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Abraxane
Hi ladies, I’m absolutely over the moon to hear that my oncologist has been able to get the Abraxane chemotherapy funding for me! I am due to start in January, I wonder if any of you ladies have had this chemotherapy in the past and if so what side effects you had, how you found it in general, did
Hi ladies, I’m absolutely over the moon to hear that my oncologist has been able to get the Abraxane chemotherapy funding for me! I am due to start in January, I wonder if any of you ladies have had this chemotherapy in the past and if so what side effects you had, how you found it in general, did
Willowsmum51
in
My Ovacome
6 months ago
Xtandi (enzalutimide) SEs Part 2
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
MoonRocket
in
Advanced Prostate Cancer
4 months ago
Update 7.7.5 = Benign
Thanks to all who responded to my last post. The news on the growth removed from my face was good news. It was benign, a Seborrheic Keratosis that suddenly had become inflamed. Due to the coloration, it looked a possible malignant growth, which is why I had it checked out. I would encourage everyone
Thanks to all who responded to my last post. The news on the growth removed from my face was good news. It was benign, a Seborrheic Keratosis that suddenly had become inflamed. Due to the coloration, it looked a possible malignant growth, which is why I had it checked out. I would encourage everyone
hunter5582
in
MPN Voice
6 months ago
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Two recent FDA Approvals
Hi everyone, I just wanted to share about two recent approvals. Sorry for my delaying in posting this. On October 11th the FDA made an approval for those with stage IV NSCLC with a BRAF V600E mutation. Here is a link to read more: https://go2.org/blog/fda-approves-combination-braftovi-and-mektovi-for-metastatic-non-small-cell-lung-cancer-for-individuals-with-a-braf-v600e-mutation
Hi everyone, I just wanted to share about two recent approvals. Sorry for my delaying in posting this. On October 11th the FDA made an approval for those with stage IV NSCLC with a BRAF V600E mutation. Here is a link to read more: https://go2.org/blog/fda-approves-combination-braftovi-and-mektovi-for-metastatic-non-small-cell-lung-cancer-for-individuals-with-a-braf-v600e-mutation
Miranda_GO2
Partner
in
Lung Cancer Support
7 months ago
cancer marker 15-3
My moms marker went up from 163 to 332 . She started her second line treatment about 7 weeks ago after being on Ibrance and Femara for around 2 and half years. She is now on faslodex and anfintor. Does this mean its not working ? And if it’s not will they change both meds or just one of them? Thank
My moms marker went up from 163 to 332 . She started her second line treatment about 7 weeks ago after being on Ibrance and Femara for around 2 and half years. She is now on faslodex and anfintor. Does this mean its not working ? And if it’s not will they change both meds or just one of them? Thank
Flower1513
in
SHARE Metastatic Breast Cancer
7 months ago
Octasa / Mesalazine - Should I be seeing more of a change?
Hello. I have struggled with symptoms for 2 years - loose, frequent bowels, always with urgency, fatigue, etc. Had colonoscopy and relevant tests and doctor says that I likely have crohns and is treating me as such. I had steroids for 3 months which generally helped (though my calprotectin was higher
Hello. I have struggled with symptoms for 2 years - loose, frequent bowels, always with urgency, fatigue, etc. Had colonoscopy and relevant tests and doctor says that I likely have crohns and is treating me as such. I had steroids for 3 months which generally helped (though my calprotectin was higher
VV_1990
in
Crohn's and Colitis Support
5 months ago
I don't fall into any category not IBS-D or IBS-C...is it still IBS?
I can't say I have diarrhea or constipation....but my gut does react to stress.It changes my stool shape, thickness, at times color but I don't necessarily have diarrhea or constipation. Maybe once a month I'll have diarrhea Anyone have this? Could I still have IBS? thank you
I can't say I have diarrhea or constipation....but my gut does react to stress.It changes my stool shape, thickness, at times color but I don't necessarily have diarrhea or constipation. Maybe once a month I'll have diarrhea Anyone have this? Could I still have IBS? thank you
Catsandsunsets
in
IBS Network
5 months ago
What are "normal" bowel movements?
With IBS have you noticed your stool never looks the same? Has anyone seen a change in how their stools look? Do they seem erratic, every day they look different? Sometimes it's thinner, sometimes it's not as long, sometimes it's short, sometimes it's weird shaped like a J...etc. Have you had a
With IBS have you noticed your stool never looks the same? Has anyone seen a change in how their stools look? Do they seem erratic, every day they look different? Sometimes it's thinner, sometimes it's not as long, sometimes it's short, sometimes it's weird shaped like a J...etc. Have you had a
Catsandsunsets
in
IBS Network
5 months ago
Pred and stomach upsets
I’m just wondering if being on Pred makes my stomach more easily upset? I’ve been on it for 2 years now, but have always taken it with Omeprazole. I’ve noticed that I’ve had frequent bouts of vomiting over the last 2 years, whereas previously I hadn’t been sick for years and it was very rare. As a primary
I’m just wondering if being on Pred makes my stomach more easily upset? I’ve been on it for 2 years now, but have always taken it with Omeprazole. I’ve noticed that I’ve had frequent bouts of vomiting over the last 2 years, whereas previously I hadn’t been sick for years and it was very rare. As a primary
Apple6
in
PMRGCAuk
5 months ago
Not where I expected to be
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hoehn
in
SHARE Metastatic Breast Cancer
7 months ago
Update - friend with bronchogenic adenocarcinoma
Hello all, Thanks again for your replies to my original post as a newbie for a friend. She saw her rad/onc today and the PET results are encouraging! No cancer showed up outside the lungs. He recommends she see a thoracic surgeon for her 5 cm mass (golf-tennis ball size) to see if she is a candidate
Hello all, Thanks again for your replies to my original post as a newbie for a friend. She saw her rad/onc today and the PET results are encouraging! No cancer showed up outside the lungs. He recommends she see a thoracic surgeon for her 5 cm mass (golf-tennis ball size) to see if she is a candidate
marcyh
in
Lung Cancer Support
7 months ago
Goldpharma not letting me buy B12
Hi Everyone. I have had problems with B12 deficiency and have regularly self-injected for years. I always get my B12 from Goldpharma and it has never been a problem. However today I have tried to buy B12 and when I try to go to the next screen to pay for it, after putting all my details in I just get
Hi Everyone. I have had problems with B12 deficiency and have regularly self-injected for years. I always get my B12 from Goldpharma and it has never been a problem. However today I have tried to buy B12 and when I try to go to the next screen to pay for it, after putting all my details in I just get
Hayley31
in
Pernicious Anaemia Society
5 months ago
nexplanon implant removal
hi ladies, I’ve bled constantly since having my excision surgery in October. Been to my specialist who recommended that I have my implant out and reset my body completely then see about another form of contraceptive control in 3-6 months. Just had my implant removed today. Wondering how long it might
hi ladies, I’ve bled constantly since having my excision surgery in October. Been to my specialist who recommended that I have my implant out and reset my body completely then see about another form of contraceptive control in 3-6 months. Just had my implant removed today. Wondering how long it might
Kieraface
in
Endometriosis UK
5 months ago
Fibocalm
Hi, I have been trying the new Fibocalm for constipation capsules, but they are causing much worse bloating. I assume it’s Xyloglucan ingredient which I think is a FODMAP. It doesn’t matter what I try it’s always worse. Anyone else found this? Ros
Hi, I have been trying the new Fibocalm for constipation capsules, but they are causing much worse bloating. I assume it’s Xyloglucan ingredient which I think is a FODMAP. It doesn’t matter what I try it’s always worse. Anyone else found this? Ros
Gardener
in
IBS Network
5 months ago
looking for reassurance or advice
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Bspouse
in
Advanced Prostate Cancer
7 months ago
Hemorrhoids and ibs
Hi firstly happy new year to all and apologies for the long post - I have had bowel related symptoms mainly constipation but sometimes diarrhea as well as bloating and intermittent abdominal pain for most of my life and was told many years ago that it is "probably ibs". I have had a recent FIT test which
Hi firstly happy new year to all and apologies for the long post - I have had bowel related symptoms mainly constipation but sometimes diarrhea as well as bloating and intermittent abdominal pain for most of my life and was told many years ago that it is "probably ibs". I have had a recent FIT test which
Jojams
in
IBS Network
5 months ago
Iron supplement recommendations please
Can anyone recommend an iron supplement that won't cause constipation? My iron is low so GP prescribed me 200mg Ferrus Sulphate. I'm supposed to be taking 3 a day but I can barely manage 1, my bowels do not agree at all! 🙈 I was looking at Floradix liquid iron however it contains b vitamins which I'm
Can anyone recommend an iron supplement that won't cause constipation? My iron is low so GP prescribed me 200mg Ferrus Sulphate. I'm supposed to be taking 3 a day but I can barely manage 1, my bowels do not agree at all! 🙈 I was looking at Floradix liquid iron however it contains b vitamins which I'm
Mummybear0213
in
Thyroid UK
5 months ago
interesting Xeloda trial
Hi friends, I listened to a presentation summarizing reports from ASCO 2023 related to MBC, and what really interested me was that for Xeloda, a fixed dose taken one week on/one week off, produced as good results as current standard of care with fewer side effects. Also: cream form of Voltaren/diclofenac
Hi friends, I listened to a presentation summarizing reports from ASCO 2023 related to MBC, and what really interested me was that for Xeloda, a fixed dose taken one week on/one week off, produced as good results as current standard of care with fewer side effects. Also: cream form of Voltaren/diclofenac
HelenWi
in
SHARE Metastatic Breast Cancer
7 months ago
Biopsy 8-month Change - progression or sampling differences?
2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. 10/2023 Repeat MRI-Biopsy: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral gleason 3+4 in 5 of 12 systemic cores, 1 of these gleason
2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. 10/2023 Repeat MRI-Biopsy: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral gleason 3+4 in 5 of 12 systemic cores, 1 of these gleason
adventure4me
in
Prostate Cancer Network
7 months ago
Clinical Trial Considerations??
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
CubFan
in
Prostate Cancer Network
7 months ago
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