Just a quicky. I joined the BHF forum recently to see if I could get help, support and info from there about the mitral valve stuff but Ive been shocked at seeing some of the venomous responses some peeps have had to, what I consider, legitimate questions. One lady in particular was attacked because she was posting on behalf of her husband, even though she explained that she was doing do as he'd had bypass surgery and was still a bit traumatised by it all.
So, does anyone know how I can delete that forum without closing down this one as well? I did look at the help section but to no avail.
Merci
Ang 😊
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Ducky2003
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I know exactly what you mean about that forum Ang. Go into the website and at the top right of the page you will see a tick and then Write. Click on the tick and that's it you'll be free!
Thanks Jean. I'll give it a whirl. I've never seen such toxic behaviour on what is supposed to be a support group.I was so incensed I replied to one of the nasties saying I was shocked at the behaviour especially after being a member of this forum, where 99% of the time, everyone plays nicely and is so helpful and supportive and I was going to exit the group and leave them to it.
His response was "Bye bye 👋"
I couldn't let him have the last word so I just said
"Your parents must be so proud"
I don't understand why people have to be such gits.
Bad luck John, you don't get rid of me that easily. I'm like that stubborn verruca that you think has disappeared but then comes back to pee you off a bit more 🤣.I was just appalled by it and someone else had mentioned that a few people had left recently as they were so upset with the way the forum was going.
Jean's instructions seem to have worked so they are banished from my hub.
Can’t believe their admin doesn’t delete these posts Ducky. They do on this forum. But if you’re vulnerable (which you are on any site like this), and looking for help, and get that kind of reply, you’re going to feel awful, and wonder where to turn next. That’s shocking.
Agree with you. Strange people around ! I joined it briefly some time ago but left as I wasn't impressed. Going back even further I was similarly unimpressed when I approached one of the BHF nurses (?) for advice and was made to feel like a bit of an idiot (moi ??!)
😁. In fairness, I did contact the BHF once when the AF monster came to town and they were quite helpful.But, yes, there's some spiteful idiots about.....I'm being polite about what I really think about them 😁.
I noticed those posts too, and like you I don’t understand folk being so combative! Jumping to the wrong conclusions etc. I hadn’t noticed that it was that forum in particular, but will keep a look out and leave it if I find it too awful!
It seems that conversations go unmonitored at weekends and get out of hand. It may get looked at tomorrow if anyone has reported it but by then the damage has been done.
I have to confess that I was patient representative on the BHF committee which trialled and sponsored the first 33 arrhythmia nurse positions in UK. It was all very friendly back then but I was never involved with the forum as AFA was formed in 2007 just as the project came to a conclusion and I swapped ships as it were.
I know we occasionally have a few spats here but they are very few and far between which I think is due to the excellent admin people we have who jump on any reported problems. I have not visited the BHF forum so can't comment further.
Sorry about your experience. I never understood the venom in some of the health forums where sick people are supposed to be supporting and helping other sick people. I was stuck in one non-afib forum years ago full of ad hominem attacks because it was the only place to go for information. Brutal at times. Fortunately the people here are nice and supportive except for an odd off post.
Its lucky that, although I'm a lass, I have a pair of balls so could happily stand my own corner, but I felt so sorry for the lady being bullied. By all accounts, it's the same few on the prowl for victims on there. Sad that they haven't got something more productive to do with their lives.
There’s always a few - we’ve had them on here from time to time. You weren’t around when a couple old bats complained about the quality of spelling and English grammar on the forum. And I was trolled on the asthma forum because I made what was meant to be an encouraging remark to someone who was complaining about her change of meds - warning, do not ever try to change the tone of a pity party 😬 I’m disappointed because I hadn’t seen that sort of behaviour on the BHF forum but then I seldom visit. Sadly, as we oldies know only too well, it only takes a couple of people to create a toxic atmosphere.
So agree about that forum - I was banned from posting so I had no problems - if you don’t agree with a handful of so called ‘respected’ poster you are vilified! One even followed me to this forum. I’ve never seen such vitriol gone un censored!
That's awful! What a no - lifer!I think this forum is one of the nicest where in between the serious posts which engender lots of support, we can have a good laugh too ( laughing with and not at).
It is such a shame when people are not supportive. That is ultimately what this forum and other health forums (fora?) are formed. I suppose it might be explained by the fact that people on them are not well themselves and might be struggling. They are really railing against the world and their lot. They feel they have to take it out on someone and taking it out on someone wholly unconnected with them has no consequences for them.
Supported someone who was asking about Dr Malcom McKendrick - The Statin Myth - to a new member who wasn’t treated nicely - evidently he is known as the Devil’s Spawn on that site and I cannot tell you how nasty and upsetting it was.
Challenges about medications and Dr knows best attitudes just were not tolerated.
I think there is a whole bunch of people who dare not say much so tends to be same few people posting, unless you have a very thick skin or are new. As you know I’m not afraid of expressing opinion but hopefully in a balanced and respectful way.
I did rejoin after 6 months but nowadays just glance at the titles because it is geared very much to those with CVD and some of the info on arrythmias seemed a bit out of date.
I have to say though that the BHF were there for me when I was first diagnosed and I hadn’t yet found the Arrythmia Alliance.
I was so lucky as this forum was the only one I joined and didn't try any others. I have learned so much here that enabled me to leave the really scared stage after being diagnosed with AF and graduating to understanding a lot more about it. Nowadays I cope a whole lot better and don't panic or worry. All thanks to the kind folks here. Love your posts Ducky and the other folks with their occasional comical and uplifting ones. Thank you.😊💖
I’m totally shocked! How can some people be so uncaring and downright nasty? Definitely exit from that one Ducky. We welcome and look forward to your posts here 🤗
I had a similar experience. I asked a question about covid. vaccine for a friend with Potts. I got a couple of people who were not in favour of the vaccine answering. When I said I appreciated their response but would prefer replies from those who had Potts and who had been given medical advice on the topic, I got some vicious responses. I complained to admin and they removed the post.
Ok I’m the dummy here. What’s BHF? It seems like peoples fuses are getting shorter and shorter these days in general and it’s such a shame! Sorry you experienced it!
Thanks for asking this question Ducky, and thanks Jean for answering it One day I joined too many communities, just to see if they would be a help for my health problems. Of course for the life of me, I then could not figure out how to leave the groups I didn't need to be in, until today! Thanks you two, you've made my day 😀
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One day I joined too many communities, just to see if they would be a help for my health problems. Of course for the life of me, I then could not figure out how to leave the groups I didn't need to be in, until today! Thanks you two, you've made my day 😀
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