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Options for PBC Itch?
Hello, I have had PBC for years with progressive itch. I am an "incomplete" responder to Urso and Ocaliva (on both). I take Cholestyramine but in the past year the itching has gotten significantly worse where I scratch all night, am scaring up my arms and legs and tear the dead dry skin off the soles
Hello, I have had PBC for years with progressive itch. I am an "incomplete" responder to Urso and Ocaliva (on both). I take Cholestyramine but in the past year the itching has gotten significantly worse where I scratch all night, am scaring up my arms and legs and tear the dead dry skin off the soles
Q8Cooper
in
PBC Foundation
2 years ago
Night sweats
My elective heart surgery went horribly wrong. First a stroke and then a junior doctor in the stroke unit wrongly deciding that I was allergic to blood thinners and putting me on a drip of Vitamin K. Not a good move after a mechanical valve transplant with blood clots a real possibility. After two months
My elective heart surgery went horribly wrong. First a stroke and then a junior doctor in the stroke unit wrongly deciding that I was allergic to blood thinners and putting me on a drip of Vitamin K. Not a good move after a mechanical valve transplant with blood clots a real possibility. After two months
Tickertalker
in
British Heart Foundation
2 years ago
What a week!
Went up to hospital for angioplasty stent to ensure
heart
was pumping like a racehorses for eventual double lung
transplant
. Bosh… STROKE on the trolly and before i know it left arm and leg weakened but more worrying is LEFT HEMIANOPIA , a 50% loss of vision.
Went up to hospital for angioplasty stent to ensure
heart
was pumping like a racehorses for eventual double lung
transplant
. Bosh… STROKE on the trolly and before i know it left arm and leg weakened but more worrying is LEFT HEMIANOPIA , a 50% loss of vision.
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
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Genetically modified pig heart transplanted to human
Article: https://www.reuters.com/markets/commodities/us-man-recovering-after-breakthrough-pig-
heart
-
transplant
-2022-01-10/ And on BBC: https://www.bbc.com/news/world-us-canada-59944889 A genetically modified pig heart was transplanted into a human who survived the operation.
Article: https://www.reuters.com/markets/commodities/us-man-recovering-after-breakthrough-pig-
heart
-
transplant
-2022-01-10/ And on BBC: https://www.bbc.com/news/world-us-canada-59944889 A genetically modified pig heart was transplanted into a human who survived the operation.
muffins7
in
British Liver Trust
2 years ago
Encouraging Progress
Encouraging Progress in Stem Cell Transplantation . . . https://news.asu.edu/20220512-designer-neurons-offer-new-hope-treatment-parkinsons-disease
Encouraging Progress in Stem Cell Transplantation . . . https://news.asu.edu/20220512-designer-neurons-offer-new-hope-treatment-parkinsons-disease
redhawk1
in
Cure Parkinson's
2 years ago
Me and my gizmo
I did a post yesterday about my open heart surgery and today this popped up - me with my gizmo - it is a spirometer which is linked by Bluetooth to my mobile telephone. I use it every other week t send test results to Nottingham City Hospital so that they can monitor my pulmonary fibrosis remotely.
I did a post yesterday about my open heart surgery and today this popped up - me with my gizmo - it is a spirometer which is linked by Bluetooth to my mobile telephone. I use it every other week t send test results to Nottingham City Hospital so that they can monitor my pulmonary fibrosis remotely.
Oxygeniser
in
Lung Conditions Community Forum
2 years ago
Open Heart Surgery, (OHS) General Comments 2
4 weeks post redo AVR. I thought this information might be helpful to others in a similar place. I was noticing and getting a bit concerned about some increase in pain in and around the wound site and in the intercostal muscles. My cardiac event follow up nurse pointed out that this is a common experience
4 weeks post redo AVR. I thought this information might be helpful to others in a similar place. I was noticing and getting a bit concerned about some increase in pain in and around the wound site and in the intercostal muscles. My cardiac event follow up nurse pointed out that this is a common experience
mcmaccy
in
British Heart Foundation
2 years ago
How my idiopathic pulmonary fibrosis diagnosis in 2015 led to open heart surgery five years ago today
I have done a podcast type post today about the above, together with copies of blogposts prior to, and after, my open heart surgery, which I did in February and April 2017. I hope some of you may find of interest. Regards Robert https://paperbagstories.substack.com/ It talking bit was unscripted and
I have done a podcast type post today about the above, together with copies of blogposts prior to, and after, my open heart surgery, which I did in February and April 2017. I hope some of you may find of interest. Regards Robert https://paperbagstories.substack.com/ It talking bit was unscripted and
Oxygeniser
in
Lung Conditions Community Forum
2 years ago
Newly diagnosed
Hi everyone I've just been diagnosed with Afib following a 24 hour Holter monitor I had done in early December last year. The results only came back last week. Actually, the cardiologist's letter says the trace showed 1. Paroxysmal Afib 2. Atrial flutter 3. 4 short runs of VT which the cardiologist
Hi everyone I've just been diagnosed with Afib following a 24 hour Holter monitor I had done in early December last year. The results only came back last week. Actually, the cardiologist's letter says the trace showed 1. Paroxysmal Afib 2. Atrial flutter 3. 4 short runs of VT which the cardiologist
vlc2
in
AF Association
2 years ago
Holiday Insurance
Hello, I am looking to get holiday insurance to Greece following a liver transplant in September 2020. I have contacted a number of recommended insurers and am shocked at the variation in price for similar cover. For a 10 day cover, this has ranged from £550 to £1300! I am happy to give anyone who is
Hello, I am looking to get holiday insurance to Greece following a liver transplant in September 2020. I have contacted a number of recommended insurers and am shocked at the variation in price for similar cover. For a 10 day cover, this has ranged from £550 to £1300! I am happy to give anyone who is
Chasdog
in
British Liver Trust
2 years ago
Join us for our next online supporter event, celebrating 60 years of BHF-funded research
We’re also delighted to be hearing from
heart
transplant
patient and now successful barrister, Mary Poku, who Professor Yacoub operated on. Mary will be sharing her personal experience of
heart
transplant
36 years post-surgery.
We’re also delighted to be hearing from
heart
transplant
patient and now successful barrister, Mary Poku, who Professor Yacoub operated on. Mary will be sharing her personal experience of
heart
transplant
36 years post-surgery.
Helen_BHF
Partner
in
British Heart Foundation
3 years ago
To do KT or not?
To those of you that has had a kidney transplant, do you think it is worth to do it, given all the possible complications and the high risk of developing cancer by taking immunosuppressants ? I am contemplating on undergoing pre- emptive KT but with of these possibilities , I am so nervous. Thanks
To those of you that has had a kidney transplant, do you think it is worth to do it, given all the possible complications and the high risk of developing cancer by taking immunosuppressants ? I am contemplating on undergoing pre- emptive KT but with of these possibilities , I am so nervous. Thanks
Dina0210
in
Kidney Disease
2 years ago
Apixaban subconjunctival haemorrhage
After taking Apixaban for about three weeks I have a very red left eye; it looks like a subconjunctival haemorrhage is on the way. This is the third time that this has happened after taking an anticoagulant; the three weeks is the longest period I have managed without this occurring. I have read that
After taking Apixaban for about three weeks I have a very red left eye; it looks like a subconjunctival haemorrhage is on the way. This is the third time that this has happened after taking an anticoagulant; the three weeks is the longest period I have managed without this occurring. I have read that
Hidden
in
AF Association
2 years ago
Sudden dull ache.
Hi, I had a heart attack and a stent fitted almost 6 months ago. I had my heart clinic follow up in October and have a follow up consult with the cardiac surgery team in a week or so. I also have a Drs. telephone consult next week. The only lingering thing i have had since my stent had been shortness
Hi, I had a heart attack and a stent fitted almost 6 months ago. I had my heart clinic follow up in October and have a follow up consult with the cardiac surgery team in a week or so. I also have a Drs. telephone consult next week. The only lingering thing i have had since my stent had been shortness
stef2504
in
British Heart Foundation
2 years ago
Spring Covid booster this Spring.
I have a mechanical Aortic valve replacement and therefore on Warfarin. I have AF which began shortly after open heart surgery which took place 7 years ago. Is it a GP decision if I should have the extra spring booster...? No one in my surgery has said I am vulnerable. With Covid restrictions being
I have a mechanical Aortic valve replacement and therefore on Warfarin. I have AF which began shortly after open heart surgery which took place 7 years ago. Is it a GP decision if I should have the extra spring booster...? No one in my surgery has said I am vulnerable. With Covid restrictions being
Suzy61Taylor
in
British Heart Foundation
2 years ago
Severe, 45-minute long leg cramps
When I'm falling asleep, I get terrible leg cramps where both the extending and the contracting leg muscles freeze for about 45 min. until my muscles "remember" where they belong. And then and only then I can put my foot on the floor. I'm scheduled for a kidney transplant and hoping that the cramps will
When I'm falling asleep, I get terrible leg cramps where both the extending and the contracting leg muscles freeze for about 45 min. until my muscles "remember" where they belong. And then and only then I can put my foot on the floor. I'm scheduled for a kidney transplant and hoping that the cramps will
PurpleKatisha
in
Kidney Disease
2 years ago
His broken heart
My husband of 42 years is very sick. He has an infection in his heart internal bleeding they cannot locate, he will be getting a double aortic bypass, and aortic valve replacement. He has uncontrollable type 2 diabetes, Parkinson’s disease. He’s a terrible patient. I’m trying to help him he’s too much
My husband of 42 years is very sick. He has an infection in his heart internal bleeding they cannot locate, he will be getting a double aortic bypass, and aortic valve replacement. He has uncontrollable type 2 diabetes, Parkinson’s disease. He’s a terrible patient. I’m trying to help him he’s too much
NanaCC
in
My MSAA Community
2 years ago
Diet and AF
I had been suffering from AF in various forms, latterly persistent, for about 15 years. I had Mitral and Aortic Valve replacement surgery 10 years ago and two weeks ago I had Catheter Ablation. I have been in Sinus and feeling good since my Ablation, until last night. I woke at about 3am in AF.
I had been suffering from AF in various forms, latterly persistent, for about 15 years. I had Mitral and Aortic Valve replacement surgery 10 years ago and two weeks ago I had Catheter Ablation. I have been in Sinus and feeling good since my Ablation, until last night. I woke at about 3am in AF.
redpasta
in
Atrial Fibrillation Support
2 years ago
Recuperation
Hi I had a qaudruple heart bypass on 03 December 2021, it's now almost twelve weeks since the surgery and I feel fit and well. I walk regularly between 12,000 to 15,000 steps each day. I'd like to start playing double tennis again, but I'm a little concerned how it might affect my sternum. Is there
Hi I had a qaudruple heart bypass on 03 December 2021, it's now almost twelve weeks since the surgery and I feel fit and well. I walk regularly between 12,000 to 15,000 steps each day. I'd like to start playing double tennis again, but I'm a little concerned how it might affect my sternum. Is there
BessieMartha
in
British Heart Foundation
2 years ago
Covid safety rules to stop !
Had enough now ! feel like myself as RA Imunecompromised and my husband severe Immunecompromised Kidney transplant will never get our life back or be safe ! Boris knows there are still vulnerable and exstremely vulnerable people they are a disgrace and act as if everyone is ok !!!
Had enough now ! feel like myself as RA Imunecompromised and my husband severe Immunecompromised Kidney transplant will never get our life back or be safe ! Boris knows there are still vulnerable and exstremely vulnerable people they are a disgrace and act as if everyone is ok !!!
trace58
in
NRAS
2 years ago
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