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29 public communities
Kidney Transplant
3,535 members
Welcome to the National Kidney Foundation's Transplant Community! Whether you have had a transplant, are waiting for a transplant, or are a family/friend/caregiver, here you will find a safe and supportive space where you can share your experiences, ask questions, and get answers that are accurate and up to date. Fueled by passion and urgency, NKF is a lifeline for all people affected by kidney disease. As pioneers of scientific research and innovation, NKF focuses on the whole patient through the lens of kidney health. Relentless in our work, we enhance lives through action, education and accelerating change.
Sudden Cardiac Arrest & Heart Attack
2,213 members
We are a peer support community for sudden cardiac arrest and heart attack survivors. Join to talk about cardiac rehab, lifestyle changes, heart healthy lifestyle, and heart-related news - everyone is welcome!
National Foundation for Transplants
300 members
At the National Foundation for Transplants, our goal is to ensure that transplant patients are given every opportunity to fully enjoy the gift of life. Since 1983, NFT has offered fundraising support and expertise to transplant patients across the country. In that time, we have helped generate nearly $65 million to assist patients in need.
British Heart Foundation
49,992 members
We are the British Heart Foundation (BHF), the largest independent funder of cardiovascular research. We fund research into life saving cures to beat heart disease, stroke and vascular dementia, and stop conditions like diabetes from causing them, to help people and families live longer, better lives. Over the years, our pioneering research has helped to transform the lives of people living with heart and circulatory conditions. As well funding ground-breaking research, we’re here to support people affected by heart and circulatory diseases and their risk factors. So whether you're living with a heart or circulatory disease, or just want to find out more about them, this is the place to be. If you have any questions or concerns, and would like to speak with one of our cardiac nurses, please do contact our Heart Helpline team on 0300 330 3311 Mon-Fri 9-5pm or email hearthelpline@bhf.org.uk This community is moderated by HU_Moderator
Heart Valve Voice
346 members
Heart Valve Voice is the UK's dedicated heart valve disease charity. Heart Valve Voice is a collection of people with real experiences of heart valve disease, including a multi-disciplinary group of experts in the field (cardiologists, cardiac surgeons, GPs), cardiac patient societies and, most importantly, patients. We work with patients and clinicians to help increase the awareness of heart valve disease in the UK and improve diagnosis and treatment. Heart valve disease affects over 1.5 million people over the age of 65 in the UK and while there have been many advancements in the treatment of this disease the unfortunate fact is that far too many people are not being diagnosed and treated early enough. As a patient organisation, the power of our voice comes from the lived experiences of our patient community. Their stories are our lifeblood, and we use those experiences to affect change for future valve disease patients. Our community is a place where people can share their experiences, support each other and learn about heart valve disease treatment. You can read some of our heart valve disease stories here <https://heartvalvevoice.com/heart-valve-disease/stories> Our aim is to ensure that more of the population is aware of the importance of having their heart checked for heart valve disease, which can often be detected through a simple stethoscope check. With increased awareness, we hope to see many more heart valve disease patients get the treatment they need to go on to live full and happy lives.
Kidney Transplant Patient Support
1,318 members
Welcome to our community! We are a group of people all affected by kidney transplants looking to share information and support.
Heart Failure Support
808 members
We are an international charity working to support early diagnosis and improve outcomes for heart failure patients and carers worldwide. Please share your experiences below or give us a call on +44 (0)1789 867 501 if you would like further info or advice on arrhythmia care and treatments. We are here to help.
No Smoking Day
5,215 members
The 'No Smoking Day' community inspires and helps smokers who want to quit, and is supported by an alliance of UK health bodies and charities. One in five UK adults smoke, doubling their risk of heart attack and stroke. Stopping smoking is the single best thing you can do for your heart health, and the risk to heart health decreases significantly soon after stopping.
Unsalted Heart
523 members
Being heart healthy is more than just watching Saturated and Trans fats. If you have too much sodium/salt in your diet, it can continue to put you at risk for heart disease. Join the conversation to learn more!
PBCers Organization
1,398 members
PBCers Organization is a community dedicated to providing reliable primary biliary cholangitis (PBC) information and offer support to its members. Topics discussed include symptoms, medication, diet, personal experiences, transplant and anything else PBC related.
Nutrition and Yoga for Health
1,351 members
Holistic health pioneer, yoga teacher and author, Ciara Jean Robert brings you this community. Her wish is to share with you helpful tools on your own unique journey. With a previous background in credit risk, banking, Ciara understands the stresses that can partner corporate life, She successfully transitioned 10 years ago to running her own business, Wholly Aligned. That transition was prompted by her precious first kidney transplant beginning to move through a rejection process and eventual failure. Using nutrition, yoga and inspiring story she has gathered through her own lived experience with her kidneys, she wishes to help you awaken your inner physician. Dwell in all possibilities. Ciara received the gift of a second kidney transplant in October 2019. And is currently embarked inward writing Book 2. Weaving in the incredible experiences of healing and integration, from the impact our words carry, to the influence the quality of breath has on how we feel, to hw a deeply embodied sense of being, is truly what opens up one's mind to the magic of life. Being alive. In sacred recalibration. She is a qualified Naturopathic Nutritional Therapist, a highly experienced yoga professional and writer. And also a big hearted human with an absolute love of life. Live your life each and every day. Dream big, live hopefully. Sign up to her mailing list and learn more on her website in the contact detail section.
Heart Rhythm Disorders Support
6,755 members
We are an international charity working to support early diagnosis and improve outcomes for arrhythmia patients and carers worldwide. Please share your experiences below or give us a call on +44 (0)1789 867 501 if you would like further info or advice on arrhythmia care and treatments. We are here to help.
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