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New primary plus first progression
Hi everyone, I was diagnosed de novo ductal carcinoma ER/PR+ and HER2 - June 2021 with bone Mets spine and hip. I had a mastectomy and axillary clearance left side and then palbociclib, letrezole, monthly goserelin and denusamab. I have just found out I have my first progression spine and possible
Hi everyone, I was diagnosed de novo ductal carcinoma ER/PR+ and HER2 - June 2021 with bone Mets spine and hip. I had a mastectomy and axillary clearance left side and then palbociclib, letrezole, monthly goserelin and denusamab. I have just found out I have my first progression spine and possible
RachH20
in
SHARE Metastatic Breast Cancer
8 months ago
Pre-biotics vs post biotics - do we need pre, post or both?
This is a follow up post to the recent one about inulin. I had spent a lot of time involved with post-biotics but never really considered pre-biotics at all to date. This all changed quite recently when I stumbled across inulin which is described in a recent post so will not repeat all those comments
This is a follow up post to the recent one about inulin. I had spent a lot of time involved with post-biotics but never really considered pre-biotics at all to date. This all changed quite recently when I stumbled across inulin which is described in a recent post so will not repeat all those comments
Danielj1
in
Thyroid UK
6 months ago
Any suggestion for constipation caused by Niraparib
Hey dear ladies, I am on niraparib (200mg/ day in the evening) since august 2023 and experience constipation. I try to go daily but is not always happening. I also have to work for it every day, lot of patience before I get sth out or not ... it is usually hard and little.. I am trying to eat as
Hey dear ladies, I am on niraparib (200mg/ day in the evening) since august 2023 and experience constipation. I try to go daily but is not always happening. I also have to work for it every day, lot of patience before I get sth out or not ... it is usually hard and little.. I am trying to eat as
Beatyourself
in
My Ovacome
6 months ago
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Kidney update and possible gallstones
Hi everyone, it’s been a hot minute since I posted about my kidneys! A few weeks ago I found out I had leaky protein, but I saw the specialist (who was pretty thorough) and he’s not worried about it. And if he’s not worried, I’m not worried! We’re gonna review in 3 months’ time. I’m so glad it turned
Hi everyone, it’s been a hot minute since I posted about my kidneys! A few weeks ago I found out I had leaky protein, but I saw the specialist (who was pretty thorough) and he’s not worried about it. And if he’s not worried, I’m not worried! We’re gonna review in 3 months’ time. I’m so glad it turned
MusicalFurbaby
in
LUPUS UK
3 months ago
What next? Is my man a candidate for Pluvicto?
I am the wife of my 14 year warrior, details in his bio. Finally after 3 PSMA scans, cancer has shown up in a few lymph nodes and in the original area of reattachment of urethra to bladder from his prostatectomy, and on the bladder wall. He has now been on Abi & Prednisone for 2 weeks, although after
I am the wife of my 14 year warrior, details in his bio. Finally after 3 PSMA scans, cancer has shown up in a few lymph nodes and in the original area of reattachment of urethra to bladder from his prostatectomy, and on the bladder wall. He has now been on Abi & Prednisone for 2 weeks, although after
TahoeJ
in
Advanced Prostate Cancer
8 months ago
Scan results
Hello everyone My centre just got MyChart so for the first time I looked at results of CT. For 3 years Onc has been saying "everything stable" and it is. I was always offered a copy of CT by clinic nurse but declined being happy to just hear "stable". Liver mets no longer showing on CT at all -
Hello everyone My centre just got MyChart so for the first time I looked at results of CT. For 3 years Onc has been saying "everything stable" and it is. I was always offered a copy of CT by clinic nurse but declined being happy to just hear "stable". Liver mets no longer showing on CT at all -
Onedayatatime60
in
SHARE Metastatic Breast Cancer
8 months ago
Clean PET/CT Scan - Why no treatment change?
I was diagnosed Stage 4 in 2019 and have been getting Lupron shots and taking Erleada ever since. My PSA went down to undetectable within about six months and has stayed there. I have very mild side effects (other than the loss of libido). I had bone scans in 2019 and 2020. The 2020 scan showed significant
I was diagnosed Stage 4 in 2019 and have been getting Lupron shots and taking Erleada ever since. My PSA went down to undetectable within about six months and has stayed there. I have very mild side effects (other than the loss of libido). I had bone scans in 2019 and 2020. The 2020 scan showed significant
NorYug
in
Advanced Prostate Cancer
8 months ago
Loss of taste re dental bridge
I had a dental bridge fitted in July - after four months of temporary bridges and suffering those felt the final one would be tons better. Since having it fitted - I have lost my taste - cannot taste anything and I find that I still cannot eat properly - still sticking to a softish diet and fish as
I had a dental bridge fitted in July - after four months of temporary bridges and suffering those felt the final one would be tons better. Since having it fitted - I have lost my taste - cannot taste anything and I find that I still cannot eat properly - still sticking to a softish diet and fish as
janetmtt
in
Dentistry Health Support
6 months ago
new blood tests
Hct is lower again to 37 and Hgb 11.5, iron panel still anemic. New Blood Test. Anion Gap. Normal range per lab. 6-22 My test result was 3 Anyone have any insight? thank you
Hct is lower again to 37 and Hgb 11.5, iron panel still anemic. New Blood Test. Anion Gap. Normal range per lab. 6-22 My test result was 3 Anyone have any insight? thank you
Pickleball11
in
MPN Voice
6 months ago
How to stop worrying about little things.
I feel like I am fighting a panic attack all day long. And obcess about everything. Does anyone have any suggestions?
I feel like I am fighting a panic attack all day long. And obcess about everything. Does anyone have any suggestions?
Tobert2024
in
Anxiety and Depression Support
3 months ago
Should i stay here or even injured try to go to my accommodation or to my bf's
Mom went nuts. I'm really terrified. I said im going to bed too because i had a panic attack (so im just scared, i want to go in bed with them so they don't think i sleep all day while they work) and mom went crazy. She started yelling "don't i have panic attacks (what does this have to do with you?
Mom went nuts. I'm really terrified. I said im going to bed too because i had a panic attack (so im just scared, i want to go in bed with them so they don't think i sleep all day while they work) and mom went crazy. She started yelling "don't i have panic attacks (what does this have to do with you?
Against_the_current
in
Anxiety and Depression Support
3 months ago
Result of tests following bleeding
HiI posted about a month ago as I was worried about my son as he was bleeding after pooing. His GP thought it was IBD but the results have come back clear. Calprotectin was fine as were his bloods other than slightly low liver function and slightly raised haemoglobin. He thinks its chilli that's the
HiI posted about a month ago as I was worried about my son as he was bleeding after pooing. His GP thought it was IBD but the results have come back clear. Calprotectin was fine as were his bloods other than slightly low liver function and slightly raised haemoglobin. He thinks its chilli that's the
Siobhan2021
in
IBS Network
6 months ago
1 year since my operation so celebrated on holiday's 🙌🌄 🇬🇷
Just an update, it was a year on 7th September that I had my debulking after 4 chemo then 2 following the operation with avastin added to last infusion. I'm also on olaparib, it's been a battle with joint pains and fatigue but I'm still here!!. I was stage 4 hgsc brca negative but hrd positive at diagnosis
Just an update, it was a year on 7th September that I had my debulking after 4 chemo then 2 following the operation with avastin added to last infusion. I'm also on olaparib, it's been a battle with joint pains and fatigue but I'm still here!!. I was stage 4 hgsc brca negative but hrd positive at diagnosis
Newbery3
in
My Ovacome
8 months ago
SGLT-2 Inhibitors to (partially) “Starve” Glucose Dependent Cancers
There has been many theories proposed about how to “starve cancer”. And many have gone down rabbit holes chasing unproven theories about how to do so. Unfortunately, IMO, they simply do not work. Cancers are very metabolically flexible. They will take what they need to survive and grow and adapt to whatever
There has been many theories proposed about how to “starve cancer”. And many have gone down rabbit holes chasing unproven theories about how to do so. Unfortunately, IMO, they simply do not work. Cancers are very metabolically flexible. They will take what they need to survive and grow and adapt to whatever
MateoBeach
in
Fight Prostate Cancer
8 months ago
Mommy trying to figure things out
my name is Tanisha and I am a 48 and a mom of 4 and 3 grandkids and I’m married. I’m new to this so I don’t really know how to start. I lost my dad my job. All in an 12 month span…I suffer from depression and anxiety and this pas week has not been good. Had a bad panic attack that sent me into the hospital
my name is Tanisha and I am a 48 and a mom of 4 and 3 grandkids and I’m married. I’m new to this so I don’t really know how to start. I lost my dad my job. All in an 12 month span…I suffer from depression and anxiety and this pas week has not been good. Had a bad panic attack that sent me into the hospital
Germany2018
in
Anxiety and Depression Support
3 months ago
Giant ovarian cyst- very worried
Hi Everyone , Its my first time posting here but I read some posts and it seems like a very supportive community . I am 42 and not menopausal. I ended up in hospital due to severe pain in my right ovary . After scan I was told this was as due to a raptured cyst in my ovary and nothing to worry
Hi Everyone , Its my first time posting here but I read some posts and it seems like a very supportive community . I am 42 and not menopausal. I ended up in hospital due to severe pain in my right ovary . After scan I was told this was as due to a raptured cyst in my ovary and nothing to worry
martiksa
in
My Ovacome
8 months ago
Scared
Have stage 4 breast cancer which has spread to both lungs and have mental health problems as well.. Question is worried that Maybe having a psychoctic episode with all the stress
Have stage 4 breast cancer which has spread to both lungs and have mental health problems as well.. Question is worried that Maybe having a psychoctic episode with all the stress
Iamhealthy123
in
Lung Conditions Community Forum
8 months ago
Panic Attack Advice
Does anyone have any panic attack advice? mean I got seriously spooked and feeling major dizziness. I am a bit of afraid if My blood pressure is super high. At the moment I am away from my anxiety medications.
Does anyone have any panic attack advice? mean I got seriously spooked and feeling major dizziness. I am a bit of afraid if My blood pressure is super high. At the moment I am away from my anxiety medications.
jwhitleyjr
in
Anxiety and Depression Support
3 months ago
Gluten free diet
I have been on a Gluten Free diet for more then 10 years. Recently I have had abdominal pain, flatulence, and reflux after food. I found out you can buy a Coeliac kit from the chemist, but not sure about it. I feel I should go to the GP but have been in hospital in the past and the DR there said I had
I have been on a Gluten Free diet for more then 10 years. Recently I have had abdominal pain, flatulence, and reflux after food. I found out you can buy a Coeliac kit from the chemist, but not sure about it. I feel I should go to the GP but have been in hospital in the past and the DR there said I had
Simpson43
in
Gluten Free Guerrillas
6 months ago
small cell pc options?
my father has been treating this for 5 years. New biopsy revealed small cell pc which was also in the initial biopsy. The rechallenge of carboplatin and etoposide doesn’t seem to be working. They have suggested immunotherapy ( not sure what type). Thoughts? Also any research out there regarding PRRT?
my father has been treating this for 5 years. New biopsy revealed small cell pc which was also in the initial biopsy. The rechallenge of carboplatin and etoposide doesn’t seem to be working. They have suggested immunotherapy ( not sure what type). Thoughts? Also any research out there regarding PRRT?
Poppi07
in
Advanced Prostate Cancer
8 months ago
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