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Peginterferon side effects!
Hi all, I have ET Jak2+ since 2021 and have been injecting 45mg Peginterferon weekly for 6 months and doing relatively ok until just recently. I now am experiencing severe aching arms and legs radiating down from my neck to my knees. It is so bad that I have to take pain killers daily. My blood pressure
Hi all, I have ET Jak2+ since 2021 and have been injecting 45mg Peginterferon weekly for 6 months and doing relatively ok until just recently. I now am experiencing severe aching arms and legs radiating down from my neck to my knees. It is so bad that I have to take pain killers daily. My blood pressure
Fairbank
in
MPN Voice
1 year ago
Fatty pad atrophy (ball of foot)
Hello, I am hoping there might be someone here who has experience of coping with fatty pad atrophy. I have recently been told by a podiatrist that this is the cause of the pain in the balls of my feet. I feel like I'm walking on my bones and have nerve pain due to the reduction in the fatty pad.
Hello, I am hoping there might be someone here who has experience of coping with fatty pad atrophy. I have recently been told by a podiatrist that this is the cause of the pain in the balls of my feet. I feel like I'm walking on my bones and have nerve pain due to the reduction in the fatty pad.
Dorunrun61
Graduate
in
Couch to 5K
1 year ago
Laparoscopy - when do you know if it's worked? Will I have pain free days in my recovery? I'm 6 weeks after Op.
I feel so lost as wasn't expecting the diagnosis and now trying to get my
head
round being in
pain
for the rest of my life for something there is no cure for. Any advice would be greatly appreciated, thank you!
I feel so lost as wasn't expecting the diagnosis and now trying to get my
head
round being in
pain
for the rest of my life for something there is no cure for. Any advice would be greatly appreciated, thank you!
Cheesycat
in
Endometriosis UK
2 months ago
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Off topic maybe.
Having a conversation about holidays with hubby this morning. With everything that's been going on with me it's been a no no since October. The sulfasalazine, 3rd med Ive tried, is killing my sleep. Im stopping it for a few days to see if sleep returns. I'm a walking zombie! Hubby, Garry, says he doesn't
Having a conversation about holidays with hubby this morning. With everything that's been going on with me it's been a no no since October. The sulfasalazine, 3rd med Ive tried, is killing my sleep. Im stopping it for a few days to see if sleep returns. I'm a walking zombie! Hubby, Garry, says he doesn't
Haz58
in
NRAS
1 year ago
Help I don’t understand
So for the last 4 months I’ve been having
pain
in my muscles and
head
as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil.
So for the last 4 months I’ve been having
pain
in my muscles and
head
as well as tingling and a burning sensation. Also extreme fatigue and a red rash on my cheeks and trouble swallowing.My doctor gave me prednisone to treat because crp and esr were high. She also started me on plaquenil.
Jadaboo4
in
LUPUS UK
1 month ago
Alternating meds
I wonder if anyone else has experience with a RLS therapy method of alternating .375 mg Pramipexole and Methadone 20-30 mg every 10 days? I also use marijuana which helps maybe 40% for about an hour. My case is very severe with many previous pharmacologic failures including Alpha 2 Ligands, Buprenorphine
I wonder if anyone else has experience with a RLS therapy method of alternating .375 mg Pramipexole and Methadone 20-30 mg every 10 days? I also use marijuana which helps maybe 40% for about an hour. My case is very severe with many previous pharmacologic failures including Alpha 2 Ligands, Buprenorphine
WelbyB
in
Restless Legs Syndrome
1 year ago
lap yesterday!
5 years and yesterday finally got the answers for my pain. Endometriosis found. My surgeon also mentioned adhesions? And my appendix was fused to scar tissue. Just wondering if anyone else has had this? What a mix of emotions I’m feeling today. It wasn’t just a bad period, can painkillers keep the pain
5 years and yesterday finally got the answers for my pain. Endometriosis found. My surgeon also mentioned adhesions? And my appendix was fused to scar tissue. Just wondering if anyone else has had this? What a mix of emotions I’m feeling today. It wasn’t just a bad period, can painkillers keep the pain
JAJ27
in
Endometriosis UK
1 year ago
Painkillers and afib
What painkillers are best suited to us afiiibbers? I recently took paracetamol and it turned my heartbeat irregular and fast ...although I think it may of been the caffeine in them I have bad toothache and taking antibiotics but so far have gone without painkillers for fear of having a af attack Any
What painkillers are best suited to us afiiibbers? I recently took paracetamol and it turned my heartbeat irregular and fast ...although I think it may of been the caffeine in them I have bad toothache and taking antibiotics but so far have gone without painkillers for fear of having a af attack Any
Sunnyann
in
AF Association
1 year ago
GCA question
My question is, does anyone else with GCA get a
pain
like feeling in their
head
and a feeling that something is wrong or going to happen. The feeling only lasts several seconds but it is unnerving. I think about a stroke when this happens. I am thinking of going back to a neurologist.
My question is, does anyone else with GCA get a
pain
like feeling in their
head
and a feeling that something is wrong or going to happen. The feeling only lasts several seconds but it is unnerving. I think about a stroke when this happens. I am thinking of going back to a neurologist.
Plains
in
PMRGCAuk
2 months ago
Headaches
Hello, I'm really fed up today. I've been getting headaches, the last 3 weeks, each time lasting around 3 days...the last 2 weeks I ploughed on through on pain killers, but this week I came home from work and took to my bed. I am hypothyroid, on 150 Levo and have booked a blood test with GP for next
Hello, I'm really fed up today. I've been getting headaches, the last 3 weeks, each time lasting around 3 days...the last 2 weeks I ploughed on through on pain killers, but this week I came home from work and took to my bed. I am hypothyroid, on 150 Levo and have booked a blood test with GP for next
GrowingVeg
in
Thyroid UK
1 year ago
Stopping Cerazette
First time poster, but I’ve taken many tips from this board so thank you all in advance. 2 years ago I doubled over in agony, eventually got sent to A&E via my GP with suspected appendicitis. Wasn’t appendicitis, it was a haemorrhaging ovarian cyst. Sent home with painkillers, had a couple of scans and
First time poster, but I’ve taken many tips from this board so thank you all in advance. 2 years ago I doubled over in agony, eventually got sent to A&E via my GP with suspected appendicitis. Wasn’t appendicitis, it was a haemorrhaging ovarian cyst. Sent home with painkillers, had a couple of scans and
Bookworm3371
in
Endometriosis UK
1 year ago
Toothache and af
Am sitting here with painful toothache and I think I have an abbsess. Can anyone tell me if the numbing injections they give at rhe dentist trigger AF ? or anything else to watch for at rhe dentist. I have a huge fear of dentists and knowing the visit may cause af also is tipping me over the edge.
Am sitting here with painful toothache and I think I have an abbsess. Can anyone tell me if the numbing injections they give at rhe dentist trigger AF ? or anything else to watch for at rhe dentist. I have a huge fear of dentists and knowing the visit may cause af also is tipping me over the edge.
Sunnyann
in
AF Association
1 year ago
Postherpetic Neuralgia and B12
Not directly related to PA, but nonetheless of potential interest to those with PA as well as anyone with Postherpetic Neuralgia. (I currently have PHN and am taking methylcobalamin every day. Alongside capsaicin cream. Difficult to know if it is helping, but I think it is.) [i]
Patterns and Trends
Not directly related to PA, but nonetheless of potential interest to those with PA as well as anyone with Postherpetic Neuralgia. (I currently have PHN and am taking methylcobalamin every day. Alongside capsaicin cream. Difficult to know if it is helping, but I think it is.) [i]
Patterns and Trends
helvella
in
Pernicious Anaemia Society
1 year ago
Topical Treatment for RA Joint Pain
My RA has been fairly well-managed with fortnightly 40ml adalimumab injections and weekly 20mg methotrexate injections for a few months. Since starting these meds together I still get some stiffness in a few joints, but not the pain I used to suffer and so I now consider my symptoms to be manageable.
My RA has been fairly well-managed with fortnightly 40ml adalimumab injections and weekly 20mg methotrexate injections for a few months. Since starting these meds together I still get some stiffness in a few joints, but not the pain I used to suffer and so I now consider my symptoms to be manageable.
Aporiac
in
NRAS
1 year ago
Gabapentin and fibromyalgia
Hi sorry am a bit behind on posting, I am in UK also, was diagnosed with fibro in 2008, although it took about 13years of rheumatology visits and tests for that to happen, I had a severe infection in my left leg and was told I had rheumatoid arthritis after that I was put on methotrexate and cyclosporin
Hi sorry am a bit behind on posting, I am in UK also, was diagnosed with fibro in 2008, although it took about 13years of rheumatology visits and tests for that to happen, I had a severe infection in my left leg and was told I had rheumatoid arthritis after that I was put on methotrexate and cyclosporin
lynn_lunn
in
Fibromyalgia Action UK
1 year ago
Fibromyalgia An Insight
[/i]
[i]Fibromyalgia is not in the
although the
pain
does travel everywhere,but people who think you've lost the plot or mentally ill,should think again before upsetting you.[/i]
[i]Fibromyalgia is internal nerve & electric bio damage.
[/i]
[i]Fibromyalgia is not in the
although the
pain
does travel everywhere,but people who think you've lost the plot or mentally ill,should think again before upsetting you.[/i]
[i]Fibromyalgia is internal nerve & electric bio damage.
Fibroguy66
in
Fibromyalgia Action UK
21 days ago
Advice for self-injecting.
Hello, I am going to experiment with self injecting. Have ordered this off amazon.de: Pascoe® Vitamin B12 Depot Injectopaz 1500 μg 10 x 1 ml Ingredients: 1 ampoule 1 ml contains: active ingredient: hydroxocobalamine acetate 1500 μg. Other ingredients: sodium chloride, water for injection purposes
Hello, I am going to experiment with self injecting. Have ordered this off amazon.de: Pascoe® Vitamin B12 Depot Injectopaz 1500 μg 10 x 1 ml Ingredients: 1 ampoule 1 ml contains: active ingredient: hydroxocobalamine acetate 1500 μg. Other ingredients: sodium chloride, water for injection purposes
DocAJB
in
Pernicious Anaemia Society
1 year ago
Migraines!
Anyone else suffer from these? Yesterday was horrendous. Honestly felt like someone was smashing me in the occipital region with a cricket bat. Of course I'd run out of pain killers. I felt so sick and wobbly, getting to the shop was out of the question. Fortunately a neighbour had some migraleve. I'm
Anyone else suffer from these? Yesterday was horrendous. Honestly felt like someone was smashing me in the occipital region with a cricket bat. Of course I'd run out of pain killers. I felt so sick and wobbly, getting to the shop was out of the question. Fortunately a neighbour had some migraleve. I'm
Blackberrywine
in
NRAS
1 year ago
I'm 22, Male with no previous medical conditions apart from moderate shy bladder syndrome, yet this pain is so bad its ruined my life.
I started turning down plans with friends and basically living a life at home as I just didn’t see the point in going out to do things that no longer made me happy because of the
pain
.
I started turning down plans with friends and basically living a life at home as I just didn’t see the point in going out to do things that no longer made me happy because of the
pain
.
Hal_M
in
Pelvic Pain Support Network
1 year ago
Digestive/heart Issues?
digestive issues about 3 years ago (unsure if it was related to anxiety) they went on for about 1 year then completely went away felt great for about 2 years and 1 month ago they’ve come back (exact same symptoms however I’m much more anxious this time) My symptoms are -pressure in chest and my
head
digestive issues about 3 years ago (unsure if it was related to anxiety) they went on for about 1 year then completely went away felt great for about 2 years and 1 month ago they’ve come back (exact same symptoms however I’m much more anxious this time) My symptoms are -pressure in chest and my
head
Ollie12345678
in
British Heart Foundation
8 months ago
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