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CoQ10 dosage and when to take ?
I have CLL and my hematologist approved CoQ10. CoQ10 is recommended in Mayo litererature, for those with no counter-indications. But I lack good information about how many mg CoQ10 that I could ingest daily, and when to take the cap or caps . Thus, I would appreciate guidance. Also suggestions
I have CLL and my hematologist approved CoQ10. CoQ10 is recommended in Mayo litererature, for those with no counter-indications. But I lack good information about how many mg CoQ10 that I could ingest daily, and when to take the cap or caps . Thus, I would appreciate guidance. Also suggestions
janvog
in
CLL Support
2 years ago
Losing weight while on steroids
Hi all , I had a lung transplant 5 years ago and have been on dual anti rejection meds of prednisolone and cyclosporin. I'm on 8mg of steroids daily I also have gastropharesis. I have put 3 stone on in 3 years and my consultant has told me I am to lose weight as its putting pressure on my only one
Hi all , I had a lung transplant 5 years ago and have been on dual anti rejection meds of prednisolone and cyclosporin. I'm on 8mg of steroids daily I also have gastropharesis. I have put 3 stone on in 3 years and my consultant has told me I am to lose weight as its putting pressure on my only one
Hidden
in
Lung Conditions Community Forum
2 years ago
Help for my sister
My sister is on the transplant list in Birmingham, AL but every live donor who has came forward has been rejected and she hasn't received one call from the Transplant Center for a deceased donor. My 3 brothers and I all have received deceased donor kidney transplants but live in KY. My sister will
My sister is on the transplant list in Birmingham, AL but every live donor who has came forward has been rejected and she hasn't received one call from the Transplant Center for a deceased donor. My 3 brothers and I all have received deceased donor kidney transplants but live in KY. My sister will
bowlingpkd
in
Kidney Transplant
2 years ago
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Hyperparathyroidism diagnosis plz help!
Hi Everyone, I had my kidney transplant 8months ago after being on dialysis for almost 6years. My dr. Just told me I have a severe hyperparathyroidism and that’s mainly because I was on dialysis for so long. He prescribed Cinacalcet to be taking once a day. My question is did anyone of you experienced
Hi Everyone, I had my kidney transplant 8months ago after being on dialysis for almost 6years. My dr. Just told me I have a severe hyperparathyroidism and that’s mainly because I was on dialysis for so long. He prescribed Cinacalcet to be taking once a day. My question is did anyone of you experienced
Tuna14
in
Kidney Transplant
2 years ago
When to Stop Beta Blockers
Hi All - I’m wondering if the beta blockers I’m taking are doing more harm than good? I had never taken beta blockers (I’m now taking metoprolol 25 mg once a day) before my ablation, but after my ablation they were prescribed for the week following. Unfortunately I never felt comfortable not taking them
Hi All - I’m wondering if the beta blockers I’m taking are doing more harm than good? I had never taken beta blockers (I’m now taking metoprolol 25 mg once a day) before my ablation, but after my ablation they were prescribed for the week following. Unfortunately I never felt comfortable not taking them
Dogluvr95
in
AF Association
2 years ago
Is this angina?
Hi all, I was diagnosed with afib 3 years ago and have mentioned to several medics (cardiologists, arrhythmia nurses) that I occasionally had slight heart aches when exercising or stressed, but none of them seem concerned. Afib does not seem to be related to heart pain - so I'm not sure whether the
Hi all, I was diagnosed with afib 3 years ago and have mentioned to several medics (cardiologists, arrhythmia nurses) that I occasionally had slight heart aches when exercising or stressed, but none of them seem concerned. Afib does not seem to be related to heart pain - so I'm not sure whether the
Barny12
in
AF Association
2 years ago
Safe INR level for Ablation?
I am one week from my first cyro ablation and my blood INR is 1.2. Most recommend a value between 2.0 and 3.0. What are folks' knowledge and experience in this area? Might I be canceled as, according to these numbers from today's tests, the Pradaxa hasn't thinned my blood much. Are these the cases where
I am one week from my first cyro ablation and my blood INR is 1.2. Most recommend a value between 2.0 and 3.0. What are folks' knowledge and experience in this area? Might I be canceled as, according to these numbers from today's tests, the Pradaxa hasn't thinned my blood much. Are these the cases where
willec49
in
AF Association
2 years ago
1 month out from RF ablation for asymptomatic afib
Hi. I was diagnosed with afib in late 2019 at age 66 and put on an anti-coag and sotalol. I was in and out of afib quite regularly but rarely symptomatic. Three cardioversions failed to restore normal sinus rhythm (NSR) for any real length of time, so ablations were suggested (I live in the US.) Since
Hi. I was diagnosed with afib in late 2019 at age 66 and put on an anti-coag and sotalol. I was in and out of afib quite regularly but rarely symptomatic. Three cardioversions failed to restore normal sinus rhythm (NSR) for any real length of time, so ablations were suggested (I live in the US.) Since
nmack
in
Atrial Fibrillation Support
2 years ago
Edoxaban causing breathlessness?
Does anyone else get this issue? I was put on this medication in August. Came off Apixaban for same issue. I get it late morning then teatime. It is getting less severe as I recover from a long series of chest infections. I have been diagnosed as having ‘flutter’ which can bring on AF. I await an ablation
Does anyone else get this issue? I was put on this medication in August. Came off Apixaban for same issue. I get it late morning then teatime. It is getting less severe as I recover from a long series of chest infections. I have been diagnosed as having ‘flutter’ which can bring on AF. I await an ablation
Kenbat
in
AF Association
2 years ago
8 days post ablation
What a week?! I had an RF ablation at the start of last week but felt, what I thought, was excessive pain in my chest (particularly when lying on my back) 2/3 days after but just stuck with it thinking it was a standard recovery symptom for RF as I’d only had cryo done before. However on Thursday night
What a week?! I had an RF ablation at the start of last week but felt, what I thought, was excessive pain in my chest (particularly when lying on my back) 2/3 days after but just stuck with it thinking it was a standard recovery symptom for RF as I’d only had cryo done before. However on Thursday night
Safc1983
in
AF Association
2 years ago
Dad Airlifted back to Mayo Clinic W/ Covid Complications, After Kidney Transplant And Mother is in a downward spiral, "Self Medicating"
Sorry guy's I really need to vent. I live in different states from my dad and family and can't see him right now because of the restrictions. Today My dad got Airlifted to Arizona for covid related complications. A little over a Month ago things were totally different after him being on dialysis for
Sorry guy's I really need to vent. I live in different states from my dad and family and can't see him right now because of the restrictions. Today My dad got Airlifted to Arizona for covid related complications. A little over a Month ago things were totally different after him being on dialysis for
Luna_Love143
in
Anxiety and Depression Support
2 years ago
body wash after heart surgery returning home ..?
Hiya maybe a silly question but will my son need a antibacterial , unperfumed or other type of wash to keep scar healthy and free from infection at home after his aortic valve replacement and any other things you might need to help recovery . Thank you hope you are all well
Hiya maybe a silly question but will my son need a antibacterial , unperfumed or other type of wash to keep scar healthy and free from infection at home after his aortic valve replacement and any other things you might need to help recovery . Thank you hope you are all well
G345
in
British Heart Foundation
2 years ago
Anxiety over NHS heart attack radio adverts
Is anyone else’s health anxiety getting worse after these NHS heart attack early warning adverts? I feel like how they describe all the time! And lately I’ve been getting all those symptoms every few hours, every day - hard beats, chest pain/tightness, left sided jaw, shoulder, neck, arm ache. The works
Is anyone else’s health anxiety getting worse after these NHS heart attack early warning adverts? I feel like how they describe all the time! And lately I’ve been getting all those symptoms every few hours, every day - hard beats, chest pain/tightness, left sided jaw, shoulder, neck, arm ache. The works
SVR28
in
Anxiety Support
2 years ago
Chest Pain, fear of heart attack.
Hi, I’m 20 year old man. I’ve suffered with anxiety a while but like don’t want to blow this off to it but it could be. So I had this sudden crushing chest pain 2 days ago, went into instant panic attack. Sat down with my mum and could talk and walk around but was fearing I was having a heart attack.
Hi, I’m 20 year old man. I’ve suffered with anxiety a while but like don’t want to blow this off to it but it could be. So I had this sudden crushing chest pain 2 days ago, went into instant panic attack. Sat down with my mum and could talk and walk around but was fearing I was having a heart attack.
Dshadzz07
in
Pain Concern
2 years ago
Bone marrow transplant
Hello, I am 60 years old. I have been struggling with AMN for over 35 years. I am wheelchair bound, but can still stand. My symptoms have been stable for many years. In a few weeks, I will be getting my first MRI in 30 years. I am afraid if the results are poor, I will have to get bone marrow transplant
Hello, I am 60 years old. I have been struggling with AMN for over 35 years. I am wheelchair bound, but can still stand. My symptoms have been stable for many years. In a few weeks, I will be getting my first MRI in 30 years. I am afraid if the results are poor, I will have to get bone marrow transplant
HenryW
in
AMN EASIER
2 years ago
Moaning post re heart treatment
Hi folk - this is going to be a moan post so feel free to pass by! I am an ACHD patient (diagnosed 3 years ago ages 68) with a fenestrated Atrial septum which is quite large 1.8cm x 0.8cm with a couple of cross-bands. I am having a cardiac cathertisation on Thursday to check the pressures etc and see
Hi folk - this is going to be a moan post so feel free to pass by! I am an ACHD patient (diagnosed 3 years ago ages 68) with a fenestrated Atrial septum which is quite large 1.8cm x 0.8cm with a couple of cross-bands. I am having a cardiac cathertisation on Thursday to check the pressures etc and see
Digger0
in
British Heart Foundation
2 years ago
Join us for our next online supporter event, celebrating 60 years of BHF-funded research
We’re also delighted to be hearing from
heart
transplant
patient and now successful barrister, Mary Poku, who Professor Yacoub operated on. Mary will be sharing her personal experience of
heart
transplant
36 years post-surgery.
We’re also delighted to be hearing from
heart
transplant
patient and now successful barrister, Mary Poku, who Professor Yacoub operated on. Mary will be sharing her personal experience of
heart
transplant
36 years post-surgery.
Helen_BHF
Partner
in
British Heart Foundation
3 years ago
Is AF a disability
Hi everyone hope you are ticking along nicely. The question i have is why is afib not classed as a disability?? I am desperate to go back to work but I'm struggling with the tachycardia my pulse is between 90 to 140 bmp it makes me so breathless and dizzy can't seem to function with every day life never
Hi everyone hope you are ticking along nicely. The question i have is why is afib not classed as a disability?? I am desperate to go back to work but I'm struggling with the tachycardia my pulse is between 90 to 140 bmp it makes me so breathless and dizzy can't seem to function with every day life never
Rachelanx50
in
AF Association
2 years ago
Transplant assessment
Hi been here nrly a yr reading your posts, thanks. Bit of background partner has had cirrhosis for quite a few yrs, 'normal life' full time job , few cans every night. Regular scans showed a tumour . Ablation May 2020 successful. In Leeds. Back to normal life ' work still drinking beer' not seen by
Hi been here nrly a yr reading your posts, thanks. Bit of background partner has had cirrhosis for quite a few yrs, 'normal life' full time job , few cans every night. Regular scans showed a tumour . Ablation May 2020 successful. In Leeds. Back to normal life ' work still drinking beer' not seen by
Arms-1
in
British Liver Trust
2 years ago
Support
Hi my husband has just had a liver transplant and is due home tomorrow, I’m beginning to get stressed and panicked as to how to look after him properly could anyone please give me some advice or guidance, thank you
Hi my husband has just had a liver transplant and is due home tomorrow, I’m beginning to get stressed and panicked as to how to look after him properly could anyone please give me some advice or guidance, thank you
Osgoodblue
in
British Liver Trust
2 years ago
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