for a second opinion from the Royal Marsden, as well
Lindaura
in
My Ovacome
4 years ago
What medication do I stop before blood tests?
Having blood tests for thyroid function. I know not to take my levothyroxine before the test, but do I also need to stop vitamin b2? I take 400mg B2 and 80mg Propanalol to help prevent migraines, not sure if they will interfere with results? Thanks
Having blood tests for thyroid function. I know not to take my levothyroxine before the test, but do I also need to stop vitamin b2? I take 400mg B2 and 80mg Propanalol to help prevent migraines, not sure if they will interfere with results? Thanks
Mum23girls
in
Thyroid UK
4 years ago
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