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Haemolytic anaemia
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Anyone used Vitex (Agnus castus/chasteberry) and did it help or aggravate RLS?
Having heavy n prolonged periods so was researching solutions. Came across Vitex (to balance out hormones) but no idea if it's safe for RLS because when I googled Vitex RLS I read something about it affecting dopamine receptors? Has anyone used this for their periods or any other issue, or can advise
Having heavy n prolonged periods so was researching solutions. Came across Vitex (to balance out hormones) but no idea if it's safe for RLS because when I googled Vitex RLS I read something about it affecting dopamine receptors? Has anyone used this for their periods or any other issue, or can advise
ejaji
in
Restless Legs Syndrome
3 years ago
Update 5.9
The journey with Pegasys continues to go well. I continue to have no side effects at 45mcg/week. All CMP numbers look good. No sign of any issues with kidneys or liver. The CBC numbers look really good RBC = 6.0 - WNL HGB = 13.3 - WNL HCT = 42.1 - WNL - at goal and dropping a bit every 4 weeks.
The journey with Pegasys continues to go well. I continue to have no side effects at 45mcg/week. All CMP numbers look good. No sign of any issues with kidneys or liver. The CBC numbers look really good RBC = 6.0 - WNL HGB = 13.3 - WNL HCT = 42.1 - WNL - at goal and dropping a bit every 4 weeks.
hunter5582
in
MPN Voice
3 years ago
Advice please from fellow suffers.
I have been having B12 injections for nearly 18months and due to failing the battle with my Dr to have them more frequently beause of my ongoing symptoms I am now self injecting. I am waiting to be see by a neurologist which could take monthsto be seen and most certainly wont be this side of Christmas
I have been having B12 injections for nearly 18months and due to failing the battle with my Dr to have them more frequently beause of my ongoing symptoms I am now self injecting. I am waiting to be see by a neurologist which could take monthsto be seen and most certainly wont be this side of Christmas
Jillymo
in
Pernicious Anaemia Society
3 years ago
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Iron Supplements for those very sensitive to gluten
Hi, I'm being prescribed iron supplement (ferrous sulphate). GP assures me it is gluten free but GPs and Pharmacists don't understand gluten in ingredients. The pharmacy is not answering their phone when I call to find out the brands they have so I can do my own check. Any pharmacy prescribed brands
Hi, I'm being prescribed iron supplement (ferrous sulphate). GP assures me it is gluten free but GPs and Pharmacists don't understand gluten in ingredients. The pharmacy is not answering their phone when I call to find out the brands they have so I can do my own check. Any pharmacy prescribed brands
Hidden
in
Gluten Free Guerrillas
3 years ago
Covid-19 positive
I received my third Pfizer vaccination shot on 8-16-21. I confirmed my antibodies in September with the Labcorp test, 164090. My score was 388. Not the highest but antibodies were present . I got sick 11-1-21, tested positive 11-2. I received an antibody infusion on 11-3. I started to feel better about
I received my third Pfizer vaccination shot on 8-16-21. I confirmed my antibodies in September with the Labcorp test, 164090. My score was 388. Not the highest but antibodies were present . I got sick 11-1-21, tested positive 11-2. I received an antibody infusion on 11-3. I started to feel better about
DUKELAXDAD
in
CLL Support
3 years ago
Blood test results
I suspected that my ferritin was low again, but the lab and doctors say it is normal. If you remember, I had an iron infusion a year ago resulting in my level being very high, above range. Please may I have an interpretation of that and other tests.
I suspected that my ferritin was low again, but the lab and doctors say it is normal. If you remember, I had an iron infusion a year ago resulting in my level being very high, above range. Please may I have an interpretation of that and other tests.
Pastelart
in
Thyroid UK
3 years ago
Coloured lights in eye
Does anyone get coloured lights in the eye associated with GCA? I'm not talking about the "scintillating scotoma" or visual migraine (have had several of those over the past 15 years) but rather a large yellow blob which runs up the side of the eye on the side towards the nose. Most noticeable in the
Does anyone get coloured lights in the eye associated with GCA? I'm not talking about the "scintillating scotoma" or visual migraine (have had several of those over the past 15 years) but rather a large yellow blob which runs up the side of the eye on the side towards the nose. Most noticeable in the
podo
in
PMRGCAuk
3 years ago
The struggle for injections continues!
The only way to contact my surgery is now through the Ask my GP website. I do self inject weekly with b12 I using my own supplies which I haven’t told them about. I have also been receiving b12 for self injecting from the surgery at an ever decreasing amount as they keep saying I only need to have
The only way to contact my surgery is now through the Ask my GP website. I do self inject weekly with b12 I using my own supplies which I haven’t told them about. I have also been receiving b12 for self injecting from the surgery at an ever decreasing amount as they keep saying I only need to have
Showgem
in
Pernicious Anaemia Society
3 years ago
New and seeking advice re iron and vitamin D
Hello. I have had RLS most of my life (now 65yrs old), and it is pretty severe. I have never taken any medication, but I have tried most complementary approaches (magnesium, massage, etc.). At the moment it is worst during the day and in the evening. A parent had hemachromatosis, so I have just had my
Hello. I have had RLS most of my life (now 65yrs old), and it is pretty severe. I have never taken any medication, but I have tried most complementary approaches (magnesium, massage, etc.). At the moment it is worst during the day and in the evening. A parent had hemachromatosis, so I have just had my
Tildabri
in
Restless Legs Syndrome
3 years ago
B12 Dosage and Tablets whilst injecting for vegans?
Our parents live in Europe and are B12 deficient (130pgml 77 years / 210pgml 70 years old vegans). GP told them that the levels are fine (slightly low), that at max they will be a bit lethargic, but that's OK. One is unable to look up (as he gets dizzy and feels sick) and both have vertigo. One of them
Our parents live in Europe and are B12 deficient (130pgml 77 years / 210pgml 70 years old vegans). GP told them that the levels are fine (slightly low), that at max they will be a bit lethargic, but that's OK. One is unable to look up (as he gets dizzy and feels sick) and both have vertigo. One of them
130PGML
in
Pernicious Anaemia Society
3 years ago
Vitamin advice
I know from here that multi vitamins are generally no good I wondered what the experts think to these Alive woman’s energy vitamins please? I currently take vitamins D, K, C, magnesium and selenium, but wouldn’t mind trying something for an extra energy boost! In addition to the photo, they also contain
I know from here that multi vitamins are generally no good I wondered what the experts think to these Alive woman’s energy vitamins please? I currently take vitamins D, K, C, magnesium and selenium, but wouldn’t mind trying something for an extra energy boost! In addition to the photo, they also contain
CornishChick
in
Thyroid UK
3 years ago
Where to but injectable B12 in the UK
I was diagnosed in Apr 2018. I bought extra injections from Germany and I have ran out. I get 1 injection every 6 weeks prescribed by my GP but self injected. Can anyone tell me where I can buy more. The b12 I am using is neo-cytamen 1000micrograms/1ml or hydroxocobalamin 1mg/1ml. Can anyone recommend
I was diagnosed in Apr 2018. I bought extra injections from Germany and I have ran out. I get 1 injection every 6 weeks prescribed by my GP but self injected. Can anyone tell me where I can buy more. The b12 I am using is neo-cytamen 1000micrograms/1ml or hydroxocobalamin 1mg/1ml. Can anyone recommend
area16rep
in
Pernicious Anaemia Society
3 years ago
Blood test
Wonder if anyone can help with these Ferritin. 64. Range. 144-156 Redblood. 3,38. 3.80-5.30 Haemoglobin 109. 120-150 Haematocrit 0.32. 0.37-0.45 MCH. 32.2. 27.0-32.0 These are marked abnormal. Just wondered what I can do to help. I get so achy and tired with
Wonder if anyone can help with these Ferritin. 64. Range. 144-156 Redblood. 3,38. 3.80-5.30 Haemoglobin 109. 120-150 Haematocrit 0.32. 0.37-0.45 MCH. 32.2. 27.0-32.0 These are marked abnormal. Just wondered what I can do to help. I get so achy and tired with
Gcart
in
Thyroid UK
3 years ago
B12 Deficient.
Hi, I've been diagnosed with B12 deficiency and I'd like to know what options are available to me as far as buying and self-administering injections goes. What is the estimated cost and are there likely to be any side effects? Thanks in advance.
Hi, I've been diagnosed with B12 deficiency and I'd like to know what options are available to me as far as buying and self-administering injections goes. What is the estimated cost and are there likely to be any side effects? Thanks in advance.
Hidden
in
Pernicious Anaemia Society
3 years ago
Advice re blood test and taking tablets please
Hi I will be having my second blood test soon and I am aware that I should not take my levothyroxin before it. I am taking it at 6.20 am but my blood test is at 8.45 can I take it after this or should I just miss that days dose ? Also could someone be kind enough to tell me what I do about the vitamins
Hi I will be having my second blood test soon and I am aware that I should not take my levothyroxin before it. I am taking it at 6.20 am but my blood test is at 8.45 can I take it after this or should I just miss that days dose ? Also could someone be kind enough to tell me what I do about the vitamins
Mst27
in
Thyroid UK
3 years ago
Just an update
Hi All! I had a heart cath, yesterday, and my left arterial descending artery was 98% blocked! There were actually two blockages, one dislodged and broke up when he attempted to place the stent. The pieces then flowed to the next blockage. That one was successfully stented. I am so very grateful that
Hi All! I had a heart cath, yesterday, and my left arterial descending artery was 98% blocked! There were actually two blockages, one dislodged and broke up when he attempted to place the stent. The pieces then flowed to the next blockage. That one was successfully stented. I am so very grateful that
Wewo01
in
MPN Voice
3 years ago
Can anyone give me a steer on my blood results?
Following on from the post below, and advice from SlowDragon and SeasideSusie, I have now been taking: - 125mcg levo 6 days a week, 100mcg 1 day a week to give 121.4mcg avg a day - 25mcg lio every day. - upped my vitamin d to 5,000iu daily - restarted thorne basic b 1 x daily - did an Iron panel and it showed
Following on from the post below, and advice from SlowDragon and SeasideSusie, I have now been taking: - 125mcg levo 6 days a week, 100mcg 1 day a week to give 121.4mcg avg a day - 25mcg lio every day. - upped my vitamin d to 5,000iu daily - restarted thorne basic b 1 x daily - did an Iron panel and it showed
jsy_girl
in
Thyroid UK
3 years ago
Abnormal bloodwork
Hi all, I have decided to see a different Hematologist. Bloodwork was done and I don't know what to think. RBC low 3.75 HCT low 36.4% MCH high 33.7 MPV low 7.3 Lymphs high 41% Baso high 3% Chloride low 97 mEq/L Uric Acid high 7.3 mg
Hi all, I have decided to see a different Hematologist. Bloodwork was done and I don't know what to think. RBC low 3.75 HCT low 36.4% MCH high 33.7 MPV low 7.3 Lymphs high 41% Baso high 3% Chloride low 97 mEq/L Uric Acid high 7.3 mg
Wilma66
in
MPN Voice
3 years ago
Please help, severe abdomen muscles pain
I have injected for six months with variable frequency. I was getting better since last year September after probably megaloblastic RBC and all if it's symptoms and taking seven months taking B12 pills, U switched to injection and after almost one year now I found I had to take iron pills too. Then severe
I have injected for six months with variable frequency. I was getting better since last year September after probably megaloblastic RBC and all if it's symptoms and taking seven months taking B12 pills, U switched to injection and after almost one year now I found I had to take iron pills too. Then severe
Hamayeshguy
in
Pernicious Anaemia Society
3 years ago
Pneumococcal vaccine and 5 year booster
Just interested to find out if others with limited systemic sclerosis (taking mycophenolate) have a 5 year booster for their pneumococcal vaccine. Thanks.
Just interested to find out if others with limited systemic sclerosis (taking mycophenolate) have a 5 year booster for their pneumococcal vaccine. Thanks.
cowhide
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
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