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Hydrochlorothiazide and lisinopril
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Need Help For My GP…
I am having an ongoing discussion with my GP about giving me the dose I need for my deficiency (EOD). It has been mainly positive so far, during my appointment yesterday he did acknowledge that he knew little about this malady, he would also need to chat to his partners and get advice from a specialist
I am having an ongoing discussion with my GP about giving me the dose I need for my deficiency (EOD). It has been mainly positive so far, during my appointment yesterday he did acknowledge that he knew little about this malady, he would also need to chat to his partners and get advice from a specialist
B12again
in
Pernicious Anaemia Society
3 months ago
carbo/gem
I was diagnosed high grade stage 3c peritoneal in Autumn 2021, I have had carbo/taxol/avastin, debulking surgery. Followed by avastin alone which did not work, then carbo/caelyx which worked very well. I have had just over a year on Niraparib but sadly it is no longer working. I am due to start
I was diagnosed high grade stage 3c peritoneal in Autumn 2021, I have had carbo/taxol/avastin, debulking surgery. Followed by avastin alone which did not work, then carbo/caelyx which worked very well. I have had just over a year on Niraparib but sadly it is no longer working. I am due to start
NewtonEmma1900
in
My Ovacome
3 months ago
Has anyone tried pulsed electric magnetic field therapy for PMR relief?
I am having trouble tapering. Can't seem to get much below 15 mg; went down to 10 mg but still having some pain in the mornings. So increased dosage on advice of rheumy. At this rate, I'll be on prednisone for a long, long time. So wondering if anyone has tried alternative treatments to try to get
I am having trouble tapering. Can't seem to get much below 15 mg; went down to 10 mg but still having some pain in the mornings. So increased dosage on advice of rheumy. At this rate, I'll be on prednisone for a long, long time. So wondering if anyone has tried alternative treatments to try to get
lsplumb
in
PMRGCAuk
3 months ago
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skin cancer and Ruxo
Hello, all, so interesting thing happened to me yesterday. I’ve been having eye issues for a long time, at least six months, and I finally went to an ophthalmologist yesterday. I have myelofibrosis , and I’ve been on Ruxo since June and prior to that I was on hydroxy for four years. He told me with
Hello, all, so interesting thing happened to me yesterday. I’ve been having eye issues for a long time, at least six months, and I finally went to an ophthalmologist yesterday. I have myelofibrosis , and I’ve been on Ruxo since June and prior to that I was on hydroxy for four years. He told me with
Cja1956
in
MPN Voice
6 months ago
Feel good post/Psychological first aid kit
What makes you feel better? Funny videos? Music? Videogames? Quotes? Thank you guys, you're helping me with my so complicated case
What makes you feel better? Funny videos? Music? Videogames? Quotes? Thank you guys, you're helping me with my so complicated case
Against_the_current
in
Anxiety and Depression Support
3 days ago
Information
Hi all. I have had some bad attacks over the last several months when I’m in a crowded place and it’s noisy, so much so that I’ve had to leave the building. I think I know what causes it having completed a first aid course in 1976 but just wondering if this has happened to anyone else. It’s like a panic
Hi all. I have had some bad attacks over the last several months when I’m in a crowded place and it’s noisy, so much so that I’ve had to leave the building. I think I know what causes it having completed a first aid course in 1976 but just wondering if this has happened to anyone else. It’s like a panic
paul456
in
Ataxia UK
8 days ago
Bone health: review about the guidelines
weight bearing exercise, biphosphonates o Denosumab, vitamin D, calcium I do all of the above, even if I have very thick bone and not yet CR, the oncologist says that zometa is also used to contrast the spread of bone metastasis… https://www.urotoday.com/video-lectures/practice-guidelines-prostate
weight bearing exercise, biphosphonates o Denosumab, vitamin D, calcium I do all of the above, even if I have very thick bone and not yet CR, the oncologist says that zometa is also used to contrast the spread of bone metastasis… https://www.urotoday.com/video-lectures/practice-guidelines-prostate
Maxone73
in
Advanced Prostate Cancer
6 months ago
virtual appointment
Hi, I’m hoping and would be grateful for any advice from this knowledgeable group.. I’m due to have a virtual 6 monthly review tomorrow following blood tests and US. I have been diagnosed with cryptogenic cirrhosis with no known cause. This was following a fibroscan result of 17kpa. When I had the
Hi, I’m hoping and would be grateful for any advice from this knowledgeable group.. I’m due to have a virtual 6 monthly review tomorrow following blood tests and US. I have been diagnosed with cryptogenic cirrhosis with no known cause. This was following a fibroscan result of 17kpa. When I had the
0range5520
in
British Liver Trust
3 months ago
Update on neuroendocerine prostate cancer mets to liver.
As mentioned previously my husbands prostate cancer has now metastasised to his liver. He also has bone mets. He had 6 cycles of Etoposide and Carboplatin. This combination of chemo worked very well. As we are looking at getting Pluvicto for his bone mets we also organised an FDG scan. (As advised on
As mentioned previously my husbands prostate cancer has now metastasised to his liver. He also has bone mets. He had 6 cycles of Etoposide and Carboplatin. This combination of chemo worked very well. As we are looking at getting Pluvicto for his bone mets we also organised an FDG scan. (As advised on
Believeit
in
Advanced Prostate Cancer
6 months ago
Iron and ferritin advice requested
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
MrVimes
in
Restless Legs Syndrome
3 months ago
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range?
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Suffering_sunny
in
Pernicious Anaemia Society
3 months ago
Update
Well this is a long story,Mick started loosing weight In February. We then went too the GP in March,who did a blood, when I rang up they said it was normal.Mick continued to loose weight so went back to the GP on April 9th,who then said his blood test showed dangerously high blood sugars,this is the
Well this is a long story,Mick started loosing weight In February. We then went too the GP in March,who did a blood, when I rang up they said it was normal.Mick continued to loose weight so went back to the GP on April 9th,who then said his blood test showed dangerously high blood sugars,this is the
very
in
CLL Support
6 months ago
Intrinsic factor
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
Allywales8663
in
Pernicious Anaemia Society
17 days ago
IBS. Possible internal bowel prolapse,inturrssusception or bowel / bladder intracele
hi, I’m new here and this is my first post( spend a lot of time on fibro & auto immune site!) I’m having an awful time of it bowel wise atm… and for som 24 months or more but so much so that I’ve actually paid and seen a private colorectal surgeon( female) I have this weird awful sensation of constantly
hi, I’m new here and this is my first post( spend a lot of time on fibro & auto immune site!) I’m having an awful time of it bowel wise atm… and for som 24 months or more but so much so that I’ve actually paid and seen a private colorectal surgeon( female) I have this weird awful sensation of constantly
Beakybird58
in
IBS Network
3 months ago
ANA test results
Hi, I’m reaching out in the hope someone is able to help me translate my ANA blood tests. I’ve had symptoms for over a year, predominantly fatigue/exhaustion, painful joints, mouth sores, feet that turn purple when cold (I also have a coeliac disease diagnosis from 2015). My results are back on
Hi, I’m reaching out in the hope someone is able to help me translate my ANA blood tests. I’ve had symptoms for over a year, predominantly fatigue/exhaustion, painful joints, mouth sores, feet that turn purple when cold (I also have a coeliac disease diagnosis from 2015). My results are back on
PurpleKoala24
in
LUPUS UK
18 days ago
Strange sensation
Hi guys.I've been having some constipation and gas issues. I read massaging the abdomen can be helpful, so I did. When I got around the hip area I felt sharp pains , very uncomfortable , on both sides. It could possibly be gas ? Just thought I'd ask if anyone has felt this type of pain. The massage
Hi guys.I've been having some constipation and gas issues. I read massaging the abdomen can be helpful, so I did. When I got around the hip area I felt sharp pains , very uncomfortable , on both sides. It could possibly be gas ? Just thought I'd ask if anyone has felt this type of pain. The massage
Gizmo6
in
IBS Network
3 months ago
Ferritin
I know that Ferritin is stored iron but I’m a bit confused about how Ferritin and iron correlate. Is it possible to have Ferritin in range but low iron - and what would be considered optimal Ferritin? My level has just been tested and has gone down from a stable 88 to 34 I’m sorry to be so dumb
I know that Ferritin is stored iron but I’m a bit confused about how Ferritin and iron correlate. Is it possible to have Ferritin in range but low iron - and what would be considered optimal Ferritin? My level has just been tested and has gone down from a stable 88 to 34 I’m sorry to be so dumb
Hidden
in
Thyroid UK
3 months ago
Neurofibroma
Not thyroid related, but has anyone experienced under skin neurofibroma? Trying to figure out whether to have it removed or not. No pain, but wondering if it shall get bigger in size.
Not thyroid related, but has anyone experienced under skin neurofibroma? Trying to figure out whether to have it removed or not. No pain, but wondering if it shall get bigger in size.
Huskyy
in
Thyroid UK
3 months ago
Feeling like Chemo is too Hard
Hi. I was diagnosed 3B HG in August 2018, had surgery, frontline, first recurrence ( carbo and caelyx/doxil), 3 years of Olaparib, one year on nothing and now am having carboplatin alone for second recurrence. My oncologist said this would be relatively easy. Also I haven’t had some of the worst complications
Hi. I was diagnosed 3B HG in August 2018, had surgery, frontline, first recurrence ( carbo and caelyx/doxil), 3 years of Olaparib, one year on nothing and now am having carboplatin alone for second recurrence. My oncologist said this would be relatively easy. Also I haven’t had some of the worst complications
delia2
in
My Ovacome
3 months ago
unknown rash
hi everyone! Last week I posted pictures of my son’s face rash asking if it looked like cutaneous lupus. For those who are just reading now, he had this rash for about two months now— started on his ear which was raw red then went away. A few weeks later the rash developed bright red spots on his face
hi everyone! Last week I posted pictures of my son’s face rash asking if it looked like cutaneous lupus. For those who are just reading now, he had this rash for about two months now— started on his ear which was raw red then went away. A few weeks later the rash developed bright red spots on his face
Demaso33
in
LUPUS UK
26 days ago
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