Hey guys it seems as my posts here will be short and sweet as my patient has been seen by his palliative care dr and been prescribed end of life medication.
It fills me with sadness to know that there is nothing else left to do, I am so glad I have met my new friend and that for the past 7 months we have grown a strong bond of giggles and laughter, we were together all day nearly everyday.
I am relieved because he will no longer be in distress as he’s very advanced in this horrible rare illness.
My heart goes out to everyone that has experienced this, especially when they’re your family.
Written by
RhiMallorca
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Hi, I am so sorry to read this but it was heartening to know that you have cared for the person so well.
It is a horrible condition which I have witnessed with my lovely dad. Like you say there is some relief in knowing that he will not be suffering anymore. I just hope and pray that a cure can be found one day.
Sorry to hear this, it is a very cruel disease and it is heartbreaking to watch someone go through the struggle of living with this every day. My mum passed away in January, she had been prescribed end of life meds to keep inthe house a few months before she passed but actually never needed them she went suddenly in her sleep. I am devasted and miss her every day but take some comfort in the fact she is no longer suffering. Sounds like you are doing a great job and I'm sure you are making a horrible situation a little easier for the person you care for. Stay strong and keep up the great work you are doing x
what lovely words. It's such a horrid disease but he's been very lucky to have someone who so obviously cares so much and was also prepared to gain knowledge about the condition to help him.
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end of a marathon
Never ending problems! 
Diagnosed later in life
Always look on the bright side of life : de dumm de dumdy de dum de dum
