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Acalabrutinib/COVID/swollen lymph nodes under arm
Hi, I’ve been on Acalabrutinib for almost a year now. I have SLL. Everything had been going wonderfully, my lymph nodes significantly decreased in size, my 3-months follow up scan showed great results, my blood work looked normal, and the side effects were minimal. I recently noticed, however, that
Hi, I’ve been on Acalabrutinib for almost a year now. I have SLL. Everything had been going wonderfully, my lymph nodes significantly decreased in size, my 3-months follow up scan showed great results, my blood work looked normal, and the side effects were minimal. I recently noticed, however, that
Tofa80
in
CLL Support
8 months ago
previous question
Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Bam ibs
I have very problematic and symptomatic ibs and now i have severe bile acid malabsorption and i have arthritis msk i get pip for my msk and have just done a renewal for my pip i have put everything down about my bile acid malabsorption how it affects my daily life ,anyone on here gets pip for the bile
I have very problematic and symptomatic ibs and now i have severe bile acid malabsorption and i have arthritis msk i get pip for my msk and have just done a renewal for my pip i have put everything down about my bile acid malabsorption how it affects my daily life ,anyone on here gets pip for the bile
Netbet22
in
IBS Network
6 months ago
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Palliative care survey for less survivable cancer patients & loved ones (UK)
📣 The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
📣 The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
BritishLiverTrust1
Partner
in
British Liver Trust
8 months ago
from today’s NYT article
Not Everything We Call Cancer Should Be Called Cancer By Laura Esserman and Scott Eggener Dr. Esserman is a surgeon and breast cancer oncologist at the University of California, San Francisco. Dr. Eggener is a surgeon and urologic oncologist at the University of Chicago. “…..Let’s look at two examples
Not Everything We Call Cancer Should Be Called Cancer By Laura Esserman and Scott Eggener Dr. Esserman is a surgeon and breast cancer oncologist at the University of California, San Francisco. Dr. Eggener is a surgeon and urologic oncologist at the University of Chicago. “…..Let’s look at two examples
Dont08759
in
Advanced Prostate Cancer
8 months ago
deranged LFT and Gallbladder perforation
hi, hoping someone may have experience like mine. I had a perforated gallbladder whilst in hospital with Sepsis back in November. Because of my weight and existing issue the team didn’t want to operate as keyhole wasn’t an option so would have involved open surgery. So I was put on antibiotics for 6
hi, hoping someone may have experience like mine. I had a perforated gallbladder whilst in hospital with Sepsis back in November. Because of my weight and existing issue the team didn’t want to operate as keyhole wasn’t an option so would have involved open surgery. So I was put on antibiotics for 6
Stonyd
in
British Liver Trust
3 months ago
If it’s not one thing, it's another! Update
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Gulfstream_Maggie
in
Fibromyalgia Action UK
8 months ago
Autistic 5yo still in nappies
Hello 👋 First post on this board. I have 4 kids, 2 diagnosed with Autism. My 5 year old son was diagnosed earlier this year although we knew for a while. He has speech delay and Selective Mutism due to severe anxiety. His anxiety is definitely the root problem which stops him from doing things like
Hello 👋 First post on this board. I have 4 kids, 2 diagnosed with Autism. My 5 year old son was diagnosed earlier this year although we knew for a while. He has speech delay and Selective Mutism due to severe anxiety. His anxiety is definitely the root problem which stops him from doing things like
Mummybear0213
in
ERIC
6 months ago
Ibrance and supplements
I belong to those who are very careful in taking food supplements. My oncologist recommended not to take calcium and vitamin D because I have a high level of calcium in my blood. I mainly use vitamin C, and I try to compensate everything else from food. I am 69 years old and use Ibrance 100 + fulvestrant
I belong to those who are very careful in taking food supplements. My oncologist recommended not to take calcium and vitamin D because I have a high level of calcium in my blood. I mainly use vitamin C, and I try to compensate everything else from food. I am 69 years old and use Ibrance 100 + fulvestrant
hopehope67
in
SHARE Metastatic Breast Cancer
8 months ago
cough
hi, Has anybody else had trouble with coughing on indapamide . or felodipine . My doctor is saying can’t be the blood pressure drugs .
hi, Has anybody else had trouble with coughing on indapamide . or felodipine . My doctor is saying can’t be the blood pressure drugs .
Patricia300
in
High Blood Pressure Support
6 months ago
New Member
Hi everyone, I just joined this group today. I wanted to get some things off my chest. I deal with panic attacks and panic disorder. I haven’t had a panic attack since I started my Lexpro a few months back until last week on Friday. I can’t really understand why my brain is the way it is lol. One of
Hi everyone, I just joined this group today. I wanted to get some things off my chest. I deal with panic attacks and panic disorder. I haven’t had a panic attack since I started my Lexpro a few months back until last week on Friday. I can’t really understand why my brain is the way it is lol. One of
jommyk789
in
Anxiety and Depression Support
3 months ago
Update: Carbo/Etoposide for Dad’s Liver Mets
My dad has his 6th round of Carbo/Etoposide next week. The last 2 rounds have been very difficult on my dad. We thought he was lucky in the beginning as the side effects were manageable and attributed it to my dad being young and previously very active. It’s definitely true that chemo is cumulative.
My dad has his 6th round of Carbo/Etoposide next week. The last 2 rounds have been very difficult on my dad. We thought he was lucky in the beginning as the side effects were manageable and attributed it to my dad being young and previously very active. It’s definitely true that chemo is cumulative.
antisocialsocialwrkr
in
Advanced Prostate Cancer
8 months ago
Divver? IBS? Something more sinister?
Back again. Noticed after a few weeks that I was eating fairly normally - always very careful - and not really going to the bathroom as much as I should have. Small soft BMs, after feeling like a huge BM was coming. Also having either hemmerhoid or fissure, fistula issues, but my opening is very sore
Back again. Noticed after a few weeks that I was eating fairly normally - always very careful - and not really going to the bathroom as much as I should have. Small soft BMs, after feeling like a huge BM was coming. Also having either hemmerhoid or fissure, fistula issues, but my opening is very sore
NewEnglander
in
IBS Network
6 months ago
post cholecystectomy issues
I had my gallbladder out (gallstones) 10 years ago and for the first 5 or so years I had no problems whatsoever, life returned to normal. Then I started getting these weird night time vomiting events. Always seemed to be woken between 2 and 3am with a heavy pressure in my stomach/gut, not feeling nauseas
I had my gallbladder out (gallstones) 10 years ago and for the first 5 or so years I had no problems whatsoever, life returned to normal. Then I started getting these weird night time vomiting events. Always seemed to be woken between 2 and 3am with a heavy pressure in my stomach/gut, not feeling nauseas
Susanc241
in
Oesophageal & Gastric Cancer
3 months ago
surviving the rat race.
I moved cities recently to peruse my art career. Which was a bold step for me. I don’t really like change. Although I was excited about the possibility of finally living my dream and having opportunities in this town I didn’t have before. I could reinvent myself. Live the life I’ve always wanted. Well
I moved cities recently to peruse my art career. Which was a bold step for me. I don’t really like change. Although I was excited about the possibility of finally living my dream and having opportunities in this town I didn’t have before. I could reinvent myself. Live the life I’ve always wanted. Well
yanah
in
Anxiety and Depression Support
3 months ago
Iron deficiency
Hello I’m asking a question with regards to low ferritin levels (17.4). I’m confused whether I should be prescribed folic acid or iron?!
Hello I’m asking a question with regards to low ferritin levels (17.4). I’m confused whether I should be prescribed folic acid or iron?!
sewingroom
in
Thyroid UK
6 months ago
Blood results
Hi all, Following on from the very useful help and advice I received on my previous posts, I have some blood results back and am hoping for some advice this time. My B12 came back in the normal range but low and my ferritin came back only just scraping into the normal range (results attached).
Hi all, Following on from the very useful help and advice I received on my previous posts, I have some blood results back and am hoping for some advice this time. My B12 came back in the normal range but low and my ferritin came back only just scraping into the normal range (results attached).
Peril1504
in
Thyroid UK
6 months ago
Mirtazapine
I am taking Mirtazapine for anxiety and it has reduced my tremor quite a bit has anyone else found this?
I am taking Mirtazapine for anxiety and it has reduced my tremor quite a bit has anyone else found this?
percalona
in
Cure Parkinson's
3 months ago
fatigue
i have been taking Firmagon for 3 months Since I started am Lucky i have no more pain or very little. My only problem is fatigue . I am supposed to start next week on Apalutamide. I am wondering it is a good combination . Also if my fatigue will get worse . Does anyone knows Thank you
i have been taking Firmagon for 3 months Since I started am Lucky i have no more pain or very little. My only problem is fatigue . I am supposed to start next week on Apalutamide. I am wondering it is a good combination . Also if my fatigue will get worse . Does anyone knows Thank you
Raminagrobis
in
Advanced Prostate Cancer
8 months ago
mCRPC- What is double negative prostate cancer along with the other 4 subtypes.
In research trying to understand my PSMA-negative FDG-positive current scenario I've come across some interesting articles that I thought I'd share with the group. I'm consulting with a new MO on Wednesday and I'm hoping she can shed some light on my progression. This paper came out 2 weeks ago- it's
In research trying to understand my PSMA-negative FDG-positive current scenario I've come across some interesting articles that I thought I'd share with the group. I'm consulting with a new MO on Wednesday and I'm hoping she can shed some light on my progression. This paper came out 2 weeks ago- it's
V10fanatic
in
Advanced Prostate Cancer
8 months ago
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