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Great purchase
I want to make everyone aware of an amazing book by the world reknowned PBC expert. I encourage everyone, especially those newly diagnosed, to purchase this book - both editions if possible. Dr. Jones has been one of the contributors to The PBC Foundation's Thursdays' live Q&A sessions. This information
I want to make everyone aware of an amazing book by the world reknowned PBC expert. I encourage everyone, especially those newly diagnosed, to purchase this book - both editions if possible. Dr. Jones has been one of the contributors to The PBC Foundation's Thursdays' live Q&A sessions. This information
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
B12 sublingual
Hi, I suppose this has been addressed before, but....Is there any reason not to take sublingual B12 around the same time as ndt? Usually I space the sublingual B12 a couple hours away from ndt but figured the B12 is bypassing the digestive system & the ndt is not. My TSH, FT4&3 are all good. Since
Hi, I suppose this has been addressed before, but....Is there any reason not to take sublingual B12 around the same time as ndt? Usually I space the sublingual B12 a couple hours away from ndt but figured the B12 is bypassing the digestive system & the ndt is not. My TSH, FT4&3 are all good. Since
terebol
in
Thyroid UK
6 months ago
Folic Acid does not cause PA
I saw this article with responses about the consumption of folic acid. What do people think about the responses? Especially the one who says that there shouldn't be a limit to the amount of folic acid taken. https://www.bmj.com/content/329/7479/1376/rapid-responses I have been taking 5mg folic acid
I saw this article with responses about the consumption of folic acid. What do people think about the responses? Especially the one who says that there shouldn't be a limit to the amount of folic acid taken. https://www.bmj.com/content/329/7479/1376/rapid-responses I have been taking 5mg folic acid
MEguy
in
Thyroid UK
6 months ago
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Suspected Bechets - affecting me mentally & physically
Hello, So sorry for the long post! So my doctor believes I have Bechets and I am currently undergoing tests/waiting for results. I have suffered with horrendous mouth ulcers ever since I had glandular fever at the age of 19 (now 36), and after a couple of years back and forth to the doctors about it,
Hello, So sorry for the long post! So my doctor believes I have Bechets and I am currently undergoing tests/waiting for results. I have suffered with horrendous mouth ulcers ever since I had glandular fever at the age of 19 (now 36), and after a couple of years back and forth to the doctors about it,
TigerLily42
in
Behçet's UK
3 months ago
Non small cell carcinoma in lung.
I have recently been diagnosed with non small cell carcinoma of the lung by the Royal Brompton. They sent a letter to my GP requesting an urgent 2 week referral to local oncology, GP surgery said they hadn't received the part of the letter asking for the referral. I emailed them a copy as they requested
I have recently been diagnosed with non small cell carcinoma of the lung by the Royal Brompton. They sent a letter to my GP requesting an urgent 2 week referral to local oncology, GP surgery said they hadn't received the part of the letter asking for the referral. I emailed them a copy as they requested
jacic64
in
The Roy Castle Lung Cancer Foundation
8 months ago
nephrectomy
I have to have a nephrectomy because I have a tumor on my kidney and cyst I have polycythameia Vera anyone had this surgery with polycythameia
I have to have a nephrectomy because I have a tumor on my kidney and cyst I have polycythameia Vera anyone had this surgery with polycythameia
Sickey
in
MPN Voice
8 months ago
My 3 Arrows Heme Iron has finally arrived! How do I dose it?
It seemed to take a long time to arrive. But it's finally here. At my last blood test my iron was low, not deficient and not low enough for a doctor to comment. But lower than I want and I struggle to keep Ferritin half decent. I've never had good Ferritin. So how do you take your 3 Arrows Heme
It seemed to take a long time to arrive. But it's finally here. At my last blood test my iron was low, not deficient and not low enough for a doctor to comment. But lower than I want and I struggle to keep Ferritin half decent. I've never had good Ferritin. So how do you take your 3 Arrows Heme
FancyPants54
in
Thyroid UK
6 months ago
Back Pain after Chemo?
My wife recently started IV Carboplatin and she’s experienced excruciating lower back and hip pain for the first few days after her treatment (AUC6 dosing, once every 3 weeks). She has numerous pelvic metastases as well as chronic stenosis in her lower back. We’re struggling to try to determine whether
My wife recently started IV Carboplatin and she’s experienced excruciating lower back and hip pain for the first few days after her treatment (AUC6 dosing, once every 3 weeks). She has numerous pelvic metastases as well as chronic stenosis in her lower back. We’re struggling to try to determine whether
Half-Full
in
SHARE Metastatic Breast Cancer
8 months ago
SIBO/IMO investigations
Hello, community. I have a putative diagnosis of SIBO-IMO and would like to know of other people's recent experience of SIBO testing /investigations. Thank you. I'm new to this forum but have been on HU for many years. I have Lupus, Raynaud's, Erythromelalgia; IBS-c and Muscular Dystrophy (FSHD-1
Hello, community. I have a putative diagnosis of SIBO-IMO and would like to know of other people's recent experience of SIBO testing /investigations. Thank you. I'm new to this forum but have been on HU for many years. I have Lupus, Raynaud's, Erythromelalgia; IBS-c and Muscular Dystrophy (FSHD-1
skylark15
in
IBS Network
6 months ago
Constant Pain
Hi I have constant pain,and have had for some years now,stomach pain that is . I was told I had IBS,then Perineal pain,now I’m being told I have Diverticulosis. I don’t understand it whatsoever all I know is my stomach pain is getting worse,and hard to cope with. Quite honestly I don’t think the health
Hi I have constant pain,and have had for some years now,stomach pain that is . I was told I had IBS,then Perineal pain,now I’m being told I have Diverticulosis. I don’t understand it whatsoever all I know is my stomach pain is getting worse,and hard to cope with. Quite honestly I don’t think the health
Breathless1943
in
IBS Network
6 months ago
Bubbling sensations in the rectum area and very low gurgling sounds, has anyone had the same?
I have had blood tests and a colonoscopy. Everything is fine apart from high iron levels. But I was just wondering if anyone has had the same sensations/symptoms in the subject line? Any advice or reply from someone that has had the same symptoms would be appreciated. I have also just had a FIT test
I have had blood tests and a colonoscopy. Everything is fine apart from high iron levels. But I was just wondering if anyone has had the same sensations/symptoms in the subject line? Any advice or reply from someone that has had the same symptoms would be appreciated. I have also just had a FIT test
DavidT565
in
IBS Network
6 months ago
Thyroidectomy in Buckinghamshire or Oxfordshire?
Is there anyone on here who has had a partial or full thyroidectomy in Buckinghamshire or Oxfordshire who would be happy to share their experience, good or bad, and provide any tips/advice? Having had nodules for a number of years, one of mine increased in size in Jan 22. It has recently been categorised
Is there anyone on here who has had a partial or full thyroidectomy in Buckinghamshire or Oxfordshire who would be happy to share their experience, good or bad, and provide any tips/advice? Having had nodules for a number of years, one of mine increased in size in Jan 22. It has recently been categorised
Ali-Bucks
in
Thyroid UK
8 months ago
Ulcerative Colitis or Colon Cancer? (sorry for the nasty photos. 1 here & 1 below in reply!) (Couldn't figure out how to inc. 2 in my post)
I'm a 67 female with R.A. After several days having horrible cramping and gas and the strangest loose stool I have ever seen, my dr ordered two stool tests - the Fecal Occult Blood Immunochemical and the new test, the Microbiology Infectious Diarrhea Panel (which just came out two months ago and checks
I'm a 67 female with R.A. After several days having horrible cramping and gas and the strangest loose stool I have ever seen, my dr ordered two stool tests - the Fecal Occult Blood Immunochemical and the new test, the Microbiology Infectious Diarrhea Panel (which just came out two months ago and checks
12345Marie
in
Crohn's and Colitis Support
6 months ago
Megacolon
After a bowel impaction that started over 9 weeks ago and continual laxido /senna treatment and passding loads of motions ( and I mean loads !) I have been experiencing pain and gas all day. Last Tuesday because of this I stopped taking Laxido and stopped all laxitives completely but virtually every
After a bowel impaction that started over 9 weeks ago and continual laxido /senna treatment and passding loads of motions ( and I mean loads !) I have been experiencing pain and gas all day. Last Tuesday because of this I stopped taking Laxido and stopped all laxitives completely but virtually every
Shopnow1
in
IBS Network
6 months ago
Thrush but not a bird
I have been given the wrong dose of my inhaler for Asthma. Now have to use two puffs instead of one to obtain the same amount. Will this increase my sore throat and oral thrush burden ? It is something I struggle with. Nothing to be done until Monday. Any advice would be welcome.
I have been given the wrong dose of my inhaler for Asthma. Now have to use two puffs instead of one to obtain the same amount. Will this increase my sore throat and oral thrush burden ? It is something I struggle with. Nothing to be done until Monday. Any advice would be welcome.
Dottie11
in
Lung Conditions Community Forum
3 months ago
Gastroenterology tel appointment
Finally had my annual gastro appointment. It was a bad line and he talked very fast. Seemed like he was reading a script and was hardly listening to me as he had already made up his mind. He said all my tests were normal and I have IBS. I already know that! He said I have a healthy bowel. By now I
Finally had my annual gastro appointment. It was a bad line and he talked very fast. Seemed like he was reading a script and was hardly listening to me as he had already made up his mind. He said all my tests were normal and I have IBS. I already know that! He said I have a healthy bowel. By now I
Edgar77
in
IBS Network
6 months ago
microlax
As I have posted on here before I have had constipation for over 10 yrs and after a recent colonoscopy I was told there was no cancer but I had diverticulitis as well as IBS and there was still some blockages in my large and small bowel. I am now on holiday on a cruise and I am using one Microlax each
As I have posted on here before I have had constipation for over 10 yrs and after a recent colonoscopy I was told there was no cancer but I had diverticulitis as well as IBS and there was still some blockages in my large and small bowel. I am now on holiday on a cruise and I am using one Microlax each
Reindeer1
in
IBS Network
6 months ago
family problems
hello, I have big problems with my daughter and granddaughter who both are under the impression they are perfect and don’t believe anyone can have anxiety or IBS , they think it’s made up and I’ve frequently been told to pull myself together and stop making things up. It all started when there was a
hello, I have big problems with my daughter and granddaughter who both are under the impression they are perfect and don’t believe anyone can have anxiety or IBS , they think it’s made up and I’ve frequently been told to pull myself together and stop making things up. It all started when there was a
JBaird1952
in
Anxiety Support
3 months ago
mum update
hey all, I posted last week about mum requiring a biopsy re. 8cm lump to right ovary with surrounding. They discussed her again at mdt last week and the interventional radiology department decided it was too risky and she was referred for surgery. She met with her new consultant this morning as has
hey all, I posted last week about mum requiring a biopsy re. 8cm lump to right ovary with surrounding. They discussed her again at mdt last week and the interventional radiology department decided it was too risky and she was referred for surgery. She met with her new consultant this morning as has
Kerri1402
in
My Ovacome
8 months ago
Anxiety
Hey huma this side currently dealing with anxiety disorders and panic disorders too and im just 21 my life sucks because of This I want to live a normal life but I cant ever day everynight I deal with this im not financially good for treatment and therapy I want help how to overcome this literally help
Hey huma this side currently dealing with anxiety disorders and panic disorders too and im just 21 my life sucks because of This I want to live a normal life but I cant ever day everynight I deal with this im not financially good for treatment and therapy I want help how to overcome this literally help
Humafatima
in
Anxiety and Depression Support
3 months ago
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