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Covid - Beware Getting Treatment - Don’t Test Positive on a Friday - Some Answers
Well I said I would update you all regarding the ordeal I had had regarding my previous posts on this subject. Don’t want to bore you all but some may be interested in what I have managed to find out. I laid out to the NHS what I needed answers to and what they were doing about it to prevent it happening
Well I said I would update you all regarding the ordeal I had had regarding my previous posts on this subject. Don’t want to bore you all but some may be interested in what I have managed to find out. I laid out to the NHS what I needed answers to and what they were doing about it to prevent it happening
Investigator1
in
Vasculitis UK
9 months ago
Effect of Covid on Platelets
I’ve had thrombocythaemia for many years and it’s been well controlled initially by Hydroxycarbamide and in more recent years by Hydroxycarbamide and Anagrelide together. At the beginning of September I developed covid and tested positive over a period of twenty days. Early in October during a face
I’ve had thrombocythaemia for many years and it’s been well controlled initially by Hydroxycarbamide and in more recent years by Hydroxycarbamide and Anagrelide together. At the beginning of September I developed covid and tested positive over a period of twenty days. Early in October during a face
AnneMargaretMary
in
MPN Voice
9 months ago
anyone have achy legs
I’m learning so much from reading everyone’s posts. Unfortunately I am still trying to figure out what is going on with my legs. I know I have a component of RLS as my legs feel like a “current” is running through them when I am sitting for long periods, watching Tv in evenings and laying in bed.
I’m learning so much from reading everyone’s posts. Unfortunately I am still trying to figure out what is going on with my legs. I know I have a component of RLS as my legs feel like a “current” is running through them when I am sitting for long periods, watching Tv in evenings and laying in bed.
Corolla1
in
Restless Legs Syndrome
6 months ago
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Covid and flu vaccines
I unexpectedly had Covid and flu vaccinations today whilst at the doctor's for something else. Was putting it off but glad it's done now. Today is the day I usually inject my MTX and one nurse said give it a miss this week whilst another said to do it as normal. I decided to give it a miss. Is there
I unexpectedly had Covid and flu vaccinations today whilst at the doctor's for something else. Was putting it off but glad it's done now. Today is the day I usually inject my MTX and one nurse said give it a miss this week whilst another said to do it as normal. I decided to give it a miss. Is there
Manzana1
in
NRAS
6 months ago
Retuximab
Hi guys, Hope you all had a happy healthy New Year :) Unfortunately I had flu, then Covid and what seemed like a virus :( I just started Rituximab infusion 26th September therefore according to the information booklet I’m not meant to have live vaccines (flu, Covid) for 6months after, hence probably
Hi guys, Hope you all had a happy healthy New Year :) Unfortunately I had flu, then Covid and what seemed like a virus :( I just started Rituximab infusion 26th September therefore according to the information booklet I’m not meant to have live vaccines (flu, Covid) for 6months after, hence probably
jopo280886
in
LUPUS UK
6 months ago
Online Ordering of COVID LFTs to Stop in November
COVID 19 Lateral Flow test kits are to be collected from a community pharmacy if the pharmacy chooses to sign up for the service from November 6th. From this date LFTs will no longer be available to order online or through the NHS 119 service.
COVID 19 Lateral Flow test kits are to be collected from a community pharmacy if the pharmacy chooses to sign up for the service from November 6th. From this date LFTs will no longer be available to order online or through the NHS 119 service.
MickUK
in
CLL Support
9 months ago
PMR & COVID Vaccine Link?
In another thread which I began on a different subject, the possibility of a link between PMR and COVID vaccine came up. In that thread, for the first time I saw something other than idle speculation that the vaccine and PMR might be l inked: [i]A study published[/i][u][i] in the journal Rheumatology
In another thread which I began on a different subject, the possibility of a link between PMR and COVID vaccine came up. In that thread, for the first time I saw something other than idle speculation that the vaccine and PMR might be l inked: [i]A study published[/i][u][i] in the journal Rheumatology
Mansplainer101
in
PMRGCAuk
9 months ago
Steroid injection in shoulder joint
I had a steroid injection in my left shoulder on Thurs pm (after waiting about 6 months). The doctor administering it, advised me to postpone a forthcoming shingles jab, but I forgot to ask him if I should continue to take methotrexate (due Fri - i opted to skip it this week) and my 2 weekly Imraldi
I had a steroid injection in my left shoulder on Thurs pm (after waiting about 6 months). The doctor administering it, advised me to postpone a forthcoming shingles jab, but I forgot to ask him if I should continue to take methotrexate (due Fri - i opted to skip it this week) and my 2 weekly Imraldi
Cutes
in
NRAS
6 months ago
blood test whilst with a cold?
due for a blood test later today, which I would normally have before my Rheumy visit (scheduled for next week) Come down with a blooming cold, started a few days ago - I’ve been reasonably lucky to have by passed most doing the rounds of our office 😬 - just done a COVID test to make sure and it’s come
due for a blood test later today, which I would normally have before my Rheumy visit (scheduled for next week) Come down with a blooming cold, started a few days ago - I’ve been reasonably lucky to have by passed most doing the rounds of our office 😬 - just done a COVID test to make sure and it’s come
Cfmad298601
in
PMRGCAuk
9 months ago
looking for a neurologist
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
etchea33
in
Restless Legs Syndrome
5 months ago
Another cold type virus
Posted in January about respiratory virus which I recovered from about 2 weeks ago. Blow me down, I have a sore throat, runny nose, feel flat and no energy again. This is the 3rd cold/flu type bug I have had in 3 months. Is this due to suppressed immune system or overdoing it or just bad luck? @
Posted in January about respiratory virus which I recovered from about 2 weeks ago. Blow me down, I have a sore throat, runny nose, feel flat and no energy again. This is the 3rd cold/flu type bug I have had in 3 months. Is this due to suppressed immune system or overdoing it or just bad luck? @
EnyaBlue
in
PMRGCAuk
5 months ago
Recurrent vaginal thrush- need urgent help
I had what looks like a vaginal thrush for the first time 3 weeks back. I'm 35 yrs old. My GP nurse saw me and suggested Canesten pessary. I took it but to no avail (also the pessary did not work properly) I went back to the doctor in 2 days and she suggested Flucanazole oral tabled (150 mg 1 dose) that
I had what looks like a vaginal thrush for the first time 3 weeks back. I'm 35 yrs old. My GP nurse saw me and suggested Canesten pessary. I took it but to no avail (also the pessary did not work properly) I went back to the doctor in 2 days and she suggested Flucanazole oral tabled (150 mg 1 dose) that
Rita89
in
Women's Health
5 months ago
My GCA Update
I just got done with my MRIs and MRAs, so we’ll see if results show much. My blood test came back with sed rate normal (always has been) and C-reactive prrotein headed down. It went from normal in PMR, to 1.3 and then 2.0 in GCA. Now at 0.8, so barely high and heading in the right direction. Still feeling
I just got done with my MRIs and MRAs, so we’ll see if results show much. My blood test came back with sed rate normal (always has been) and C-reactive prrotein headed down. It went from normal in PMR, to 1.3 and then 2.0 in GCA. Now at 0.8, so barely high and heading in the right direction. Still feeling
Lenore58
in
PMRGCAuk
9 months ago
Aciclovir as prevention for shingles
I wish to express my deepest thanks to all fellow members who have responded to my recent enquiry. There has been consensus in all replies confirming that prescribing Aciclovir is standard practice.
I wish to express my deepest thanks to all fellow members who have responded to my recent enquiry. There has been consensus in all replies confirming that prescribing Aciclovir is standard practice.
RamsesII
in
CLL Support
5 months ago
Sciatica
Hi all. I have been suffering with back pain for several years. In regards to medication, you name it, I've tried it. I've have two lots of steroid injections which had no effect whatsoever and then finally in 2022 I had radio frequency ablation which was brilliant. I had instant relief from this. I
Hi all. I have been suffering with back pain for several years. In regards to medication, you name it, I've tried it. I've have two lots of steroid injections which had no effect whatsoever and then finally in 2022 I had radio frequency ablation which was brilliant. I had instant relief from this. I
Stormtrooper4
in
Pain Concern
6 months ago
I thought it was just a cold!
Not on ocrevus anymore, but I had the 1st of my monthly tysabri on the 20th, and I've since got a chest infection 😞 a couple of nights of not being able to sleep properly had really affected me, to the point where on Monday just gone I was wanting to get in to see a GP! But, when I called them up, they
Not on ocrevus anymore, but I had the 1st of my monthly tysabri on the 20th, and I've since got a chest infection 😞 a couple of nights of not being able to sleep properly had really affected me, to the point where on Monday just gone I was wanting to get in to see a GP! But, when I called them up, they
Cwright170994
in
My MSAA Community
8 months ago
Travel vaccinations
I’m travelling to Bali in April and been recommended to have Typhoid, Tetanus and Hepatitis A boosters. Has anyone experienced any issues following these vaccinations please? Currently on 0.5mg Pred and no intention of reducing further until after the holiday!
I’m travelling to Bali in April and been recommended to have Typhoid, Tetanus and Hepatitis A boosters. Has anyone experienced any issues following these vaccinations please? Currently on 0.5mg Pred and no intention of reducing further until after the holiday!
Dorothy61
in
PMRGCAuk
5 months ago
COVID
Had COVID 9/12/2022 and still have no taste or smell. I am 71 and on no medications. I have been told to eat citrus to shock the taste buds so oranges,lemons,ginger,limes are on my daily menu. Eating BLD by texture to satisfy ion the mind. Lost 27 lbs and I am not heavy guy at 162 now…..My bride of
Had COVID 9/12/2022 and still have no taste or smell. I am 71 and on no medications. I have been told to eat citrus to shock the taste buds so oranges,lemons,ginger,limes are on my daily menu. Eating BLD by texture to satisfy ion the mind. Lost 27 lbs and I am not heavy guy at 162 now…..My bride of
oznaf
in
PMRGCAuk
9 months ago
Covid vaccine
I've been offered a covid jab as I work with vulnerable people but I'm currently experiencing a real flare up of my asthma. Has anyone else had this situation and gone ahead with the jab? Did it make it worse? I'm thinking to postpone the vaccination.
I've been offered a covid jab as I work with vulnerable people but I'm currently experiencing a real flare up of my asthma. Has anyone else had this situation and gone ahead with the jab? Did it make it worse? I'm thinking to postpone the vaccination.
Jayarc
in
Asthma Community Forum
9 months ago
steroid injections
I had a steroid injection in my low back yesterday. This was to help nerve pain I have been having in my thigh. Today, could I use the steroid from this having this shot of steroid from this injection as a way to decrease my daily steroid by 1/2- 1mg.? Will that work? Hope that makes sense😊
I had a steroid injection in my low back yesterday. This was to help nerve pain I have been having in my thigh. Today, could I use the steroid from this having this shot of steroid from this injection as a way to decrease my daily steroid by 1/2- 1mg.? Will that work? Hope that makes sense😊
Linny3
in
PMRGCAuk
6 months ago
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