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The Rheumatology Saga Continues!
UPDATE..... Was offered an NHS Rheumatologist appointment today due to a late cancellation and I thought I'd take it rather than wait until February to see my Benenden Rheumatologist. I met a Dr Chung and he was absolutely lovely.....spent 45 mins running me through everything and checking my results
UPDATE..... Was offered an NHS Rheumatologist appointment today due to a late cancellation and I thought I'd take it rather than wait until February to see my Benenden Rheumatologist. I met a Dr Chung and he was absolutely lovely.....spent 45 mins running me through everything and checking my results
Paulx222
in
PMRGCAuk
8 months ago
Coping in the heat
Hi, i have finally got a diagnosis of ET and have started on pegasys, fourth injection this week. It has been warm here the last couple of days and I have found work to be extremely exhausting. Does anyone else suffer in the heat? I work in a lab so need to wear a labcoat. I have asked for an occupational
Hi, i have finally got a diagnosis of ET and have started on pegasys, fourth injection this week. It has been warm here the last couple of days and I have found work to be extremely exhausting. Does anyone else suffer in the heat? I work in a lab so need to wear a labcoat. I have asked for an occupational
Scarlett500
in
MPN Voice
1 year ago
Pattern Glare
Does anyone else get this? It's the proper term ( learnt from pink vision Headway) It's one of the things I now live with . Supermarket syndrome ( cherylclair posted) Part of it too. It has improved but as I'm 'appearing ' more 'normal 'sorts the chaff from the wheat with understanding of how debilitating
Does anyone else get this? It's the proper term ( learnt from pink vision Headway) It's one of the things I now live with . Supermarket syndrome ( cherylclair posted) Part of it too. It has improved but as I'm 'appearing ' more 'normal 'sorts the chaff from the wheat with understanding of how debilitating
Nackapan
in
Pernicious Anaemia Society
1 year ago
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help- terrified
hi- 2 years into pmr. Travelled to Salzburg end of October- got col/virus this year. Developed cough- on second antibiotics. Down to 2mg pred- no aches 🎉. However mental health not good. Being sent for chest x ray day after I finish antibiotics. I have convinced myself I have lung cancer. Gave up smoking
hi- 2 years into pmr. Travelled to Salzburg end of October- got col/virus this year. Developed cough- on second antibiotics. Down to 2mg pred- no aches 🎉. However mental health not good. Being sent for chest x ray day after I finish antibiotics. I have convinced myself I have lung cancer. Gave up smoking
Fiddlemum
in
PMRGCAuk
8 months ago
Hyperinflated lungs
Hi everyone, new here, I'm in the UK. I recently had a chest x ray and was very surprised to here the results I am asthmatic, I do smoke but have managed to cut fine to 6 roll ups a day, I had done this before my chest x ray. Saw the Dr 2 weeks after the x ray and he just said my lungs are hyper inflated
Hi everyone, new here, I'm in the UK. I recently had a chest x ray and was very surprised to here the results I am asthmatic, I do smoke but have managed to cut fine to 6 roll ups a day, I had done this before my chest x ray. Saw the Dr 2 weeks after the x ray and he just said my lungs are hyper inflated
Katoune
in
Lung Conditions Community Forum
8 months ago
curious!
Good morning! I am doing so well on prednisone 6mg. I can’t believe the difference after being tapered too quickly and being on only Advil. I have latent TB and have to start a medication for that for 4 months. Apparently, this med will decrease the effects of prednisone! Ugh! Any thoughts?
Good morning! I am doing so well on prednisone 6mg. I can’t believe the difference after being tapered too quickly and being on only Advil. I have latent TB and have to start a medication for that for 4 months. Apparently, this med will decrease the effects of prednisone! Ugh! Any thoughts?
Curry_girl
in
PMRGCAuk
1 year ago
Recurring chest infections and phlegmy cough
Hi, I have had asthma since I was a teenager and excema all my life. I am 57 years old. For most of my life, I have managed my asthma well. I was very sporty in my youth playing squash, badminton and tennis. I could go for very long walks with my dogs up until about 18mths ago. So I have always regarded
Hi, I have had asthma since I was a teenager and excema all my life. I am 57 years old. For most of my life, I have managed my asthma well. I was very sporty in my youth playing squash, badminton and tennis. I could go for very long walks with my dogs up until about 18mths ago. So I have always regarded
Teach66
in
Asthma Community Forum
8 months ago
Rant time
Hey, I hope you're all keeping okUnfortunately, I've been hit by the doctors strike regarding my impending surgery to rectify the macular hole in my left eye. My consultant appointment has been cancelled on 15th August. However the ultrasound appointment, scheduled the same day is still going ahead
Hey, I hope you're all keeping okUnfortunately, I've been hit by the doctors strike regarding my impending surgery to rectify the macular hole in my left eye. My consultant appointment has been cancelled on 15th August. However the ultrasound appointment, scheduled the same day is still going ahead
Gulfstream_Maggie
in
Fibromyalgia Action UK
1 year ago
Terrified I have PBC
hi, I saw a consultant today as was told my bloods flagged for an autoimmune disease marker which I now know to be AMA positive, I only know this as all the urgent blood test forms I have for Tommorrow state I tested positive for this. i have looked up all the blood tests and most are liver related
hi, I saw a consultant today as was told my bloods flagged for an autoimmune disease marker which I now know to be AMA positive, I only know this as all the urgent blood test forms I have for Tommorrow state I tested positive for this. i have looked up all the blood tests and most are liver related
Kelpop1
in
PBC Foundation
1 year ago
2 years post-thyroidectomy - Struggling with Tirosint and finding the right dose
Hi, To make a long storyshort, after a sever hyperthyroidism and toxic goiter, I got my thyroid removed 2 years ago. I started with Levothyroxine - 88mg , went to hypo so my doctor increased it to 4x100mg 3x88mg. I then went to hyper in less than 2 weeks during 2 months. As I also experience very
Hi, To make a long storyshort, after a sever hyperthyroidism and toxic goiter, I got my thyroid removed 2 years ago. I started with Levothyroxine - 88mg , went to hypo so my doctor increased it to 4x100mg 3x88mg. I then went to hyper in less than 2 weeks during 2 months. As I also experience very
Sophie4506
in
Thyroid UK
1 year ago
Hydroxychloroquine
Hi, I have Sjogrens disease and the Hydroxychloroquine really helps me. It has been like a miracle drug for me actually. My immune system is very strong. I haven’t had a any problems with it. It has definitely helped with my raynauds and my stiffness in my hands and fingers as well.
Hi, I have Sjogrens disease and the Hydroxychloroquine really helps me. It has been like a miracle drug for me actually. My immune system is very strong. I haven’t had a any problems with it. It has definitely helped with my raynauds and my stiffness in my hands and fingers as well.
Juanburr1950
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Serious Dry Eyes
Recently saw my ophthalmologist and I was told I have the worst dry eyes he’s ever seen. I have been using eye drops but now I am seriously using eye drops…Refresh eye drops 6x during the day, prednisone drops 2x a day, gel drops at night, moist heat eye compress 1x a day, new humidifier plus I have
Recently saw my ophthalmologist and I was told I have the worst dry eyes he’s ever seen. I have been using eye drops but now I am seriously using eye drops…Refresh eye drops 6x during the day, prednisone drops 2x a day, gel drops at night, moist heat eye compress 1x a day, new humidifier plus I have
MaryAZ
in
My MSAA Community
1 year ago
advise required
I am blind in my left eye it has a pressure reading of 36. I am taking Maxidex and azopt which makes my eye sting. I use a heat pad after using the computer which helps . Can I use the heat pad before putting the eye drops in? will this reduce the stinging?
I am blind in my left eye it has a pressure reading of 36. I am taking Maxidex and azopt which makes my eye sting. I use a heat pad after using the computer which helps . Can I use the heat pad before putting the eye drops in? will this reduce the stinging?
Lucydog
in
Glaucoma UK
1 year ago
Ganfort Preservative Free Eye Drop Side Effects
Hi all, Anyone here using Ganfort PF? I tried it one day it’s very effective but my eye red for whole day!🤦🏻♂️🤦🏻♂️🤦🏻♂️🤦🏻♂️ Just to check will the redness go away?😂😂😂
Hi all, Anyone here using Ganfort PF? I tried it one day it’s very effective but my eye red for whole day!🤦🏻♂️🤦🏻♂️🤦🏻♂️🤦🏻♂️ Just to check will the redness go away?😂😂😂
RonOng5267
in
Glaucoma UK
1 year ago
EMDR therapy what is it and dose it help
I'm curious about EMDR therapy and if it's a direction I should go in?
I'm curious about EMDR therapy and if it's a direction I should go in?
LostNormality
in
Anxiety and Depression Support
6 months ago
Respiratory Physiology
Hello I am hoping to start a new medication after being on Rituxumab for a few years. Blood checks all ok , but had to have a Chest X-Ray as not had one done for a while, so recently had this done and assumed it would be ok. In work on Friday, and i get a text to say I've been booked an appointment
Hello I am hoping to start a new medication after being on Rituxumab for a few years. Blood checks all ok , but had to have a Chest X-Ray as not had one done for a while, so recently had this done and assumed it would be ok. In work on Friday, and i get a text to say I've been booked an appointment
3LittleBirds2
in
NRAS
8 months ago
Pneumonia
Hi. I had my follow up chest x-ray for pneumonia 3 weeks ago and the good news is that it's come back clear. I'm really pleased but I'm still coughing at night and feel a bit breathless in the mornings. I told the doctor when he rang me with the results and he said, the infection has gone but lungs take
Hi. I had my follow up chest x-ray for pneumonia 3 weeks ago and the good news is that it's come back clear. I'm really pleased but I'm still coughing at night and feel a bit breathless in the mornings. I told the doctor when he rang me with the results and he said, the infection has gone but lungs take
Scooby1967
in
Lung Conditions Community Forum
8 months ago
Myrtle 22
Hi, my consultant wants me to have a Trabeculectomy because my field test is not good, but, my pressures are only 10 and 11 in each eye. Has anyone else had a suggestion like this? I am worried my pressure will go too low and create more problems. Thanks
Hi, my consultant wants me to have a Trabeculectomy because my field test is not good, but, my pressures are only 10 and 11 in each eye. Has anyone else had a suggestion like this? I am worried my pressure will go too low and create more problems. Thanks
Myrtle22
in
Glaucoma UK
1 year ago
Eye strain
Hi could anyone help me with this problem I have been getting the feeling that my eyes are strained and sensitive to light would this be related to thyroid problems I have had surgery to remove the right side of my thyroid and I am not currently taken any meds for this ?
Hi could anyone help me with this problem I have been getting the feeling that my eyes are strained and sensitive to light would this be related to thyroid problems I have had surgery to remove the right side of my thyroid and I am not currently taken any meds for this ?
Rocksonfire
in
Thyroid UK
1 year ago
Mini Stroke Post Heart Attack
Hi folks Was just wondering if this has happened to anyone? I’ve had a couple of “funny turns” recently and a particularly bad one on Thursday evening which ironically was exactly one year to the day since my HA. Ended up in A&E all night getting various tests. ECG, bloods x 2 (initial troponin
Hi folks Was just wondering if this has happened to anyone? I’ve had a couple of “funny turns” recently and a particularly bad one on Thursday evening which ironically was exactly one year to the day since my HA. Ended up in A&E all night getting various tests. ECG, bloods x 2 (initial troponin
ROBBO36
in
British Heart Foundation
9 months ago
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