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Haemolytic anaemia
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Peg injections - two in one day
Hi all, I’m on peginterferon Alfa-2a for ET and a few weeks ago my dose was increased to 180mg. The hospital pharmacy deliver my medication and I can only assume they’ve ran out of 180mg syringes as I’ve been sent about 8 boxes of 90mg pre filled syringes meaning I’m expected to do 2 injections after
Hi all, I’m on peginterferon Alfa-2a for ET and a few weeks ago my dose was increased to 180mg. The hospital pharmacy deliver my medication and I can only assume they’ve ran out of 180mg syringes as I’ve been sent about 8 boxes of 90mg pre filled syringes meaning I’m expected to do 2 injections after
FashionLover
in
MPN Voice
2 years ago
COVID after Evusheld
I just got a positive pcr COVID test. I received my Evusheld injections March 22nd. So far I’m not symptomatic. We have a free testing program in our city and I get tested once a week. Has anyone gotten COVID after Evusheld? I have no antibodies from the vaccines and one booster.
I just got a positive pcr COVID test. I received my Evusheld injections March 22nd. So far I’m not symptomatic. We have a free testing program in our city and I get tested once a week. Has anyone gotten COVID after Evusheld? I have no antibodies from the vaccines and one booster.
Walt424
in
CLL Support
2 years ago
Aquagenic pruritus/Polycythemia
Hello, I have recently started having severe itching (like prickling/burning) after showering. Initially I thought there was something in the water but after eliminating this possibility, I did some research and came across aquagenic pruritus. I am really scared since I read it is a specific symptom
Hello, I have recently started having severe itching (like prickling/burning) after showering. Initially I thought there was something in the water but after eliminating this possibility, I did some research and came across aquagenic pruritus. I am really scared since I read it is a specific symptom
Gotroot
in
MPN Voice
2 years ago
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Stool test
I have in the past had iron deficiency anemia from having an ulcer. That has now been treated but at my last blood tests, my ferratin level was lower than it should be. My doctor said it was unlikely to be my anaemia back as my iron count was within normal levels. It was my stored iron that was low
I have in the past had iron deficiency anemia from having an ulcer. That has now been treated but at my last blood tests, my ferratin level was lower than it should be. My doctor said it was unlikely to be my anaemia back as my iron count was within normal levels. It was my stored iron that was low
Windyspinsthewind
in
NRAS
2 years ago
Changing result for intrinsic factor antibody blood test
Why does Intrinsic factor test result change? Does anybody know what makes the abs come and go? I had negative then + result then negative again the day after B12 injection. I was expecting a + result after reading forum posts about high B12 causing false positive IFAB. I'm so confused, I have anti
Why does Intrinsic factor test result change? Does anybody know what makes the abs come and go? I had negative then + result then negative again the day after B12 injection. I was expecting a + result after reading forum posts about high B12 causing false positive IFAB. I'm so confused, I have anti
Aumshantii
in
Pernicious Anaemia Society
2 years ago
Low ferritin & Hypothyroidism
Low ferritin & Hypothyroidism Has anyone sufficiently raised their iron levels through diet alone? I have heavy periods and am struggling to raise my iron levels, no sooner to they go up a little they bounce back down again. Iron supplements tend to upset my tummy and make me feel more drained. Any
Low ferritin & Hypothyroidism Has anyone sufficiently raised their iron levels through diet alone? I have heavy periods and am struggling to raise my iron levels, no sooner to they go up a little they bounce back down again. Iron supplements tend to upset my tummy and make me feel more drained. Any
Ruth47
in
Thyroid UK
2 years ago
B12 deficiency, IFab negative, oral cyanocobalamine not working... what's the cause of deficiency?
Hi, I'm new here, just looking for any insight on my situation to try and figure out the cause of my b12 deficiency... For a little background: I'm 32, female. I first became aware of low b12 levels in mid 2020. I'd had 3 highly stressful years and was left feeling awful with anxiety, ear fullness
Hi, I'm new here, just looking for any insight on my situation to try and figure out the cause of my b12 deficiency... For a little background: I'm 32, female. I first became aware of low b12 levels in mid 2020. I'd had 3 highly stressful years and was left feeling awful with anxiety, ear fullness
Purpleturtle21
in
Pernicious Anaemia Society
2 years ago
Serum transferrin too high
Hello there, I haven't posted for a while as I am fine. Since taking T3 all my various ailments have disappeared on the whole. Very fortunate as since my husband died during the first lockdown, it is just me with 3 children. This is about my daughter, 14, very tired, put on 2 1/2 stone in 2 years
Hello there, I haven't posted for a while as I am fine. Since taking T3 all my various ailments have disappeared on the whole. Very fortunate as since my husband died during the first lockdown, it is just me with 3 children. This is about my daughter, 14, very tired, put on 2 1/2 stone in 2 years
Donutlight
in
Thyroid UK
2 years ago
High active b12 a problem?
Haemoglobin 122, red blood cell width 18.9%, MCV 77.6, MCH24.4, MCHC 314g/l Ferritin 18ug/l Folate 9.9 Vit D 106 B12- 1600(supplementing) Transferrin saturation,7.91 Iron 6.1 Can anyone tell me what these results mean please? Anemia? How do I get b12 level lower, I have anxiety and insomnia. Is this
Haemoglobin 122, red blood cell width 18.9%, MCV 77.6, MCH24.4, MCHC 314g/l Ferritin 18ug/l Folate 9.9 Vit D 106 B12- 1600(supplementing) Transferrin saturation,7.91 Iron 6.1 Can anyone tell me what these results mean please? Anemia? How do I get b12 level lower, I have anxiety and insomnia. Is this
Mintymoomoo
in
Pernicious Anaemia Society
2 years ago
Still intolerance for jab
I take 15000 mcg a day slow release methylcobalamine pills and inject every other day hydroxocobalamin and the next day cyanocobalamin. But I found that I can't tolerate that frequency. The other interesting thing is the difference between hydroxocobalamin and cyanocobalamin. Hydroxocobalamin sting at
I take 15000 mcg a day slow release methylcobalamine pills and inject every other day hydroxocobalamin and the next day cyanocobalamin. But I found that I can't tolerate that frequency. The other interesting thing is the difference between hydroxocobalamin and cyanocobalamin. Hydroxocobalamin sting at
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
Medichecks Pernicious Anaemia Test
Hi, Just wondering whether anyone here has had the medichecks test done to see if they have Pernicous Anaemia? I have Hashimotos, and my B12 level at my last blood test was 343 (180-900) I'm not getting very far with my GP at the moment, so looking at private testing. Would be interested to hear others
Hi, Just wondering whether anyone here has had the medichecks test done to see if they have Pernicous Anaemia? I have Hashimotos, and my B12 level at my last blood test was 343 (180-900) I'm not getting very far with my GP at the moment, so looking at private testing. Would be interested to hear others
Chasing-rainbows
in
Pernicious Anaemia Society
2 years ago
How MTHFR mutation can affect cyanocobalamin injection?
Does MTHFR mutation affects enzymes related to cyanocobalamin processing after injection. What ethnicity have more MTHFR mutation? Is there any other mutation affects cyanocobalamin injection required enzymes for processing.
Does MTHFR mutation affects enzymes related to cyanocobalamin processing after injection. What ethnicity have more MTHFR mutation? Is there any other mutation affects cyanocobalamin injection required enzymes for processing.
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
How to know I'm not with MTHFR mutation person?
In case if being MTHFR mutation person is that possible still inject cyanocobalamin and symptoms get improved or we need inject cyanocobalamin? Obviously folic acid can't get processed in such a mutation
In case if being MTHFR mutation person is that possible still inject cyanocobalamin and symptoms get improved or we need inject cyanocobalamin? Obviously folic acid can't get processed in such a mutation
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
BLOOD TEST RESULTS FROM 22/02/2022 taken at 7.45AM
Hi all, once again could you knowledgeable people please pass comment on my most recent results. Unfortunately due to dr requesting follow up test within two months the lab has rejected some of the tests, annoyingly, I wanted to know if my vitamin intake and iron tablets may have improved my ferritin
Hi all, once again could you knowledgeable people please pass comment on my most recent results. Unfortunately due to dr requesting follow up test within two months the lab has rejected some of the tests, annoyingly, I wanted to know if my vitamin intake and iron tablets may have improved my ferritin
DarkHorseJen
in
Thyroid UK
2 years ago
Action Plan going forward and are these supplements ok?
Hi, Just an update, I am booked in for a phone consult with my GP later this week, so I am hoping to ask to be re-prescribed levo due to TPO antibodies >1300, TSH 4.65, FT4 13.6 and FT3 4.6. If GP won't re-prescribe it, I am going to ask them to contact Gynae (who I am on a waiting list to see due to
Hi, Just an update, I am booked in for a phone consult with my GP later this week, so I am hoping to ask to be re-prescribed levo due to TPO antibodies >1300, TSH 4.65, FT4 13.6 and FT3 4.6. If GP won't re-prescribe it, I am going to ask them to contact Gynae (who I am on a waiting list to see due to
Chasing-rainbows
in
Thyroid UK
2 years ago
MMA and iFAB tests
Hello, My question is about reference ranges for iFAB and MMA tests. My MMA was 26.8 ug/l and the reference says >32 is an issue. My iFAB was 1 AU/ml and the reference range is >1.2 is an issue. I’m just wondering how these cut-off points are set e.g. did somebody in the lab just decide that results
Hello, My question is about reference ranges for iFAB and MMA tests. My MMA was 26.8 ug/l and the reference says >32 is an issue. My iFAB was 1 AU/ml and the reference range is >1.2 is an issue. I’m just wondering how these cut-off points are set e.g. did somebody in the lab just decide that results
Sparklyjenson
in
Pernicious Anaemia Society
2 years ago
Test for Unsaturated B12 Binding Capacity (UBBC)?
I'm in the UK and have read with interest a few posts on this forum about people who were given the UBBC blood test to identify whether issues with transcobalamin II are the cause of their B12 deficiency (I think that's how it has been used if I have understood it correctly). As someone with unexplained
I'm in the UK and have read with interest a few posts on this forum about people who were given the UBBC blood test to identify whether issues with transcobalamin II are the cause of their B12 deficiency (I think that's how it has been used if I have understood it correctly). As someone with unexplained
theverytiredperson
in
Pernicious Anaemia Society
2 years ago
Functional B12 Deficiency?
I think I read here that you can have a normal serum B12 result but be deficient if the B12 is not getting through to the cells. I have always received copies of my blood test results so I know that in theory I am definitely not deficient as my last test in October 2021 was 698 (197-771) but I feel
I think I read here that you can have a normal serum B12 result but be deficient if the B12 is not getting through to the cells. I have always received copies of my blood test results so I know that in theory I am definitely not deficient as my last test in October 2021 was 698 (197-771) but I feel
flibertygibert
in
Pernicious Anaemia Society
2 years ago
SUCCESS!!!
Hi all. I just spoke to my primary who is a PA and very kind to me within the clinic that stopped my injections. Of course they were claiming I might have b12 toxicity🙄 Anyway, I had written down all I wanted to say and explained there is no evidence in any medical journal that supports toxicity. He
Hi all. I just spoke to my primary who is a PA and very kind to me within the clinic that stopped my injections. Of course they were claiming I might have b12 toxicity🙄 Anyway, I had written down all I wanted to say and explained there is no evidence in any medical journal that supports toxicity. He
Wowo23
in
Pernicious Anaemia Society
2 years ago
Antivirals
Hi All, I tested positive on Wednesday via LFT so sent my priority pcr which came back Thursday as positive. Told I would be called within 24 hours regarding anti virals. 40 hours goes by and nothing. I then called my GP who said no point calling us you need to call 111. So I called 111 and after another
Hi All, I tested positive on Wednesday via LFT so sent my priority pcr which came back Thursday as positive. Told I would be called within 24 hours regarding anti virals. 40 hours goes by and nothing. I then called my GP who said no point calling us you need to call 111. So I called 111 and after another
DeanSamson
in
Asthma Community Forum
2 years ago
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