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I don’t have fibromyalgia ( I am so sorry you do) but yes my blood pressure medicine Clonidine makes me shake (my insides shake) .it’s awful
check the side effects of your medicine ( all of them) perhaps your doctor can switch you to something else with less side effects 🙏I’ll pray for you. I can relate
check the side effects of your medicine ( all of them) perhaps your doctor can switch you to something else with less side effects 🙏I’ll pray for you. I can relate
Skylane2
in
Fibromyalgia Action UK
2 months ago
IBS and B12
good evening, I hope everyone is doing well I am wondering about the link between B12 deficiency and IBS. I have been getting bi weekly injections for almost 2.5 years now. Doing fairly well and the vast majority of my symptoms and nerve issues have subsided. I have no tested positive for PA but
good evening, I hope everyone is doing well I am wondering about the link between B12 deficiency and IBS. I have been getting bi weekly injections for almost 2.5 years now. Doing fairly well and the vast majority of my symptoms and nerve issues have subsided. I have no tested positive for PA but
Ctadds1
in
Pernicious Anaemia Society
6 months ago
well here IAM…
back at it with anxiety and sudden Panic attack symptoms! I was at a restaurant with my family I was eating and suddenly this [i]
IMPENDING DOOM
[/i]feeling came over me! I thought I was gonna blackout! It scared me so bad I ended up with racing heart I felt it in my neck! And Hot Flash in my back
back at it with anxiety and sudden Panic attack symptoms! I was at a restaurant with my family I was eating and suddenly this [i]
IMPENDING DOOM
[/i]feeling came over me! I thought I was gonna blackout! It scared me so bad I ended up with racing heart I felt it in my neck! And Hot Flash in my back
Mindfulnessxo
in
Anxiety and Depression Support
2 months ago
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Metastasized to Bones
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
hopefull99
in
Advanced Prostate Cancer
8 months ago
Prostate cancer in liver
Have recently had a PSMA scan. This did show some hot spots for sure. But also, three smaller spots on my liver that did not give off PSMA. Did a liver Biopsy. which is rather painful I might add. Will meet with my 0ncologist on Monday to look at options. Any suggestion for the three rather small spots
Have recently had a PSMA scan. This did show some hot spots for sure. But also, three smaller spots on my liver that did not give off PSMA. Did a liver Biopsy. which is rather painful I might add. Will meet with my 0ncologist on Monday to look at options. Any suggestion for the three rather small spots
Parscore
in
Advanced Prostate Cancer
8 months ago
Thank you all
I wanted to get on here and thank everyone for there input on my questions about PIQRAY. After all my do diligence on PIQRAY my oncologist threw me a curve ball and decided to go with Verzenio faslodex and xgeva. Because i had higher % of Ers1 mutations then Pik3ca mutations. So this past thursday i
I wanted to get on here and thank everyone for there input on my questions about PIQRAY. After all my do diligence on PIQRAY my oncologist threw me a curve ball and decided to go with Verzenio faslodex and xgeva. Because i had higher % of Ers1 mutations then Pik3ca mutations. So this past thursday i
Justme153
in
SHARE Metastatic Breast Cancer
8 months ago
Pred - mix on tablets?
I'm just looking forward to starting next reduction which will be 5 > 4.5. Order placed at Pharmacy a week ago - some some tabs at 1mg and 2.5 mg. A friend has been to collect as I have the wretched Covid. She has reported that they have given her 1mg in plain tabs (as usual) but 2.5 tabs are COATED
I'm just looking forward to starting next reduction which will be 5 > 4.5. Order placed at Pharmacy a week ago - some some tabs at 1mg and 2.5 mg. A friend has been to collect as I have the wretched Covid. She has reported that they have given her 1mg in plain tabs (as usual) but 2.5 tabs are COATED
Hopingsail
in
PMRGCAuk
1 year ago
Royal Free visit
Hi all, I just thought I would give a quick update. I attended the Royal Free Hospital last Thursday ,I was seen in the Scleroderma clinic by a member of the team. She asked questions and examined me, she then went and got a senior colleague,(not Prof Denton) unfortunately can’t remember their names
Hi all, I just thought I would give a quick update. I attended the Royal Free Hospital last Thursday ,I was seen in the Scleroderma clinic by a member of the team. She asked questions and examined me, she then went and got a senior colleague,(not Prof Denton) unfortunately can’t remember their names
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
5 months ago
Panic Attacks and Obsessive thoughts
hello everyone! So glad to be joining this group. I had health with panic disorder, anxiety, and Tourette’s for some time now, but have noticed a big turn in how I can manage. Last year I began planning a trip to Australia so my partner and I could go and meet his family. That trip ended a month ago
hello everyone! So glad to be joining this group. I had health with panic disorder, anxiety, and Tourette’s for some time now, but have noticed a big turn in how I can manage. Last year I began planning a trip to Australia so my partner and I could go and meet his family. That trip ended a month ago
Yummypancake
in
Anxiety and Depression Support
2 months ago
nhs stopping b12 injections
I have heard that nhs are stopping b12 injections due to the work load on surgeries.the nurse said that people will have blood tests and those who are above the level will then go onto oral medication.my concern is if they give you a blood test just after your b12 injection then levels will be high and
I have heard that nhs are stopping b12 injections due to the work load on surgeries.the nurse said that people will have blood tests and those who are above the level will then go onto oral medication.my concern is if they give you a blood test just after your b12 injection then levels will be high and
Triggert5656
in
Pernicious Anaemia Society
6 months ago
ET and colon cancer!
Hi Some days ago this video popped in my youtube about link between ET and colon or lung cancer. It said something like around 16% of ET patiens could develop lung or colon cancer. Anyone got some info or insight about this thing. I am diagnosed for 1 year wit JAK2 ET. Platelets are steady in the range
Hi Some days ago this video popped in my youtube about link between ET and colon or lung cancer. It said something like around 16% of ET patiens could develop lung or colon cancer. Anyone got some info or insight about this thing. I am diagnosed for 1 year wit JAK2 ET. Platelets are steady in the range
Myers75
in
MPN Voice
6 months ago
Blood in Stool
I have found some blood in stool. I had a postive Qfit Test but just postive at 14. My GP said he was not overly concerned. I have an external hemorrid. I was referred and saw a Gastronelogist today he did a rectal exam and said there was not concerning. I did tell him that I was concerned of
I have found some blood in stool. I had a postive Qfit Test but just postive at 14. My GP said he was not overly concerned. I have an external hemorrid. I was referred and saw a Gastronelogist today he did a rectal exam and said there was not concerning. I did tell him that I was concerned of
Shanlissanna
in
Colon Cancer Connected
8 months ago
Pelvic pain and bloating,
Female aged 78,have suffered for a year with pain bloating and soreness in lower abdomen,have had all the tests,CT scan, gastrostoscopy ,colonoscopy nothing found,also gluten free diet,but pain still occurring the pain seems to come at random the only thing that helps is Amitriptyline,don't know what
Female aged 78,have suffered for a year with pain bloating and soreness in lower abdomen,have had all the tests,CT scan, gastrostoscopy ,colonoscopy nothing found,also gluten free diet,but pain still occurring the pain seems to come at random the only thing that helps is Amitriptyline,don't know what
Lawnmow
in
Pelvic Pain Support Network
6 months ago
Colonoscopy report
Hi folks, I had my colonoscopy this morning, no sedation, didn't even need gas and air. Hopefully this will reassure those of you waiting for one. The prep wasn't as bad as last time. Maybe they've improved things since then. I didn't mind the taste of the Moviprep, though it was too sweet and because
Hi folks, I had my colonoscopy this morning, no sedation, didn't even need gas and air. Hopefully this will reassure those of you waiting for one. The prep wasn't as bad as last time. Maybe they've improved things since then. I didn't mind the taste of the Moviprep, though it was too sweet and because
Broseley
in
PMRGCAuk
6 months ago
Buprenorphine, Nausea & Zofran (Ondansetron)
I successfully take 0.4 mg day buprenorphine to treat RLS but the nausea side effect is very troublesome and there does not seem to be a satisfactory plan to get the better of it. I have unsuccessfully tried many anti nausea drugs and methods including Symprove probiotic and seem to be left with only
I successfully take 0.4 mg day buprenorphine to treat RLS but the nausea side effect is very troublesome and there does not seem to be a satisfactory plan to get the better of it. I have unsuccessfully tried many anti nausea drugs and methods including Symprove probiotic and seem to be left with only
davchar23
in
Restless Legs Syndrome
2 months ago
colonoscopy and ct scan
recently had colonoscopy and then 3 weeks later Ct scan on colon. Both of these procedures I had to take bowel prep. So with in 3 weeks 2 lots of bowel prep. Now, nearly 3 weeks on I keep getting stomach pains and feeling nauseous. Anyone else had this?
recently had colonoscopy and then 3 weeks later Ct scan on colon. Both of these procedures I had to take bowel prep. So with in 3 weeks 2 lots of bowel prep. Now, nearly 3 weeks on I keep getting stomach pains and feeling nauseous. Anyone else had this?
jsee
in
IBS Network
7 months ago
Xeloda
This may be long! Moms journey with mbc started in 2020 . At the time lung Mets . She started ibrance and femara which worked great untill it didn’t this summer 2023. The cancer had spread to bones and 2 small liver and lesion and tiny brain lesion . Which was been taken care of with radiation and
This may be long! Moms journey with mbc started in 2020 . At the time lung Mets . She started ibrance and femara which worked great untill it didn’t this summer 2023. The cancer had spread to bones and 2 small liver and lesion and tiny brain lesion . Which was been taken care of with radiation and
Flower1513
in
SHARE Metastatic Breast Cancer
8 months ago
Provenge Underway
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Pmann
in
Advanced Prostate Cancer
8 months ago
STAGE 1C1 Grade 2
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Hello all Hope everyone is doing ok. I am new here. I found out end of August that I had a 17cm cyst on my left ovary. The MRI did not determine if the cyst was malignant or benign. My gynae-oncologist arranged for emergency surgery on the 6th September but during surgery it burst. I had my left
Kscott10
in
My Ovacome
8 months ago
new members
I know all too well how overwhelming this diagnosis can be to anyone. All of the emotions that can follow are hard to deal with for sure. If any new member doesn't feel comfortable posting anything here initially, please feel free to send me a message via 'chat'. We have all been exactly where you
I know all too well how overwhelming this diagnosis can be to anyone. All of the emotions that can follow are hard to deal with for sure. If any new member doesn't feel comfortable posting anything here initially, please feel free to send me a message via 'chat'. We have all been exactly where you
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
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